pemphigus.ca pemphigus.ca

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Canadian Pemphigus – Pemphigoid Foundation

A Great Day for Raising Awareness at the Scotiabank Toronto Waterfront Marathon Charity Event. It was a beautiful day for a run and walk on October 20th. Thanks to all those that participated and donated. The CPPF raised close to $12,000 for its projects this year! Stay up to date on latest research, newly developed patient educational materials, upcoming events and other news from the only Canadian organization supporting Canadians with pemphigus and pemphigoid! Interested in what we are up to this year?

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A Great Day for Raising Awareness at the Scotiabank Toronto Waterfront Marathon Charity Event. It was a beautiful day for a run and walk on October 20th. Thanks to all those that participated and donated. The CPPF raised close to $12,000 for its projects this year! Stay up to date on latest research, newly developed patient educational materials, upcoming events and other news from the only Canadian organization supporting Canadians with pemphigus and pemphigoid! Interested in what we are up to this year?
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Canadian Pemphigus – Pemphigoid Foundation | pemphigus.ca Reviews

https://pemphigus.ca

A Great Day for Raising Awareness at the Scotiabank Toronto Waterfront Marathon Charity Event. It was a beautiful day for a run and walk on October 20th. Thanks to all those that participated and donated. The CPPF raised close to $12,000 for its projects this year! Stay up to date on latest research, newly developed patient educational materials, upcoming events and other news from the only Canadian organization supporting Canadians with pemphigus and pemphigoid! Interested in what we are up to this year?

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1

Treatment Options  – Canadian Pemphigus

http://pemphigus.ca/treatment-options

There are a number of medications and therapies available to patients:. Corticosteroids (e.g., prednisone) are most often used to get the disease under control . It is not uncommon to use it in combination with other treatment options in order to reduce the dose of this medication. If used for prolonged periods of time, the side effects can be severe. Impact on Your Life. Impact On Your Life.

2

Incidence – Canadian Pemphigus

http://pemphigus.ca/incidence-2

Definitive statistics on the incidence and prevalence of Pemphigoid are not available. Pemphigoid strikes men and women equally and knows no racial or cultural boundaries. Although the onset usually occurs in the elderly (60 and older), Pemphigoid can affect young adults and has even been documented in children as young as several months old. Impact on Your Life. Impact On Your Life.

3

Impact On Your Life – Canadian Pemphigus

http://pemphigus.ca/impact-on-your-life-2

Impact On Your Life. Much of the impact on lifestyle comes as a result of side effects caused by prednisone. For example,. Many people experience emotional difficulties and mood changes. If these are continual and severe, other medications are often used to help mitigate these side effects. Another commonly reported side effect of prednisone is weight gain. A high protein, low carbohydrate, low fat diet, as well as a regular exercise program is recommended. Anti-inflammatory antibiotics (tetracycline, er...

4

FAQs – Canadian Pemphigus

http://pemphigus.ca/faqs

What is an autoimmune disease? There are no known causes. Is there a cure or are they getting close to a cure? No At the moment, there is no cure for either Pemphigus or Pemphigoid. There are a number of treatment strategies available that can help patients get into remission. Remission is defined as a state in which a patient has had no lesions while off all therapies for at least two months. Can I die from this? Impact on Your Life. Impact On Your Life.

5

Diagnosis – Canadian Pemphigus

http://pemphigus.ca/diagnosis

Impact on Your Life. Impact On Your Life.

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pemphigus.org pemphigus.org

Pemphigus Support | Pemphigoid Support | Local Support Groups | Pemphigus Pemphigoid Foundation (IPPF)

http://www.pemphigus.org/peer-support/local-support

Staff & Coaches. Complications & Side Effects. Current Consensus of Disease Outcomes. Prevention & Psychology. Other Ways To Give. Patient Conferences (Annual Meetings). Staff & Coaches. All About Pemphigus (Patient Edition). What are my rights? All About Pemphigus (Physician Edition). Complications & Side Effects. Current Consensus of Disease Outcomes. Prevention & Psychology. Becoming a Self Advocate. Advocacy Tools and Resources. Patient Conferences (Annual Meetings). August 30, 2016. August 23, 2016.

benjaminbarankin.com benjaminbarankin.com

Dr. Benjamin Barankin

http://www.benjaminbarankin.com/res.htm

Canadian Skin Patient Alliance. A new national advocacy group for people with skin disorders. The goal of the alliance is to raise awareness at Health Canada and provincial/territorial ministries of health about these diseases and their impact on Canadians. National Alopecia Areata Foundation (NAAF). San Rafael, CA 949915-0760. GTA Chapter of the NAAF. Toronto and all surrounding areas welcome to join us! Meetings start September 2008 and will run every other month. BASAL CELL CARCINOMA NEVUS SYNDROME.

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OTHER SITES

pemphegus-vulgaris.blogspot.com pemphegus-vulgaris.blogspot.com

a rare look into the pemphigus experience

A rare look into the pemphigus experience. My experience of having this disease using the drawings I did while I was in hospital being treated for Pemphigus Vulgaris. Thursday, 29 September 2011. I dream under pale green blankets. I am still very cold. Now I need three blankets to try to stay warm but I can still feel the autumn chill blowing through the large gaffa-taped windows of my solitary room. I dream of my niece and her new baby, of going home, of people I don't know. Oh, it sure did! There were ...

pemphero.org pemphero.org

Pemphero Children's Foundation

Pemphero Children s Foundation. Organisation consist of ten trustee members, management board and village volunteers. We work hand in hand with the chiefs, community members and committees, guardians and government authorities. Our strength is huge group of people, men and women, various aged willing to voluntarily work for the benefit of children and to develop the community. With all given support we have faith and hope for better tomorrow. God bless you all!

pemphigoidgestationis.com pemphigoidgestationis.com

pemphigoidgestationis.com

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pemphigus-eu-network.org pemphigus-eu-network.org

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Home

Pemphigus Pemphigoid Selbsthilfegruppe e.V. Herzlich Willkommen auf unserer Webseite. Sie wollen nicht ganz alleine mit Ihrer Erkrankung dastehen? Der Verein Pemphigus und Pemphigoid Selbsthilfegruppe hat sich im Winter 2010 gegründet, um für uns, die Mitglieder, von den Erkrankungen Betroffenen sowie für Angehörige und Freunde einen Treffpunkt zu gestalten und Informationen bereit zu stellen Bundesländer übergreifend und unabhängig von Kliniken und Institutionen.

pemphigus.ca pemphigus.ca

Canadian Pemphigus – Pemphigoid Foundation

A Great Day for Raising Awareness at the Scotiabank Toronto Waterfront Marathon Charity Event. It was a beautiful day for a run and walk on October 20th. Thanks to all those that participated and donated. The CPPF raised close to $12,000 for its projects this year! Stay up to date on latest research, newly developed patient educational materials, upcoming events and other news from the only Canadian organization supporting Canadians with pemphigus and pemphigoid! Interested in what we are up to this year?

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pemphigus.net pemphigus.net

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Netwerk Nederland voor Pemphigus en Pemphigoïd

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pemphigus.org pemphigus.org

International Pemphigus Pemphigoid Foundation (IPPF) | a common hope an uncommon bond

Staff & Coaches. All About Pemphigus (Patient Edition). 2018 Pre-IID Pemphigus and Pemphigoid Symposium. Natural History Study (Patient Registry). All About Pemphigus (Physician Edition). Complications & Side Effects. Current Consensus of Disease Outcomes. Prevention & Psychology. Other Ways To Give. Staff & Coaches. All About Pemphigus (Patient Edition). 2018 Pre-IID Pemphigus and Pemphigoid Symposium. What are my rights? Natural History Study (Patient Registry). All About Pemphigus (Physician Edition).

pemphigus.org.uk pemphigus.org.uk

Pemphigus Vulgaris Network

Welcome to the website of the Pemphigus Vulgaris Network, the United Kingdom support group for people living with Pemphigus and Mucous Membrane Pemphigoid. This page includes the following sections:. What is Pemphigus Vulgaris? What is the PV Network? How is PV diagnosed? How is it treated? Will it go away? Clinical Trials, New Treatments and Research. How To Find Out More. What is Pemphigus Vulgaris? What is the PV Network? We are entirely unfunded and rely on donations. If you find this website use...