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Immune Deficiency Foundation

Kim Biscoe

40 West ●●●●●●●●e Avenue

To●●on , MD, 21204

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Immune Deficiency Foundation

Kim Biscoe

40 West ●●●●●●●●e Avenue

To●●on , MD, 21204

US

1.80●●●●4433
kb●●●●●@primaryimmune.org

View this contact

Immune Deficiency Foundation

Kim Biscoe

40 West ●●●●●●●●e Avenue

To●●on , MD, 21204

US

1.80●●●●4433
kb●●●●●@primaryimmune.org

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LINKS TO THIS WEBSITE

livingwithcgd.org livingwithcgd.org

Publications

http://www.livingwithcgd.org/resources/publications

Emotional, Social & Family Life. Coordinating Your Child’s Healthcare. Family & Friends. CGD and Attending School. Passing CGD on to Your Children. For Parents of Young Adults with CGD. IDF Young Adult Program. IDF Reel Stories of CGD. IDF ePHR & PI CONNECT. How You Can Help. About Living with CGD. The Immune Deficiency Foundation (IDF) produces a variety of educational materials for patients with primary immunodeficiency diseases (PI) and for the healthcare professionals who care for them.

livingwithcgd.org livingwithcgd.org

IDF Young Adult Program

http://www.livingwithcgd.org/life-with-cgd/young-adults/idf-young-adult-program

Emotional, Social & Family Life. Coordinating Your Child’s Healthcare. Family & Friends. CGD and Attending School. Passing CGD on to Your Children. For Parents of Young Adults with CGD. IDF Young Adult Program. IDF Reel Stories of CGD. IDF ePHR & PI CONNECT. How You Can Help. About Living with CGD. IDF Young Adult Program. IDF Young Adult Program. IDF Young Adult Weekends. Tips to Manage Your Health. Advice about Friends, Dating and More. Your Education and Career. IDF holds biennial National Conferences.

livingwithcgd.org livingwithcgd.org

Teens and Parents

http://www.livingwithcgd.org/life-with-cgd/teens-and-parents

Emotional, Social & Family Life. Coordinating Your Child’s Healthcare. Family & Friends. CGD and Attending School. Passing CGD on to Your Children. For Parents of Young Adults with CGD. IDF Young Adult Program. IDF Reel Stories of CGD. IDF ePHR & PI CONNECT. How You Can Help. About Living with CGD. Much of the parental tips for children living with CGD will apply to teens, with the understanding that new issues arise at this age, some of their new desires may include wanting to:. It is important to note ...

livingwithcgd.org livingwithcgd.org

Children and Parents

http://www.livingwithcgd.org/life-with-cgd/children-and-parents

Emotional, Social & Family Life. Coordinating Your Child’s Healthcare. Family & Friends. CGD and Attending School. Passing CGD on to Your Children. For Parents of Young Adults with CGD. IDF Young Adult Program. IDF Reel Stories of CGD. IDF ePHR & PI CONNECT. How You Can Help. About Living with CGD. Helping Your Child Understand CGD. Infants and Toddlers (ages 0-2). Preschool Children (ages 3-4). Preschool children are ready to begin to be independent and eager to make choices. They may understand tha...

idfephr.org idfephr.org

PHR

https://www.idfephr.org/AboutPIConnect.aspx

End of top navigation. Facebook (opens in a new window). Twitter (opens in a new window). In (opens in a new window). Be a Part of Research! An added benefit for users of IDF ePHR is the opportunity to be a part of research by consenting into PI CONNECT, the new IDF Patient-Powered Research Network. PCORI envisions PCORnet to be a secure, national data network that improves the speed, efficiency, and use of patient-centered comparative effectiveness research. Share Your Research Ideas. You can feel great...

primaryimmune.org primaryimmune.org

THINK ZEBRA! | Immune Deficiency Foundation

http://primaryimmune.org/awareness/think-zebra

Please Correct the Following Form Errors. President and Founder's Message. IDF Board of Trustees. IDF Staff Management Team. IDF Medical Advisory Committee. IDF Nurse Advisory Committee. Core Service Corporate Sponsors. Learn About Primary Immunodeficiencies. What Are Primary Immunodeficiencies? There are more than 300 primary immunodeficiency diseases recognized by the World Health Organization. Read about specific disease types. Stem Cell and Gene Therapy. Manufacturers and Assistance Programs. Three d...

livingwithcgd.org livingwithcgd.org

News

http://www.livingwithcgd.org/category/news

Emotional, Social & Family Life. Coordinating Your Child’s Healthcare. Family & Friends. CGD and Attending School. Passing CGD on to Your Children. For Parents of Young Adults with CGD. IDF Young Adult Program. IDF Reel Stories of CGD. IDF ePHR & PI CONNECT. How You Can Help. About Living with CGD. Planning for a Healthy, Productive School Year. August 17, 2016. Yes With daily prophylaxis many young patients with CGD can lead lives like […]. Skin Issues and Infections in Patients with CGD. May 5, 2016.

livingwithcgd.org livingwithcgd.org

Life with CGD

http://www.livingwithcgd.org/life-with-cgd

Emotional, Social & Family Life. Coordinating Your Child’s Healthcare. Family & Friends. CGD and Attending School. Passing CGD on to Your Children. For Parents of Young Adults with CGD. IDF Young Adult Program. IDF Reel Stories of CGD. IDF ePHR & PI CONNECT. How You Can Help. About Living with CGD. Individuals with X-linked CGD are known to be prone to having short stature, and the reason for this is unknown. That is not true for the other molecular types of CGD. Many physicians suggest that swimming sho...

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