matthewnehi-babette.blogspot.com

rarelungmom.blogspot.com

life with a rare lung diseased child: shopping with a lung disease...yuck

http://rarelungmom.blogspot.com/2008/07/shopping-with-lung-diseaseyuck.html

Life with a rare lung diseased child. To learn more about chILD visit www.childfoundation.us. Tuesday, July 29, 2008. Shopping with a lung disease.yuck. By noon we were hungry. After lunch Julia just became so tired out. I felt bad because I had thought of bringing the oxygen but decided against it. She has been doing so well this summer and well it is a pain in the arse to haul around, even though we have one of the battery portable oxygen concentrators (Inogen One .it rocks! Babette and Robert Gierke.

rarelungmom.blogspot.com

life with a rare lung diseased child: August 2008

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Life with a rare lung diseased child. To learn more about chILD visit www.childfoundation.us. Wednesday, August 13, 2008. Well I think we set a record for how many days we can go without. Missing school. Only not the kind you would hope for. Julia made. It the first full day. BUT.apparently she fell back in her chair. And hit a desk that is behind her. She did not tell the teacher nor. Did she go to the nurse. Yet at around 5pm on Monday she keeps. All kinds of questions, did she fall? Did she get hit?

rarelungmom.blogspot.com

life with a rare lung diseased child: Hike for Lung Health 2008

http://rarelungmom.blogspot.com/2008/10/hike-for-lung-health-2008.html

Life with a rare lung diseased child. To learn more about chILD visit www.childfoundation.us. Sunday, October 12, 2008. Hike for Lung Health 2008. Julia did an amazing job with the help from friends, family, and even people we have never even met. She was able to raise over $2,000. The Children's Interstitial Lung Disease Foundation came in 3rd place with over all funds raised. This is great news. We are so lucky to have people care about Julia the way they do. God Bless each of you. And so here we are.

rarelungmom.blogspot.com

life with a rare lung diseased child: NEHI: A Rare Diagnosis after Misdiagnosis

http://rarelungmom.blogspot.com/2008/10/nehi-rare-diagnosis-after-misdiagnosis.html

Life with a rare lung diseased child. To learn more about chILD visit www.childfoundation.us. Sunday, October 12, 2008. NEHI: A Rare Diagnosis after Misdiagnosis. Below is a link to an article a friend of mine (whose son has the same lung disease as Julia) wrote. It is quite informative. Http:/ www.articles.complexchild.com/Oct2008/00078.html. Subscribe to: Post Comments (Atom). Help find a cure.let me breathe! Visit the chILD Foundation's website. View my complete profile. She's not contagious.really.

madison-nehi.blogspot.com

Madison-NEHI: Madison's Journey

http://madison-nehi.blogspot.com/2008/07/february-2005.html

This blog is created to share Madison's story and to hopefully promote awareness about children's interstitial lung disease. Our Little Lady Was Born. In April, at 2 months, we continued to notice that Madison's breathing seemed rapid and a little labored. However, she seemed very healthy and happy and we. Were told not to worry. 6 months.rapid breathing. Then we took Madison to her 6 month well check, the pediatrician was concerned that Madison. 9 months.symptoms continue. While in the hospital, Madison...

ourfamilysteppingstones.blogspot.com

Our Family Stepping Stones: August 2008

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Our Family Stepping Stones. Sunday, August 10, 2008. Well, Matthew got his glasses. Amazingly, he put them on and hasn't messed with them. He is adjusting really well and looks pretty handsome too. Expensive, YES.but worth it if he can see better. We are so proud of him. Babette and Robert Gierke. Wednesday, August 6, 2008. Last day of Soccer. I'm sure, we will do it all over again next year! Babette and Robert Gierke. Friday, August 1, 2008. Elsita (my Aunt) and Jenny (my cousin). Last day of Soccer.

ourfamilysteppingstones.blogspot.com

Our Family Stepping Stones: September 2009

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Our Family Stepping Stones. Monday, September 21, 2009. Fall is now upon us. Me, I'm trying to get back on a schedule for working-out and getting things done while the kids are in school. Planning to go to the Daughtry concert with an old friend and looking forward to it very much. Also, thinking about going back to school until I can go back to work. We'll have to see what works best for right now. Babette and Robert Gierke. Subscribe to: Posts (Atom). NEHI - The chILD in Matthew. Fall is now upon us.

ourfamilysteppingstones.blogspot.com

Our Family Stepping Stones: June 2009

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Our Family Stepping Stones. Sunday, June 21, 2009. We drove to Indy on Thursday. We decided to take a mini vacation and do the Family Adventure Pack thing. I thought it was a pretty good deal. We got 4 tickets to the Children's Museum, 4 tickets to the Zoo. And Hotel stay at the Holiday Inn East, all for $175.00. The sun began to shine right as we were leaving. Oh well, we headed to the Museum anyway. It was a blast. Here are just a few pics:. After, we ate at Damon's (kids ate free), changed and headed ...

ourfamilysteppingstones.blogspot.com

Our Family Stepping Stones: February 2009

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Our Family Stepping Stones. Saturday, February 7, 2009. Eye Appointment and PEG Replacement. She pulls some more, and more and more and more and more and more.time is passing by very slowly and Rob and I are looking at each other like COME ON LADY, PULL IT OUT! He's screaming bloody murder and she says "It won't come out! I said "WHAT DO YOU MEAN IT WON'T COME OUT, IS THAT NORMAL TO HAPPEN SOMETIMES? She says, "well you could come back another day." Another day, Uh, NO! Surgery took 10 minutes! We are th...