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MCC Summer Reflections

The last post on this blog was on August 13, 2011. We have moved our posts over to "Ella's Corner" at http://ellas-corner.blogspot.com Hope to see you there!

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MCC Summer Reflections | mccsummertime.blogspot.com Reviews

https://mccsummertime.blogspot.com

The last post on this blog was on August 13, 2011. We have moved our posts over to &quot;Ella&#39;s Corner&quot; at http://ellas-corner.blogspot.com Hope to see you there!

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MCC Summer Reflections: Wrestling...

http://mccsummertime.blogspot.com/2011/08/kids-are-sleeping-now.html

The last post on this blog was on August 13, 2011. We have moved our posts over to "Ella's Corner" at http:/ ellas-corner.blogspot.com Hope to see you there! Monday, August 1, 2011. The kids are sleeping now. It's just Lindsay and me in our basement office. Catching up on piled up e-mails, working Mama Bracelets in anticipation of the next supported fundraiser we have committed to. Talking with each other in-between keystrokes and mouse-clicks. We are wrestling, as many people are, with the complexities ...

2

MCC Summer Reflections: Play Hard...Work Hard...

http://mccsummertime.blogspot.com/2011/08/play-hardwork-hard.html

The last post on this blog was on August 13, 2011. We have moved our posts over to "Ella's Corner" at http:/ ellas-corner.blogspot.com Hope to see you there! Thursday, August 4, 2011. Play Hard.Work Hard. They come to us, invite us into their lives, bring smiles to our faces, create memories that last forever, and do it with unconditional love. I am anxious because I want to know what our future holds. I am cautious because I don't want to know what our future holds. Ava and Henry played hard today.

3

MCC Summer Reflections: Spinal Muscular Atrophy (SMA) Type 2...

http://mccsummertime.blogspot.com/2011/08/spinal-muscular-atrophy-sma-type-ii.html

The last post on this blog was on August 13, 2011. We have moved our posts over to "Ella's Corner" at http:/ ellas-corner.blogspot.com Hope to see you there! Saturday, August 13, 2011. Spinal Muscular Atrophy (SMA) Type 2. Ella Sabine Casten (14 month old). Ella has Spinal Muscular Atrophy (SMA) Type 2. The diagnosis was confirmed on August 12, 2011. Her motor neurons are dying and will continue to die. What do we do now? Our minds are filled with what we are to do. And those things will happen. ...It is...

4

MCC Summer Reflections: Mama Bracelets: LUNGevity: 8.7.11

http://mccsummertime.blogspot.com/2011/08/mama-bracelets-lungevity-8711.html

The last post on this blog was on August 13, 2011. We have moved our posts over to "Ella's Corner" at http:/ ellas-corner.blogspot.com Hope to see you there! Sunday, August 7, 2011. Mama Bracelets: LUNGevity: 8.7.11. Mama Bracelets: LUNGevity: 8.7.11. Mama Bracelets Supports Lung Cancer Research Mama Bracelets has joined Breathe Deep Naperville, who works closely with LUNGevity, a found.". Subscribe to: Post Comments (Atom). Spinal Muscular Atrophy (SMA) Type 2. My Life is Full. Play Hard.Work Hard.

5

MCC Summer Reflections: HMC's Emotions...

http://mccsummertime.blogspot.com/2011/08/hmcs-emotions.html

The last post on this blog was on August 13, 2011. We have moved our posts over to "Ella's Corner" at http:/ ellas-corner.blogspot.com Hope to see you there! Tuesday, August 9, 2011. Born: October 20, 2008. Lindsay's blood pressure was extremely high two days before his due date. For several weeks it had been creeping up. It brought with it much emotion. The picture above is one of extreme excitement, pride and overall good feelings. We love our Henry. He understood that his little sister needed help&#46...

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Ella's Corner: Ella's Hip Surgery Update (7-10-15)

http://ellas-corner.blogspot.com/2015/07/ellas-hip-surgery-update-7-10-15.html

Friday, July 10, 2015. Ella's Hip Surgery Update (7-10-15). She was wheeled away to surgery in silence. She didn't bat an eyelash as they took her away. Mom and Dad, on the other hand, fought back the tears and tried to quell the butterflies in their stomachs. How did her respiratory system hold up? Was extubation successful or was she still intubated? How was our Squishy? We found a stuffed giraffe that we knew Ella would love and headed back up to the OR floor. Shortly after, Ella's surgeon brought...

mccfridayreflections.blogspot.com mccfridayreflections.blogspot.com

MCC Friday Reflections: November 2014

http://mccfridayreflections.blogspot.com/2014_11_01_archive.html

For the past 13 years of teaching I have had my students set a goal for unsolicited compliments. The goal itself has varied as has the way each class progressed through the year toward their goal. Every class has met their goal, some surpassing it. Trimester 2 is upon us and we are solidified in the routines, comfortable with each other, and open to exploring more each day. The goal set forth is well underway, too; and with pride and commitment we know we can reach our destination and then some. Behavior...

ellas-corner.blogspot.com ellas-corner.blogspot.com

Ella's Corner: Helping Hands

http://ellas-corner.blogspot.com/p/helping-hands.html

Here you will find three ways that you can support Ella and/or SMA research. Donate to Cure SMA. Formerly Families of Spinal Muscular Atrophy) to help them in their research efforts. To help them in their research efforts. Donate directly to Ella Casten. To help her with her immediate and long-term needs. Subscribe to: Posts (Atom). Summer 2016 Tutoring with Casten's Key to Learning. Click the key to visit Casten's Key to Learning's Website. Help with Ella's Daily Expenses! Check Around Ella's Corner.

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Ella's Corner: October 2011

http://ellas-corner.blogspot.com/2011_10_01_archive.html

Monday, October 31, 2011. I've Noticed.(by Michael). Two-and-a-half months ago Ella was diagnosed with Spinal Muscular Atrophy Type 2. So much has happened since that day. I've noticed much in the past two-and-a-half months- more so in the past week. Ella has regressed physically yet has progressed mentally. She fights her SMA by being smarter than it is. She finds ways to do what she wants and if she cannot- she finds ways to get the help she needs. We will have to move for her, with her. Technology...

ellas-corner.blogspot.com ellas-corner.blogspot.com

Ella's Corner: Simply Asking...(by Michael & Lindsay)

http://ellas-corner.blogspot.com/2015/07/simply-askingby-michael-lindsay.html

Sunday, July 5, 2015. Simply Asking.(by Michael and Lindsay). Surgery is set for Thursday, July 9, 2015. As this is written it is Sunday, July 5, 2015. We've worked out plans for Ava, Henry and Sasa. We're still working on Doublestuff (the cat.that should be no problem, though). While pride often hinders us in asking for help we know we must set it aside for now and simply ask. Sunday, July 05, 2015. July 6, 2015 at 1:36 AM. Please could you post the address to which we can send Ella a card? You can be n...

ellas-corner.blogspot.com ellas-corner.blogspot.com

Ella's Corner: August 2011

http://ellas-corner.blogspot.com/2011_08_01_archive.html

Monday, August 29, 2011. A Look in the Eyes.(by Michael). I walked into my sister-in-law's pre-wedding gathering with Henry and Ella in tow. Lindsay and Ava were part of the wedding party and were already there. The planning done by so many, the preparations all set for the day, and the gathering of family and friends would soon begin.with it bringing many people together after long stretches of time. I would say that if no one said a word to me about Ella, SMA, or how our family is doing, I could have s...

ellas-corner.blogspot.com ellas-corner.blogspot.com

Ella's Corner: December 2011

http://ellas-corner.blogspot.com/2011_12_01_archive.html

Saturday, December 31, 2011. There could be a lot said for the past year, 2011. There could also be a lot not. Said Looking back over the year in review I cannot help but sit back, take a deep breath, and sigh. I sigh for lives lost and for precious lives gifted to us. I sigh for dreams lost and for depth of soul gained. I sigh for arguments waged and for forgiveness expressed. I sigh for seemingly endless moments of fear and for comforts found in an embrace. I sigh for the darkness that covers our minds...

ellas-corner.blogspot.com ellas-corner.blogspot.com

Ella's Corner: Three...(by Michael & Lindsay)

http://ellas-corner.blogspot.com/2015/07/threeby-michael-lindsay.html

Monday, July 27, 2015. Three(by Michael and Lindsay). Three more weeks that Ella has to stay lying flat, 100% of the time, with her brace on most of the time. And while were were not surprised by the cracked bone we were surprised that she must remain in the same position for three more weeks that she's been in for two weeks already. Surprised and feeling low. And poor Ella.it is difficult for her to sleep and she keeps getting pumped full of narcotics to battle the pain. Her screams are deafenin...So ou...

ellas-corner.blogspot.com ellas-corner.blogspot.com

Ella's Corner: Hannah's Help...(by Michael)

http://ellas-corner.blogspot.com/2015/06/hannahs-helpby-michael.html

Thursday, June 25, 2015. Hannah's Help.(by Michael). One is just leaving elementary school; the other is just entering. One is a big sister; the other is a little sister. One fights to help find treatments or a cure for SMA; the other fights to survive the effects of SMA. Yet they really don't know one another. Until just recently. Not only was this an act of extreme kindness, selflessness, and love, it came at a time that found Ella's bank account nearly at 'zero'. The expense required to care for E...

ellas-corner.blogspot.com ellas-corner.blogspot.com

Ella's Corner: Hip-Hip-Not Hooray...(by Michael & Lindsay)

http://ellas-corner.blogspot.com/2015/06/hip-hip-not-hoorayby-michael-lindsay.html

Thursday, June 11, 2015. Hip-Hip-Not Hooray.(by Michael and Lindsay). One of the criteria for the diagnosis of SMA Type 2 is that the patient has reached the milestone of sitting unassisted. Ella fits that criteria well. In fact, almost her entire day is spent sitting, either independently or strapped in a wheelchair. If Ella's hips go untreated they will continue to dislocate; producing a pronounced pelvic tilt, contributing to scoliosis, and causing pain.much pain. Not to mention thwarting her ...Not o...

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MCC Summer Reflections

The last post on this blog was on August 13, 2011. We have moved our posts over to "Ella's Corner" at http:/ ellas-corner.blogspot.com Hope to see you there! Saturday, August 13, 2011. Spinal Muscular Atrophy (SMA) Type 2. Ella Sabine Casten (14 month old). Ella has Spinal Muscular Atrophy (SMA) Type 2. The diagnosis was confirmed on August 12, 2011. Her motor neurons are dying and will continue to die. What do we do now? Our minds are filled with what we are to do. And those things will happen. ...It is...

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