emmajanae.blogspot.com
Hope for Emma's Heart: A Day in the Life
http://emmajanae.blogspot.com/2015/05/a-day-in-life.html
Poems and Songs for HLHS Babies. CHD Facts and Stats. Monday, May 11, 2015. A Day in the Life. 12:04am: Beeping medicine pumps. I hate the beeping pumps. Now Emma is awake and can't get settled. 2:45am: Feeding pump is beeping which wakes Emma up again. 7:30am: Rise and Shine Boston. Emma is waking up and it is my turn to get ready for the busy day ahead. 8:05am: Sarah arrived with coffee. 8:15am: Doctor rounds with around 15 different medical professionals. 8:40am: 6 doctors come in room to examine Emma.
nicholshousehold.blogspot.com
The Nichols: October 2010
http://nicholshousehold.blogspot.com/2010_10_01_archive.html
Monday, October 25, 2010. Just laugh out loud and count your many blessings! I have sat down some many time to post this blog post and I have failed so many times. I would type, get a phone call, type, feed Lyric, type, make dinner, type feed Lyric, type, change a diaper, type, have playtime, type, feed Lyric, type, pick up the house, type.etc, etc, etc. you get the idea! 1 Amazing God that loves me and only wants the best for me! 2 Super awesome husband, who tells me that I'm amazing! They left everythi...
emmajanae.blogspot.com
Hope for Emma's Heart: March 2015
http://emmajanae.blogspot.com/2015_03_01_archive.html
Poems and Songs for HLHS Babies. CHD Facts and Stats. Tuesday, March 31, 2015. Post Op Update 2. Emma is recovering in the cvicu. We all had a long night. She got back up to the unit around between eleven to midnight. Sarah and I each averaged around 2 to 3 hours of sleep. We appreciate all the thoughts and prayers as we continue on this journey. God is good, all the time. And all the time, God is good! Monday, March 30, 2015. It will be a busy night keeping her calm and dealing with post op issues.
emmajanae.blogspot.com
Hope for Emma's Heart: Post Cath Update 2
http://emmajanae.blogspot.com/2015/04/post-cath-update-2.html
Poems and Songs for HLHS Babies. CHD Facts and Stats. Wednesday, April 29, 2015. Post Cath Update 2. This will be brief.Emma had a rough night and is fighting very low blood pressures despite being on medications that help boost blood pressure. Emma is also running a fairly high fever that we are having problems bringing down. Also, Emma's belly has gotten huge.and of course we don't know why. Today's plan is to take Emma to IR to attempt another PICC line and try to determine why her belly is so big.
emmajanae.blogspot.com
Hope for Emma's Heart: Crossroads
http://emmajanae.blogspot.com/2015/05/crossroads.html
Poems and Songs for HLHS Babies. CHD Facts and Stats. Saturday, May 2, 2015. Where do I begin? And how do I adequately describe the crossroads at which we are currently at with Emma's care? In the meantime, Scott and I focus on today. We focus on what we can do medically to bring Emma back to some sort of normalcy. Basically, getting Em back on feeds, enteral meds, stable kidneys, bone health, development issues, et . Subscribe to: Post Comments (Atom). Home Away From Home Address. Boston, MA 02115.
emmajanae.blogspot.com
Hope for Emma's Heart: May 2015
http://emmajanae.blogspot.com/2015_05_01_archive.html
Poems and Songs for HLHS Babies. CHD Facts and Stats. Monday, May 18, 2015. PS Emma has developed a nasty cough that is causing her problems. Please pray that we can get this remedied soon. I hate seeing her miserable:(. Monday, May 11, 2015. A Day in the Life. 12:04am: Beeping medicine pumps. I hate the beeping pumps. Now Emma is awake and can't get settled. 2:45am: Feeding pump is beeping which wakes Emma up again. 8:05am: Sarah arrived with coffee. 8:40am: 6 doctors come in room to examine Emma. 10:42...
emmajanae.blogspot.com
Hope for Emma's Heart: January 2015
http://emmajanae.blogspot.com/2015_01_01_archive.html
Poems and Songs for HLHS Babies. CHD Facts and Stats. Tuesday, January 27, 2015. Boston Blizzard of 2015. I know many of you have been waiting on an update. I apologize for not getting one to you sooner. So, that is a brief update on the Boston weather and why we are still stuck in Boston. We will have several follow-up appointments when we get back to Dallas to monitor him his heart, G.I. status, weight, and labs. Wednesday, January 21, 2015. Little Miss Skinny Minnie. Speaking of weight gain, my skinny...
emmajanae.blogspot.com
Hope for Emma's Heart: April 2015
http://emmajanae.blogspot.com/2015_04_01_archive.html
Poems and Songs for HLHS Babies. CHD Facts and Stats. Wednesday, April 29, 2015. Post Cath Update 2. This will be brief.Emma had a rough night and is fighting very low blood pressures despite being on medications that help boost blood pressure. Emma is also running a fairly high fever that we are having problems bringing down. Also, Emma's belly has gotten huge.and of course we don't know why. Today's plan is to take Emma to IR to attempt another PICC line and try to determine why her belly is so big.
emmajanae.blogspot.com
Hope for Emma's Heart: Finding Our Normal
http://emmajanae.blogspot.com/2015/08/finding-our-normal.html
Poems and Songs for HLHS Babies. CHD Facts and Stats. Thursday, August 6, 2015. It has been a few weeks since we've updated the blog so I thought I would give our loyal blog followers a brief update on Miss Emma. First and foremost, Emma is really enjoying being at home. It does our hearts good to see the joy on her face from doing normal run-of-the-mill activities that she has missed so much in the past seven months. Overall, we are loving the process of finding our normal again. We have found a cou...
