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pkd sucks

A whole new beginning! That's what everyone wants to know. I have been hesitant to say that is the case. Probably because it has been such a long road of health problems for Bruce over the past 2 years. I feel like the rug is going to get pulled out from under us at any moment. I keep waiting for the next problem. What a new concept! After we go to Disney. It is great to not have to tell them we can't do something because of Bruce being sick. Bruce has to go to Lifelink. If he can get the headaches under...

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A whole new beginning! That's what everyone wants to know. I have been hesitant to say that is the case. Probably because it has been such a long road of health problems for Bruce over the past 2 years. I feel like the rug is going to get pulled out from under us at any moment. I keep waiting for the next problem. What a new concept! After we go to Disney. It is great to not have to tell them we can't do something because of Bruce being sick. Bruce has to go to Lifelink. If he can get the headaches under...

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pkd sucks | pkdhoefling.blogspot.com Reviews

https://pkdhoefling.blogspot.com

A whole new beginning! That's what everyone wants to know. I have been hesitant to say that is the case. Probably because it has been such a long road of health problems for Bruce over the past 2 years. I feel like the rug is going to get pulled out from under us at any moment. I keep waiting for the next problem. What a new concept! After we go to Disney. It is great to not have to tell them we can't do something because of Bruce being sick. Bruce has to go to Lifelink. If he can get the headaches under...

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pkdhoefling.blogspot.com

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pkd sucks: Bacon Wrapped Shrimp

http://www.pkdhoefling.blogspot.com/2010/02/bacon-wrapped-shrimp.html

A whole new beginning! The anti-rejection medicine. The other issues are probably the steroids. He went to Lifelink. He probably hasn't been that low in 10 years. They cut the steroids dosage in half and eventually he will not take them at all we hope. Doctor was very. Pleased with his progress. So overall things are lookin' good. And his need for a kidney. As much of a cynic I was and still am, I understand, and believe, that the simplest acts of kindness go a long, long way. That was the worst ...I kno...

2

pkd sucks: OUT of the hospital

http://www.pkdhoefling.blogspot.com/2010/01/out-of-hospital.html

A whole new beginning! OUT of the hospital. If you haven't already heard, Bruce was released from the hospital yesterday (Friday). They thought about keeping him another day but Gasparilla. Was 96 on Thursday and then 8.6 on Friday so its making the progress they wanted to see. Still long way to go to get to 1. By then he should be feeling 100%. He already feels amazing compared to how he has felt for the past year. I can tell by just seeing his face that he is healthier. Dr Russo as soon as possible so ...

3

pkd sucks: March 2010

http://www.pkdhoefling.blogspot.com/2010_03_01_archive.html

A whole new beginning! That's what everyone wants to know. I have been hesitant to say that is the case. Probably because it has been such a long road of health problems for Bruce over the past 2 years. I feel like the rug is going to get pulled out from under us at any moment. I keep waiting for the next problem. What a new concept! After we go to Disney. It is great to not have to tell them we can't do something because of Bruce being sick. Bruce has to go to Lifelink. If he can get the headaches under...

4

pkd sucks: November 2009

http://www.pkdhoefling.blogspot.com/2009_11_01_archive.html

A whole new beginning! Lifelink called and said it's "official". Bruce's donor is approved and he will get a new kidney! Even typing the words seems like a fantasy. I have not had any time to process this yet. We are both so busy then we stop for a moment and think about what is going to happen and still can't believe it's real. I wanted to have an official date before I posted but Lifelink. Hasn't scheduled it yet. The donor is calling them with the date of January 14 th. He already tried for the 7 th.

5

pkd sucks: October 2009

http://www.pkdhoefling.blogspot.com/2009_10_01_archive.html

A whole new beginning! So we have no idea what the future holds as usual. We can only take it a day at a time and not make any plans. That is MUCH harder when you have kids who are always trying to plan their next fun event. He was told he could take ibuprofen! So strange because since I've known Bruce he has never been able to take it because it harms the kidneys. He tried it for back pain and worked a little. He sent in paper to be put back on UNOS. List We have not heard anything from Lifelink. It's b...

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hoefling-livingwithpkd.blogspot.com

Living with PKD: Hello Again

http://hoefling-livingwithpkd.blogspot.com/2014/04/hello-again.html

In sickness and in health.". It really is all about me, isn't it? So I have debated and debated and debated and debated and even debated some more about whether to continue this blog or not. I even started this post on . That's what everyone wants to know. I have been hesitant to say that is the case. Probably because it has been such a long road of health problems for Bruc. National Foundation for Transplants :. Sean has PKD and has a donor! View my complete profile. Saturday, April 12, 2014. Now, we ar...

survivingpkd.blogspot.com

Surviving PKD: November 2010

http://survivingpkd.blogspot.com/2010_11_01_archive.html

The story of my life with Polycystic Kidney Disease, from discovery to transplant. DAVID WADDINGTON Dallas, Texas dwwaddington@gmail.com. Thursday, November 18, 2010. Little Kidney: 1, BK Virus: 0. BK Virus: 0 copies in last two blood serum tests. But for now, I'll take a deep breath, smile and relax. One more thing for which to be thankful next Thursday. Links to this post. Wednesday, November 3, 2010. Beginning Year 3 Post Transplant. Other nurses greet me by name so it doesn't seem so unreasonable.

survivingpkd.blogspot.com

Surviving PKD: Still Here

http://survivingpkd.blogspot.com/2014/09/still-here.html

The story of my life with Polycystic Kidney Disease, from discovery to transplant. DAVID WADDINGTON Dallas, Texas dwwaddington@gmail.com. Tuesday, September 16, 2014. I know it's been a while since I posted. But that's a good thing. No news is said to be good news and that's the case here. Right now I'm off to set up my next colonoscopy. Fun times coming up! October 27, 2014 at 3:57 AM. June 23, 2016 at 5:31 AM. Polycystic Kidney Disease Treatment. Subscribe to: Post Comments (Atom). Big D and Me. Dialys...

survivingpkd.blogspot.com

Surviving PKD: May 2012

http://survivingpkd.blogspot.com/2012_05_01_archive.html

The story of my life with Polycystic Kidney Disease, from discovery to transplant. DAVID WADDINGTON Dallas, Texas dwwaddington@gmail.com. Friday, May 4, 2012. BK Virus: A Recap. I found the missing email. It had been filed under Important. Who knew there was such a folder. The reader asked how high my numbers had been, so I've been tracking them down through my blog pages. Here's what I found along with creatinine levels:. Then he began a series of treatments with Cidofovir, an antiviral that had been de...

survivingpkd.blogspot.com

Surviving PKD: February 2011

http://survivingpkd.blogspot.com/2011_02_01_archive.html

The story of my life with Polycystic Kidney Disease, from discovery to transplant. DAVID WADDINGTON Dallas, Texas dwwaddington@gmail.com. Friday, February 11, 2011. PKD: Options. Anyone? I received an email yesterday from a woman with PKD. She was looking for a doctor who specializes in PKD. I didn't have an answer. Here is the exchange:. Ouch Tough question. We all want to be "in control of certain circumstances," but that's tough with PKD. My reply:. I confess, since. They finished recruiting volunteer...

survivingpkd.blogspot.com

Surviving PKD: June 2013

http://survivingpkd.blogspot.com/2013_06_01_archive.html

The story of my life with Polycystic Kidney Disease, from discovery to transplant. DAVID WADDINGTON Dallas, Texas dwwaddington@gmail.com. Monday, June 17, 2013. Spring Post in Early Summer. Well, it's been a while since the last post. Work's been busy and connectivity has been lousy here at the house. A lot of complaining about the service provider, but it just turned out to be a loose USB connector. My last check up was three months ago when I also endured another Glofil. Links to this post. UNOS: Unite...

hoefling-livingwithpkd.blogspot.com

Living with PKD: January 2010

http://hoefling-livingwithpkd.blogspot.com/2010_01_01_archive.html

In sickness and in health.". It really is all about me, isn't it? So I have debated and debated and debated and debated and even debated some more about whether to continue this blog or not. I even started this post on . That's what everyone wants to know. I have been hesitant to say that is the case. Probably because it has been such a long road of health problems for Bruc. National Foundation for Transplants :. Meds, new stuff, whatever. From Zero to Sixty. The boys are going home! He wanted to go back...

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pkdhoefling.blogspot.com

pkd sucks

A whole new beginning! That's what everyone wants to know. I have been hesitant to say that is the case. Probably because it has been such a long road of health problems for Bruce over the past 2 years. I feel like the rug is going to get pulled out from under us at any moment. I keep waiting for the next problem. What a new concept! After we go to Disney. It is great to not have to tell them we can't do something because of Bruce being sick. Bruce has to go to Lifelink. If he can get the headaches under...

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pkdi.com

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