survivingpkd.blogspot.com

Surviving PKD

The story of my life with Polycystic Kidney Disease, from discovery to transplant. DAVID WADDINGTON Dallas, Texas dwwaddington@gmail.com. Tuesday, September 16, 2014. I know it's been a while since I posted. But that's a good thing. No news is said to be good news and that's the case here. Right now I'm off to set up my next colonoscopy. Fun times coming up! Links to this post. Monday, June 17, 2013. Spring Post in Early Summer. Well, it's been a while since the last post. Best wishes to all those who fi...

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Surviving PKD | survivingpkd.blogspot.com Reviews

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The story of my life with Polycystic Kidney Disease, from discovery to transplant. DAVID WADDINGTON Dallas, Texas dwwaddington@gmail.com. Tuesday, September 16, 2014. I know it's been a while since I posted. But that's a good thing. No news is said to be good news and that's the case here. Right now I'm off to set up my next colonoscopy. Fun times coming up! Links to this post. Monday, June 17, 2013. Spring Post in Early Summer. Well, it's been a while since the last post. Best wishes to all those who fi...

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Surviving PKD | survivingpkd.blogspot.com Reviews

https://survivingpkd.blogspot.com

The story of my life with Polycystic Kidney Disease, from discovery to transplant. DAVID WADDINGTON Dallas, Texas dwwaddington@gmail.com. Tuesday, September 16, 2014. I know it's been a while since I posted. But that's a good thing. No news is said to be good news and that's the case here. Right now I'm off to set up my next colonoscopy. Fun times coming up! Links to this post. Monday, June 17, 2013. Spring Post in Early Summer. Well, it's been a while since the last post. Best wishes to all those who fi...

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survivingpkd.blogspot.com

1

Surviving PKD: November 2012

http://survivingpkd.blogspot.com/2012_11_01_archive.html

The story of my life with Polycystic Kidney Disease, from discovery to transplant. DAVID WADDINGTON Dallas, Texas dwwaddington@gmail.com. Tuesday, November 27, 2012. I hope posts like this continue to appear, but less and less frequently. Went to the clinic bright and early this morning for my three month check-up, and everything was great! My next checkup will be in four months, that's March. 2013. That will be the day for my annual Glofil test which uses radioactive tracers to get an accurate m...Four ...

2

Surviving PKD: December 2010

http://survivingpkd.blogspot.com/2010_12_01_archive.html

The story of my life with Polycystic Kidney Disease, from discovery to transplant. DAVID WADDINGTON Dallas, Texas dwwaddington@gmail.com. Friday, December 10, 2010. I asked if the kidney will possibly heal as time goes on without active inflammation from the BK Virus or the toxic effects of the Cidofovir but was not given much encouragement. Stability would be good, she said. Links to this post. Tuesday, December 7, 2010. Does Three Make a Collection? After the exam, his first question was whether I had ...

3

Surviving PKD: January 2011

http://survivingpkd.blogspot.com/2011_01_01_archive.html

The story of my life with Polycystic Kidney Disease, from discovery to transplant. DAVID WADDINGTON Dallas, Texas dwwaddington@gmail.com. Tuesday, January 18, 2011. Is It Really that Bad? Wow, the last post caused some concern. Going back and rereading it I can see why. I was hoping for an unlikely outcome and it didn't happen. Maybe that's why they call transplant a 'treatment' and not a cure. Links to this post. Tuesday, January 4, 2011. BK Virus: Won the Battle but Lost the War? Links to this post.

4

Surviving PKD: March 2012

http://survivingpkd.blogspot.com/2012_03_01_archive.html

The story of my life with Polycystic Kidney Disease, from discovery to transplant. DAVID WADDINGTON Dallas, Texas dwwaddington@gmail.com. Wednesday, March 14, 2012. Wondering Why After a Mild Cold. At some point I started noticing that when I get a cold, it goes away quickly. I don't seem to generate gallons of pflegm for days on end and wind up with a racking cough. I sneeze and sniffle for a day or two and then maybe wheeze a bit. That the production of mammoth amounts of mucus is our immuno-reaction t...

5

Surviving PKD: June 2013

http://survivingpkd.blogspot.com/2013_06_01_archive.html

The story of my life with Polycystic Kidney Disease, from discovery to transplant. DAVID WADDINGTON Dallas, Texas dwwaddington@gmail.com. Monday, June 17, 2013. Spring Post in Early Summer. Well, it's been a while since the last post. Work's been busy and connectivity has been lousy here at the house. A lot of complaining about the service provider, but it just turned out to be a loose USB connector. My last check up was three months ago when I also endured another Glofil. Links to this post. UNOS: Unite...

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pkdhoefling.blogspot.com

pkd sucks: September 2009

http://pkdhoefling.blogspot.com/2009_09_01_archive.html

A whole new beginning! Hope is in the air! My cousin, who is a match for Bruce, called Lifelink in Tampa to get her next round of medical tests done and was told she had to wait because someone else was getting their second round of testing. This was total shock to me! Will not tell us anything, only the donor can give us information. They will also not test 2 people at the same time because of the costs involved. Even though many people can live a pretty normal life that way for many years, he is just n...

pkdhoefling.blogspot.com

pkd sucks: October 2009

http://pkdhoefling.blogspot.com/2009_10_01_archive.html

A whole new beginning! So we have no idea what the future holds as usual. We can only take it a day at a time and not make any plans. That is MUCH harder when you have kids who are always trying to plan their next fun event. He was told he could take ibuprofen! So strange because since I've known Bruce he has never been able to take it because it harms the kidneys. He tried it for back pain and worked a little. He sent in paper to be put back on UNOS. List We have not heard anything from Lifelink. It's b...

pkdhoefling.blogspot.com

pkd sucks: July 2009

http://pkdhoefling.blogspot.com/2009_07_01_archive.html

A whole new beginning! Tomorrow is the big day. Surgery scheduled at 7:30 and should take 2 hours. He will be in ICU for at least 1 day and 7 total days in hospital if all goes as planned. You can read my post about Nephrectomy Surgery Scheduled. To see the details. It is good the time has finally come to get this over with but Bruce is still a wreck about everything. There is one person being tested soon to see if they are a match. Other than that he has no other donor possibilities. One of Bruce's fav.

pkdhoefling.blogspot.com

pkd sucks: More of the same waiting game

http://pkdhoefling.blogspot.com/2010/01/more-of-same-waiting-game.html

A whole new beginning! More of the same waiting game. News flash from nurse: renal scan report said "excellent flow to the kidney". He is over his normal weight by 30 lb! If it is higher then he will get dialysis and have to wait 2 more days to get accurate blood results. That would be Thursday. January 27, 2010 at 9:30 AM. Subscribe to: Post Comments (Atom). Ken met us at Disney on May 1 Click here to view photos. How you can help. Bruce got a kidney from his friend Ken on January 14th! My husband has p...

pkdhoefling.blogspot.com

pkd sucks: One week since surgery #2

http://pkdhoefling.blogspot.com/2010/01/one-week-since-surgery-2.html

A whole new beginning! One week since surgery #2. I'm home now.glad to be back with the boys. They are missing Bruce like crazy so I am trying to find a way for us to visit this weekend. Beck has asked me about it over and over so I know it's really bothering him. January 28, 2010 at 8:04 AM. Allen from Haywood here . . . SO glad for the news of his improvements! Tell Bruce Allen says HOWDY! January 28, 2010 at 6:58 PM. January 28, 2010 at 10:54 PM. Subscribe to: Post Comments (Atom). How you can help.

pkdhoefling.blogspot.com

pkd sucks: December 2009

http://pkdhoefling.blogspot.com/2009_12_01_archive.html

A whole new beginning! It was pretty good! I think Bruce managed to make it through the past few days fairly well considering he's still feeling bad. Same symptoms, occasional vomiting, massive headaches, and VERY high blood pressure. He spoke with Dr. last monday. Before Christmas and told him his BP. Readings- 170's over 100's on average. Dr. said to just take Fiorcet. I have NO TIME to call 10 people on top of everything else it's going to take to plan this out. Here are the only things I know now:.

pkdhoefling.blogspot.com

pkd sucks: February 2010

http://pkdhoefling.blogspot.com/2010_02_01_archive.html

A whole new beginning! He will go see the Neurologist here next wed. to talk about the driving issue. He was supposed to not drive for 6 months from the seizure which will be March 15. But he knows he is not at risk for seizure so there is no reason for him not to drive. Bruce's brother Sean is pretty much back to routine -working and feeling good except for headaches which are side effect of the Prograf. Both donors seem to be back to normal life also. We are all very lucky. Ken is doing well. He st...

pkdhoefling.blogspot.com

pkd sucks: March 2010

http://pkdhoefling.blogspot.com/2010_03_01_archive.html

A whole new beginning! That's what everyone wants to know. I have been hesitant to say that is the case. Probably because it has been such a long road of health problems for Bruce over the past 2 years. I feel like the rug is going to get pulled out from under us at any moment. I keep waiting for the next problem. What a new concept! After we go to Disney. It is great to not have to tell them we can't do something because of Bruce being sick. Bruce has to go to Lifelink. If he can get the headaches under...

livingwithpkd.blogspot.com

Living With PKD: Time

http://livingwithpkd.blogspot.com/2015/03/time.html

A blog about PKD, motherhood, and the dog. Monday, March 02, 2015. You have to know that my father is very tall, and all of his height is in his legs. He was patting me on the head, trying to get me to calm down, and then he reached down and hooked his arms under my armpits. My mom asked, "What are you doing? He said, "Heather is tired. I'm picking her up.". And so he picked me up and perched me on his hip. It was awesome and embarrassing, all at the same time. I think I stuck my tongue out at her. I was...

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Surviving PKD

The story of my life with Polycystic Kidney Disease, from discovery to transplant. DAVID WADDINGTON Dallas, Texas dwwaddington@gmail.com. Tuesday, September 16, 2014. I know it's been a while since I posted. But that's a good thing. No news is said to be good news and that's the case here. Right now I'm off to set up my next colonoscopy. Fun times coming up! Links to this post. Monday, June 17, 2013. Spring Post in Early Summer. Well, it's been a while since the last post. Best wishes to all those who fi...

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