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One Brave Little Boy

Our 11 year old son Jack, is suffering from a muscle disease of "unknown etiology." After years of extensive medical testing we still do not have a diagnosis. This is his story. Look inside to find an incredible story about an extraordinary little boy. He's My Son" by Mark Shultz. He's My Son"-PLAY while reading blog. Thursday, July 17, 2014. My heart breaks for him. He just wants to be a normal 11 year old. Is that too much to ask? For those that come to me WITHOUT judgment and ask how can I help? Notes...

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One Brave Little Boy | hopeforjack.blogspot.com Reviews
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Our 11 year old son Jack, is suffering from a muscle disease of unknown etiology. After years of extensive medical testing we still do not have a diagnosis. This is his story. Look inside to find an incredible story about an extraordinary little boy. He's My Son by Mark Shultz. He's My Son-PLAY while reading blog. Thursday, July 17, 2014. My heart breaks for him. He just wants to be a normal 11 year old. Is that too much to ask? For those that come to me WITHOUT judgment and ask how can I help? Notes...
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One Brave Little Boy | hopeforjack.blogspot.com Reviews

https://hopeforjack.blogspot.com

Our 11 year old son Jack, is suffering from a muscle disease of "unknown etiology." After years of extensive medical testing we still do not have a diagnosis. This is his story. Look inside to find an incredible story about an extraordinary little boy. He's My Son" by Mark Shultz. He's My Son"-PLAY while reading blog. Thursday, July 17, 2014. My heart breaks for him. He just wants to be a normal 11 year old. Is that too much to ask? For those that come to me WITHOUT judgment and ask how can I help? Notes...

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hopeforjack.blogspot.com hopeforjack.blogspot.com
1

One Brave Boy: Great Insight and hope for parents with chronically ill kids

http://www.hopeforjack.blogspot.com/2013/10/great-insight-and-hope-for-parents-with.html

Our 13 year old son Jack, is suffering from a muscle disease of "unknown etiology." After years of extensive medical testing we still do not have a diagnosis. This is his story. Look inside to find an incredible story about an extraordinary little boy. He's My Son" by Mark Shultz. He's My Son"-PLAY while reading blog. Wednesday, October 16, 2013. Great Insight and hope for parents with chronically ill kids. Http:/ barrentoblessed.wordpress.com/2013/06/19/dear-parent-of-sick-child/.

2

One Brave Boy: #musclediseasessuck

http://www.hopeforjack.blogspot.com/2014/07/musclediseasessuck_17.html

Our 13 year old son Jack, is suffering from a muscle disease of "unknown etiology." After years of extensive medical testing we still do not have a diagnosis. This is his story. Look inside to find an incredible story about an extraordinary little boy. He's My Son" by Mark Shultz. He's My Son"-PLAY while reading blog. Thursday, July 17, 2014. My heart breaks for him. He just wants to be a normal 11 year old. Is that too much to ask? Subscribe to: Post Comments (Atom). Syndromes Without A Name.

3

One Brave Boy: Special Kids

http://www.hopeforjack.blogspot.com/2012/04/special-kids.html

Our 13 year old son Jack, is suffering from a muscle disease of "unknown etiology." After years of extensive medical testing we still do not have a diagnosis. This is his story. Look inside to find an incredible story about an extraordinary little boy. He's My Son" by Mark Shultz. He's My Son"-PLAY while reading blog. Friday, April 20, 2012. We know what it's like to have that throbbing worry in our heads and dull aches in our hearts about our children. We know how awful some doctors can make us feel.

4

One Brave Boy: Home

http://www.hopeforjack.blogspot.com/p/one-brave-little-boy.html

Our 13 year old son Jack, is suffering from a muscle disease of "unknown etiology." After years of extensive medical testing we still do not have a diagnosis. This is his story. Look inside to find an incredible story about an extraordinary little boy. He's My Son" by Mark Shultz. He's My Son"-PLAY while reading blog. Subscribe to: Posts (Atom). Syndromes Without A Name. SWAN Syndromes Without A Name. United Mitochondrial Disease Foundation. Advocating for all Children. Denver , CO, United States.

5

One Brave Boy: Notes from a Zebra Mom

http://www.hopeforjack.blogspot.com/2013/05/notes-from-zebra-mom.html

Our 13 year old son Jack, is suffering from a muscle disease of "unknown etiology." After years of extensive medical testing we still do not have a diagnosis. This is his story. Look inside to find an incredible story about an extraordinary little boy. He's My Son" by Mark Shultz. He's My Son"-PLAY while reading blog. Friday, May 31, 2013. Notes from a Zebra Mom. Sease to disease, condition to condition, but one thing remains the same: There is no “normal” day for us. But then there is our real job: help...

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`erica: August 2009

http://e-k-c.blogspot.com/2009_08_01_archive.html

The purpose of life is a life of purpose. Explore. Create. Beautify. Thursday, August 27, 2009. Another for Katie Marie. 7 years have flown by. And, today, seven years later, I still can't believe it happened.  It was too soon.  You were just beginning to show the world how wonderful you were.  Fortunately, I experienced 16 years of your wonder.  I wish others were so lucky. 7 years have flown by. Saturday, August 15, 2009. Perhaps the most beautiful love letter of all. Monday, August 3, 2009. Society is...

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`erica: December 2011

http://e-k-c.blogspot.com/2011_12_01_archive.html

The purpose of life is a life of purpose. Explore. Create. Beautify. Thursday, December 1, 2011. Dec 1, 2011 - World AIDS Day. Inspired by a fellow Lesotho devotee, I've decided to sit down and reflect upon the experiences that have led me to the passion and devotion I now have for the AIDS orphans of southern Africa and to helping in eradicating this deadly epidemic. Focused on the issue and (eventually) adopting my very own Billy. My inspirational Lesotho devotee said the following in his blog.

e-k-c.blogspot.com e-k-c.blogspot.com

`erica: No photos. Just words.

http://e-k-c.blogspot.com/2011/08/no-photos-just-words.html

The purpose of life is a life of purpose. Explore. Create. Beautify. Tuesday, August 9, 2011. No photos. Just words. A 14-hour drive to Cape Town illustrated by words. Smooth sailing, making good time. Sun shining through the glass, air flowing through the slightly cracked windows. A sudden jolt, slowing from 80 kph to 0. Peer out the window to assess the situation and am greeted by a baboon, which so unintelligently ran out in front of us. How many people can say that? And no, we didn't hit it. Kim - Di...

e-k-c.blogspot.com e-k-c.blogspot.com

`erica: Harrismith, Kimberley and Bloemfontein...Oh My!!

http://e-k-c.blogspot.com/2011/08/harrismith-kimberley-and-bloemfonteinoh.html

The purpose of life is a life of purpose. Explore. Create. Beautify. Thursday, August 4, 2011. Harrismith, Kimberley and Bloemfontein.Oh My! My trip is coming to an end.but the best has been saved for last, as I'm now on my way to one of the most incredible cities in the world, CAPE TOWN! Posted using BlogPress from my iPad. Location: Random cities, South Africa. I love absolutely everything about this. August 5, 2011 at 12:32 AM. Subscribe to: Post Comments (Atom). Find me here, and speak to me. Harrism...

e-k-c.blogspot.com e-k-c.blogspot.com

`erica: Dec. 1, 2011 - World AIDS Day

http://e-k-c.blogspot.com/2011/12/dec-1-2011-world-aids-day.html

The purpose of life is a life of purpose. Explore. Create. Beautify. Thursday, December 1, 2011. Dec 1, 2011 - World AIDS Day. Inspired by a fellow Lesotho devotee, I've decided to sit down and reflect upon the experiences that have led me to the passion and devotion I now have for the AIDS orphans of southern Africa and to helping in eradicating this deadly epidemic. Focused on the issue and (eventually) adopting my very own Billy. My inspirational Lesotho devotee said the following in his blog.

e-k-c.blogspot.com e-k-c.blogspot.com

`erica: Lesotho Part 1: Morija

http://e-k-c.blogspot.com/2011/07/lesotho-part-1-morija.html

The purpose of life is a life of purpose. Explore. Create. Beautify. Sunday, July 17, 2011. Lesotho Part 1: Morija. We ended the day with a traditional song and dance performance by local children. A few additional tidbits of excitement. Sesotho language lessons given by Bridgitte, the owner of the guest house. Visits to schools and the National Curriculum Development Center to learn about Lesotho's education system. Visit to the Morija Museum where we learned about the history and culture of the Basotho.

e-k-c.blogspot.com e-k-c.blogspot.com

`erica: January 2009

http://e-k-c.blogspot.com/2009_01_01_archive.html

The purpose of life is a life of purpose. Explore. Create. Beautify. Thursday, January 22, 2009. Through the looking glass. 160;Hold on through the tough times? 160;Or, live for me.as I declared as the clock struck midnight.  I'm young, determined, and independent.  Why do I feel so helpless? Subscribe to: Posts (Atom). Find me here, and speak to me. I want to feel you, I need to hear you. You are the light that's leading me to the place. Some of my faves. Glamocracy - women and politics.

e-k-c.blogspot.com e-k-c.blogspot.com

`erica: September 2009

http://e-k-c.blogspot.com/2009_09_01_archive.html

The purpose of life is a life of purpose. Explore. Create. Beautify. Tuesday, September 1, 2009. Oh, my sweet Darfur. Is it all "over? The departing Force Commander of UNAMID (United Nations - African Union Mission in Darfur), General Martin Luther Agwai, has been . Widely quoted as saying so. If “over” is taken to mean the end of large-scale clashes between heavily armed forces, then . This statement is true. Is this assessment substantially new? Report of the Secretary-General. The same July 2009 repor...

e-k-c.blogspot.com e-k-c.blogspot.com

`erica: August 2011

http://e-k-c.blogspot.com/2011_08_01_archive.html

The purpose of life is a life of purpose. Explore. Create. Beautify. Tuesday, August 9, 2011. No photos. Just words. A 14-hour drive to Cape Town illustrated by words. Smooth sailing, making good time. Sun shining through the glass, air flowing through the slightly cracked windows. A sudden jolt, slowing from 80 kph to 0. Peer out the window to assess the situation and am greeted by a baboon, which so unintelligently ran out in front of us. How many people can say that? And no, we didn't hit it. Back in ...

e-k-c.blogspot.com e-k-c.blogspot.com

`erica: November 2009

http://e-k-c.blogspot.com/2009_11_01_archive.html

The purpose of life is a life of purpose. Explore. Create. Beautify. Thursday, November 26, 2009. November 26, 2009. Fleeting memories in a dream. A world of restless slumber. Darkness consumes my every breath. Around it wraps its deathly grip. Bony fingers in the dead of night. Screams escape my mouth. Toss and turn and thrash. Open my eyes to realize. The hallucination has escaped. Struggle to shake it. Of death’s untimely grip. Sleep beckons once again. Fleeting memories in a dream. Some of my faves.

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One Brave Little Boy

Our 11 year old son Jack, is suffering from a muscle disease of "unknown etiology." After years of extensive medical testing we still do not have a diagnosis. This is his story. Look inside to find an incredible story about an extraordinary little boy. He's My Son" by Mark Shultz. He's My Son"-PLAY while reading blog. Thursday, July 17, 2014. My heart breaks for him. He just wants to be a normal 11 year old. Is that too much to ask? For those that come to me WITHOUT judgment and ask how can I help? Notes...

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