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MYLIFEOURFUTURE.ORG

My Life Our Future

My Life, Our Future is a nationwide campaign for progress in hemophilia. Leaders in our community have come together to offer a free genotyping test, so that you may gain a deeper understanding of your hemophilia today, while helping to advance the breakthrough treatments of tomorrow.

http://www.mylifeourfuture.org/

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My Life Our Future | mylifeourfuture.org Reviews
<META>
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My Life, Our Future is a nationwide campaign for progress in hemophilia. Leaders in our community have come together to offer a free genotyping test, so that you may gain a deeper understanding of your hemophilia today, while helping to advance the breakthrough treatments of tomorrow.
<META>
KEYWORDS
1 the opportunity
2 research
3 voices for progress
4 the facts
5 how genotyping works
6 ensuring privacy
7 resource center
8 the founders
9 national hemophilia foundation
10 bloodworks northwest
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the opportunity,research,voices for progress,the facts,how genotyping works,ensuring privacy,resource center,the founders,national hemophilia foundation,bloodworks northwest,bioverativ,get genotyped,participating htcs,genotyping,hemophilia database,learn
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My Life Our Future | mylifeourfuture.org Reviews

https://mylifeourfuture.org

My Life, Our Future is a nationwide campaign for progress in hemophilia. Leaders in our community have come together to offer a free genotyping test, so that you may gain a deeper understanding of your hemophilia today, while helping to advance the breakthrough treatments of tomorrow.

INTERNAL PAGES

mylifeourfuture.org mylifeourfuture.org
1

Glossary - My Life Our Future

http://www.mylifeourfuture.org/glossary.html

Genotyping for Progress in Hemophilia. The power of genotyping. American Thrombosis and Hemostasis Network. Managed by ATHN, a safe and secure database of medical data collected from people with bleeding disorders:. A group of conditions in which a person’s body cannot properly develop a blood clot, causing an increased chance of bleeding." bleeding and clotting disorders. To be used to evaluate care, research and advocacy. Small molecules that are the components of proteins:. An illness that lasts for a...

2

The Founders - My Life Our Future

http://www.mylifeourfuture.org/founders.html

Genotyping for Progress in Hemophilia. The power of genotyping. American Thrombosis and Hemostasis Network. Connected by hemophilia, united in progress. Recognizing that the path to progress is best paved by knowledge and commitment, leaders in our community have come together to advance hemophilia:. A rare chronic genetic bleeding disorder in which one of the proteins needed to form blood clots is missing or reduced; can cause prolonged periods of internal bleeding." hemophilia. ATHN is a non-profit org...

3

Voice for Progress - My Life Our Future

http://www.mylifeourfuture.org/voice_for_progress.html

Genotyping for Progress in Hemophilia. The power of genotyping. American Thrombosis and Hemostasis Network. Community leaders step up to advocate for change. My Life, Our Future. The more hemophilia patients we genotype today, the more equipped we will be to inform the scientific advances of tomorrow.". Barbara Konkle, MD. Director of Clinical and Translational Research. Glenn Pierce, MD, PhD. Former SVP of Hematology, Cell and Gene Therapies. President and Chief Executive Officer. Dr Marion Koerper,.

4

The Facts - My Life Our Future

http://www.mylifeourfuture.org/facts.html

Genotyping for Progress in Hemophilia. The power of genotyping. American Thrombosis and Hemostasis Network. There are two parts to the program:. If you choose to participate, the process begins with a blood test. Your blood sample is then sent to the state-of-the-art laboratory at BloodworksNW for analysis. Once your hemophilia treatment center (HTC):. A group of federally funded hospitals that specialize in treating patients with bleeding disorders." hemophilia treatment center (HTC). And your blood sam...

5

Participating HTCs - My Life Our Future

http://www.mylifeourfuture.org/participatingHTCs.html

Genotyping for Progress in Hemophilia. The power of genotyping. American Thrombosis and Hemostasis Network. To locate a participating hemophilia treatment center (HTC) in your area, select the first letter in your state's name. For full HTC contact information, please visit the Centers for Disease Control. Arizona Hemophilia and Thrombosis Center at Phoenix Children's Hospital. Arizona Hemophilia and Thrombosis Center at the University of Arizona Health Sciences Center. Orthopaedic Hospital of Los Angeles.

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psbcblog.com psbcblog.com

Hemophilia and other bleeding disorders — The Blog of Bloodworks Northwest

http://psbcblog.com/category/bleeding-disorders/hemophilia-and-other-bleeding-disorders

The Blog of Bloodworks Northwest. Organize a Blood Drive. Category Archives: Hemophilia and other bleeding disorders. A platelet disorder leads to bleeding: Jen’s story. February 23, 2016 at 1:00 pm. Jen Schmitt is the type of person who always puts others before herself. Her friend Erin Nissen says,. The Harborview cardiac ICU nurse started having abnormal bleeding in her urinary tract at the end of November, 2015. It wasn’t profuse, but enough to be a concern. When she bleeds, her platelets adhere to t...

nebraskanhf.org nebraskanhf.org

National Hemophilia Foundation - Nebraska Chapter : Home

http://www.nebraskanhf.org/welcome.html

Learn About Bleeding Disorders. Von Willebrand Disease (VWD). National Youth Leadership Institute. Parent Information and Networking Group (PING! NE Chapter Family Camp. Kid's Summer Camps. HANDI Information Resource Center. A Donor Bill of Rights. Bowling 4 Bleeders Fun-Raiser. Infusion Bloody Mary Mix Off. Learn About Bleeding Disorders. Von Willebrand Disease (VWD). National Youth Leadership Institute. Parent Information and Networking Group (PING! NE Chapter Family Camp. Kid's Summer Camps. The Nebra...

blog.kelleycom.com blog.kelleycom.com

HemaBlog™: August 2014

http://blog.kelleycom.com/2014_08_01_archive.html

A Guide to Living with von Willebrand Disease. A Hole in the Gospel. A Life Without IX. A Love Like Blood. Act Like A Lady. Adopting a child with hemophilia. Adventures of a Hemophiliac. Adventures of Tom Sawyer. Alex Lieber Memorial Scholarship. All That You Cant Leave Behind. All the Light We Cannot See. Alone on the Ice. Asociacià n Puertoriqueà a de Hemofilia (APH). Bayer Hemophilia Leadership Development Program. Bayer Hemophilia Leadership Development Program (BHLDP). Behind the Beautiful Forevers.

prophyholic.blogspot.com prophyholic.blogspot.com

ProphyHolic HemoMom: June 2013

http://prophyholic.blogspot.com/2013_06_01_archive.html

The random thoughts of a Mother dedicated to taking care of her sons with hemophilia, staying involved in the hemophilia community and continuing to learn about hemophilia. Father's Day Reminds Me I will Forever Miss My Dad. CEO of NHF Val Bias and I. At Hemophilia of SC Annual Meeting 2013. I was so surprised when I received the Hemophilia of South Carolina Annual Meeting agenda and Val Bias. Was coming to discuss, " My Life Our Future, Genotyping for Progress in Hemophilia. Whom I never met. I would al...

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My Life Our Future

Genotyping for Progress in Hemophilia. The power of genotyping. American Thrombosis and Hemostasis Network. For years, the hemophilia:. A rare chronic genetic bleeding disorder in which one of the proteins needed to form blood clots is missing or reduced; can cause prolonged periods of internal bleeding." hemophilia. Community has waited for life-changing advancements and the promise of revolutionary science. The time has come to make these goals a reality. My Life, Our Future. My Life, Our Future. Throu...

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