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Sophia's unique world

A peek into the unique world of the girl that amazes me every day. Friday, August 14, 2015. It's not her, it's me. So things are happening really fast. The feeding tube it's not only a fact but it's going to be placed in Sophia's belly this coming Tuesday! Sophia had a blast! She was laughing the whole time and drank the barium when she needed to and changed positions with no problem at all. Everybody in the radiology department was in love with her and her smile. Thursday, August 6, 2015. She opens her ...

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Sophia's unique world | sophiasworld-sophiaale.blogspot.com Reviews
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A peek into the unique world of the girl that amazes me every day. Friday, August 14, 2015. It's not her, it's me. So things are happening really fast. The feeding tube it's not only a fact but it's going to be placed in Sophia's belly this coming Tuesday! Sophia had a blast! She was laughing the whole time and drank the barium when she needed to and changed positions with no problem at all. Everybody in the radiology department was in love with her and her smile. Thursday, August 6, 2015. She opens her ...
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Sophia's unique world | sophiasworld-sophiaale.blogspot.com Reviews

https://sophiasworld-sophiaale.blogspot.com

A peek into the unique world of the girl that amazes me every day. Friday, August 14, 2015. It's not her, it's me. So things are happening really fast. The feeding tube it's not only a fact but it's going to be placed in Sophia's belly this coming Tuesday! Sophia had a blast! She was laughing the whole time and drank the barium when she needed to and changed positions with no problem at all. Everybody in the radiology department was in love with her and her smile. Thursday, August 6, 2015. She opens her ...

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1

Sophia's unique world: One of those days...

http://www.sophiasworld-sophiaale.blogspot.com/2015/07/one-of-those-days.html

A peek into the unique world of the girl that amazes me every day. Tuesday, July 14, 2015. One of those days. I'm so scared about our future when Sophia is a 30 year old woman, are we going to be feeding her still? Are we even going to be here at all? Who's going to take care of her? Who is going to love her? Then I feel sad and guilty and angry again. She is so small! Dyanne @ I Want Backsies. July 14, 2015 at 7:49 PM. I admire you so, Natalia. Its okay to feel sorry for yourself sometimes. You ...I und...

2

Sophia's unique world: Are two medicines going to be enough?

http://www.sophiasworld-sophiaale.blogspot.com/2015/07/are-two-medicines-going-to-be-enough.html

A peek into the unique world of the girl that amazes me every day. Thursday, July 23, 2015. Are two medicines going to be enough? And she had that horrible seizure, one of the scariest things I have ever witnessed! Sophia was turning blue and she was drooling uncontrollably. One horrible night for sure! Now we are up to 4 pills a day! I hate to see my baby girl going through this, but the falls from losing her balance and the exhaustion she seems to feel after a seizure haven't stopped the smile she alwa...

3

Sophia's unique world: A tiny superhero called Sophia.

http://www.sophiasworld-sophiaale.blogspot.com/2015/07/a-tiny-superhero-called-sophia.html

A peek into the unique world of the girl that amazes me every day. Friday, July 3, 2015. A tiny superhero called Sophia. The wonderful Robyn from Tinysuperheroes wrote a beautiful post about my Super Sophia. Here is the post Robyn wrote. Http:/ www.tinysuperheroes.com/tinysuperheroes/super-sophia. July 4, 2015 at 10:21 AM. Sophia is a superhero. Her power is sheer determination. July 4, 2015 at 1:46 PM. July 15, 2015 at 7:55 AM. Sofia es realmente un hermoso héroe y angelito guerrero de la vida. Its one ...

4

Sophia's unique world: June 2015

http://www.sophiasworld-sophiaale.blogspot.com/2015_06_01_archive.html

A peek into the unique world of the girl that amazes me every day. Sunday, June 21, 2015. I love you da-da! Yes, Sophia loves her da-da and I know without a shadow of a doubt that he loves her back just the way she is and that he is going to be there for her, protecting, supporting her and doing everything he can to make sure she has the best life. Sunday, June 14, 2015. 6/15/08, the date you changed my world. In my daughter's eyes I am a hero. I am strong and wise and I know no fear. Yes, it has been ve...

5

Sophia's unique world: So a feeding tube it is.

http://www.sophiasworld-sophiaale.blogspot.com/2015/08/so-feeding-tube-it-is.html

A peek into the unique world of the girl that amazes me every day. Thursday, August 6, 2015. So a feeding tube it is. In a matter of eight days I went from "I can't believe we have to put a little hole in my baby's belly" to "Can we get the gtube today please? One thing I feel good about is that I found this Facebook group that gives support to parents of kids with feeding tubes. I "liked" it and posted a question basically asking for tips and the response was overwhelming! I got 71 messages! For every q...

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Still here… | Lilla isa

https://lillaisa.wordpress.com/2015/06/15/still-here

Isa's journey living with epilepsy and brain malformation. June 15, 2015. She can walk and take quite a few steps by herself when she is wearing her AFO’s, she can take a few shaky steps by herself when she’s barefoot. Everything has been improving, slowly, but improving. She has just today started a 2 week intensive training with the conductive pedagogy method. We are hoping to see a lot of changes and see Isa develop in many ways during this summer months. 2 thoughts on “ Still here…. Just another Word...

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Sophia's unique world

A peek into the unique world of the girl that amazes me every day. Friday, August 14, 2015. It's not her, it's me. So things are happening really fast. The feeding tube it's not only a fact but it's going to be placed in Sophia's belly this coming Tuesday! Sophia had a blast! She was laughing the whole time and drank the barium when she needed to and changed positions with no problem at all. Everybody in the radiology department was in love with her and her smile. Thursday, August 6, 2015. She opens her ...

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