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I Have CF. So what?!I Have CF. So what?
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I Have CF. So what?
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I Have CF. So what?
ihavecfsowhat.blogspot.com
I Have CF. So what?!: On Quarter Life Crises
http://ihavecfsowhat.blogspot.com/2015/08/on-quarter-life-crises.html
Wednesday, August 5, 2015. On Quarter Life Crises. Today is the day I turn 25, officially a quarter of a century old. But 25 is more than just my "quarter life crisis," I guess you could say it is an accomplishment. Aren't all years of a life stamped with a young life expectancy an accomplishment though? On Quarter Life Crises. Subscribe to: Post Comments (Atom). View my complete profile. On Quarter Life Crises. My Mom and I. Vest: A mechanical way of getting Chest PT and life changer. Cepacia: a wicked ...
I Have CF. So what?!: Mom's Kindness
http://ihavecfsowhat.blogspot.com/2015/02/moms-kindness.html
Thursday, February 5, 2015. 8220;Real integrity is doing the right thing, knowing that nobody's going to know whether you did it or not.” ” —. You gotta love dinner dates with your parents. Tonight, my parents took us out for dinner and we chatted over delicious meals of lobster, steak, scallops and chicken parm. My dad started telling us a story about years ago when my mother, the nurse, went above and beyond for a family in need. And when they were done, she wheeled the husband back to his room, and th...
I Have CF. So what?!: Attention Resolutioners
http://ihavecfsowhat.blogspot.com/2011/01/attention-resolutioners.html
Wednesday, January 5, 2011. Cartoon from http:/ randymarasigan.com/my-new-years-resolution-for-2009-42. Found via google images). All of the sudden there are commercials about new deals that make it easier for you to accomplish your weight loss goals. Newscasters proudly state their resolutions, the question of the hour is always "So what's your resolution? Don't get me wrong, it is. Why can't we wake up in the morning and try to make today even better than the day before? I'm 26 years old with cystic fi...
I Have CF. So what?!: January 2015
http://ihavecfsowhat.blogspot.com/2015_01_01_archive.html
Monday, January 5, 2015. I'm not the biggest fan of the hype of New Years Resolutions, as referenced by this blog post four years ago. But know that every day is an opportunity to improve your life, or to simply appreciate it for what it is. Links to this post. Subscribe to: Posts (Atom). View my complete profile. My Mom and I. Chest PT: Beating or "Clapping" on various areas of the chest in order to loosen mucus from the lung walls. Vest: A mechanical way of getting Chest PT and life changer. ENT: Ear, ...
I Have CF. So what?!: April 2015
http://ihavecfsowhat.blogspot.com/2015_04_01_archive.html
Wednesday, April 22, 2015. By now, you've probably heard about the man with muscular dystrophy who, determined to complete a marathon, crossed the finish line 20 hours after he started. I've heard a lot of reactions to this: "Inspiring! And do I agree that this is amazing? Of course. In fact, I think ANY ONE who commits to running a marathon is inspiring. But this guy was pretty cool because I'm all about doing stuff that people think you can't do, defying the odds, etc. This is where I get uncomfortable.
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cocktailsandcreon.blogspot.com
Cocktails and Creon: January 2014
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Sunday, 26 January 2014. It's that time of year again, annual review time. On the surface everything seemed to go pretty well! Lung function was around 2.3l which I was surprised about and my weight is still stable. Even better news, it turns out I've grown a cm since last year, haha did not expect that at all! Still a bit of a short arse though! I'll be waiting the next few weeks for sputum and blood results to come back but I don't think I'm growing anything bizarre! I was only there for about 3 1/2 ho...
cocktailsandcreon.blogspot.com
Cocktails and Creon: February 2014
http://cocktailsandcreon.blogspot.com/2014_02_01_archive.html
Monday, 17 February 2014. A little note to my body. Why is it that every time I get a break from work, all be it a half term holiday, Christmas or summer, I am ill? I know you spice it up a bit with some variety - crappy lungs, a stomach blockage, a cold, migraines, a weird IV/tablet reaction or even all of the above! Please sort it out - thank you :-). Now that's all done and dusted I can finally move on to some good news - I am finally redoing my bedroom! I've chosen some lovely wallpaper for one of th...
Welcome to Joshland: 7/1/13 - 8/1/13
http://www.welcometojoshland.com/2013_07_01_archive.html
Friday, July 12, 2013. Fanning the Flames of Stupidity. Do YOU know what could've happened, Josh? The firefighter blurted out, his low voice reverberating in my head like a heavy bass line in a Motown classic. The words sent my head spinning. Did I really know what could've happened? I suppose I didn't, which was a rarity for me. WHAT ARE YOU DOING? LOOK AT YOUR SHIRTS! I thought to myself as they relayed the information so vital to the next part of the story. That's not what happened. Josh is going to y...
Welcome to Joshland: 6/1/15 - 7/1/15
http://www.welcometojoshland.com/2015_06_01_archive.html
Saturday, June 20, 2015. Joshland Unfiltered Podcast: Episodes: 12 - Late Diagnosis of CF and 13 - Traveling with CF. There have been signs all your life that something was a little different about your health. Through a series of events and tests you finally discover a shocking truth: You’ve been living with a life-shortening genetic disorder known as cystic fibrosis since the day you were born! Https:/ www.facebook.com/. Check out Katharine's blog and follow her on Instagram and Twitter:. Here's how yo...
Welcome to Joshland: 6/1/13 - 7/1/13
http://www.welcometojoshland.com/2013_06_01_archive.html
Saturday, June 15, 2013. What A Good Father Does. 8226; Is enamored with their child from the moment they are born. 8226; Sacrifices anything and everything to keep his family safe and secure. 8226; Makes time for his children and makes memories with them early and often. 8226; Makes up for the unfortunate moments when he cannot be there in person for his family and realizes when and if he needs to make changes in his life to be a greater presence in theirs. 8226; Always shows his children that he loves ...
abreathoffreshair-ekg.blogspot.com
a breath of fresh air...: save lives by becoming an organ donor
http://abreathoffreshair-ekg.blogspot.com/2012/04/save-lives-by-becoming-organ-donor.html
A breath of fresh air. Reflections of a 20-something with cystic fibrosis (CF) pursuing life full speed. one breath at a time. Thursday, April 12, 2012. Save lives by becoming an organ donor. Here's the kicker though. the scenario described above is a best case scenario. the sad truth is that not everyone gets so lucky. far too many people die waiting for lungs or hearts or livers or kidneys that never end up coming for them. In fact, every single day we lose approximately 18 people who are waiting for o...
abreathoffreshair-ekg.blogspot.com
a breath of fresh air...: hi, my name is.
http://abreathoffreshair-ekg.blogspot.com/2010/07/hi-my-name-is.html
A breath of fresh air. Reflections of a 20-something with cystic fibrosis (CF) pursuing life full speed. one breath at a time. Wednesday, July 7, 2010. Hi, my name is. Sweet dreams, ekg. July 8, 2010 at 9:51 PM. Subscribe to: Post Comments (Atom). Hi, i'm emily. this is my first foray in personal blogging and i have to admit, i'm a little nervous and intimidated. my hope is to have a place dedicated to my thoughts, questions, and reflections as a 26-year-old with CF. so here goes. View my complete profile.
abreathoffreshair-ekg.blogspot.com
a breath of fresh air...: once upon a time: a story of childhood with CF
http://abreathoffreshair-ekg.blogspot.com/2010/10/once-upon-time-story-of-childhood-with.html
A breath of fresh air. Reflections of a 20-something with cystic fibrosis (CF) pursuing life full speed. one breath at a time. Sunday, October 3, 2010. Once upon a time: a story of childhood with CF. Once upon a time. Approximately 23 years ago. I was a small child with big brown eyes, straggly brown hair, a fondness for baby dolls,. A sassy attitude and a loving, supportive network of friends and family. Here are some photographs documenting the story of my childhood with CF. It is the story of a childh...
abreathoffreshair-ekg.blogspot.com
a breath of fresh air...: October 2011
http://abreathoffreshair-ekg.blogspot.com/2011_10_01_archive.html
A breath of fresh air. Reflections of a 20-something with cystic fibrosis (CF) pursuing life full speed. one breath at a time. Sunday, October 30, 2011. All the fright, but none of the candy. Truthfully, the hardest part for me wasn't the spewing of blood or the gurgling in my chest. those parts i could handle. what really got me was the need to alter my treatments - my key to "success" - and purposefully abstain from the very things that i believe help keep my healthy. that part was absolute...Stop my p...
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iHave C-Diff – Clostrodium Difficile Community
Add Your C-DIff Story. C Diff Is Ruining My Life. I got diagnosed with C diff June 16, 2016 my birthday. I contracted the disease sometime in January or maybe November or December I was caring for my mom who lives in a nursing home that was disgusting and I obviously contracted it from her she passed away January 27 . I have a 13-year-old daughter that I am Single handily taking care of and a 21-year-old son in college i’m losing my mind here. Help Spread the Word:. August 8, 2016. My C diff Experience.
Compulsive Disorder Obsessive
I have CDO. It's like obsessive compulsive disorder, but it's in alphabetical order as it should be. March 1, 2014. As Teachiro commented, the food prepared for the Super Bowl is, in fact, what kept the second half interesting. That, and watching the game with three guys that don't watch football. Seriously, they don't watch football at all: they referred to the first down line as "the magic line". Here is a picture of most of the food:. We also had pizza and cheesecake. For five people. 1 cup olive oil.
I Have Celiacs... but I will be okay now!
But I will be okay now! 2010, IHaveCeliacs, Natalie King.
ihavecereal (Arden) - DeviantArt
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My Life With CF
My Life With CF. I Got 99 Problems and CF Aint One. Monday, June 20, 2016. Tasteless Taste of Dublin. For the past few years Yas and I have wanted to go to Taste of Dublin. This year I was home during the time it was on and we happened to get free tickets. Jammy! No Our lobster roll, which was more like a glorified dinner roll with a tasteless amount of lobster. That cost €9! 8364;50 spent and we didn't even have a drink. We had to spend another €20 just to get a beer and a cocktail. So I rustled up some...
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09 February, 2011. Music is really like photo albums. The 80's produced some really wkd tracks.whichever version you prefer.this tune is a tuuuuuune. 05 February, 2011. THE STATE OF MY ROOM / HEAD. From now on I promise to post more. As you can see I think about posting plenty. Issue 2 of AIE is soon off to the printers - expect a set of beautiful eyes, a swim against the current, shades of green and a printed magazine on the shelves.we are launching during Paris Fashion Week 2011. 08 November, 2010.
My life with Chiari Malformation Type I
My life with Chiari Malformation Type I. This is just my story of my experience with Chiari. Until I was diagnosed, I'd never heard of it, and I just want more people to be aware of it. I'm not a doctor, so don't quote me on any of this stuff - k? If you are looking for information about Chiari Malformation, a lot of the more informative posts are the older ones. Wednesday, October 2, 2013. Six Years and Counting. In the last year I have been practicing yoga several times per week. Sometimes I add in...
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