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My Life With CFI Got 99 Problems & CF Ain't One
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I Got 99 Problems & CF Ain't One
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I Got 99 Problems & CF Ain't One
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My Life With CF: LONG POST!!
http://ihavecf.blogspot.com/2010/11/long-post.html
My Life With CF. I Got 99 Problems and CF Aint One. Monday, November 1, 2010. Long post day.so get your cup of tay (thats corny but i like it). The race i was to do yesterday didnt go ahead. I got home late on saturday and was in no state to be racing on the sunday. So i did a hard run instead. Worked out very good. The sunday marked the anniversary of me and Yaz. 4 YEARS TOGETHER! This actually wasnt that long of a post. So sorry if you made a cuppa for no reason. Monday, November 01, 2010.
My Life With CF: Controlling CF with Nutrition (part 1)
http://ihavecf.blogspot.com/2014/08/controlling-cf-with-nutrition-part-1.html
My Life With CF. I Got 99 Problems and CF Aint One. Wednesday, August 27, 2014. Controlling CF with Nutrition (part 1). Ive talked about diet and Cystic Fibrosis before, and one thing that sticks out in my mind is being slated about what i said. emails, and comments saying I dont know what im talking about. The second thing was, i was told by another PWCF that their dietician told them that if they had a choice between an orange and a Mars Bar, to go with the Mars Bar. Take a minute to look at your own t...
My Life With CF: New Drug For Delta F508
http://ihavecf.blogspot.com/2012/05/new-drug-for-delta-f508.html
My Life With CF. I Got 99 Problems and CF Aint One. Monday, May 7, 2012. New Drug For Delta F508. A piece from CCF.org site. Phase 2 Study of Kalydeco and VX-809 in Combination Shows Promising Interim Results. May 7, 2012. Vertex Pharmaceuticals Inc. today announced promising interim results from a Phase 2 clinical trial of its cystic fibrosis drug Kalydeco™ and VX-809, a CF drug in development. Vertex plans to begin a pivotal trial of Kalydeco and VX-809 in people with two copies of the Delta F508 mutat...
My Life With CF: On The Road Vegan
http://ihavecf.blogspot.com/2015/07/on-road-vegan.html
My Life With CF. I Got 99 Problems and CF Aint One. Friday, July 3, 2015. On The Road Vegan. So one thing led to another and I became a vegan. How? As I have been away, I stuck to the Weekday Vegetarian. I began to look into things in the animal industry and realised how exploited they are, and how much of the worlds energy goes into bulking up animals for humans to feast on. It made no sense to me, and all the sense in the world for me to go vegan. Full-time! Friday, July 03, 2015. Angers, Orkambi, and ...
My Life With CF: Cough Up A Lung
http://ihavecf.blogspot.com/2015/08/cough-up-lung.html
My Life With CF. I Got 99 Problems and CF Aint One. Monday, August 3, 2015. Cough Up A Lung. There can’t be any other reason as I am still able to run. Monday - 40 minutes cycle, 25 minutes run,. Tuesday - 55 minutes run yoga. Wednesday - 30 min run. Thursday - held a plank/bridge for 1 hour and 21mins. So I travel to Beijing in about 10 days for the World Athletics Championships. I will hook up with Yas as well which will be cool as Asia is one of the places on our to do list. Im looking forward to that...
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The CF Trust Blog: May 2015
http://cftrust.blogspot.com/2015_05_01_archive.html
Thursday, 7 May 2015. There's 24 hours to go until the ballot for next year's Virgin Money London Marathon. It's the leading mass-participation charity fundraising challenge event in the UK, and this year we had more #TeamCF runners than ever. My marathon journey has been one unforgettable experience and one of the most memorable days of my life (so far). It has taken more courage and willpower than I thought possible. I woke on Sunday 26 April 2015 with excitement (much to my amazement). I arrived a...
The CF Trust Blog: March 2015
http://cftrust.blogspot.com/2015_03_01_archive.html
Thursday, 26 March 2015. Things I learned on a summer studentship. Kate Ryan, an undergraduate medical student at Keele University, took part in the Cystic Fibrosis Trust’s Summer Studentships programme in 2014, where she worked on a PhD project on cystic fibrosis-related diabetes. Following her placement in the academic holidays, Kate won first prize for her poster presentation at the UK CF Conference. Although I have had some experience in medical school, working in a lab was a relatively new experienc...
The CF Trust Blog: July 2014
http://cftrust.blogspot.com/2014_07_01_archive.html
Thursday, 31 July 2014. Understanding Median Predicted Survival. This year’s UK CF Registry Report. Shows that the median predicted survival for people with cystic fibrosis. Is a bit lower this year. To explain this change, Dr. Director of Research and Care, explains what we mean by median predicted survival and how “wobbles” happen. By way of an analogy, it may help to think of a country’s economy. These are complex calculations and are not calculated every year. The last report for the. Was over 20 yea...
The CF Trust Blog: November 2014
http://cftrust.blogspot.com/2014_11_01_archive.html
Friday, 14 November 2014. A cystic fibrosis 'cure'? Understanding this week's research news. Following recent news reports of a ‘cure’ for cystic fibrosis being within reach, Cystic Fibrosis Trust Chief Executive Ed Owen discusses the promising research at the centre of the story, and the need to think big but stay grounded. Nothing is more guaranteed to get all of us excited than stories of a possible ‘breakthrough’ or ‘cure’ for cystic fibrosis. In a blog on Tuesday accompanying the news piece. Are tha...
The CF Trust Blog: Our Financial Support for the CF Community
http://cftrust.blogspot.com/2015/04/our-financial-support-for-cf-community.html
Monday, 13 April 2015. Our Financial Support for the CF Community. As the Cystic Fibrosis Trust’s grants panel gets ready to consider applications for the second round of health and wellbeing grants, Support Service Manager Becky Kilgariff discusses why the Trust offers grants, and the kinds of financial assistance available. Sometimes we are asked: “Why does the Cystic Fibrosis Trust offer grants to people and families affected by CF? Our programme of health and wellbeing grants. Finally, we also fund h...
The CF Trust Blog: December 2014
http://cftrust.blogspot.com/2014_12_01_archive.html
Wednesday, 31 December 2014. Looking Back, Moving Forward. Ed Owen, Chief Executive of the Cystic Fibrosis Trust, looks back on our 50th anniversary and the successes of those 50 years, and how the Trust will build on them as we enter 2015 and beyond. But 2014 has enabled us both to mark the contribution of all our supporters and, most importantly, to redouble our effort to beat this cruel condition for good. The decision of HRH The Prince of Wales to take on the Patronage of the Trust. Yet with so many ...
The CF Trust Blog: Why We Provide Financial Support
http://cftrust.blogspot.com/2015/04/why-we-provide-financial-support.html
Friday, 17 April 2015. Why We Provide Financial Support. Trust Chief Executive Ed Owen talks about why the Trust offers grants to help those with cysticfibrosis most in need. I am sometimes asked by supporters why the Trust chooses to provide financial grants to people with cystic fibrosis and their families when this diverts money from vital research and care. We also do not provide support for clinical equipment such as fast nebulisers. These should be provided by the NHS and the Trust must never b...
The CF Trust Blog: Health & Wellbeing Grants: The Social Worker Perspective
http://cftrust.blogspot.com/2015/04/health-wellbeing-grants-social-worker.html
Tuesday, 14 April 2015. Health and Wellbeing Grants: The Social Worker Perspective. Today the Trust’s grants panel will consider applications for the second round of health and wellbeing grants. In this blog, Anne Calvert and Margaret McCafferty, two specialist CF social workers from Belfast, discuss some of the financial issues that people living with cystic fibrosis can face, and the importance of the Trust’s grants in supporting people during different stages in their lives. Also, for those families w...
The CF Trust Blog: August 2014
http://cftrust.blogspot.com/2014_08_01_archive.html
Tuesday, 12 August 2014. Getting Young People Heard. Today is International Youth Day. A United Nations initiative that raises awareness of important issues affecting young people. The Cystic Fibrosis Trust is proud to support this important programme, and Dr Erika Kennington, Head of Research at the Trust, would like to tell you about some of the work the Trust has been doing this year to engage with young people living with cystic fibrosis, including recently on our social media channels. Thank you to ...
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iHave C-Diff – Clostrodium Difficile Community
Add Your C-DIff Story. C Diff Is Ruining My Life. I got diagnosed with C diff June 16, 2016 my birthday. I contracted the disease sometime in January or maybe November or December I was caring for my mom who lives in a nursing home that was disgusting and I obviously contracted it from her she passed away January 27 . I have a 13-year-old daughter that I am Single handily taking care of and a 21-year-old son in college i’m losing my mind here. Help Spread the Word:. August 8, 2016. My C diff Experience.
Compulsive Disorder Obsessive
I have CDO. It's like obsessive compulsive disorder, but it's in alphabetical order as it should be. March 1, 2014. As Teachiro commented, the food prepared for the Super Bowl is, in fact, what kept the second half interesting. That, and watching the game with three guys that don't watch football. Seriously, they don't watch football at all: they referred to the first down line as "the magic line". Here is a picture of most of the food:. We also had pizza and cheesecake. For five people. 1 cup olive oil.
I Have Celiacs... but I will be okay now!
But I will be okay now! 2010, IHaveCeliacs, Natalie King.
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My Life With CF
My Life With CF. I Got 99 Problems and CF Aint One. Monday, June 20, 2016. Tasteless Taste of Dublin. For the past few years Yas and I have wanted to go to Taste of Dublin. This year I was home during the time it was on and we happened to get free tickets. Jammy! No Our lobster roll, which was more like a glorified dinner roll with a tasteless amount of lobster. That cost €9! 8364;50 spent and we didn't even have a drink. We had to spend another €20 just to get a beer and a cocktail. So I rustled up some...
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09 February, 2011. Music is really like photo albums. The 80's produced some really wkd tracks.whichever version you prefer.this tune is a tuuuuuune. 05 February, 2011. THE STATE OF MY ROOM / HEAD. From now on I promise to post more. As you can see I think about posting plenty. Issue 2 of AIE is soon off to the printers - expect a set of beautiful eyes, a swim against the current, shades of green and a printed magazine on the shelves.we are launching during Paris Fashion Week 2011. 08 November, 2010.
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