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MTM-CNM Family Connection - Home

Myotubular Myopathy and Centronuclear Myopathy MTM-CNM Family Connection Inc

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MTM-CNM Family Connection - Home | mtm-cnm.org Reviews
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Myotubular Myopathy and Centronuclear Myopathy MTM-CNM Family Connection Inc
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MTM-CNM Family Connection - Home | mtm-cnm.org Reviews

https://mtm-cnm.org

Myotubular Myopathy and Centronuclear Myopathy MTM-CNM Family Connection Inc

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About - MTM-CNM Family Connection

http://www.mtm-cnm.org/about.html

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Resources - MTM-CNM Family Connection

http://www.mtm-cnm.org/resources.html

Myotubular Myopathy and Centronuclear Myopathy Resources for Families. Links to resources, friends, collaborators, and partners in the journey. Get our email newsletters. Family Guide to Myotubular Myopathy. Click image to download pdf file). Written by parents, for parents, this is our community's "MTM 101". From our friends at CureCMD. Here is a comprehensive guide for care of all forms of Congenital Myopathy. (click image, then scroll down to "The Care of Congenital Myopathy: A Guide for Families".

3

Fundraising - MTM-CNM Family Connection

http://www.mtm-cnm.org/fundraising.html

Fundraising - Help us deliver on our mission! If you are interested in donating to a cause that is dedicated to bringing MTM and CNM families together, uniting families with lead researchers and medical professionals in our field, providing supportive resources, and building life-enhancing relationships, please consider supporting our organization. How can I donate? The simplest option: Secure online donations may be made via Credit Card or Paypal by using the Donate button on this page. Methuen, MA 01844.

4

Previous Conferences - MTM-CNM Family Connection

http://www.mtm-cnm.org/previous-conferences.html

There are no words to say how special this weekend was to us. I feel like a part of our family is now complete because we finally were able to see in person part of our extended family. This weekend was so good for our hearts and soul. Natalie, Cooper's mom.

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2013 - MTM-CNM Family Connection

http://www.mtm-cnm.org/2013.html

The third MTM-CNM Family Conference was held in Bloomington, MN in July 2013. We found our Utopia this weekend in a Best Western Plus in Bloomington, Minnesota at an MTM-CNM Family Conference. Hillary, Miracles to Milestones. On July 26-28, 2013. Our "family" gathered in Minnesota for the 3rd MTM-CNM Family Conference. What a time we had! Burke and Krista, Lucas Camilo. Check out more videos on our YouTube page. Amy, Andy's mom. Thank you to our generous sponsors!

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Websites » Myotubuläre Myopathie

http://mtmx.de/websites

Informative Videos zu MTMX bzw. XLMTM befinden sich in dieser Playlist auf YouTube. Der Blog meines Sohnes Philip. Das leben von Mael Alexander – leider verstorben. Gerne verweise ich auch auf Webpräsenzen anderer Kinder mit myotubulärer Myopathie. Deutschsprachiges Forum, das unter anderem auch das Thema myotubuläre Myopathie behandelt. Webpräsenz um Spendengelder für die Erforschung dieser Krankheit und der Identifikation eines Heilmittels zu sammeln. Kidsvision möchte insbesondere kranken Kindern helf...

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