ingarrettsmemory.blogspot.com
Garrett's Houseto promote awareness and offer education about a rare genetic skin condition called Epidermolysis Bullosa.
http://ingarrettsmemory.blogspot.com/
to promote awareness and offer education about a rare genetic skin condition called Epidermolysis Bullosa.
http://ingarrettsmemory.blogspot.com/
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Garrett's House | ingarrettsmemory.blogspot.com Reviews
https://ingarrettsmemory.blogspot.com
to promote awareness and offer education about a rare genetic skin condition called Epidermolysis Bullosa.
ingarrettsmemory.blogspot.com
Garrett's House: 5/11/14 - 5/18/14
http://ingarrettsmemory.blogspot.com/2014_05_11_archive.html
To promote awareness and offer education about a rare genetic skin condition called Epidermolysis Bullosa. A Guide for New Families. May 13, 2014. The following is what I posted on Facebook on Sunday:. Today there was an article published in a Swedish newspaper about Hugo. Here is the original link to the article:. Here is the translated version via Goggle Translate. Against all odds,. They did share three happy birthdays and at least three million kisses. It went very calmly . At 5:10 this morning dropp...
Garrett's House: 5/3/15 - 5/10/15
http://ingarrettsmemory.blogspot.com/2015_05_03_archive.html
To promote awareness and offer education about a rare genetic skin condition called Epidermolysis Bullosa. A Guide for New Families. May 5, 2015. Skin Biopsy for EB. Samples of the skin or a blister is taken by a trained doctor. The skin samples must be processed for specific studies, immunofluorescence antigen (IFA) mapping and transmission electron microscopy (EM). Only two labs in the US can process EB biopies:. 1) Beutner Labs, Inc. Buffalo, NY 14215. Http:/ www.beutnerlabs.com/contact/. A great reso...
Garrett's House: 9/28/14 - 10/5/14
http://ingarrettsmemory.blogspot.com/2014_09_28_archive.html
To promote awareness and offer education about a rare genetic skin condition called Epidermolysis Bullosa. A Guide for New Families. October 1, 2014. Cause The Wave: Eddie Vedder and the EB Research Partnership. JGSF and Heal EB annouce Merger. Jackson Gabriel Silver Foundation and Heal EB Announce Merger. Labels: Jackson Gabriel Foundation; EB in the news; Heal EB; EB Research Partnership. Subscribe to: Posts (Atom). The largest EB research foundation. McKesson Patient Care Solutions Inc. (MPCS). Bella ...
Garrett's House: Heal EB - Cause The Wave
http://ingarrettsmemory.blogspot.com/2014/10/heal-eb-cause-wave.html
To promote awareness and offer education about a rare genetic skin condition called Epidermolysis Bullosa. A Guide for New Families. October 20, 2014. Heal EB - Cause The Wave. Subscribe to: Post Comments (Atom). The largest EB research foundation. McKesson Patient Care Solutions Inc. (MPCS). The leading wound care supplier for those with EB. A great resource for those with EB. Befriend EB: "to help make their lives more bearable". Epidermolysis Bullosa Medical Research Foundation. The Garden of Angels.
Garrett's House: Testing for EB
http://ingarrettsmemory.blogspot.com/2015/05/testing-for-eb.html
To promote awareness and offer education about a rare genetic skin condition called Epidermolysis Bullosa. A Guide for New Families. May 5, 2015. Skin Biopsy for EB. Samples of the skin or a blister is taken by a trained doctor. The skin samples must be processed for specific studies, immunofluorescence antigen (IFA) mapping and transmission electron microscopy (EM). Only two labs in the US can process EB biopies:. 1) Beutner Labs, Inc. Buffalo, NY 14215. Http:/ www.beutnerlabs.com/contact/. A great reso...
TOTAL PAGES IN THIS WEBSITE
18
Raquel Bella : Steady
http://raquelhultman.blogspot.com/2014/02/steady.html
Raquel has Recessive Dystrophic Epidermolysis Bullosa (a painful blistering disorder) or simply, EB. We are a small family unit within a large caring and supportive community of friends, family and health care professionals that are doing their best to keep Raquel as comfortable and growing till we can beat EB. Saturday, February 15, 2014. Not much action around here. Raqu for the most part has been exceptional. No real problems anywhere else other then her attitude. After bath, getting ready to put the ...
Raquel Bella : EB kick in the %$&s
http://raquelhultman.blogspot.com/2014/04/eb-kick-in.html
Raquel has Recessive Dystrophic Epidermolysis Bullosa (a painful blistering disorder) or simply, EB. We are a small family unit within a large caring and supportive community of friends, family and health care professionals that are doing their best to keep Raquel as comfortable and growing till we can beat EB. Friday, April 25, 2014. EB kick in the %$&s. Ren and I have been thinking a lot lately of Hannah. Losing a child at 11 it's eff'n scary. Coco is 8! I can't imagine or at least I'm trying not to.
Raquel Bella : November 2014
http://raquelhultman.blogspot.com/2014_11_01_archive.html
Raquel has Recessive Dystrophic Epidermolysis Bullosa (a painful blistering disorder) or simply, EB. We are a small family unit within a large caring and supportive community of friends, family and health care professionals that are doing their best to keep Raquel as comfortable and growing till we can beat EB. Friday, November 21, 2014. It's really been an amazing run and it keeps going. Raquel is in amazing spirits and health. She has a spark that was evident early and hasn't gone away. How about the b...
Raquel Bella : September 2013
http://raquelhultman.blogspot.com/2013_09_01_archive.html
Raquel has Recessive Dystrophic Epidermolysis Bullosa (a painful blistering disorder) or simply, EB. We are a small family unit within a large caring and supportive community of friends, family and health care professionals that are doing their best to keep Raquel as comfortable and growing till we can beat EB. Wednesday, September 25, 2013. It's a wonderful feeling coming away with an empowerment by understanding what I know and what I need to know and the proper paths through it in areas that I can wit...
Raquel Bella : Keeping on.
http://raquelhultman.blogspot.com/2015/08/keeping-on.html
Raquel has Recessive Dystrophic Epidermolysis Bullosa (a painful blistering disorder) or simply, EB. We are a small family unit within a large caring and supportive community of friends, family and health care professionals that are doing their best to keep Raquel as comfortable and growing till we can beat EB. Friday, August 7, 2015. It's been very good for a long while. Her style of it anyway and is jogging anytime she gets out of the house. Raquel in her typical jog trying to track down her cousin.
Raquel Bella : August 2015
http://raquelhultman.blogspot.com/2015_08_01_archive.html
Raquel has Recessive Dystrophic Epidermolysis Bullosa (a painful blistering disorder) or simply, EB. We are a small family unit within a large caring and supportive community of friends, family and health care professionals that are doing their best to keep Raquel as comfortable and growing till we can beat EB. Friday, August 7, 2015. It's been very good for a long while. Her style of it anyway and is jogging anytime she gets out of the house. Raquel in her typical jog trying to track down her cousin.
Raquel Bella : April 2014
http://raquelhultman.blogspot.com/2014_04_01_archive.html
Raquel has Recessive Dystrophic Epidermolysis Bullosa (a painful blistering disorder) or simply, EB. We are a small family unit within a large caring and supportive community of friends, family and health care professionals that are doing their best to keep Raquel as comfortable and growing till we can beat EB. Friday, April 25, 2014. EB kick in the %$&s. Ren and I have been thinking a lot lately of Hannah. Losing a child at 11 it's eff'n scary. Coco is 8! I can't imagine or at least I'm trying not to.
Raquel Bella : May 2014
http://raquelhultman.blogspot.com/2014_05_01_archive.html
Raquel has Recessive Dystrophic Epidermolysis Bullosa (a painful blistering disorder) or simply, EB. We are a small family unit within a large caring and supportive community of friends, family and health care professionals that are doing their best to keep Raquel as comfortable and growing till we can beat EB. Wednesday, May 28, 2014. Raquel is holding steady. It's literally the moment it heals that it falls apart again. It's almost to point where we might think of doing daily dressing changes. Raquel h...
Raquel Bella : Summer time rolling
http://raquelhultman.blogspot.com/2014/09/summer-time-rolling.html
Raquel has Recessive Dystrophic Epidermolysis Bullosa (a painful blistering disorder) or simply, EB. We are a small family unit within a large caring and supportive community of friends, family and health care professionals that are doing their best to keep Raquel as comfortable and growing till we can beat EB. Friday, September 5, 2014. It's easy to tell when things are going very well for us. In the end it was very rare we heard screams from a fall or other and maybe she had less problems then any othe...
TOTAL LINKS TO THIS WEBSITE
102
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Garrett's House
To promote awareness and offer education about a rare genetic skin condition called Epidermolysis Bullosa. A Guide for New Families. October 28, 2015. The Proof it works! The proof blended diet works! We started blended diet around age 2. At the time he has been on formula since birth. At 18 months he weighted 24 pounds (50%) and was 32" (50%) tall and his EB was still very severe; about 60% of his body had open wounds. We had blood work on in the fall of 2012 and here were the results. Low Iron and Ferr...
Mr-Arriaga's Blog
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