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Miss Lily's Pad: Rainy Days and Fridays
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Friday, June 11, 2010. Rainy Days and Fridays. Doing what I call "side crab crawls" lately. She kind of has her head down like in a 5-point crawl and scrabbles across the floor like a little crab. She loves standing with my help. She'll scoot over to me if I put my hands out and start to get up before. I can almost grab both hands! Way to go Lily! That is great.even if it means a coupon mess for Mommy! June 13, 2010 at 11:57 AM. June 15, 2010 at 8:31 PM. June 15, 2010 at 8:37 PM. She's our fantastic, sun...
misslilyspad.blogspot.com
Miss Lily's Pad: December 2009
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Wednesday, December 9, 2009. Lily went in for a cardiac cath. On Monday November 30 th. We ended up staying for 4 days total. It was going well the first time Dr. Wax, Interventional. Radiologist, came out. Then he said that he found some collateral arteries . So he coiled. Plugged two of them. That should have made her oxygen. Levels higher. Finally he came out to say that they found blood in the lung in the lower. Left lobe which was blurry on the xray. It was strange being back in the PICU. And coil a...
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Miss Lily's Pad: June 2010
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Thursday, June 24, 2010. The other night we were watching The Good Night Show on Sprout TV with the hosts, Nina and Star. Lily loves it. All of the sudden Lily says "Nina-nah". Wow! And then today Jim and I were just watching her and she starts going through her animal sounds she knows - Go-go for goat, ba-ba for sheep and then she starts chirping like a bird. Then she raised her hand up (she was lying on her back) and signed bird! Tuesday, June 15, 2010. Friday, June 11, 2010. Keep Calm and Carry On.
3littlebees.blogspot.com
3 Little Bees: The BIG day out
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Tuesday, December 1, 2009. The BIG day out. So we're a bit nervous about this, but he can only do what he can do. And if he needs the LTR then so be it. We're (obviously) hoping that he won't but getting prepared for the possibility. The repair won't be tomorrow but we'll find out one way or the other, it's scheduled for Jan 7. And yes, I'm the one taking the trach out regardless of what anyone else says. I will say a prayer for you all! December 1, 2009 at 6:24 PM. December 1, 2009 at 6:51 PM.
misslilyspad.blogspot.com
Miss Lily's Pad: Keep Calm and Carry On
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Friday, June 11, 2010. Keep Calm and Carry On. I knew had to post this sooner rather than later. I don't want to lose hope. I don't want Doubt to rear its ugly head in our home or in my head or heart. How could I doubt her when she has come through so much all by herself. Granted she's been through alot. Of surgeries, and doctors and nurses have helped. But Lily. June 29, 2010 at 9:56 PM. Subscribe to: Post Comments (Atom). View my complete profile. Hope is the thing with feathers. And never stops at all,.
misslilyspad.blogspot.com
Miss Lily's Pad: October 2009
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Monday, October 26, 2009. Jim and I have now been married 6 years yesterday. It almost came and went without us both acknowledging it. We had a good laugh over it. We've been so busy with the move and Lily. I love you Jim. Saturday, October 17, 2009. I pick THIS one! Daddy and Lily among the pumpkins. Thursday, October 8, 2009. Subscribe to: Posts (Atom). View my complete profile. Hope is the thing with feathers. That perches in the soul,. And sings the tune- without the words,. And never stops at all,.
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Miss Lily's Pad: Up You Go
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Tuesday, June 15, 2010. Lily will not STOP tall kneeling lately - all on her own mind you. She does it to our ottoman and now to our low entertainment center base. Thank God she can't reach the TV I made the living room gorgeous last week - dusted, vacuumed, everything - and now it looks like a warzone. She is getting into things she never even bothered with ebfore.and BOY am I happy! You keep causing mischief Lily.I love it! Keep up the great work! June 22, 2010 at 11:52 AM. View my complete profile.
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Miss Lily's Pad: April 2009
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Thursday, April 16, 2009. I can't believe that she has made it this far! We are so happy to have our little girl still after all that she has been through. God Bless RJ and Seamus who we still think of often. Subscribe to: Posts (Atom). She's our fantastic, sunny daughter who was born April 14, 2007. She is a small but powerful peanut who happens to be genetically diagnosed wtih Charge Syndrome. View my complete profile. Hope is the thing with feathers. That perches in the soul,. And never stops at all,.
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Miss Lily's Pad: September 2009
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Thursday, September 17, 2009. Just want to make sure that any Illinois families. Are aware of this conference. I received a flyer that said:. Illinois Family Leaders Collaboration Group. Resources and inspiration for adult family members and caregivers of children with disabilities. Saturday, May 1, 2010. Villa Maria, lake Springfield. Childcare will not be provided. For more information contact Mary Smith at STARNET. Anyone else having problems posting photos on their blog? Monday, September 7, 2009.
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Miss Lily's Pad: June 2009
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Monday, June 22, 2009. The Parent Institute and Politics. Walk out the door today into a wall of humidity. Take a shower, step outside and be ready to go inside to take another one. Lily and I are going nowhere outside today. Once again I have been behind on the blog. It's just so many things happen every day that it's hard to write it all down. And please forgive me for the hyperlinks listed below as they are formatted properly I don't think. Sleeping on Hugo The Hippo. Your friends, TTY. Phones. We...