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Ronan ReflectionsStories of our life in Santa Monica, the highs and lows of parenthood, and the intensity of raising a medically fragile and special needs child.
http://marsolan.blogspot.com/
Stories of our life in Santa Monica, the highs and lows of parenthood, and the intensity of raising a medically fragile and special needs child.
http://marsolan.blogspot.com/
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Ronan Reflections | marsolan.blogspot.com Reviews
https://marsolan.blogspot.com
Stories of our life in Santa Monica, the highs and lows of parenthood, and the intensity of raising a medically fragile and special needs child.
marsolan.blogspot.com
Ronan Reflections: July 2013
http://www.marsolan.blogspot.com/2013_07_01_archive.html
Our little boy arrived in August 2011. Soon after his birth, we found out he had a congenital heart defect along with several other issues. He was later diagnosed with CHARGE Syndrome. We are navigating the world of syndromes, genetics, heart defects, and hearing loss. all the while watching our little boy amaze everyone. Wednesday, July 24, 2013. And, away we go! These friends will have to say goodbye for a few days. What parent has to do that? At 6 weeks and 23 months. I remember the turning point for ...
Ronan Reflections: October 2013
http://www.marsolan.blogspot.com/2013_10_01_archive.html
Our little boy arrived in August 2011. Soon after his birth, we found out he had a congenital heart defect along with several other issues. He was later diagnosed with CHARGE Syndrome. We are navigating the world of syndromes, genetics, heart defects, and hearing loss. all the while watching our little boy amaze everyone. Wednesday, October 16, 2013. When do expectations become unrealistic? It was just too overwhelming. Having fun at PT! As part of that, we want him to walk. We want him to talk. ...One o...
Ronan Reflections: August 2013
http://www.marsolan.blogspot.com/2013_08_01_archive.html
Our little boy arrived in August 2011. Soon after his birth, we found out he had a congenital heart defect along with several other issues. He was later diagnosed with CHARGE Syndrome. We are navigating the world of syndromes, genetics, heart defects, and hearing loss. all the while watching our little boy amaze everyone. Sunday, August 25, 2013. Finally out of the rut. One pound in eight months! Of us need to stay home? Ronan standing at his cart in PT. Much more confident standing! Ronan's school has t...
Ronan Reflections: June 2013
http://www.marsolan.blogspot.com/2013_06_01_archive.html
Our little boy arrived in August 2011. Soon after his birth, we found out he had a congenital heart defect along with several other issues. He was later diagnosed with CHARGE Syndrome. We are navigating the world of syndromes, genetics, heart defects, and hearing loss. all the while watching our little boy amaze everyone. Friday, June 28, 2013. Finding all the answers. Why does he need to wear a helmet? Oh OK I hope he feels better. Then after a pause, he asked me, do you think my head is flat too? It te...
Ronan Reflections: When do expectations become unrealistic?
http://www.marsolan.blogspot.com/2013/10/when-do-expectations-become-delusions.html
Our little boy arrived in August 2011. Soon after his birth, we found out he had a congenital heart defect along with several other issues. He was later diagnosed with CHARGE Syndrome. We are navigating the world of syndromes, genetics, heart defects, and hearing loss. all the while watching our little boy amaze everyone. Wednesday, October 16, 2013. When do expectations become unrealistic? It was just too overwhelming. Having fun at PT! As part of that, we want him to walk. We want him to talk. ...One o...
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19
"Little Miss": Jingle Bells
http://littlemisskeni.blogspot.com/2013/12/jingle-bells_18.html
Kennedy Grace Kulas was born 6/8/11 @ 10:10 am. At about 5 days old she was dignosed with CHARGE Syndrome and Dandy Walker Malformation. She is a blessing to our family. We hope you join us on this wonderful road we are taking! Denstined for Greatness; But pacing myself". Wednesday, December 18, 2013. Sorry everyone I had to make a new post because I had some privacy setting issues. This first video is Joselain singing Jingle Bells! Now here is Kennedy attempts at signing Jingle Bells! They are to cute!
"Little Miss": The best day ever pictures
http://littlemisskeni.blogspot.com/2013/11/the-best-day-ever-pictures.html
Kennedy Grace Kulas was born 6/8/11 @ 10:10 am. At about 5 days old she was dignosed with CHARGE Syndrome and Dandy Walker Malformation. She is a blessing to our family. We hope you join us on this wonderful road we are taking! Denstined for Greatness; But pacing myself". Tuesday, November 19, 2013. The best day ever pictures. Subscribe to: Post Comments (Atom). View my complete profile. Drake's 8th b-day and baptism. Reuben Jack and Callum Andreas. When do expectations become unrealistic?
"Little Miss": My loves
http://littlemisskeni.blogspot.com/2013/12/my-loves.html
Kennedy Grace Kulas was born 6/8/11 @ 10:10 am. At about 5 days old she was dignosed with CHARGE Syndrome and Dandy Walker Malformation. She is a blessing to our family. We hope you join us on this wonderful road we are taking! Denstined for Greatness; But pacing myself". Tuesday, December 31, 2013. Subscribe to: Post Comments (Atom). View my complete profile. Drake's 8th b-day and baptism. Reuben Jack and Callum Andreas. Robin Hood and the Wolf - Los Angeles Family Photographer. You start with a tube.
"Little Miss": March 2013
http://littlemisskeni.blogspot.com/2013_03_01_archive.html
Kennedy Grace Kulas was born 6/8/11 @ 10:10 am. At about 5 days old she was dignosed with CHARGE Syndrome and Dandy Walker Malformation. She is a blessing to our family. We hope you join us on this wonderful road we are taking! Denstined for Greatness; But pacing myself". Wednesday, March 27, 2013. My baby is a mom. Is doing so well. A few hours after surgery. The day after surgery. Jeremy and I waiting on Kennedy to get with the program. Friday, March 22, 2013. Another far away place. Thanks to everyone...
"Little Miss": Miss July!
http://littlemisskeni.blogspot.com/2013/11/miss-july.html
Kennedy Grace Kulas was born 6/8/11 @ 10:10 am. At about 5 days old she was dignosed with CHARGE Syndrome and Dandy Walker Malformation. She is a blessing to our family. We hope you join us on this wonderful road we are taking! Denstined for Greatness; But pacing myself". Tuesday, November 12, 2013. Kennedy is now a super model! Please check out www.chargecalendar.com. This is a calendar featuring some of the cutest CHARGE kids! Including our very own little miss, who is miss July! You start with a tube.
"Little Miss": September 2013
http://littlemisskeni.blogspot.com/2013_09_01_archive.html
Kennedy Grace Kulas was born 6/8/11 @ 10:10 am. At about 5 days old she was dignosed with CHARGE Syndrome and Dandy Walker Malformation. She is a blessing to our family. We hope you join us on this wonderful road we are taking! Denstined for Greatness; But pacing myself". Monday, September 30, 2013. So happy to announce that Little Miss Keni's Cafe. Fund Raiser has begun! We are selling Coffee,hot chocolate, teas. etc. It's simple.it's easy.it's the only healthy coffee with great health benefits!
"Little Miss": July 2013
http://littlemisskeni.blogspot.com/2013_07_01_archive.html
Kennedy Grace Kulas was born 6/8/11 @ 10:10 am. At about 5 days old she was dignosed with CHARGE Syndrome and Dandy Walker Malformation. She is a blessing to our family. We hope you join us on this wonderful road we are taking! Denstined for Greatness; But pacing myself". Sunday, July 21, 2013. A little of this and that. Busy, busy, busy! And here is a throw back to a moment we will never forget. Friday, July 12, 2013. This is a video someone shared with our mom's group this morning! Tuesday, July 9, 2013.
"Little Miss": June 2013
http://littlemisskeni.blogspot.com/2013_06_01_archive.html
Kennedy Grace Kulas was born 6/8/11 @ 10:10 am. At about 5 days old she was dignosed with CHARGE Syndrome and Dandy Walker Malformation. She is a blessing to our family. We hope you join us on this wonderful road we are taking! Denstined for Greatness; But pacing myself". Sunday, June 16, 2013. We had a great time at Kennedy's 2nd Birthday! Wednesday, June 12, 2013. Its Not Holland" -by my uber-awesome friend Rhy. January 9th, 2011. Why having a child with a disability is not like being sent to Holland.
"Little Miss": October 2013
http://littlemisskeni.blogspot.com/2013_10_01_archive.html
Kennedy Grace Kulas was born 6/8/11 @ 10:10 am. At about 5 days old she was dignosed with CHARGE Syndrome and Dandy Walker Malformation. She is a blessing to our family. We hope you join us on this wonderful road we are taking! Denstined for Greatness; But pacing myself". Wednesday, October 30, 2013. My stupid phone made me do these post serprate :-( Here are some pictures from our pumpkin craving tonight! I love that she can be involved in everything we do now! With daddy's help it turned out fantastic!
"Little Miss": April 2013
http://littlemisskeni.blogspot.com/2013_04_01_archive.html
Kennedy Grace Kulas was born 6/8/11 @ 10:10 am. At about 5 days old she was dignosed with CHARGE Syndrome and Dandy Walker Malformation. She is a blessing to our family. We hope you join us on this wonderful road we are taking! Denstined for Greatness; But pacing myself". Sunday, April 21, 2013. 1st annual CHARGE Picnic. Annaleigh helping Kennedy up the hill. Kennedy loves her balloons. Friday, April 5, 2013. Big things to come. My big girl, she is on the move people. Wednesday, April 3, 2013.
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Marsolais Photography
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Abdoallah mehdi yoss af mohssine simo yas sine issam. 31/01/2006 at 2:59 PM. 01/06/2008 at 4:05 AM. Subscribe to my blog! Don't forget that insults, racism, etc. are forbidden by Skyrock's 'General Terms of Use' and that you can be identified by your IP address (66.160.134.2) if someone makes a complaint. Please enter the sequence of characters in the field below. Posted on Sunday, 01 June 2008 at 4:08 AM. Please enter the sequence of characters in the field below. Don't forget that insults, racism, etc&...
Ronan Reflections
Our little boy arrived in August 2011. Soon after his birth, we found out he had a congenital heart defect along with several other issues. He was later diagnosed with CHARGE Syndrome. We are navigating the world of syndromes, genetics, heart defects, and hearing loss. all the while watching our little boy amaze everyone. Wednesday, October 16, 2013. When do expectations become unrealistic? It was just too overwhelming. Having fun at PT! As part of that, we want him to walk. We want him to talk. ...One o...
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MAR ADENTRO. viven mis palabras. Diario de a Bordo de Mar Solana. Psicóloga, Escritora y Cuentista. Mis impresiones, cuentos, relatos, reflexiones, poemas y otras historias sólo pretenden ser un lenitivo que mitigue las heridas de un mundo cada vez más punzante y rasposo. Insaciable curiosa del aspecto más espiritual de la existencia, soy como el Caracol, peregrina de un camino de crecimiento infinito. PUERTO DE ATRAQUE Y AMARRE. SOBRE MIS «PELUDOS. MANEJA ESTE TIMÓN DE LETRAS. Ver todo mi perfil. PREMIO...
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