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ALS, when you body fails

ALS, when you body fails. Wednesday, December 2, 2009. One day in the life of my feet and my bottom. Quarter pas eight: home care comes in. Today Anneke will help me. I cannot get out of my bed myself, so Anneke helps me to get up and to slide onto the commode. This commode will be rolled over the toilet and afterwards into the shower. I cannot reach my feet, so Anneke to washes my feet, my hair and my back. Sunday, November 29, 2009. My arms are getting weaker, but they are still working o.k. Al...So th...

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ALS, when you body fails | liannegoes.blogspot.com Reviews

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ALS, when you body fails. Wednesday, December 2, 2009. One day in the life of my feet and my bottom. Quarter pas eight: home care comes in. Today Anneke will help me. I cannot get out of my bed myself, so Anneke helps me to get up and to slide onto the commode. This commode will be rolled over the toilet and afterwards into the shower. I cannot reach my feet, so Anneke to washes my feet, my hair and my back. Sunday, November 29, 2009. My arms are getting weaker, but they are still working o.k. Al...So th...

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4 dreams

5 feel

6 smell

7 taste

8 hear

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posted by,liannegoes,37 comments,dreams,feel,smell,taste,hear,2 comments,no fun,1 comment,labels als,lou gehrigs,i feel good,no comments,lithium trial,investigation,lithium,en nu,about me,blog archive,twitter updates,followers

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ALS, when you body fails | liannegoes.blogspot.com Reviews

https://liannegoes.blogspot.com

ALS, when you body fails. Wednesday, December 2, 2009. One day in the life of my feet and my bottom. Quarter pas eight: home care comes in. Today Anneke will help me. I cannot get out of my bed myself, so Anneke helps me to get up and to slide onto the commode. This commode will be rolled over the toilet and afterwards into the shower. I cannot reach my feet, so Anneke to washes my feet, my hair and my back. Sunday, November 29, 2009. My arms are getting weaker, but they are still working o.k. Al...So th...

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liannegoes.blogspot.com

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ALS, when you body fails: One day in the life of my feet and my bottom

http://liannegoes.blogspot.com/2009/12/one-day-in-life-of-my-feet-and-my.html

ALS, when you body fails. Wednesday, December 2, 2009. One day in the life of my feet and my bottom. Quarter pas eight: home care comes in. Today Anneke will help me. I cannot get out of my bed myself, so Anneke helps me to get up and to slide onto the commode. This commode will be rolled over the toilet and afterwards into the shower. I cannot reach my feet, so Anneke to washes my feet, my hair and my back. December 3, 2009 at 8:41 AM. Continued blessings on you. January 2, 2010 at 8:33 PM. 若對自己誠實&#6529...

2

ALS, when you body fails: April 2009

http://liannegoes.blogspot.com/2009_04_01_archive.html

ALS, when you body fails. Wednesday, April 22, 2009. Yesterday we went to the UMC in Utrecht for a follow up visit. Aim was to let me ask my questions which might have arisen after the diagnose. I knew already a lot, thanks to internet. I just wanted to know where I have freedom of choise. Many things about ALS frighten me. Well I have the choice to accept of refuse every treatment. Will I be brave enough to refuse anything? Time will tell. I am glad I am not living in Italy or Ireland! Ik ben nog gezond...

3

ALS, when you body fails: Dreams

http://liannegoes.blogspot.com/2009/11/dreams.html

ALS, when you body fails. Sunday, November 29, 2009. Getting up in the morning is the most difficult part of the day. Once I am in my wheel chair it will go better. My arms are getting weaker, but they are still working o.k. Also very annoying even frightening is that I cannot cough properly, or blow my nose, or even sneeze. Loving hands on my shoulder, the sun on my skin, the wind in my hair, my cold feet. And I can talk and sing. I have to accept that that’s my life now. And I try! April 9, 2010 at 2:5...

4

ALS, when you body fails: De diagnose ALS - wat vooraf ging

http://liannegoes.blogspot.com/2009/04/de-diagnose-als-wat-vooraf-ging.html

ALS, when you body fails. Friday, April 17, 2009. De diagnose ALS - wat vooraf ging. Dit berichtje had ik op Tweetup Zeeland gezet op 6 april. Morgen naar UMC Utrecht. Wat eerst een voetblessure leek, en vervolgens misschien toch een hernia was, en vervolgens: geen hernia, maar wat dan wel.lijkt nu meer op een ernstiger neurologisch probleem.Morgen voor second opinion naar Utrecht UMC. Hopelijk dan een diagnose. Morgen ziet de wereld er anders uit. Nooit meer beter zal kunnen lopen, wel slechter.

5

ALS, when you body fails: Lithium trial

http://liannegoes.blogspot.com/2009/04/lithium-trial.html

ALS, when you body fails. Wednesday, April 22, 2009. Yesterday we went to the UMC in Utrecht for a follow up visit. Aim was to let me ask my questions which might have arisen after the diagnose. I knew already a lot, thanks to internet. I just wanted to know where I have freedom of choise. Many things about ALS frighten me. Well I have the choice to accept of refuse every treatment. Will I be brave enough to refuse anything? Time will tell. I am glad I am not living in Italy or Ireland!

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Sarah Ezekiel: January 2014

http://sarahezekiel.blogspot.com/2014_01_01_archive.html

Friday, 24 January 2014. The Park that Died in 2010. Sturgess Park, NW4 (Photo taken with Tobii I-12 eyegaze computer). This is my local park. When my children were young there were swings, instead of an empty frame. There was a roundabout, but that has gone. The park was full of children, laughing and squealing with delight. It's usually empty now. My daughter is doing A levels and doesn't know if she can face university and the mountain of debt that will come with it. Subscribe to: Posts (Atom).

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Sarah Ezekiel: February 2014

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Tuesday, 25 February 2014. Prescription Drugs - Just Say No? I never took drugs before my diagnosis of motor neurone disease, not prescription ones anyway. Doctors don't really want to prescribe from my experience. 'Have paracetamol' is the usual response for everything. I wasn't depressed. My weight was critically low and it was a choice between a feeding tube or the antidepressant, Mirtazapine, which makes you munch. I knew that I had to do something and chose Mirtazapine. Saturday, 15 February 2014.

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Sarah Ezekiel: March 2014

http://sarahezekiel.blogspot.com/2014_03_01_archive.html

Wednesday, 5 March 2014. The Selfies - Because I Can! I met Robert Powell at the Marie Curie Hospice in Hampstead. He opened their Christmas fair on 7 December 2013. He was mobbed but I got to the front and asked him for a photo. He was waiting for someone to get their mobile out and was pretty surprised when I said I can take it myself. Elliot was the compere at Movement for Hope's Rewired. Very sweet and did a great job. An actor to watch out for. I managed to type 'I'm a big fan'. He said thanks a...

sarahezekiel.blogspot.com

Sarah Ezekiel: The Selfies - Because I Can!

http://sarahezekiel.blogspot.com/2014/03/the-selfies-because-i-can.html

Wednesday, 5 March 2014. The Selfies - Because I Can! I met Robert Powell at the Marie Curie Hospice in Hampstead. He opened their Christmas fair on 7 December 2013. He was mobbed but I got to the front and asked him for a photo. He was waiting for someone to get their mobile out and was pretty surprised when I said I can take it myself. Elliot was the compere at Movement for Hope's Rewired. Very sweet and did a great job. An actor to watch out for. I managed to type 'I'm a big fan'. He said thanks a...

sarahezekiel.blogspot.com

Sarah Ezekiel: BISWG Presentation, 11th June 2014

http://sarahezekiel.blogspot.com/2014/06/biswg-presentation-11th-june-2014.html

Thursday, 12 June 2014. BISWG Presentation, 11th June 2014. I was invited to speak and exhibit at the BISWG. Conference and here is my presentation:. Hello everyone, it’s great to be here! I’m going to talk about my journey with assistive technology, which has been quite an adventure. My speech had also deteriorated and I was given a Lightwriter by the MND Association. I had the same problem with the switch, which I was trying to operate with my foot. I just couldn't do it and never used the Ligh...I was...

sarahezekiel.blogspot.com

Sarah Ezekiel: Life Without a Voice

http://sarahezekiel.blogspot.com/2014/02/life-without-voice.html

Saturday, 15 February 2014. Life Without a Voice. I'm not saying all of the above to blow my own trumpet or to boast. I'm saying it because, every now and then, a situation occurs that makes me feel like the woman in the photo. Yesterday was one such occasion. They sent an appointee form but I threw it away, hoping that when I have to phone them again I'll get a more compassionate person. 15 February 2014 at 09:01. So no I am not able to do this. 15 February 2014 at 12:00. 16 February 2014 at 07:38.

sarahezekiel.blogspot.com

Sarah Ezekiel: June 2014

http://sarahezekiel.blogspot.com/2014_06_01_archive.html

Thursday, 12 June 2014. BISWG Presentation, 11th June 2014. I was invited to speak and exhibit at the BISWG. Conference and here is my presentation:. Hello everyone, it’s great to be here! I’m going to talk about my journey with assistive technology, which has been quite an adventure. My speech had also deteriorated and I was given a Lightwriter by the MND Association. I had the same problem with the switch, which I was trying to operate with my foot. I just couldn't do it and never used the Ligh...I was...

sarahezekiel.blogspot.com

Sarah Ezekiel: June 2012

http://sarahezekiel.blogspot.com/2012_06_01_archive.html

Monday, 11 June 2012. Dr Sharon Abrahams Interview. Dr Sharon Abrahams is a Senior Lecturer in Human Cognitive Neuroscience and Clinical Neuropsychologist at the University of Edinburgh. Her current post has three roles, which are:. B) Teaching Undergraduate and Postgraduate students in Neuropsychology,. C) Clinical Neuropsychology for assessment of dementia to aid in diagnosis and management. Dr Abrahams believes that this work has foremost helped researchers to understand the disease process better, it...

sarahezekiel.blogspot.com

Sarah Ezekiel: January 2015

http://sarahezekiel.blogspot.com/2015_01_01_archive.html

Wednesday, 28 January 2015. My Keynote Speech at Speaker's House, Westminister - 27/01/15. Yesterday, I attended the launch of the APPG report 'Condemned to Silence'. Here is my speech:. Hello, I am Sarah Ezekiel and I was diagnosed with motor neurone disease in 2000, at the age of 34. I’m really pleased to join you all at this important event. Most people with MND don’t live as long as me, and I’m here today, partly, to give a voice to all those who can’t be here. I feel very lucky to have the technolog...

sarahezekiel.blogspot.com

Sarah Ezekiel: September 2012

http://sarahezekiel.blogspot.com/2012_09_01_archive.html

Monday, 3 September 2012. My Life of Brian - E17 Art Trail Exhibition, 1st September 2012. When I was asked to exhibit as part of the E17 Art Trail. I immediately said yes. I usually say yes to pretty much anything that will raise awareness of motor neurone disease. I started to frame up my prints thinking this will be a doddle. Luckily, I met two of the Art Trail organisers by chance and I think they could see that I needed help and support. They introduced me to artist, Toby Poolman. But here we are, s...

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ALS, when you body fails

ALS, when you body fails. Wednesday, December 2, 2009. One day in the life of my feet and my bottom. Quarter pas eight: home care comes in. Today Anneke will help me. I cannot get out of my bed myself, so Anneke helps me to get up and to slide onto the commode. This commode will be rolled over the toilet and afterwards into the shower. I cannot reach my feet, so Anneke to washes my feet, my hair and my back. Sunday, November 29, 2009. My arms are getting weaker, but they are still working o.k. Al...So th...

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