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Patricia's Pages | Life and Ewing's Sarcoma

Life and Ewing's Sarcoma

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Patricia's Pages | Life and Ewing's Sarcoma | patriciaspage.wordpress.com Reviews

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Life and Ewing's Sarcoma

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1

Summer Marches On | Patricia's Pages

https://patriciaspage.wordpress.com/2016/08/07/summer-marches-on

Autism and Intellectual Disability. Ewing’s Sarcoma and Mathew. Life and Ewing's Sarcoma. Asymp; Leave a comment. Well it has been a while since I last posted. Things are going as always which means everything is ok. Kristen has been home twice since I last posted, basically every long weekend. She takes an extra day now so we get a bit of a longer visit but the time goes by too fast. Mathew likes it when she’s around and misses her, as do we all, when she leaves. His name at the SPCA was Essex but Mathe...

2

Weep With Sorrow | Patricia's Pages

https://patriciaspage.wordpress.com/2016/06/05/weep-with-sorrow

Autism and Intellectual Disability. Ewing’s Sarcoma and Mathew. Life and Ewing's Sarcoma. Asymp; 2 Comments. I haven’t posted for a long time and for that I apologize. Many events have kept me/us busy and I will get to them…just not today. Today I tell you the results from Mathew’s last scan and our follow up appointment with his Oncologist. It isn’t good. Mathew is done treatment and nature will take its course. As Mathew asked during the appointment, “Does this mean I will die? We are functioning, some...

3

Time Marches On | Patricia's Pages

https://patriciaspage.wordpress.com/2016/06/25/time-marches-on

Autism and Intellectual Disability. Ewing’s Sarcoma and Mathew. Life and Ewing's Sarcoma. Asymp; 1 Comment. Sometimes I can kid myself that we are still living normal lives. Then I get another punch to my gut. Yesterday the palliative care unit at the hospital called to arrange Mathew’s first visit with the pain and symptom management specialist on Monday. The palliative care doctor likes to visit in the home so she is coming here to open his file and start the paperwork. So this along with the first &#8...

4

Thanksgiving 2016 | Patricia's Pages

https://patriciaspage.wordpress.com/2016/10/16/thanksgiving-2016

Autism and Intellectual Disability. Ewing’s Sarcoma and Mathew. Life and Ewing's Sarcoma. Asymp; 1 Comment. Before I launch into Thanksgiving this year, first is a picture of Mathew at the concert in Moncton. This was the one for “Five Fingered Death Punch”. Mathew at the concert…. We drove home following the concert so we could rest as we needed to and wake up at home. Dominique with her beloved dog, Sophie. This was our backyard on the day before our meal. Warm and fabulous! With approximately 30 peopl...

5

A Good Day! | Patricia's Pages

https://patriciaspage.wordpress.com/2016/06/19/a-good-day

Autism and Intellectual Disability. Ewing’s Sarcoma and Mathew. Life and Ewing's Sarcoma. Asymp; 3 Comments. We had our first bonfire last night. It had been tentatively scheduled about a week or so before but with our weather lately I wasn’t sure it would happen. We missed the other family members who couldn’t be there and I definitely thought about Kristen. She was enjoying herself in Ottawa so I hope she doesn’t get too homesick looking at these pictures I’m putting on below. John is bringing some mor...

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The C Word: My Good Friend, NED

http://chronicallycrystal.blogspot.com/2014/03/my-good-friend-ned.html

Tuesday, March 25, 2014. My Good Friend, NED. Today is a great day. I got my first follow-up scans done a few weeks ago and they pointed out some tiny lung nodules that weren't in the write-ups of my previous scans. My general feeling was that these nodules meant the cancer was back, and my chances of living were not all that great. I wasn't depressed about it, but just thought that was how it was. I have more time! Disclaimer: This was actually written on Friday. March 25, 2014 at 5:43 PM. Princess Crys...

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Patricia's Pages | Life and Ewing's Sarcoma

Autism and Intellectual Disability. Ewing’s Sarcoma and Mathew. Life and Ewing's Sarcoma. Asymp; 1 Comment. To be blunt, this is the year I will bury my son. The Wednesday before Christmas I took Mathew to our local emergency room because of severe left chest and underarm pain. It had started as an intermittent pain that grew in frequency and intensity until Mathew wondered if he was having a heart attack. None of the pain meds were working so off we went. We saw the pain specialist a few days ago. S...

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