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Lilla isa | Isa's journey living with epilepsy and brain malformation.

Isa's journey living with epilepsy and brain malformation. (by lillaisa)

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Lilla isa | Isa's journey living with epilepsy and brain malformation. | lillaisa.wordpress.com Reviews

https://lillaisa.wordpress.com

Isa's journey living with epilepsy and brain malformation. (by lillaisa)

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1

Going private | Lilla isa

https://lillaisa.wordpress.com/2014/11/09/going-private

Isa's journey living with epilepsy and brain malformation. November 9, 2014. If you want to read about Isa and follow this blog, please leave a comment with your email or your username on wordpress so I can add you to the list of readers. It is only by invitation that this blog is gonna be visible. All the best from us to you. 15 thoughts on “ Going private. November 9, 2014 at 5:32 pm. Fondly, Nina (Lauren’s Mom) nm25@comcast.net. November 13, 2014 at 7:05 am. November 9, 2014 at 5:54 pm. I tried making...

2

Still here… | Lilla isa

https://lillaisa.wordpress.com/2015/06/15/still-here

Isa's journey living with epilepsy and brain malformation. June 15, 2015. She can walk and take quite a few steps by herself when she is wearing her AFO’s, she can take a few shaky steps by herself when she’s barefoot. Everything has been improving, slowly, but improving. She has just today started a 2 week intensive training with the conductive pedagogy method. We are hoping to see a lot of changes and see Isa develop in many ways during this summer months. 2 thoughts on “ Still here…. Just another Word...

3

Shorter leg or not? | Lilla isa

https://lillaisa.wordpress.com/2014/08/26/shorter-leg-or-not

Isa's journey living with epilepsy and brain malformation. Shorter leg or not? August 26, 2014. When she walks and when you look at her legs it feels like the difference is more than just a few millimeters, you can see how one leg is just shorter, not just a few millimeters. The answer he had, was that as the left side of her body is weaker she doesn’t have the strength to stretch the leg completely. One thought on “ Shorter leg or not? August 27, 2014 at 8:15 am. Leave a Reply Cancel reply. This wasn&#0...

4

Dear Ella | Lilla isa

https://lillaisa.wordpress.com/2014/11/03/dear-ella

Isa's journey living with epilepsy and brain malformation. November 3, 2014. Every time she does something new (and new things happen everyday, all the time) Nicklas and I can’t help but to look at each other and smile, and by smile I mean wide side to side smile. I’m in love, big time. 6 thoughts on “ Dear Ella. November 3, 2014 at 10:24 pm. They are both adorable. November 4, 2014 at 6:33 pm. You have no idea how much more thankful, we know how nothing is for granted and we are enjoying it so much🙂.

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Lilla isa | Isa's journey living with epilepsy and brain malformation. | Page 2

https://lillaisa.wordpress.com/page/2

Isa's journey living with epilepsy and brain malformation. Shorter leg or not? August 26, 2014. When she walks and when you look at her legs it feels like the difference is more than just a few millimeters, you can see how one leg is just shorter, not just a few millimeters. The answer he had, was that as the left side of her body is weaker she doesn’t have the strength to stretch the leg completely. August 18, 2014. Isa is big, and when I say that she is big, I mean that she has grown up so much! It fee...

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sophiasworld-sophiaale.blogspot.com sophiasworld-sophiaale.blogspot.com

Sophia's unique world: November 2013

http://sophiasworld-sophiaale.blogspot.com/2013_11_01_archive.html

A peek into the unique world of the girl that amazes me every day. Saturday, November 23, 2013. Ten things of thankful. With ups and downs, more downs than ups to be quite honest (you can find out why here. In weeks like this is when this marvelous blog hop comes in handy. Thank you Lizzi. For having this great idea. Happy TToT 25th weekaversary by the way :). It's going to be a challenge to come up with ten things but here is this week's list:. It was 4 hours long! The week has been tough for all of us ...

sophiasworld-sophiaale.blogspot.com sophiasworld-sophiaale.blogspot.com

Sophia's unique world: May 2015

http://sophiasworld-sophiaale.blogspot.com/2015_05_01_archive.html

A peek into the unique world of the girl that amazes me every day. Thursday, May 28, 2015. How nice when things work out. Sometimes I feel like I'm always expecting things go wrong for us or like everything is difficult for us, and when they do work out it almost feels unreal. Sophia's doctor prescribed a new medicine to pair with the one she was already taking for her seizures, you can read about why we had to add one here. Watching the Memorial Day parade. Thursday, May 21, 2015. We will work our way u...

sophiasworld-sophiaale.blogspot.com sophiasworld-sophiaale.blogspot.com

Sophia's unique world: It's not her, it's me.

http://sophiasworld-sophiaale.blogspot.com/2015/08/its-not-her-its-me.html

A peek into the unique world of the girl that amazes me every day. Friday, August 14, 2015. It's not her, it's me. So things are happening really fast. The feeding tube it's not only a fact but it's going to be placed in Sophia's belly this coming Tuesday! Sophia had a blast! She was laughing the whole time and drank the barium when she needed to and changed positions with no problem at all. Everybody in the radiology department was in love with her and her smile. August 14, 2015 at 11:06 AM. Como lo he ...

sophiasworld-sophiaale.blogspot.com sophiasworld-sophiaale.blogspot.com

Sophia's unique world: Are two medicines going to be enough?

http://sophiasworld-sophiaale.blogspot.com/2015/07/are-two-medicines-going-to-be-enough.html

A peek into the unique world of the girl that amazes me every day. Thursday, July 23, 2015. Are two medicines going to be enough? And she had that horrible seizure, one of the scariest things I have ever witnessed! Sophia was turning blue and she was drooling uncontrollably. One horrible night for sure! Now we are up to 4 pills a day! I hate to see my baby girl going through this, but the falls from losing her balance and the exhaustion she seems to feel after a seizure haven't stopped the smile she alwa...

sophiasworld-sophiaale.blogspot.com sophiasworld-sophiaale.blogspot.com

Sophia's unique world: September 2013

http://sophiasworld-sophiaale.blogspot.com/2013_09_01_archive.html

A peek into the unique world of the girl that amazes me every day. Thursday, September 26, 2013. There's been a lot of controversy about the DAS (Disabled Assistance System) at Disney World, some people think that nobody should get any "special treatment" and that kids with special needs should not go to Disney because of the noise and crowds. Bloggers like Ellen from Love that Max. Respond to some of the rude comments and she is right on the dot in her explanations. Sunday, September 22, 2013. 1 I was n...

sophiasworld-sophiaale.blogspot.com sophiasworld-sophiaale.blogspot.com

Sophia's unique world: August 2015

http://sophiasworld-sophiaale.blogspot.com/2015_08_01_archive.html

A peek into the unique world of the girl that amazes me every day. Tuesday, August 25, 2015. The hard part is over, or is it? The first day at home I was wondering if we did the right thing, and I have to say that despite the struggles I think in the long run it's going to be so worth it. Now we realized how little fluid Sophia was really taking! What a strong girl Sophia is! Friday, August 14, 2015. It's not her, it's me. Sophia had a blast! Thursday, August 6, 2015. So a feeding tube it is. One of the ...

transcendingcp.blogspot.com transcendingcp.blogspot.com

Transcending CP: Shattering the Limits of a Disability: If I didn't have CP....

http://transcendingcp.blogspot.com/2013/01/if-i-didnt-have-cp.html

Shattering the Limits of a Disability. Friday, January 25, 2013. If I didn't have CP. Sometimes in my dreams, I am running. I can feel the wind beneath my feet, and I am in awe of my body as each step propels me forward with ease and grace. It is breathtaking, freeing, exhilarating. And then I awaken, and I am faced with the reality of a body that can't run, legs that seize up whenever I try to move quickly. I am faced with the reality that I probably never will. Yet at the same time, I know that I do.

sophiasworld-sophiaale.blogspot.com sophiasworld-sophiaale.blogspot.com

Sophia's unique world: February 2015

http://sophiasworld-sophiaale.blogspot.com/2015_02_01_archive.html

A peek into the unique world of the girl that amazes me every day. Friday, February 27, 2015. The PODD is her voice. Sophia and I go to Colombia every year around March or April and this year I am extra excited because this time, we get to bring Sophia's voice with us. And it makes so much sense, the PODD is not just a communication aide, it's Sophia's voice! Just a sample of what the Spanish version would be. Friday, February 20, 2015. The problem was that we were not giving her the chance to do it, to ...

sophiasworld-sophiaale.blogspot.com sophiasworld-sophiaale.blogspot.com

Sophia's unique world: July 2015

http://sophiasworld-sophiaale.blogspot.com/2015_07_01_archive.html

A peek into the unique world of the girl that amazes me every day. Friday, July 31, 2015. Finding something positive in the middle of the chaos. To pick up where I left off in my last post, Sophia's seizures and tremors are gone! A lot of fluids. The nephrologist asked me to give Sophia at least three of the bottles she uses a day, but on a great day she drinks one! I would walk thousands of miles to see this smile. Http:/ www.firstgiving.com/fundraiser/natalia-frost/ConcordWalk2015. So this is where we ...

sophiasworld-sophiaale.blogspot.com sophiasworld-sophiaale.blogspot.com

Sophia's unique world: One of those days...

http://sophiasworld-sophiaale.blogspot.com/2015/07/one-of-those-days.html

A peek into the unique world of the girl that amazes me every day. Tuesday, July 14, 2015. One of those days. I'm so scared about our future when Sophia is a 30 year old woman, are we going to be feeding her still? Are we even going to be here at all? Who's going to take care of her? Who is going to love her? Then I feel sad and guilty and angry again. She is so small! Dyanne @ I Want Backsies. July 14, 2015 at 7:49 PM. I admire you so, Natalia. Its okay to feel sorry for yourself sometimes. You ...I und...

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