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hugforrare.com

HugForRare

Let’s collect more than 108,121 photos of hugs during the period from 21st to 27th of February 2016. and let’s break the Guinness record!

http://www.hugforrare.com/

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HugForRare | hugforrare.com Reviews
<META>
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Let’s collect more than 108,121 photos of hugs during the period from 21st to 27th of February 2016. and let’s break the Guinness record!
<META>
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1 menu
2 who we are
3 about the action
4 rare diseases
5 supporters
6 participate
7 suporters
8 hugs so far
9 search for photos
10 show hugs
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menu,who we are,about the action,rare diseases,supporters,participate,suporters,hugs so far,search for photos,show hugs,hug for rare,photo selected,facepagetab,face share info
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HugForRare | hugforrare.com Reviews

https://hugforrare.com

Let’s collect more than 108,121 photos of hugs during the period from 21st to 27th of February 2016. and let’s break the Guinness record!

INTERNAL PAGES

hugforrare.com hugforrare.com
1

HugForRare

http://www.hugforrare.com/supporters.php

Thanks to all the companies, organizations, institutions and individuals supporting our actions and helping us make the voice of rare diseases heard!

2

HugForRare

http://www.hugforrare.com/who_we_are.php

The initiator of this action is Croatian Alliance for Rare Diseases, in cooperation with National Organization for Rare Diseases of Serbia, but in time the action widen to a lot of other organizations from many different countries. Croatian Alliance for Rare Diseases. Is the umbrella non-profit organization for rare diseases in Croatia, which gathers other associations with members with rare diseases and individual members, people living with rare diseases and their family members. As there is a lack of ...

3

HugForRare

http://www.hugforrare.com/rare_diseases.php

Rare diseases, by definition, affect few people, tending to fall off the health and social policy radar screen. However, policy makers looking to contain long-run healthcare costs are doing themselves a great disservice by ignoring this category of diseases which affects some 30 million people in EU, a figure equivalent to the combined populations Belgium, Luxembourg and the Netherlands. Rare diseases are often life-threatening. They are chronic, progressive, degenerative and disabling. People li...

4

HugForRare

http://www.hugforrare.com/participate.php

It’s very simple to become part of this action. Just follow 4 simple steps! Upload it on the home page. The minimum dimension of the photo is 300x300 pixels but you can upload much bigger photos, as the web application will resize them automatically. You can take photos with your mobile, professional or digital camera.

5

HugForRare

http://www.hugforrare.com/about_the_action.php

The action was initiated as an innovative approach to marking Rare Disease Day, which takes place on the last day of February each year. Rare Disease Day is organized by European organization for Rare Diseases and their member associations since 2008. Even though the Rare Disease Day campaign started as a European event, it has progressively become a world phenomenon, with the USA joining in 2009, and participation in 87 countries around the world in 2015. The main purpose of the action is to encourage a...

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6

LINKS TO THIS WEBSITE

mali-princ.hr mali-princ.hr

Vijesti - Udruga Mali princ

http://www.mali-princ.hr/vijesti-i-dogadanja/vijesti

HUMANITARNA UTRKA WINGS FOR LIFE- trčimo za one koji ne mogu. Srijeda, 11 Svibanj 2016. Cijeli svijet trčao je za jedan cilj - prikupljanje sredstava za pronalazak lijeka za ozljede leđne moždine. Svjetski dan svjesnosti o autizmu. Subota, 02 Travanj 2016. Ponedjeljak, 21 Ožujak 2016. Simbol ovog dana su šarene čarape, jer ih osobe s Down sindromom ne mogu upariti. Nošenjem šarenih čarapa pokazuje se podrška borbi osoba s Down sindromom da se integriraju u društvo. Četvrtak, 25 Veljača 2016. U Udrugu smo...

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