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Fairy Homes and Gardens. Polished Concrete of NE.

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sophiascure.org sophiascure.org

Gallery | Sophia's Cure Foundation

http://www.sophiascure.org/gallery

You are here: Home. Through it all, our beautiful daughter continues to smile everyday and inspire not just us but people all over the world. All professional photos used on our website is courtesy of summerlyn photography. Be Informed. Stay Connected! More Ways to Get Involved. We are dedicated to helping SMA families and strive to further increase SMA awareness.

sophiascure.org sophiascure.org

Our Mission | Sophia's Cure Foundation

http://www.sophiascure.org/our-mission

You are here: Home. Sophia’s Cure Foundation. Is a non-profit 501(c)3 public charity which was formed shortly after our daughter was diagnosed with Spinal Muscular Atrophy. The foundation was created to assist in funding for clinical research towards finding a cure for SMA and to offer support to families affected by this disease by providing advocacy, awareness, education and support. We believe every child affected by SMA should be given a chance to live a long and normal life. More Ways to Get Involved.

sophiascure.org sophiascure.org

About Sophia | Sophia's Cure Foundation

http://www.sophiascure.org/sophia

You are here: Home. Hi my name is Vincent Gaynor. My beautiful wife Catherine and I had tried unsuccessfully a few times to have a child. But finally on Feb. 27 of 2009 all our prayers and dreams had come true. My wife gave birth to the light of our lives, our precious angel Sophia. She was just a perfect baby. She had all her fingers and toes and she was just beautiful. SMA is a degenerative disease that affects 1 in 6000 babies. Approximately 1 in 40 people carry the gene. There is no cure for ...Sophi...

sophiascure.org sophiascure.org

Filed 990 Forms | Sophia's Cure Foundation

http://www.sophiascure.org/filed-990-forms

You are here: Home. 2011 Sophia’s Cure 2011 Form 990. Be Informed. Stay Connected! More Ways to Get Involved. We are dedicated to helping SMA families and strive to further increase SMA awareness.

sophiascurefoundation.org sophiascurefoundation.org

Get Every SMA Kid an iPad | Sophia's Cure Foundation

http://www.sophiascurefoundation.org/get-involved-blog/get-every-sma-kid-an-ipad

You are here: Home. Get Every SMA Kid an iPad. Get Every SMA Kid an iPad. February 2, 2011. We are launching an incredible, amazing, spectacular campaign! Get every SMA KID an Ipad! We have all seen how amazing Ipad’s are for our SMA Kids. Here is how it works anyone who sells anything on ebay. Can choose what portion of the proceeds go to our EBAY Store Sophia’s Cure Foundation. Let’s all do a Virtual Garage sale and get rid of some clutter in our lives! Filed Under: Get Involved. Hola, primero queria f...

sophiascure.org sophiascure.org

What is SMA | Sophia's Cure Foundation

http://www.sophiascure.org/what-is-sma

You are here: Home. SMA type I, also known as severe infantile SMA or Werdnig Hoffmann disease, is the most aggressive form, and manifests in the first year of life. It is also the only type which comes with a terminal diagnosis. This type generally onsets quickly and unexpectedly after birth. SMA is the #1 genetic killer of children under the age of 2. SMA is estimated to occur in nearly 1 out of every 6,000 births. 1 in 40 people are carriers for SMA. Be Informed. Stay Connected!

sophiascure.org sophiascure.org

Press | Sophia's Cure Foundation

http://www.sophiascure.org/category/press

You are here: Home. KASPAR LABS GENE THERAPY FOR SPINAL MUSCULAR ATROPHY IS……. September 20, 2013. September 7, 2012. Read the full article here. … [Read more.]. Wantagh -Seaford Patch supports Sophia’s cure. August 15, 2012. Http:/ wantagh.patch.com/articles/steamfitters-uniting-to-find-cure-for-wantagh-girl-battling-spinal-muscular-atrophy … [Read more.]. Thank you BW Unlimited. September 18, 2011. Your relentless voting everyday paid off and we cannot thank you all enough! September 14, 2011. Please d...

sophiascurefoundation.org sophiascurefoundation.org

Newly Diagnosed | Sophia's Cure Foundation

http://www.sophiascurefoundation.org/newly-diagnosed

You are here: Home. If you are a newly diagnosed parent to a child with SMA we understand that this time can be a scary and confusing for your family. Please know you are not alone. SMA Space is a wonderful resource for SMA Families from all over the country to connect and help eachother. www.smaspace.com. A Family Guide to the Consensus Statement for Standard of Care in Spinal Muscular Atrophy: http:/ www.mda.org/publications/family guide sma standard of care.pdf. Please feel free to contact us.

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Tuesday, July 14, 2015. Tops vs. Drops. One of the things I like about road and cross bikes are their drop handlebars. The mono-position flat bar of mountain bikes just doesn't do it for me. Drop bars give you so many more options. The question is then, where should your hands be and when? Which brings us to pack riding. If you're in the peloton and speeds are above 25mph should you then be in the drops? Hastily thought out by. Thursday, April 9, 2015. Bike Practice: Making the most in a small group.

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Rapid Fire Chips XBox 360 PS3 Wii Mod Kits Mod-Squad

Welcome to Mod Squad providing mod kits for the. XBox 360 - Sony Playstation PS3 - Nintendo Wii. We are in the process of moving to a new Console Repair Workshop Mod-Squad will be back up and running September. All our kits come with eay to understand instructions so you dont have to go googling to find out how to install the mod. Free UK Postage on all orders. Discounts for bulk orders. XBox360 RapidFire Controllers White and Black Versions. Avalible soon Limited Places). PS3 RapidFire Coming Soon.

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