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Empowered by hope: A PHA DiaryLooking at how the PHA community drives change beyond our numbers.
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Empowered by hope: A PHA Diary | pharino.blogspot.com Reviews
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Looking at how the PHA community drives change beyond our numbers.
pharino.blogspot.com
Empowered by hope: A PHA Diary: April 2015
http://pharino.blogspot.com/2015_04_01_archive.html
Wednesday, April 22, 2015. 4 Stars. Building Longer, Better Lives. Shortly after I came to PHA as its first employee in 1999, I was invited to attend an annual meeting that the National Heart, Lung, and Blood Institute of the National Institutes of Health organized for nonprofit organizations in NHLBI’s area of medical interest. Does that approach of solidarity in community-building work? According to its Wikipedia profile. Was launched in the spring of 2001, with the mission of helping "donors make info...
Empowered by hope: A PHA Diary: August 2015
http://pharino.blogspot.com/2015_08_01_archive.html
Wednesday, August 19, 2015. Is Your Healthcare Professional Coming to Capitol Hill? This week’s guest blogger is PHA’s Senior Director of Advocacy and Awareness, Katie Kroner. Katie started working on our PH Professional Network (PHPN) Advocacy Day. In 2007 when she had recently begun at PHA as an Advocacy Associate. She makes a strong case for the importance of the PHPN Advocacy Day as an integral part of the PHPN Symposium educational and networking event. PHPN Symposium attendees pose with. When it co...
Empowered by hope: A PHA Diary: August 2014
http://pharino.blogspot.com/2014_08_01_archive.html
Wednesday, August 20, 2014. Out on the Road: PH Education Coming Straight to You. This week, I asked Danielle Thomas on our Meetings staff to tell you a bit about our September. PHA on the Road. Events in Houston and San Diego. These are PHA’s regional one-day conferences. We began offering them in 2008 so that people who weren’t able to come to our International PH Conference could have Conference come to them. Take a look at the program book. And you’ll know right away! If you’d like a sneak peek...
Empowered by hope: A PHA Diary: Have You Been on PHA's Facebook Page Recently?
http://pharino.blogspot.com/2015/08/phafacebook.html
Wednesday, August 5, 2015. Have You Been on PHA's Facebook Page Recently? PHA's guest blogger this week is Debbie Drell (nee Castro). As a long-time PHA staffer and caregiver, Debbie has spent many years building the PH community through her work with PHA's support group network. Lately, she has been looking at the PH community through another lens. To celebrate my anniversary, the organization decided to let me “guest post” for PHA’s Facebook page. And it is so rewarding to read the feedback and hear pe...
Empowered by hope: A PHA Diary: We continue to advance..
http://pharino.blogspot.com/2013/08/we-continue-to-advance.html
Thursday, August 8, 2013. We continue to advance. This blog was originally posted on August 8, two days after an FDA advisory panel voted their opinion on Riociguat. It is now updated following the publication of an August 29 New England Journal of Medicine. And September 2 presentation of new data on Macitentan at the European Society of Cardiology Conference in the Netherlands. If approved, b. Tuesday, August 6 was a rare and important day. Other changes, have taken place as well. Unlike in those e...
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phagenerationhope.blogspot.com
Generation Hope Blog: A PH Story Continued
http://phagenerationhope.blogspot.com/2015/03/a-ph-story-continued.html
Generation Hope in action. Coping with chronic illness. Balance school and PH. Coping with chronic illness in college. In spite of PH. PHA on the Road. Path to a Cure. Shake it for PH. Social Security Disability and work. Generation hope after dark. Friday, March 6, 2015. A PH Story Continued. Part 2 by Eye Shaa Malik. A PH Story Part I. 8220;My Scattered Breath". Night prevails to bring some rest. Even the birds flew to their nest. To sleep soundly is my quest. But being valetudinarian I am arrest.
phagenerationhope.blogspot.com
Generation Hope Blog: December 2014
http://phagenerationhope.blogspot.com/2014_12_01_archive.html
Generation Hope in action. Coping with chronic illness. Balance school and PH. Coping with chronic illness in college. In spite of PH. PHA on the Road. Path to a Cure. Shake it for PH. Social Security Disability and work. Generation hope after dark. Friday, December 5, 2014. GenHope Spotlight: Syrena Arevalo. By: Tadesse Wondwosen, PHA Intern. PHA: Please state your name and where you’re from? My name is Syrena Arevalo and I'm a proud Tucsonan! PHA: When were you diagnosed with PH? We have such a great s...
Path to a Cure: Getting Started
http://pathtoacure.blogspot.com/2010/03/getting-started.html
Path to a Cure. Donate to our cause! Path to a Cure page. Cindy's PAH Life Adventures. A few video clips. Her Majesty of Landscapes. Video from Shira Cathedral. Wednesday, March 3. Finally home after a long trip home. Due to technical difficulties in our plane, we were delayed in Tanzania for an additional 24 hours before we could begin the journey back home. This was the first pic that was taken of the 3 of us, we when first met at the airport in Amsterdam. March 3, 2010 at 2:59 PM.
Path to a Cure: March 2010
http://pathtoacure.blogspot.com/2010_03_01_archive.html
Path to a Cure. Donate to our cause! Path to a Cure page. Cindy's PAH Life Adventures. A few video clips. Her Majesty of Landscapes. Video from Shira Cathedral. Wednesday, March 3. Displaying the flags. We are honored to represent PHA. And all of the supporters who have made this a success. A view of the glaciers on the top of Kilimanjaro. And corporate sponsor who dedicated resources to this adventure, and certainly, of every patient and family member who is afflicted by PH- this success is yours. Pulse...
Path to a Cure: Sweet Success
http://pathtoacure.blogspot.com/2010/03/sweet-success.html
Path to a Cure. Donate to our cause! Path to a Cure page. Cindy's PAH Life Adventures. A few video clips. Her Majesty of Landscapes. Video from Shira Cathedral. Wednesday, March 3. Displaying the flags. We are honored to represent PHA. And all of the supporters who have made this a success. A view of the glaciers on the top of Kilimanjaro. And corporate sponsor who dedicated resources to this adventure, and certainly, of every patient and family member who is afflicted by PH- this success is yours. How g...
Path to a Cure: An Unexpected Surprise
http://pathtoacure.blogspot.com/2010/03/unexpected-surprise.html
Path to a Cure. Donate to our cause! Path to a Cure page. Cindy's PAH Life Adventures. A few video clips. Her Majesty of Landscapes. Video from Shira Cathedral. Wednesday, March 3. March 3, 2010 at 2:48 PM. Phriendships do have a way of becoming a life long bonding. The experioence you have encountered is beyond words. Subscribe to: Post Comments (Atom).
Path to a Cure: Her Majesty of Landscapes
http://pathtoacure.blogspot.com/2010/03/her-majesty-of-landscapes.html
Path to a Cure. Donate to our cause! Path to a Cure page. Cindy's PAH Life Adventures. A few video clips. Her Majesty of Landscapes. Video from Shira Cathedral. Wednesday, March 3. Her Majesty of Landscapes. Above a daunting view. Of the majestic K ibo. As our trek brings us ever so close. Standing before us, beckoning. To us, we tingle with excitement and anticipation, squelching. Any self-doubt that may dance across our thoughts. A picture of clouds? Landscape of the Shira. March 3, 2010 at 2:39 PM.
Path to a Cure: Video from Shira Cathedral
http://pathtoacure.blogspot.com/2010/03/video-from-shira-cathedral.html
Path to a Cure. Donate to our cause! Path to a Cure page. Cindy's PAH Life Adventures. A few video clips. Her Majesty of Landscapes. Video from Shira Cathedral. Wednesday, March 3. Video from Shira Cathedral. We scrambled (climbing without ropes) up the slopes of Shira Cathedral as an aclimization climb, as well as for the spectacular views. March 3, 2010 at 2:51 PM. Ah, ya gotta have a sense of humor - catch you on the flip side - does that mean you wont be coming back the same way you went up :o).
phagenerationhope.blogspot.com
Generation Hope Blog: August 2014
http://phagenerationhope.blogspot.com/2014_08_01_archive.html
Generation Hope in action. Coping with chronic illness. Balance school and PH. Coping with chronic illness in college. In spite of PH. PHA on the Road. Path to a Cure. Shake it for PH. Social Security Disability and work. Generation hope after dark. Thursday, August 14, 2014. I Am Not My Disease! Kiara and niece being silly. 8221; She proceeds to tell him about when she was diagnose with her cancer. But he interrupts her and says, “No, not your cancer story, but your real story.”. Sunday, August 3, 2014.
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Of anything and everything. My mindset thoughts to my inner feelings. Allow me to be whoever I want to be and choose whatever I want to do. My words. My actions. My individuality and self inspiration. There’s so many things I could do with my life. I could choose to do anything I want to do and be anything I want to be. It’s just a matter of what I want. Posted 2 years ago / 4 notes / reblog. Flying High Over Blanca Lake. Posted 2 years ago / 18,293 notes / reblog. Posted 3 years ago / 241 notes / reblog.
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Empowered by hope: A PHA Diary
Wednesday, August 19, 2015. Is Your Healthcare Professional Coming to Capitol Hill? This week’s guest blogger is PHA’s Senior Director of Advocacy and Awareness, Katie Kroner. Katie started working on our PH Professional Network (PHPN) Advocacy Day. In 2007 when she had recently begun at PHA as an Advocacy Associate. She makes a strong case for the importance of the PHPN Advocacy Day as an integral part of the PHPN Symposium educational and networking event. PHPN Symposium attendees pose with. When it co...
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