livylove.weebly.com
Livy Love - Livy's JourneyFeeding Tube Site with Blog
http://livylove.weebly.com/
Feeding Tube Site with Blog
http://livylove.weebly.com/
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Livy Love - Livy's Journey | livylove.weebly.com Reviews
https://livylove.weebly.com
Feeding Tube Site with Blog
livylove.weebly.com
Marketplace - Livy Love
http://livylove.weebly.com/marketplace.html
Follow these links to do your personal or holiday shopping and help build Livy's medical fund. Our wonderful friends and family have put together a wide variety of online shops, so you can find the perfect gift for everyone.or yourself! May you all have a wonderful and joyful holiday season. Livy's Marketplace.just click and shop to raise funds! Click below to enjoy beautifully designed, high-quality Lia Sophia jewelery. Just what you need to take your wardrobe to the next level! Our 1st PC party will en...
Livy Love - Livy Love
http://livylove.weebly.com/pictures.html
Pictures often can tell a story that words can't. And beyond that, our Livy Love is CUTE! Her little sister Sophie is her spitting image so we can't help but find these two girls to be the most adorable things on the planet. I'll be sharing pictures of all aspects of Livy's life.healthy, sick and in-between. Create a free website. Create your own free website. Start your own free website. A surprisingly easy drag and drop site creator. Learn more.
Helping Hands - Livy Love
http://livylove.weebly.com/helping-hands.html
Thank you very much! Troy and I would like to say thank you so much for everything that so many many people have done for us and are doing. We greatly appreciate it and wish we had the words to convey how truely greatful we really are. We are beyond blessed to have so many amazing people in our lives! If you are interested in helping. Thank you very much! The Livy Love Foundation Website. Create a free website. Create your own free website. Start your own free website.
Q&A - Livy Love
http://livylove.weebly.com/qa.html
Answers to your questions. I've done my best to answer any and all questions and in a timely manner. I am not a doctor and my information is simply an opinion or from experience. :-) Please be smart and consult a doctor with any real medical questions you have pertaining to yourself or your child! And by all means, keep on asking, I love the questions! Q: Does Livy still get to eat regular food and if so, how much and how often? Q: How long will Livy need her feeding tube? A: No, we still haven't reached...
Tubie Info - Livy Love
http://livylove.weebly.com/tubie-info.html
For the Tubie Parent or Tubie Family Member that's happened upon this page or if you are just curious about tube feeding and would like more information. I've compiled this from my personal knowledge as well as a variety of sources. I hope this information helps you in your journey, as finding/being given information such as this has helped us through ours immensely! I've had some people comment or send emails asking what they should do or say, how they should act. And not just towards me. I've h...Often...
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8th International Costello Conference, Orlando, FL 2013 | Mr. Snuggles- Zane Leland Madaus
https://zaneleland.wordpress.com/2013/08/10/8th-international-costello-conference-orlando-fl-2013
Mr Snuggles- Zane Leland Madaus. Costello Syndrome (G12A), History of Neuroblastoma, Enlarged Heart, Laryngo and Tracheomalcia, Severe sleep apnea, severe Reflux/GERD, optic Nerve Hypoplasia (mostly blind). Gtube and Acid Reflux. How You Can Help. Laryngo and Trachea Malacia. What Mayo Clinic Did For Us. 8th International Costello Conference, Orlando, FL 2013. August 10, 2013. In 2013 Costello Conference. Thank you so much to everyone who helped get us to the Costello conference in Florida! Thank you to ...
Zane is doing soooo well! | Mr. Snuggles- Zane Leland Madaus
https://zaneleland.wordpress.com/2014/04/30/zane-is-doing-soooo-well
Mr Snuggles- Zane Leland Madaus. Costello Syndrome (G12A), History of Neuroblastoma, Enlarged Heart, Laryngo and Tracheomalcia, Severe sleep apnea, severe Reflux/GERD, optic Nerve Hypoplasia (mostly blind). Gtube and Acid Reflux. How You Can Help. Laryngo and Trachea Malacia. What Mayo Clinic Did For Us. Zane is doing soooo well! April 30, 2014. I am so sorry I have not updated Zane’s webpage in a very long time! Then I had issues with my battery cord not working! I thought we would never see the dayR...
ShannonK | Mr. Snuggles- Zane Leland Madaus
https://zaneleland.wordpress.com/author/zanesmom
Mr Snuggles- Zane Leland Madaus. Costello Syndrome (G12A), History of Neuroblastoma, Enlarged Heart, Laryngo and Tracheomalcia, Severe sleep apnea, severe Reflux/GERD, optic Nerve Hypoplasia (mostly blind). Gtube and Acid Reflux. How You Can Help. Laryngo and Trachea Malacia. What Mayo Clinic Did For Us. OMSLife Foundation Conference in Cinncinati, OH 2015. April 13, 2015. Read Article →. Zane is doing soooo well! April 30, 2014. I am so sorry I have not updated Zane’s webpage in a very long time! These ...
NICU | Mr. Snuggles- Zane Leland Madaus
https://zaneleland.wordpress.com/nicu
Mr Snuggles- Zane Leland Madaus. Costello Syndrome (G12A), History of Neuroblastoma, Enlarged Heart, Laryngo and Tracheomalcia, Severe sleep apnea, severe Reflux/GERD, optic Nerve Hypoplasia (mostly blind). Gtube and Acid Reflux. How You Can Help. Laryngo and Trachea Malacia. What Mayo Clinic Did For Us. Zane spent his first month of life in St. Joe’s NICU… mostly trying to eat. Then we met Dr. Robey! At that time which is a floppy larynx. Click HERE to read more about Laryngo and Trachea Malacia. We had...
Dental & Nutrition Workshops- 2013 Orlando FL Costello Conference | Mr. Snuggles- Zane Leland Madaus
https://zaneleland.wordpress.com/2013/08/08/dental-nutrition-workshops-2013-orlando-fl-costello-conference
Mr Snuggles- Zane Leland Madaus. Costello Syndrome (G12A), History of Neuroblastoma, Enlarged Heart, Laryngo and Tracheomalcia, Severe sleep apnea, severe Reflux/GERD, optic Nerve Hypoplasia (mostly blind). Gtube and Acid Reflux. How You Can Help. Laryngo and Trachea Malacia. What Mayo Clinic Did For Us. Dental and Nutrition Workshops- 2013 Orlando FL Costello Conference. August 8, 2013. In 2013 Costello Conference. By Dr Skip Dolt, DDS RASodontis. Challenges to CS teeth:. Tooth enamel dissolves below 5&...
OMSLife Foundation Conference in Cinncinati, OH 2015 | Mr. Snuggles- Zane Leland Madaus
https://zaneleland.wordpress.com/2015/04/13/omslife-foundation-conference-in-cinncinati-oh-2015
Mr Snuggles- Zane Leland Madaus. Costello Syndrome (G12A), History of Neuroblastoma, Enlarged Heart, Laryngo and Tracheomalcia, Severe sleep apnea, severe Reflux/GERD, optic Nerve Hypoplasia (mostly blind). Gtube and Acid Reflux. How You Can Help. Laryngo and Trachea Malacia. What Mayo Clinic Did For Us. OMSLife Foundation Conference in Cinncinati, OH 2015. April 13, 2015. I don’t know. No one has the answer still. Could it have been OMS/OMA? Thank you Mike and the doctors who came to speak to us! You ar...
Gtube & Acid Reflux | Mr. Snuggles- Zane Leland Madaus
https://zaneleland.wordpress.com/gtube-acid-reflux
Mr Snuggles- Zane Leland Madaus. Costello Syndrome (G12A), History of Neuroblastoma, Enlarged Heart, Laryngo and Tracheomalcia, Severe sleep apnea, severe Reflux/GERD, optic Nerve Hypoplasia (mostly blind). Gtube and Acid Reflux. How You Can Help. Laryngo and Trachea Malacia. What Mayo Clinic Did For Us. Gtube and Acid Reflux. They also decided to scope his throat and called an ENT in. Thats when we met Dr. Robey! He was our first specialist! He scoped and said Zane has laryngo malacia. Sadly after his n...
Special features | Mr. Snuggles- Zane Leland Madaus
https://zaneleland.wordpress.com/special-features
Mr Snuggles- Zane Leland Madaus. Costello Syndrome (G12A), History of Neuroblastoma, Enlarged Heart, Laryngo and Tracheomalcia, Severe sleep apnea, severe Reflux/GERD, optic Nerve Hypoplasia (mostly blind). Gtube and Acid Reflux. How You Can Help. Laryngo and Trachea Malacia. What Mayo Clinic Did For Us. Our mutated lil fellar has a few unique features that have been noted:. 8220;he is beefy” – noted by an endocrinologist on his medical record. It literally says BEEFY. interesting. He has a lot of rolls!
Awareness Gear | Mr. Snuggles- Zane Leland Madaus
https://zaneleland.wordpress.com/awareness-gear
Mr Snuggles- Zane Leland Madaus. Costello Syndrome (G12A), History of Neuroblastoma, Enlarged Heart, Laryngo and Tracheomalcia, Severe sleep apnea, severe Reflux/GERD, optic Nerve Hypoplasia (mostly blind). Gtube and Acid Reflux. How You Can Help. Laryngo and Trachea Malacia. What Mayo Clinic Did For Us. 8211; a portion benefits Zane’s fund. Neuroblastoma- The Sierra Rayn Foundation. Silicone wristbands, car decals, car magnets, tumbler, tshirt. Coping with Laryngomalacia, Inc. Leave a Reply Cancel reply.
the Pregnancy | Mr. Snuggles- Zane Leland Madaus
https://zaneleland.wordpress.com/the-pregnancy
Mr Snuggles- Zane Leland Madaus. Costello Syndrome (G12A), History of Neuroblastoma, Enlarged Heart, Laryngo and Tracheomalcia, Severe sleep apnea, severe Reflux/GERD, optic Nerve Hypoplasia (mostly blind). Gtube and Acid Reflux. How You Can Help. Laryngo and Trachea Malacia. What Mayo Clinic Did For Us. Everything I invested in and tried to relieve PUPPS itching:. What ended up working:. From 32 weeks on , I went did Non Stress Tests twice a week… all coming up normal. At 35 weeks… we did another ...
TOTAL LINKS TO THIS WEBSITE
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Livy Lou Designs
Monday, November 30, 2009. I admit, I have been a very bad blogger. Is it just me or did November just fly right by? I really can't believe that tomorrow is the 1st day of December. The countdown is on. Only 12 days until our annual holiday party at our home. 19 days left of school for the year. 23 days until we go over the river and through the woods (yes, we are going to grandma's). Of course 25 days until the BIG day! If I wasn't stressed enough my son has a hockey game every single day this week!
Livy Lou's Boutique
Tuesday, September 23, 2014. FIrst Day Of Fall. HAPPY FIRST DAY OF FALL SWEET FRIENDS! Autumn is a second spring where every leaf is a flower ". Today is the very first day of fall and we are very excited about it over here at Livy Lou's! With new scarves, sweaters, boot cuffs and socks coming in we are ready to throw on those cozy clothes, brew up a cup of tea and welcome Autumn with open arms. Stop in and celebrate with us! Thursday, April 17, 2014. Spring has sprung over at Livy Lou’s! If you haven...
Livy Lou's
Thursday, April 17, 2014. Spring has sprung over at Livy Lou’s! Have you seen our amazing windows for Easter? If not, make sure to stop by and have a look. We’re loving the warm weather and blooming trees. The changing seasons call for an update on everyone’s favorite local boutique! Florals, sweet spring colors and feminine cuts are all included in our spring merchandise. You may receive up to 30% off your purchase. Don’t miss this great chance to save some money on adorable clothes! First, Zoe is weari...
Livy Lou Who | The greatest thing you'll ever learn is just to love and be loved in return
The greatest thing you'll ever learn is just to love and be loved in return. August 30, 2013. Does anyone ever have ideas of grandeur? Yep, I can admit it. Excellent planner, horrible at follow through. So, I am going to change that. My new motto will be. Excellent Planner, Amazing at Follow Through. Board, amazing ideas right? August 13, 2013. Hi I have decided to start a Blog. Why, cause everyone else is, and I am easily susceptible to peer pressure 😉. Shall we let the adventure begin….
Livy Love
Thursday, August 6, 2015. I have been waiting a long time to finally write about my weight loss after baby. I am 2 weeks post partum and feel really great! I am very motivated to get back into shape. While in the hospital, I let myself eat whatever I wanted from the hospital cafeteria, which in all honesty isn't that horrible. I did let myself have a few slices of cheesecake and some cookies, but I knew once I got home, I wanted to start monitoring what I ate. I tried on my size 12 jeans and they fit!
Livy Love - Livy's Journey
The Beginning of our Journey. Then, finally, after being told I'd have a C-section in the morning after my 4th admit to L&D, my body flew into labor. Everyone, from us, my family and doula, to the doctors and nurses were so surprised when Olivia was born after only a few contractions and pushing! She went from screaming to smiling and we were so thrilled. On Livy's first Christmas Day, I gave her and Troy a gift.the news that we were going to be having our second child! And things get Worse. Livy also be...
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livylovesdragons.deviantart.com
livylovesdragons - DeviantArt
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Livy Low
Top Posts and Pages. Why we need to change the Ebola paradigm. Olivia (Livy) Low is a medical student at Albert Einstein College of Medicine and a Barnard College graduate. She's an aspiring changemaker seeking to put empathy into practice and to improve the health of people everywhere. She believes that all lives have equal value, and that everyone deserves the chance to lead a healthy, dignified life. Email: livy.low@gmail.com. Aung san suu kyi. International women's day. July 29, 2015. He only one who...
LivyluGamer - DeviantArt
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Livy Lu Lu
A place for me to display my love of nail polish, anything girly, and a little look into my life. And on top of all that, I'm a southern girl who loves her Arkansas Razorbacks. Friday, June 7, 2013. I just wanted to make a quick post today sharing what's been on my nails for about a week now. I got a shellac French manicure, which is one of my favorite things to have on my nails. It always goes with everything and it lasts forever! I just love the look of a classic French manicure. Posted by Olivia C.
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