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the adventures of sabrina: porphyria and all. | A whole entire blog about my swell disease.

A whole entire blog about my swell disease.

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the adventures of sabrina: porphyria and all. | A whole entire blog about my swell disease. | myswelldisease.wordpress.com Reviews
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A whole entire blog about my swell disease.
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the adventures of sabrina: porphyria and all. | A whole entire blog about my swell disease. | myswelldisease.wordpress.com Reviews

https://myswelldisease.wordpress.com

A whole entire blog about my swell disease.

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myswelldisease.wordpress.com myswelldisease.wordpress.com
1

Rays of light… | the adventures of sabrina: porphyria and all.

https://myswelldisease.wordpress.com/2015/06/25/rays-of-light

The adventures of sabrina: porphyria and all. A whole entire blog about my swell disease. Rays of light…. A few days ago, Esther Pearl took my hand and walked me out to the big rock in the middle of the yard. “Let’s watch the sunset, mama! The sky is PINK! Colors in the sky, blinking lights in the trees, and the best, most perfect campsite ever. She nodded yes and held out her hands. After a few minutes watching from the window, we decided to go sit on the front porch for a better view. I sat down on...

2

Release. | the adventures of sabrina: porphyria and all.

https://myswelldisease.wordpress.com/2015/02/17/release

The adventures of sabrina: porphyria and all. A whole entire blog about my swell disease. You, my friend, have a lot on your plate. You are overwhelmed and stretched too thin. You’re exhausted and ill. You’re in pain. So take it slow, and keep it simple! You were doing really well there, for a while, with the whole letting-yourself-off-the-hook thing, especially when it came to tidiness and housework and everyday BS! They should totally know that chronic fatigue, constant pain, and impossibly uncomfortab...

3

A Thanks-giving Promise | the adventures of sabrina: porphyria and all.

https://myswelldisease.wordpress.com/2015/04/06/322

The adventures of sabrina: porphyria and all. A whole entire blog about my swell disease. Thanks to Lindsay Coursen, Laura Thompson, Elizabeth Parker and Jenny Huisenga’s collective decision and effort to fund-raise for us, we have LESS THAN $700 to go! Can I just say that our family is right bowled-over with everyone’s love and support and encouragement and kindness and empathy and compassion? Who have shared our needs with others, who have given what you can, you. Though the financial portion of the ch...

4

Oklahoma is the place to be! | the adventures of sabrina: porphyria and all.

https://myswelldisease.wordpress.com/2015/03/18/oklahoma-is-the-place-to-be

The adventures of sabrina: porphyria and all. A whole entire blog about my swell disease. Oklahoma is the place to be! Theres an event next month. In Oklahoma. For folks with porphyria and their families. I’ve wanted to go, but I’ve been afraid to try to go, because everything’s been a failure as late and I can’t take failure anymore. My friends want me to go so I can network with other porphies, learn about the latest and greatest in porphyria land, and meet with the expert who will be there for a Q&A.

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aroyalpaininmyass.blogspot.com aroyalpaininmyass.blogspot.com

Porphyria: A Royal Pain In My Ass: September 2012

http://aroyalpaininmyass.blogspot.com/2012_09_01_archive.html

Thursday, September 27, 2012. So the torture finally ends and I think I'm going to spend the rest of my Sunday afternoon relaxing at home. I get one step into the house, literally one step, and my husband - who has spent his whole weekend at a continuing education seminar - jumps up from the living room and says "I can't see! We were concerned it could be a detached retina - and WebMD says that can be an emergency situation. So off we go to the best hospital in Atlanta for eyecare, Emory. Steve: "I can t...

aroyalpaininmyass.blogspot.com aroyalpaininmyass.blogspot.com

Porphyria: A Royal Pain In My Ass: October 2013

http://aroyalpaininmyass.blogspot.com/2013_10_01_archive.html

Thursday, October 31, 2013. I've been really into vlogs lately (video blogs) and yes, it took me an embarrassing amount of time to figure out what a "vlog" meant. What do you think? Would you like to stop reading my rambling thoughts and watch them instead? Is anyone out there? There have been no comments in a long time, so maybe I'm the only one left. Subscribe to: Posts (Atom). Why a "royal" pain? The adventures of sabrina: porphyria and all. Rays of light…. Doctor Grumpy in the House. December 7, 1941.

aroyalpaininmyass.blogspot.com aroyalpaininmyass.blogspot.com

Porphyria: A Royal Pain In My Ass: August 2011

http://aroyalpaininmyass.blogspot.com/2011_08_01_archive.html

Thursday, August 18, 2011. I've been suffering from acne for a few months now. Suffering might be a bit dramatic, considering I actually know what "suffering" means now. But still, having acne is no fun. I've never had skin problems like this before. Yea sure I'll have the occasional zit pop up, but never the "A" word. But here it is, and I couldn't hide from it. Since she does not accept insurance, her new patient paperwork was minimal and didn't even ask for an in-depth health history. The only pla...

aroyalpaininmyass.blogspot.com aroyalpaininmyass.blogspot.com

Porphyria: A Royal Pain In My Ass: July 2011

http://aroyalpaininmyass.blogspot.com/2011_07_01_archive.html

Friday, July 22, 2011. I've been going to said class (body pump - in case you didn't read the title) at my local gym where hubbs and I are members. The first time Stevo and I went together. I think he was just making sure I wasn't going to die. The class, seen here. And I'll let you know that I recently purchased smaller workout outfits! I even got the weight lifting gloves so I look bad ass. Subscribe to: Posts (Atom). Why a "royal" pain? The adventures of sabrina: porphyria and all. Rays of light….

aroyalpaininmyass.blogspot.com aroyalpaininmyass.blogspot.com

Porphyria: A Royal Pain In My Ass: November 2013

http://aroyalpaininmyass.blogspot.com/2013_11_01_archive.html

Thursday, November 7, 2013. Happy 1st birthday to my big, sweet boy! Oh, and the banner. And some new toys. And we're having "family" holiday pictures taken soon so I HAD to get him some new Christmas collars.and maybe a holiday sweater too. Friday, November 1, 2013. We live in suburbia USA so let's be honest, nothing super exciting happened. Lots of little kids dressed as superhumans, princesses, monsters.what ever happened to making your own costume? Hope everyone had a safe Halloween! December 7, 1941.

aroyalpaininmyass.blogspot.com aroyalpaininmyass.blogspot.com

Porphyria: A Royal Pain In My Ass: September 2013

http://aroyalpaininmyass.blogspot.com/2013_09_01_archive.html

Monday, September 9, 2013. Non-toxic Make Up Artist, Katey Denno. I was cruising around the internet today and after a trail of clicking one link to another, found myself watching a great video segment with celebrity makeup artist, Katey Denno (no I didn't know who she was before 2 hours ago). But I really like her and her philosophies, so check it out. Check out her blogpost on how great organic coconut oil is for you.and then remember that I told you first! Http:/ www.thebeautyofitis.com/. Remember, ev...

aroyalpaininmyass.blogspot.com aroyalpaininmyass.blogspot.com

Porphyria: A Royal Pain In My Ass: June 2011

http://aroyalpaininmyass.blogspot.com/2011_06_01_archive.html

Thursday, June 2, 2011. Tent for shade at the pool or beach). A fabulously large hat.oh and I'll take the body too). Yea, I don't want to do this again! Now that's taking "farmer's tan" to a new level! Subscribe to: Posts (Atom). Why a "royal" pain? King George III suffered from the genetic disease porphyria, which had also tormented Mary Queen of Scots, who passed it on to her son, King James I of England. The adventures of sabrina: porphyria and all. Rays of light…. Doctor Grumpy in the House.

aroyalpaininmyass.blogspot.com aroyalpaininmyass.blogspot.com

Porphyria: A Royal Pain In My Ass: July 2013

http://aroyalpaininmyass.blogspot.com/2013_07_01_archive.html

Friday, July 12, 2013. The Dog Days of Summer. When I'm not sick - or have your husband's surgery to post about - I don't really think about blogging. However, I feel guilty for only sharing about the bad times in my life when, in reality, most of my days are not affected by porphyria. So here's a little about what's been going on lately (or since September and my last entry.has it really been that long? I'm a horrible blogger.). The BIG NEWS is that Steve and I welcomed a baby into our family! Every wee...

aroyalpaininmyass.blogspot.com aroyalpaininmyass.blogspot.com

Porphyria: A Royal Pain In My Ass: The Dog Days of Summer

http://aroyalpaininmyass.blogspot.com/2013/07/the-dog-days-of-summer.html

Friday, July 12, 2013. The Dog Days of Summer. When I'm not sick - or have your husband's surgery to post about - I don't really think about blogging. However, I feel guilty for only sharing about the bad times in my life when, in reality, most of my days are not affected by porphyria. So here's a little about what's been going on lately (or since September and my last entry.has it really been that long? I'm a horrible blogger.). The BIG NEWS is that Steve and I welcomed a baby into our family!

aroyalpaininmyass.blogspot.com aroyalpaininmyass.blogspot.com

Porphyria: A Royal Pain In My Ass: Halloween 2013

http://aroyalpaininmyass.blogspot.com/2013/11/halloween-2013.html

Friday, November 1, 2013. We live in suburbia USA so let's be honest, nothing super exciting happened. Lots of little kids dressed as superhumans, princesses, monsters.what ever happened to making your own costume? Hope everyone had a safe Halloween! November 7, 2013 at 9:36 AM. Duke dressed as a Yellow Jacket! Subscribe to: Post Comments (Atom). Why a "royal" pain? The adventures of sabrina: porphyria and all. Rays of light…. Doctor Grumpy in the House. December 7, 1941.

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the adventures of sabrina: porphyria and all. | A whole entire blog about my swell disease.

The adventures of sabrina: porphyria and all. A whole entire blog about my swell disease. Rays of light…. A few days ago, Esther Pearl took my hand and walked me out to the big rock in the middle of the yard. “Let’s watch the sunset, mama! The sky is PINK! Colors in the sky, blinking lights in the trees, and the best, most perfect campsite ever. She nodded yes and held out her hands. After a few minutes watching from the window, we decided to go sit on the front porch for a better view. I sat down on...

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