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Empowered by hope: A PHA Diary: We continue to advance..
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Thursday, August 8, 2013. We continue to advance. This blog was originally posted on August 8, two days after an FDA advisory panel voted their opinion on Riociguat. It is now updated following the publication of an August 29 New England Journal of Medicine. And September 2 presentation of new data on Macitentan at the European Society of Cardiology Conference in the Netherlands. If approved, b. Tuesday, August 6 was a rare and important day. Other changes, have taken place as well. Unlike in those e...
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Empowered by hope: A PHA Diary: World PH Day... and Beyond
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Wednesday, May 6, 2015. World PH Day. and Beyond. Today’s blog was co-written by PHA staffers Megan Mallory and Renee Hockaday. They make the point that awareness doesn’t begin and end on World PH Day. It is an everyday necessity if we are to succeed in our efforts to achieve better lives for PH patients and all those living and working with this disease. We have designed a World PH Day celebration social media pin with the message, “PH: A disease of many stripes,” to symbolize the diagnostic...Pulmonary...
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Empowered by hope: A PHA Diary: September 2014
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Wednesday, September 3, 2014. Using film to change the world. In the U.K. there is a graffiti artist and filmmaker named Banksy. This week I read a quote from him that went like this…. Film is incredibly democratic and accessible, it’s probably the best option if you actually want to change the world, not just re-decorate it. I was struck by his words. They truly reflect how our community uses film to tell our story and to make a better tomorrow. This blog is about three efforts. View my complete profile.
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Empowered by hope: A PHA Diary: March 2015
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Wednesday, March 25, 2015. Make the Halls of Congress Ring on National PH Call-In Day. This week, PHA’s Advocacy and Awareness Director, Katie Kroner, is our guest blogger. Katie describes an important – and easy – way we can make a real difference in the lives of PH patients (and their families). PHA staff make calls during. National PH Call-In Day 2014. How can I help? PHers Jessica Armstrong (left) and Katie Tobias. Advocate to the Food and Drug Administration. Learn more and take action. To look up p...
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Empowered by hope: A PHA Diary: June 2015
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Wednesday, June 17, 2015. Protecting Yourself from Summertime Pests. Today’s guest blog post is different from those we usually present, but it is very appropriate for this time of year. Many thanks to Donneea Edwards-Moore, RN, MSN, the Pulmonary Hypertension Nurse Coordinator at the University of Chicago Medical Center, for providing these summertime tips for pulmonary hypertension patients. Mosquitoes (West Nile Virus). Use alternative methods such as Citronella-infused oils, Off! Thousands of people ...
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Empowered by hope: A PHA Diary: May 2015
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Wednesday, May 27, 2015. MyPHA: A Legacy of Connection Blossoms Online. This week’s blog is written by Olivia May. Olivia has been working hard as part of the team developing. This new multi-purpose communications system for PHA has been designed to make it much easier to find what PHA offers that is of interest to you specifically and to better connect members with common interests. Put another way, you tell us about your interests, and. MyPHA will focus on getting you what you’re looking for. To offer ...
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Empowered by hope: A PHA Diary: myPHA: A Legacy of Connection Blossoms Online
http://pharino.blogspot.com/2015/05/mypha-legacy-of-connection-blossoms.html
Wednesday, May 27, 2015. MyPHA: A Legacy of Connection Blossoms Online. This week’s blog is written by Olivia May. Olivia has been working hard as part of the team developing. This new multi-purpose communications system for PHA has been designed to make it much easier to find what PHA offers that is of interest to you specifically and to better connect members with common interests. Put another way, you tell us about your interests, and. MyPHA will focus on getting you what you’re looking for. To offer ...
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Empowered by hope: A PHA Diary: November 2014
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Wednesday, November 26, 2014. A Year to be Thankful PHor. Throughout the year, these blogs are an opportunity to tell you about what PHA is doing with and for you. As we approach the end of the year, this blog is a little different…. To date, to launching PHA’s accreditation program for PH Centers. To rapidly increasing PH awareness through our new PHAware program. To the continuing growth of our 245 support group network. To shining a new spotlight on Chronic Thromboembolic PH (CTEPH),. A global day ded...
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Empowered by hope: A PHA Diary: August 2014
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Wednesday, August 20, 2014. Out on the Road: PH Education Coming Straight to You. This week, I asked Danielle Thomas on our Meetings staff to tell you a bit about our September. PHA on the Road. Events in Houston and San Diego. These are PHA’s regional one-day conferences. We began offering them in 2008 so that people who weren’t able to come to our International PH Conference could have Conference come to them. Take a look at the program book. And you’ll know right away! If you’d like a sneak peek...