Hi. My name is John Hudson Dilgen. I was born with a rare skin disease called Epidermolysis Bullosa, or EB, which causes my skin to be fragile, to blister and shear off easily. It is estimated that 1 in 50,000 people in the U.S. have some form of EB, yet almost nobody has heard of my disease.
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JohnHudsonDilgen.com- Recessive Dystrophic Epidermolysis Bullosa (RDEB), | johnhudsondilgen.com Reviews
https://johnhudsondilgen.com
Hi. My name is John Hudson Dilgen. I was born with a rare skin disease called Epidermolysis Bullosa, or EB, which causes my skin to be fragile, to blister and shear off easily. It is estimated that 1 in 50,000 people in the U.S. have some form of EB, yet almost nobody has heard of my disease.
johnhudsondilgen.com
John Dilgen Hudson
http://johnhudsondilgen.com/about.html
Staten Island, NY 10307. Hi My name is John Hudson Dilgen. I was born with a rare skin disease called Epidermolysis Bullosa, or EB, which causes my skin to be fragile, to blister and shear off easily. I was born at New York University Medical Center on July 20th, 2002. To the surprise of my parents and doctor, I was born with no skin on my feet and left wrist. Luckily, a Pediatric Dermatologist was called in who recognized my symptoms and quickly diagnosed EB. With so much love and support working on my ...
John Dilgen Hudson
http://johnhudsondilgen.com/life.html
Staten Island, NY 10307. My day is like no one else s you know. Unless maybe you know someone else with a rare skin disease called Epidermolysis Bullosa! There are a lot of us out there, although the incidence of EB is 1:50,000 not rare enough for me! If it is in your means, please help spread the word about EB, help increase EB awareness, visit my website for updates on me and the New York DebRA Support Group, wear an EB Awareness bracelet proudly and loudly, and please remember me and my other EB frien...
John Dilgen Hudson
http://johnhudsondilgen.com/yankees.html
Staten Island, NY 10307. John Hudson attended his first Yankees game Wed. Sept 13th, courtesy of the Teddy Atlas Foundation and his good friends Paul and Joe. John Hudson visited the Clubhouse to hang out with Derek Jeter, A-Rod, and Johnny Damon and is now an official Yankees Fan! Thank you so much Teddy for all the amazing work your Foundation does for special kids. . A man never stands taller than when he kneels to help a child.
John Dilgen Hudson
http://johnhudsondilgen.com/help.html
Donations can be m. Staten Island, NY 10307. Thank you for inquiring. We get asked that a lot. You can pray for John Hudson, his doctors and his other health care providers and all the researchers looking for a cure. You can ask to be added to the Bath Brigade. These are volunteers who help with John Hudson's daily dressing change and bath. You can help spread the word about EB to your friends, family and doctors. The Dilgens have EB Packets which they would be glad to give you to forward to others.
John Dilgen Hudson
http://johnhudsondilgen.com/board.html
Staten Island, NY 10307.
TOTAL PAGES IN THIS WEBSITE
7
What did he get into?: August 2009
http://learnaboutzack.blogspot.com/2009_08_01_archive.html
What did he get into? Wednesday, August 12, 2009. And I am nervous. Please say a prayer for me. Wednesday, August 5, 2009. I was sad to leave Colorado so soon, I hardly got to play with all of my Moms cousins kids. I did get to see my famous Uncle Colbert on a news show. I a so tired but my Mom said I could write a blog about my trip, and she said I could write one about my next trip and my last trip too. Subscribe to: Posts (Atom). I didn't really get into a fight with a bear or a t-rex.
What did he get into?: April 2011
http://learnaboutzack.blogspot.com/2011_04_01_archive.html
What did he get into? Thursday, April 28, 2011. Cutting out a wrap. Yesterday I cut out my own wrap because my mom wasn't home! Monday, April 25, 2011. My mom is running a marathon. Subscribe to: Posts (Atom). I didn't really get into a fight with a bear or a t-rex. Welcome to my blog! Yes it hurts, yes I wish it would go away, but it does not hold me back. I am so stronge and I am very brave, and I have eb to thank for that. Exciting news about a possible treatment. Http:/ www.cotaforkyleh.com/. My mom ...
What did he get into?: March 2009
http://learnaboutzack.blogspot.com/2009_03_01_archive.html
What did he get into? Saturday, March 14, 2009. The force is strong in this one. I got to go to Disneyland with my family and my Grandma and some of my Aunts and Uncles and cousins. It was awesome. Pretty much my favorite thing at Disneyland was the Jedi Training Academy. I got to dress up like a Jedi and train with a Jedi Master. Then Darth Vader and Darth Maul came out, I have to admit it was a little scary. Darth Vader is big in real life. Wednesday, March 11, 2009. My new eb friend. But back to the s...
What did he get into?: My glasses
http://learnaboutzack.blogspot.com/2010/11/my-glasses.html
What did he get into? Tuesday, November 2, 2010. 2 days ago my Dad was telling me how awesome it was that I never broke my toys or ruined a pair of clothes. Well my glasses accidently got ran over by the car yesterday, I guess things just kind of even out. November 2, 2010 at 7:40 PM. November 24, 2010 at 8:12 PM. Renata and Ryan Hultman. Were a family with a new little one with DEB, its all quite tough, but seeing you and your apparent vitality is wonderful and exciting. Well follow you eagerly. Yes it ...
What did he get into?: October 2009
http://learnaboutzack.blogspot.com/2009_10_01_archive.html
What did he get into? Saturday, October 31, 2009. Friday, October 16, 2009. Asking for prayers for an EB friend. Update: Spoke with her mom, she said they prayed and then a miracle happened. They no longer need the procedure. Please prayer that she can heal from the damage done at a previous hospital. Please pray that she can find compasionate doctors willing to listen and help her. Please pray for her Mom, who is having health issues at this time. Thursday, October 15, 2009. Blessed with amazing kids.
What did he get into?: November 2010
http://learnaboutzack.blogspot.com/2010_11_01_archive.html
What did he get into? Tuesday, November 2, 2010. 2 days ago my Dad was telling me how awesome it was that I never broke my toys or ruined a pair of clothes. Well my glasses accidently got ran over by the car yesterday, I guess things just kind of even out. Monday, November 1, 2010. At the beginning of October I went with my family to a really great pumpkin patch. I think he came to our house because we watched his movie in a real patch. Subscribe to: Posts (Atom). Welcome to my blog! Yes it hurts, yes I ...
What did he get into?: May 2011
http://learnaboutzack.blogspot.com/2011_05_01_archive.html
What did he get into? Tuesday, May 24, 2011. I am teaching my class how to make a blog. I will show them how to make a picture. Subscribe to: Posts (Atom). I didn't really get into a fight with a bear or a t-rex. Welcome to my blog! Yes it hurts, yes I wish it would go away, but it does not hold me back. I am so stronge and I am very brave, and I have eb to thank for that. Exciting news about a possible treatment. Http:/ sarahandeb.makeswebsites.com/index.php. Http:/ www.cotaforkyleh.com/.
What did he get into?: The great pumpkin
http://learnaboutzack.blogspot.com/2010/11/great-pumpkin.html
What did he get into? Monday, November 1, 2010. At the beginning of October I went with my family to a really great pumpkin patch. We go every year. Mrs. Pack was my 504 helper in kindergarten and first grade and her family owns the patch. We took our dvd player and watched the Charlie Brown movie about the Great pumpkin. I think he came to our house because we watched his movie in a real patch. I am so glad we did not watch a movie about a ghost or vampire in the field. Subscribe to: Post Comments (Atom).
What did he get into?: November 2008
http://learnaboutzack.blogspot.com/2008_11_01_archive.html
What did he get into? Thursday, November 20, 2008. Today I had a Thanksgiving Feast at school! Subscribe to: Posts (Atom). I didn't really get into a fight with a bear or a t-rex. Welcome to my blog! Yes it hurts, yes I wish it would go away, but it does not hold me back. I am so stronge and I am very brave, and I have eb to thank for that. Exciting news about a possible treatment. Http:/ sarahandeb.makeswebsites.com/index.php. Http:/ www.cotaforkyleh.com/. Http:/ www.debra.org. Utah, United States.
TOTAL LINKS TO THIS WEBSITE
24
John Hudson: social policy analyst, university of york, united kingdom
Social policy analyst, university of york, united kingdom. Conferences & Events. October 23, 2012. Recent Publications & Papers. October 23, 2012. October 23, 2012. Making Policy in Theory and Practice. October 18, 2007. Making Policy in Theory and Practice (edited by Hugh Bochel and Sue Duncan) has just been published by The Policy Press. I have a chapter…. Read Article →. The Digital Switchover of Public Services. June 17, 2009. July 22, 2008. In policy and politics. Mulgan’s Reflections on Power.
John Hudson | Digital and technical lead. Actual human. Boro man.
Digital and technical lead. Actual human. Boro man. John is a developer with over 6 years experience in London's creative industry, currently working for Goosebumps Brand Consultancy as Head of Digital.
John Hudson
John Hudson Books | Failed Wittiness for CelesteHealthyLiving.com
Failed Wittiness for CelesteHealthyLiving.com. BOOK: JAMES CAMERON AND DEEPSEA CHALLENGER. Posted by CorpFactsPlus in In The News. BOOK: JAMES CAMERON AND DEEPSEA CHALLENGER (55 pgs in PDF). The Deepsea Challenger completes the first solo voyage to reach the Challenger Deep. In the Mariana Trench. The deepest point on Earth. On 26 March 2012, James Cameron. Deepsea Challenger (DCV 1) is a 7.3-metre (24 ft) deep-diving. John Hudson, Editor About. Follow Blog via Email. Join 3 other followers.
John Hudson
JohnHudsonDilgen.com- Recessive Dystrophic Epidermolysis Bullosa (RDEB),
Staten Island, NY 10307. Hi My name is John Hudson Dilgen. I was born with a rare skin disease called Epidermolysis Bullosa, or EB, which causes my skin to be fragile, to blister and shear off easily. I was born at New York University Medical Center on July 20th, 2002. To the surprise of my parents and doctor, I was born with no skin on my feet and left wrist. Luckily, a Pediatric Dermatologist was called in who recognized my symptoms and quickly diagnosed EB. Read more. Letter from Cub Pack 21.
Welcome John Hudson Farms
Bringing Fresh Produce from Our Farm to Your Table. For Produce Stand Locations Call (910) 567-2253.
John Hudson | Guitar Lessons In East Dulwich, south London
I have more than 15 years' experience teaching acoustic, electric and bass guitar to players of all ages and abilities, ranging from beginners to professional musicians. I'm based in south London and whether you're just starting out on the guitar or you're an accomplished player looking to improve your skills, I can help you achieve your goals.
John Hudson Joinery - Home
My name is John Hudson and I live in Dorset. . I have been working with wood for many years, starting with turning bowls,. Salt cellars, spindles etc. on a small lathe in my garden shed. What started as a hobby quickly became a profession, firstly helping friends and growing to the point where I am now making a variety of pieces as listed below:. Fitted Wardrobes . Kitchen Cabinets . Tables . Toys . Please take the time to look at my gallery to see a selection of my work.
Starset Theatre |Stage School | Sing!Dance!Act!
For More Information, Click Below. Our Junior class is aimed at children aged 4-7 and takes place 9-10am on either Saturday or Sunday. Classes are 5.00. 8230;take place on-stage in the Theatre at Boldon School, giving our students the “real I-am” every week; are taught and supervised by professional staff and licensed chaperones; can be paid weekly, without any need for block bookings or contracts; are open to all children and young people, regardless of ability or experience…. And had lots of fun! 8220;...
johnhudsonphotography.blogspot.com
John Hudson Photography
Thursday, March 22, 2012. Links to this post. Monday, July 4, 2011. I have been making a few timelapse videos lately using an iphone app. It is a lot of fun. Here are a few that I have made. Links to this post. Tuesday, February 16, 2010. It has snowed a ton here this winter. I am watching Lost. I want a new career. Links to this post. Wednesday, February 3, 2010. Our neighborhood in the snow. Our neighborhood in the snow. Originally uploaded by John Hudson Photo. Links to this post. For John Hudson 2009.
