pcdh19info.org
pcdh19infoPCDH19 Epilepsy research and information Non-Profit
http://www.pcdh19info.org/
PCDH19 Epilepsy research and information Non-Profit
http://www.pcdh19info.org/
TODAY'S RATING
>1,000,000
Date Range
HIGHEST TRAFFIC ON
Monday
LOAD TIME
0.2 seconds
16x16
32x32
A Happy DreamHost Customer
Private Registrant
417 Ass●●●●●●●Rd #324
B●a , CA, 92821
US
View this contact
A Happy DreamHost Customer
Private Registrant
417 Ass●●●●●●●Rd #324
B●a , CA, 92821
US
View this contact
A Happy DreamHost Customer
Private Registrant
417 Ass●●●●●●●Rd #324
B●a , CA, 92821
US
View this contact
New Dream Network, LLC dba DreamHost Web Hosting (R173-LROR)
WHOIS : whois.publicinterestregistry.net
REFERRED :
PAGES IN
THIS WEBSITE
0
SSL
EXTERNAL LINKS
54
SITE IP
185.230.61.161
LOAD TIME
0.156 sec
SCORE
6.2
pcdh19info | pcdh19info.org Reviews
https://pcdh19info.org
PCDH19 Epilepsy research and information Non-Profit
Insieme per la Ricerca PCDH19 ? ONLUS
http://www.pcdh19research.org/Partners.html
Insieme per la Ricerca PCDH19 – ONLUS. Mutua Basis Assistance sostiene la ONLUS INSIEME PER LA RICERCA PCDH19. Grazie all'impegno dei suoi Promotori Mutualistici. Inner Wheel sostiene ONLUS INSIEME PER LA RICERCA PCDH19. ONLUS INSIEME PER LA RICERCA PCDH19. Via A Poliziano, 8. Design downloaded from Free Templates. Your source for free web templates. Aderire alla nostre iniziative. Diffondi la nostra locandina.
O Diário da Filipa: Simulação?!!!
http://diariodafilipa.blogspot.com/2014/06/simulacao.html
O Diário da Filipa. Segunda-feira, 30 de junho de 2014. Hoje a Filipa deixou-nos na dúvida. As aulas acabaram e como já estávamos à espera, a Filipa começou a perder o interesse em ir para a escola. Já ontem tínhamos tido algumas lágrimas ao deitar mas nada nos fazia pensar naquilo que Filipa iria tentar esta manhã. Pelo menos pensamos que foi uma tentativa de nos ludibriar para ficarmos em casa com ela e assim não ter que ir à escola. Como o último episódio de crises foi um pouco mais suave do que estáv...
O Diário da Filipa: Setembro 2014
http://diariodafilipa.blogspot.com/2014_09_01_archive.html
O Diário da Filipa. Domingo, 21 de setembro de 2014. Resultados do estudo genético realizado aos Pais. Na passada 5ª feira (18/09/2014) lá fomos nós até ao Hospital de Santa Maria para conhecermos os resultados do estudo genético que nos fizeram com o intuito de se tentar perceber a origem do problema da Filipa. Deixámos a Filipa na escola e por volta das 09h lá estávamos nós para falar com a Dra. Ana Berta. Enviar a mensagem por e-mail. Dê a sua opinião! PIN - Progresso Infantil.
O Diário da Filipa: Abril 2015
http://diariodafilipa.blogspot.com/2015_04_01_archive.html
O Diário da Filipa. Terça-feira, 28 de abril de 2015. Apenas para indicar que passado um dia, ainda não conseguimos entender ao certo o que se está a passar. Hoje fomos buscar a Filipa à escola e fomos informados de que ela se havia queixado de tremores por volta das 13:30 e que aparentava alguma palidez e olheiras (típico nas alturas de crises). À noite voltou a ter nova queixa, mas sem grande significado. Sinceramente esta deixou-nos bastante baralhados! Enviar a mensagem por e-mail. Dê a sua opinião!
Athena Diagnostics - Epilepsy
http://www.athenadiagnostics.com/condition-guides/epilepsy
Genetic Testing Patient Information / FAQ's. Neurome™ Neurological Exome. Find a Patient Service Center. Letters of Medical Necessity. Test Results - All Options. Epilepsy is a group of disorders caused by disturbances with electrical signaling in the brain. According to Epilepsy.com. Testing for Genetic and Immunologic Causes of Epilepsy. Genes were chosen based on monogenic disorders for which epilepsy is a key feature according to the Online Mendelian Inheritance in Man (OMIM) database. Athena Diagnos...
momwithanasterisk.blogspot.com
Mom*: October 2015
http://momwithanasterisk.blogspot.com/2015_10_01_archive.html
PCDH19 Epilepsy - Foster Care - Adoption - Life. Saturday, October 31, 2015. Halloween with the Birth Family. Since my kids were in foster care, I have worked hard to maintain the bond that they have with their biological siblings. We always have a visit around the holidays but meeting up on Christmas or Thanksgiving is just not practical. Finally, we realized that Halloween was the answer. It is a kid friendly holiday and we didn’t have family events that would conflict with a visit. Luckily, T agreed.
momwithanasterisk.blogspot.com
Mom*: January 2016
http://momwithanasterisk.blogspot.com/2016_01_01_archive.html
PCDH19 Epilepsy - Foster Care - Adoption - Life. Friday, January 29, 2016. Great stuff to play with that they got last month. So while the rest of the world is busy working on their resolutions, I’m over here making new rules in an attempt to keep the house from imploding. Here’s a few of the newest additions:. Do not fly your new drone in my room while I am sleeping. I am not responsible for any damage caused when I wake up screaming and bat the flying demon monster away from my face. If you want your c...
momwithanasterisk.blogspot.com
Mom*: Disaster Relief in Garland
http://momwithanasterisk.blogspot.com/2016/01/disaster-relief-in-garland.html
PCDH19 Epilepsy - Foster Care - Adoption - Life. Saturday, January 2, 2016. Disaster Relief in Garland. Earlier this week, NTJC began discussing how we could help the people affected by the tornados in Garland. If you don’t know, on December 26. An EF4 tornado ripped through several Dallas suburbs damaging over 600 buildings and killing 11 people while injuring countless others. We knew we had to help so this morning about 25 Jeeps, along with their people, rolled into Garland and we got to work. Most of...
O Diário da Filipa: Julho 2015
http://diariodafilipa.blogspot.com/2015_07_01_archive.html
O Diário da Filipa. Domingo, 5 de julho de 2015. Ponto de situação – Julho 2015. Faz um tempinho que não escrevo e sinceramente não tenho muita vontade, mas…. Relativamente ao último episódio, vamos considerá-lo como tal, após conversa com o Dr. Nuno Lobo Antunes numa consulta que tivemos no principio de Maio, a Filipa pode mesmo ter passado por um episódio de crises, só que desta vez bem mais suaves. O que nos foi dito é que tudo pode depender da intensidade e da focalização das crises. Dê a sua opinião!
Viking Pups Training Adventures: Carver
http://thevikingpups.blogspot.com/p/carver.html
Viking Pups Training Adventures. Viking Pups is a club at Augustana College that raises and trains service and facility dogs in partnership with QC CAN. Read more about the adventures of our dogs in training here! Birthday: August 11 2013. Breed: English Golden Retriever donated by Iron Hill Retrievers. Career Path: Seizure Response Dog. Carver with his girl! About the kind of epilepsy Carver will be helping with! To help Carver's future family raise money for him! Subscribe to: Posts (Atom). 160; The .
TOTAL LINKS TO THIS WEBSITE
54
PCDH19 Alliance - PCDH19 Epilepsy:19 Days for PCDH19 Matching Grant
PCDH19 Epilepsy:19 Days for PCDH19 Matching Grant. PCDH19 Alliance - PCDH19 Epilepsy:19 Days for PCDH19 Matching Grant. PCDH19 Epilepsy:19 Days for PCDH19 Matching Grant. A Cure is out there, wont you help us find it? From March 26th Through April 13th all Donations Will be Doubled. Your generous donation will help us continue to invest in medical research, raise awareness, increase proper diagnosis and raise hope for the Brave Children living with PCDH19 Epilepsy. 1 Make a Donation. Maegans fundraiser f...
Inicio
En nuestro foro podrás debatir diversos temas de interés sobre Epilepsia Rosa y enfermedades afines. Conoce las historias reales de nuestras niñas. Enlaces de interés.
Home
Our site has moved, please click this text to be redirected to PCDH19info.org. Create a free website.
World Conference on PCDH19 - 3rd Edition
World Conference on PCDH19 - 3rd Edition. The third edition of the World. Will take place in Rome on 23 and 24 October 2015. Scientific research status and. This website contains the event agenda, speakers' names and bios, the abstract of every speech and, as soon as they'll be available, the conference videos. This Conference has been organised and will be hold by the nonprofit association ". Together for the research on PCDH19 " (. ONLUS INSIEME PER LA RICERCA PCDH19. Via A Poliziano, 8.
Mutation PCDH19 France
Journée Pique-nique PCDH19. Brève janvier 2016. Retrouver la brève du mois de janvier avec toutes les dernières actualités de l'association. Congrès de Neurologie Pédiatrique de Lille. Du 20 au 22 Janvier l'association PCDH19 France sera présente au Congrès de Neurologie Pédiatrique de Lille. Base de données Genida. Ce registre permet de collecter des données sur des individus atteints de maladies génétiques rares de façon confidentielle. Permanence Téléphonique. VAN Makline HOAREAU Sandra.
pcdh19info
Newly Diagnosed with PCDH19 Epilepsy. Call for abstracts for 2016 symposium. PCDH19 Alliance November Fundraiser. Shop the Alliance Store. Rock N' Roll Marathon Series- Be a PCDH19 Alliance Hero. American Epilepsy Society 2013. 2014 Professional and Family Symposium. The PCDH19 Alliance Welcomes you. Our mission is to improve the lives of children and families who are affected by PCDH19 Epilepsy. PCDH19 Epilepsy Professional and Family Symposium. More details coming soon. About the PCDH19 Alliance Video.
Insieme per la Ricerca PCDH19 – ONLUS – Insieme per la Ricerca PCDH19 – ONLUS
Fai una donazione tramite PayPal:. O dona il 5 x 1000. Insieme per la Ricerca PCDH19 ONLUS. Diventa un’azienda solidale. News & Iniziative. WE ARE PLEASED TO ANNOUNCE THE THIRD EDITION OF THE WORLD CONFERENCE ON PCDH19, ORGANIZED BY INSIEME PER LA RICERCA PCDH19 THE CONFERENCE WILL BE HELD IN ROME ON OCTOBER 24TH 2015. ABSTRACTS OF THE SPEECHES AND MORE DETAILS WILL BE AVAILABLE SOON. Know and fight this rare genetic disease. Improve the quality of life of affected children. In case of mutation, prothoca...
Pinellas County Dental Hygiene Association
Attention * * *. 6:30 7:00 Eats and Greets. 7:00 8:00 1 CEU - Speaker: Bill Short. Three Ways Dental Hygienists Kill Hand Pieces. And How to Avoid Them: Proper Equipment Maintenance for Safe Oral Health Care Delivery. 8:00 - 8:45 Business Meeting. 25987 Us Highway 19 N, Clearwater, FL 33763. Bill will supply a door prize or two! Visit his website at: http:/ werepairhandpieces.com. PCDHA will also have a free. Raffle for a cavitron tip! Hope to see you there. First Class Filled Up Fast. Save the dates now!
Partho Chakraborty | I AM PARTHO.. READING IN COMPUTER SCIENCE & ENGINEERING DEPT IN JAHANGIRNAGAR UNIVERSITY. WANT TO BUILD UP MY CAREER AS NETWORK ADMINISTRATOR.. I ALSO WANT TO MAKE FRIEND..FRIENDS ARE EVERYTHING IN MY LIFE
I AM PARTHO. READING IN COMPUTER SCIENCE and ENGINEERING DEPT IN JAHANGIRNAGAR UNIVERSITY. WANT TO BUILD UP MY CAREER AS NETWORK ADMINISTRATOR. I ALSO WANT TO MAKE FRIEND.FRIENDS ARE EVERYTHING IN MY LIFE. Meaning of some router IOS command. July 4, 2009 in Uncategorized. Enable – Enter Privileged EXEC mode. Copy running-config startup-config – Copy the active configuration to NVRAM. Copy startup-config running-config – Copy the configuration in NVRAM to RAM. Ping ip address – Ping to that address. Line ...
Basic Header
Domain Registered at Safenames
Domain Registration in over 800 different extensions. Enterprise Domain Management since 1999. Online Brand Monitoring and Enforcement. Domain Consultancy and Strategy. Domain Disputes and Recovery. Web Hosting and Data Center Solutions. Please visit www.safenames.net. Europe, Middle East and Africa: 44 1908 200022. USA, Canada and South America: 1 703 574 5313. Australia and Asia-Pacific: 61 755 245 575.
SOCIAL ENGAGEMENT