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My Stubborn Little Miss | mystubbornmiss.com Reviews
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mystubbornmiss.com
My Stubborn Little Miss: One Year Later: A Diagnosis Story.
http://www.mystubbornmiss.com/2011/08/one-year-later-diagnosis-story.html
Wednesday, August 17, 2011. One Year Later: A Diagnosis Story. In August 2010, we received the prenatal diagnosis of Down syndrome for Ellie. This is our story, with the perspective a year brings, as well as a few pictures of the little girl who caused us to worry, to cry, and to celebrate. I've written previously about the weeks and months. Following the diagnosis, but this is our first post about how we got the news. The nuchal fold measured just above the normal range, and my world came crashing down.
My Stubborn Little Miss: Double Bubble.
http://www.mystubbornmiss.com/p/double-bubble.html
In a whirlwind of pregnancy, a Down syndrome diagnosis, and a heart defect, the "double bubble" was the final, overwhelming, "not something else! Prenatal diagnosis. Since I frequently am asked about our experience, I wanted to share answers to some frequently asked questions. Was Ellie born early? No She was a day late, much to everyone's surprise. My fluid levels were high, but Ellie wanted to stay put. She was born via c-section after an induction. How long was she in the hospital? How was the NICU?
My Stubborn Little Miss: Photography.
http://www.mystubbornmiss.com/p/photography.html
I launched my photography business in Spring 2015. Booking information is available here. You can see current sessions here. I appreciate you taking time to let me know you stopped by. Hearing from my readers brings a smile to my face. If you ask a question, please leave me a way to get in touch so I can answer! Please note that I do not approve comments deemed advertisements. If you comment as Anonymous, please leave your name, and remember, use respectful words. No name calling. View my complete profile.
My Stubborn Little Miss: Bear Down Little Bear {Daddy's Guest Post}
http://www.mystubbornmiss.com/2012/12/bear-down-little-bear-daddys-guest-post.html
Tuesday, December 4, 2012. Bear Down Little Bear {Daddy's Guest Post}. Note from Megan: Ellie is 21 months old today. You'll be getting the "a month older" post tomorrow, because today we're mixing it up. Daddy himself wrote his very first guest post. While I was at a Ladies Tea on Sunday, Matt and Ellie were watching the Chicago Bears. Then she decided that would be a good time to take a little snooze. Clearly Mr. Urlacher wasn’t feeling her love either because the defense couldn’t h...Luckily she woke ...
My Stubborn Little Miss: 28/52.
http://www.mystubbornmiss.com/2015/07/2852.html
Wednesday, July 15, 2015. I had a photo session. Linking up over at Practising Simplicity. Also, this is just a reminder of how much I love my community here and our friends. This shoot was a blast! Posted by Megan Landmeier. I appreciate you taking time to let me know you stopped by. Hearing from my readers brings a smile to my face. If you ask a question, please leave me a way to get in touch so I can answer! Subscribe to: Post Comments (Atom). View my complete profile. 07/10 - 07/17 (1). 07/05 - 07/12...
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Hope's Blog: September 2012
http://wodzisz.blogspot.com/2012_09_01_archive.html
This blog is dedicated to Hope. I have been sharing my thoughts and feelings since she was diagnosed with Hypoplastic Left Heart Syndrome (HLHS). Monday, September 17, 2012. First Day of Preschool. Posted by Wodzisz Family. Friday, September 14, 2012. Now for some cute pictures from her birthday:. Hope's PawPaw (my father-in-law) rented a pony for Hope's birthday. This picture shows a scared little girl, but it didn't take long to warm her up. Once she realized how much fun she was having, she wouldn't g...
Hope's Blog: April 2014
http://wodzisz.blogspot.com/2014_04_01_archive.html
This blog is dedicated to Hope. I have been sharing my thoughts and feelings since she was diagnosed with Hypoplastic Left Heart Syndrome (HLHS). Saturday, April 26, 2014. One Month on the List. If anyone would like to send a card, here is the address (she loves cards and we hang them all over her wall in her room):. Cleveland Clinic Children's Hospital. Cleveland, OH 44195. Posted by Wodzisz Family. Sunday, April 20, 2014. Posted by Wodzisz Family. Tuesday, April 15, 2014. There are so many families tha...
An “Interesting” Encounter – three with a twist
https://threewithatwist.wordpress.com/2017/01/05/an-interesting-encounter
Three with a twist. Family life with a twist of Down syndrome. An “Interesting” Encounter. January 5, 2017. January 19, 2017. The following story was originally published in the book. Gifts: Mothers Reflect on How Children with Down Syndrome Enrich Their Lives, 10th Anniversary Edition. Royalties will be used to provide free copies of the book to genetic counselors and other medical professionals who convey a diagnosis of Down syndrome to new parents. The book can be purchased here. Was the baby ugly?
Evie the Extraordinary and Her Mommy: The Journey As We Go: February 2016
http://www.evietheextraordinary.com/2016_02_01_archive.html
Evie the Extraordinary and Her Mommy: The Journey As We Go. Thursday, February 25, 2016. Back at the hospital, and almost meeting Julian Edelman. I thought that winter was almost over, and that we had made it without a stay in the hospital. I spoke too soon.here we are in the cardiology unit of Boston Childrens for an unexpected stay. Here's Evie looking at her new accessory, aka hospital wristband. No wait in the ER! Daddy spent the first night with her, and since she's still showing some moments of low...
Evie the Extraordinary and Her Mommy: The Journey As We Go: The Adventures of Eating Evie...
http://www.evietheextraordinary.com/2016/11/the-adventures-of-eating-evie.html
Evie the Extraordinary and Her Mommy: The Journey As We Go. Monday, November 7, 2016. The Adventures of Eating Evie. And I meant this as an adjective and not a verb. Evie is eating! I haven't blogged in awhile, mostly because of being busy, but also because I have been focusing my energies on getting Evie to eat. Since I last blogged, Evie has transitioned to a new nanny and also gone through a developmental leap (which I never knew about until I had a baby! Over the past couple of months, Evie had gaine...
The Hailey Herald: June 2015
http://thehaileyherald.blogspot.com/2015_06_01_archive.html
Our daily life with 3 children. One who happens to have an extra chromosome. Thursday, June 18, 2015. Will it be better when she's in a school environment and not just preschool? Will it be worse? It makes me anxious and gives me a panic attack just thinking about it. I suddenly feel like I'm that brand new mom in the world of special needs. I feel like I'm starting all over again. I feel alone again.I feel isolated. Subscribe to: Posts (Atom). Haileys Open Heart Surgery. Hailey's Hospital Stay (OHS).
What Makes Me Smile – three with a twist
https://threewithatwist.wordpress.com/2016/11/07/what-makes-me-smile
Three with a twist. Family life with a twist of Down syndrome. What Makes Me Smile. November 7, 2016. Gigi has Down syndrome. With Down syndrome often comes low muscle tone. Because of this, at the age of almost two she still isn’t walking or crawling yet. This doesn’t mean that Gigi hasn’t been mobile. She’s been moving around since before she turned one by scooting around on her bottom. She butt scoots while dangling underpants. She has a silly smile when she says “Dee” for dad. She sucks her tongue.
4 GUYS & A LADY: Able!
http://4-guys.blogspot.com/2013/10/able.html
4 GUYS and A LADY. Life with Down syndrome: recognize the similarities; celebrate the differences. Thursday, October 17, 2013. A couple of years ago, spurred by changes in the economy, Nevin decided to end his career as a home builder. An opportunity arose to begin a business producing sauces and dressings, and thus Woodside Kitchen. Was born. Of course, it wasn't all quite that simple. In reality, it included tearing out hair and sweating blood, but nevertheless, here we are today in a new realm. Their ...
4 GUYS & A LADY: Sometimes It's Difficult...
http://4-guys.blogspot.com/2013/10/sometimes-its-difficult.html
4 GUYS and A LADY. Life with Down syndrome: recognize the similarities; celebrate the differences. Tuesday, October 22, 2013. May I watch Berenstein Bears again, please, ma'am? How about Bob the Builder? Oh dear, sometimes I almost have to shut my eyes in order to be able to say no.). And the strangest thing of all is when I say no and he says happily, "Okay, great! God probably thinks I should be taking notes.). I need this lesson also. Subscribe to: Post Comments (Atom). 31 for 21 Blog List. Wade  ...
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My Stubborn Heart
Wednesday, June 4, 2014. It is so challenging sometimes. That I think I want to scream. Or cry out in fear. And lack of strength. Your eyes match mine and. At night when we are finally. They soak me in. And I can trust you again. I can trust myself with you again. And it is good. When a little is crying. And I feel alone in your house. And like an ogre next to your. Soft, kind children. With tears streaming down their cheeks,. It is a test of all my strong parts. And I realize in the darkness. I once was,.
My Stubborn Little Miss
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