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potockilupskisyndrome.org
FAQ
http://www.potockilupskisyndrome.org/FAQ.html
Potocki-Lupski Syndrome Outreach Foundation, Inc. A 501(c)(3) non-profit organization. Come see our new site: www.ptlsfoundation.org. Frequently Asked Questions (FAQs). The duplication on chromosome 17p11.2 is caused by an error that happens during the formation of the egg or sperm. There is nothing that a parent might have done to cause this condition, nor is there anything that a parent could have done. What does a gene look like? Http:/ www.ncbi.nlm.nih.gov/pmc/articles/PMC1852712/. This is not a dise...
Home Page
http://www.potockilupskisyndrome.org/Home.html
Potocki-Lupski Syndrome Outreach Foundation, Inc. A 501(c)(3) non-profit organization. Come see us at: www.ptlsfoundation.org. Potocki-Lupski Syndrome Outreach Foundation is an international organization that believes in reaching out to all who are involved with those who have PTLS, because we have. The Genetic Key to a beautiful life. Welcome to Potocki-Lupski Syndrome. Outreach Foundation, Inc, a non-profit 501(c)(3), a place for support, advice, guidance, and family interaction. PTLS. As parents of un...
Characteristics
http://www.potockilupskisyndrome.org/Characteristics.html
Potocki-Lupski Syndrome Outreach Foundation, Inc. A 501(c)(3) non-profit organization. Characteristics and What to Expect. Our site has moved! Come to : www.ptlsfoundation.org. Note: Not all children present with the same symptoms. The severity varies according to the size of the duplication, if there is another chromosomal issue (such as CMT- Charcot-Marie-Tooth) and the children make wonderful developmental changes with maturity in age, and surroundings. Failure to thrive (in infants). Dental issues (m...
Resources
http://www.potockilupskisyndrome.org/Resources.html
Potocki-Lupski Syndrome Outreach Foundation, Inc. A 501(c)(3) non-profit organization. PLEASE COME SEE OUR NEW WEBSITE: www.ptlsfoundation.org. Baylor College of Medicine:. Http:/ www.bcm.edu/genetics/potocki lupski/. Baylor College of Medicine Genetics Department is the home of Dr. Lorraine Potocki and Dr. James Lupski. Pilar. L Magoulas, our wonderful genetics counselor,. Will be happy to help you understand more about this duplication 17p11.2. PTLS Newsletter, March 2008 (PDF):. Find us on Youtube:.
Photos
http://www.potockilupskisyndrome.org/Photos.php
Potocki-Lupski Syndrome Outreach Foundation, Inc. A 501(c)(3) non-profit organization. Please enjoy the pictures of some of our beautiful children. The classic line up of toys from our children. Thank you for your support!
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thechristianvillespirit.blogspot.com
The Christianville Spirit: The Christianville Spirit: Michaels Moving! (Again)
http://thechristianvillespirit.blogspot.com/2015/07/the-christianville-spirit-michaels.html
Hi I'm Christian, and I would like you to see the world though the eyes of an adult with a Rare Chromosome Duplication, Known as Potocki-Lupski Syndrome (also known as PTLS and dup.17p11.2). This view is shown through My Newsletter called The Christianville Spirit from a city I made up named Christianville. July 29, 2015. The Christianville Spirit: Michaels Moving! The Spirit that Sparkles. July 29, 2015-TCS # 459. You See, My Brother and I saw the First Movie, Ted,. Subscribe to: Post Comments (Atom).
thechristianvillespirit.blogspot.com
The Christianville Spirit: February 2015
http://thechristianvillespirit.blogspot.com/2015_02_01_archive.html
Hi I'm Christian, and I would like you to see the world though the eyes of an adult with a Rare Chromosome Duplication, Known as Potocki-Lupski Syndrome (also known as PTLS and dup.17p11.2). This view is shown through My Newsletter called The Christianville Spirit from a city I made up named Christianville. February 25, 2015. The Christianville Spirit: Word Play Relevation. The Spirit that Sparkles. February 25, 2015-TCS # 439. So, My Readers! That is how Life Works! My Two “Mys”, I call them...I tell My...
thechristianvillespirit.blogspot.com
The Christianville Spirit: November 2014
http://thechristianvillespirit.blogspot.com/2014_11_01_archive.html
Hi I'm Christian, and I would like you to see the world though the eyes of an adult with a Rare Chromosome Duplication, Known as Potocki-Lupski Syndrome (also known as PTLS and dup.17p11.2). This view is shown through My Newsletter called The Christianville Spirit from a city I made up named Christianville. November 26, 2014. The Christianville Spirit: Happy Thanksgiving! The Spirit that Uplifts Your Soul. November 26, 2014-TCS # 426. Happy Thanksgiving, My Readers! November 19, 2014. Hello, My Readers!
thechristianvillespirit.blogspot.com
The Christianville Spirit: The Christianville Spirit: Stress and No Routine
http://thechristianvillespirit.blogspot.com/2015/08/the-christianville-spirit-stress-and-no.html
Hi I'm Christian, and I would like you to see the world though the eyes of an adult with a Rare Chromosome Duplication, Known as Potocki-Lupski Syndrome (also known as PTLS and dup.17p11.2). This view is shown through My Newsletter called The Christianville Spirit from a city I made up named Christianville. August 5, 2015. The Christianville Spirit: Stress and No Routine. The Spirit that Sparkles. August 5, 2015-TCS # 460. Hello, My Readers! Subscribe to: Post Comments (Atom). Your guide to seeing though...
thechristianvillespirit.blogspot.com
The Christianville Spirit: July 2014
http://thechristianvillespirit.blogspot.com/2014_07_01_archive.html
Hi I'm Christian, and I would like you to see the world though the eyes of an adult with a Rare Chromosome Duplication, Known as Potocki-Lupski Syndrome (also known as PTLS and dup.17p11.2). This view is shown through My Newsletter called The Christianville Spirit from a city I made up named Christianville. July 30, 2014. The Christianville Spirit: (TCS Series); What it's like Having PTLS-Rerun. The Spirit that Lifts Your Soul. July 30, 2014-TCS # 412. Hei, My Readers! Thanks for Reading The Christianvil...
thechristianvillespirit.blogspot.com
The Christianville Spirit: The Christianville Spirit: Statistics I Study
http://thechristianvillespirit.blogspot.com/2015/07/the-christianville-spirit-statistics-i.html
Hi I'm Christian, and I would like you to see the world though the eyes of an adult with a Rare Chromosome Duplication, Known as Potocki-Lupski Syndrome (also known as PTLS and dup.17p11.2). This view is shown through My Newsletter called The Christianville Spirit from a city I made up named Christianville. July 22, 2015. The Christianville Spirit: Statistics I Study. The Spirit that Sparkles. July 22, 2015- TCS # 458. Bonjour, My Readers! One List of Stats that Fascinate me The Most is The Happiest Coun...
thechristianvillespirit.blogspot.com
The Christianville Spirit: May 2015
http://thechristianvillespirit.blogspot.com/2015_05_01_archive.html
Hi I'm Christian, and I would like you to see the world though the eyes of an adult with a Rare Chromosome Duplication, Known as Potocki-Lupski Syndrome (also known as PTLS and dup.17p11.2). This view is shown through My Newsletter called The Christianville Spirit from a city I made up named Christianville. May 27, 2015. The Christianville Spirit: The Politics of Sleeping. The Spirit that Sparkles. May 27, 2015-TCS #452. Hej, My Readers! Any Takers to Help Me with This One? Are Dreams. Now, I have he...
thechristianvillespirit.blogspot.com
The Christianville Spirit: March 2015
http://thechristianvillespirit.blogspot.com/2015_03_01_archive.html
Hi I'm Christian, and I would like you to see the world though the eyes of an adult with a Rare Chromosome Duplication, Known as Potocki-Lupski Syndrome (also known as PTLS and dup.17p11.2). This view is shown through My Newsletter called The Christianville Spirit from a city I made up named Christianville. March 25, 2015. The Christianville Spirit: Christian Visits Nebraska (NFM). The Spirit that Sparkles. March 25, 2015-TCS # 443. That’s Right, I went to Nebraska! 8221; after My Mom said, “Wow! Now, Th...
thechristianvillespirit.blogspot.com
The Christianville Spirit: April 2015
http://thechristianvillespirit.blogspot.com/2015_04_01_archive.html
Hi I'm Christian, and I would like you to see the world though the eyes of an adult with a Rare Chromosome Duplication, Known as Potocki-Lupski Syndrome (also known as PTLS and dup.17p11.2). This view is shown through My Newsletter called The Christianville Spirit from a city I made up named Christianville. April 29, 2015. The Christianville Spirit: My Feelings about April and God. The Spirit that Sparkles. April 29, 2015-TCS # 448. I AM WORKING ON IT says God! Some People order small meals like Never-En...
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PotockiArt (Norbert D Potocki) | DeviantArt
Window.devicePixelRatio*screen.width 'x' window.devicePixelRatio*screen.height) :(screen.width 'x' screen.height) ; this.removeAttribute('onclick')". Deviant for 7 Years. This deviant's full pageview. Last Visit: 1 week ago. This is the place where you can personalize your profile! By moving, adding and personalizing widgets. You can drag and drop to rearrange. You can edit widgets to customize them. The bottom has widgets you can add! Some widgets you can only access when you get Core Membership. Member...
Potocki Associates - Home Page
Your Industrial Needs Specialist. With a focus on engineered products and Mill Equipment, Potocki and Associates can help your company succeed. We represent the companies shown here. Click on the logo of the product you are interested in, or see below for more information. We look forward to working with you! 40 years of Experience:. Here are some of the products that we represent, and that will help your company in your day-to-day operations. Click on each for more information:. Scale, furnace cars.
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At the potocki communications company we help our clients by creating film narratives in time and online across dimensions. We use trans-formative storytelling as a focus of the activities for you as the clients. We apply new methods to target audiences in multiple markets across the world.
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Potocki Heating And Air. Family Owned And Operated In Chicagoland. About Potocki Heating And Air. Top Reason to Have Your HVAC Serviced by a Licensed Contractor. Contact Potocki Heating And Air. Potocki Heating And Air. Potocki Heating And Air. Be Sociable, Share! Leave a Reply Cancel reply. Your email address will not be published. Required fields are marked *. You may use these. A href= title= abbr title= acronym title= b blockquote cite= cite code del datetime= em i q cite= strike strong.
Home Page
Potocki-Lupski Syndrome Outreach Foundation, Inc. A 501(c)(3) non-profit organization. Come see us at: www.ptlsfoundation.org. Potocki-Lupski Syndrome Outreach Foundation is an international organization that believes in reaching out to all who are involved with those who have PTLS, because we have. The Genetic Key to a beautiful life. Welcome to Potocki-Lupski Syndrome. Outreach Foundation, Inc, a non-profit 501(c)(3), a place for support, advice, guidance, and family interaction. PTLS. As parents of un...
Potocki Post | life and times of the Potocki's
Life and times of the Potocki's. Posted by Lindsey P in Uncategorized. So much changed in the past two years (eek 2 years since a post). Now we have a 2 and half year old, new house, and a new baby brother! Carson was born in March and we are loving every minute our little man. We moved to north Fort Worth, and now I am only working part time in order to hang with my little buddies more often. Life is busy, but fun! I am hoping to keep up with this blog a bit more often, so stay tuned:). Which is held on...
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PSS
Helping families with Potocki-Shaffer Syndrome. Potocki-Shaffer Syndrome, A deletion on Chromosome 11p11.2. PSS is an extremely rare genetic condition with little in the way of medical study or formal documentation and it carries a broad range of symptoms. Within a small group of families we have uncovered anecdotal similarities in our stories and expanded our view of the effects of the syndrome. We hope this information will provide a helpful starting point for carers and families alike. After a bit of ...
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