raquelhultman.blogspot.com
Raquel Bella : Steady
http://raquelhultman.blogspot.com/2014/02/steady.html
Raquel has Recessive Dystrophic Epidermolysis Bullosa (a painful blistering disorder) or simply, EB. We are a small family unit within a large caring and supportive community of friends, family and health care professionals that are doing their best to keep Raquel as comfortable and growing till we can beat EB. Saturday, February 15, 2014. Not much action around here. Raqu for the most part has been exceptional. No real problems anywhere else other then her attitude. After bath, getting ready to put the ...
raquelhultman.blogspot.com
Raquel Bella : EB kick in the %$&s
http://raquelhultman.blogspot.com/2014/04/eb-kick-in.html
Raquel has Recessive Dystrophic Epidermolysis Bullosa (a painful blistering disorder) or simply, EB. We are a small family unit within a large caring and supportive community of friends, family and health care professionals that are doing their best to keep Raquel as comfortable and growing till we can beat EB. Friday, April 25, 2014. EB kick in the %$&s. Ren and I have been thinking a lot lately of Hannah. Losing a child at 11 it's eff'n scary. Coco is 8! I can't imagine or at least I'm trying not to.
raquelhultman.blogspot.com
Raquel Bella : November 2014
http://raquelhultman.blogspot.com/2014_11_01_archive.html
Raquel has Recessive Dystrophic Epidermolysis Bullosa (a painful blistering disorder) or simply, EB. We are a small family unit within a large caring and supportive community of friends, family and health care professionals that are doing their best to keep Raquel as comfortable and growing till we can beat EB. Friday, November 21, 2014. It's really been an amazing run and it keeps going. Raquel is in amazing spirits and health. She has a spark that was evident early and hasn't gone away. How about the b...
raquelhultman.blogspot.com
Raquel Bella : September 2013
http://raquelhultman.blogspot.com/2013_09_01_archive.html
Raquel has Recessive Dystrophic Epidermolysis Bullosa (a painful blistering disorder) or simply, EB. We are a small family unit within a large caring and supportive community of friends, family and health care professionals that are doing their best to keep Raquel as comfortable and growing till we can beat EB. Wednesday, September 25, 2013. It's a wonderful feeling coming away with an empowerment by understanding what I know and what I need to know and the proper paths through it in areas that I can wit...
throughtheeyesofjesus.blogspot.com
Through The Eyes of Jesus: April 2014
http://throughtheeyesofjesus.blogspot.com/2014_04_01_archive.html
Through The Eyes of Jesus. What were God’s intentions as He designed and created children with disabilities? What was His vision and purpose? I want to take a hard look at what society views as defective and ask, "What does God see? I hope we can gain a better vision of what He sees and His purposes in His creation. The cornerstone of the discussion will be the Bible. The personal narrative will be our family’s journey with Epidermolysis Bullosa. Sunday, April 27, 2014. Subscribe to: Posts (Atom). He str...
throughtheeyesofjesus.blogspot.com
Through The Eyes of Jesus: March 2013
http://throughtheeyesofjesus.blogspot.com/2013_03_01_archive.html
Through The Eyes of Jesus. What were God’s intentions as He designed and created children with disabilities? What was His vision and purpose? I want to take a hard look at what society views as defective and ask, "What does God see? I hope we can gain a better vision of what He sees and His purposes in His creation. The cornerstone of the discussion will be the Bible. The personal narrative will be our family’s journey with Epidermolysis Bullosa. Saturday, March 2, 2013. It's Good to Remember. Some famil...
lovingbabydaylon.blogspot.com
Baby Daylon: November 2011
http://lovingbabydaylon.blogspot.com/2011_11_01_archive.html
Tuesday, November 15, 2011. First off I want to say that I was blown away by the response EB awareness week got! I am so impressed and so thankful to have such wonderful people in my life, such as you all, that have taken on the task of spreading awareness. From the bottom of my heart, Thank you! You can find the article HERE. Go away. I can't even process the possibility of a kidney transplant. My mind just won't allow it. Who knows? I can't even tell you how. He stayed on the sidewalk and couldn't care...
lovingbabydaylon.blogspot.com
Baby Daylon: Dance Central 2
http://lovingbabydaylon.blogspot.com/2012/06/dance-central-2.html
Monday, June 18, 2012. Posted by Jennifer Edling. When do you guys head for Minnesota? That was the cutest little dancer Ive ever seen. Adorable! June 18, 2012 at 11:23 PM. Its interesting to see music is what gets him on his feet. We have a daughter that did not walk for a long time for different reasons, but music is what got her on her feet. June 19, 2012 at 10:42 AM. Absolutely LOVE a Daylon video! Will be watching for updates on your trip to MN. Praying from Waterford, MI. June 21, 2012 at 9:03 AM.
lovingbabydaylon.blogspot.com
Baby Daylon: January 2012
http://lovingbabydaylon.blogspot.com/2012_01_01_archive.html
Monday, January 16, 2012. As many of you know, Tripp. Has returned home and is no longer in pain. Brian and I are heartbroken for his wonderful mama, Courtney but we're so grateful that he is enjoying the peace that we've all prayed for. He was such a great fighter and will never be forgotten. He has touched all of our hearts. He will be missed, but never forgotten. Posted by Jennifer Edling. Links to this post. Monday, January 9, 2012. It's been almost 2 months since my last post! Frustrated that he can...
lovingbabydaylon.blogspot.com
Baby Daylon: February 2012
http://lovingbabydaylon.blogspot.com/2012_02_01_archive.html
Thursday, February 16, 2012. Posted by Jennifer Edling. Links to this post. Subscribe to: Posts (Atom). Get email updates when we post! Help with the cure. I'm giving up my birthday for PUCK! To donate towards a cure, click here! Follow Daylon's EB friends. Lake Elsinore, CA, United States. This is the story of our sweet baby Daylon, and life with EB. View my complete profile. Create your own visitor map.
