potockishaffersyndrome.org potockishaffersyndrome.org

potockishaffersyndrome.org

PSS

A family built, informational website all about Potocki-Shaffer Syndrome. A rare deletion on Chromosome 11p11.2.

http://www.potockishaffersyndrome.org/

WEBSITE DETAILS
SEO
PAGES
SIMILAR SITES

TRAFFIC RANK FOR POTOCKISHAFFERSYNDROME.ORG

TODAY'S RATING

>1,000,000

TRAFFIC RANK - AVERAGE PER MONTH

BEST MONTH

January

AVERAGE PER DAY Of THE WEEK

HIGHEST TRAFFIC ON

Sunday

TRAFFIC BY CITY

CUSTOMER REVIEWS

Average Rating: 4.5 out of 5 with 12 reviews
5 star
9
4 star
0
3 star
3
2 star
0
1 star
0

Hey there! Start your review of potockishaffersyndrome.org

AVERAGE USER RATING

Write a Review

WEBSITE PREVIEW

Desktop Preview Tablet Preview Mobile Preview

LOAD TIME

0.2 seconds

CONTACTS AT POTOCKISHAFFERSYNDROME.ORG

Login

TO VIEW CONTACTS

Remove Contacts

FOR PRIVACY ISSUES

CONTENT

SCORE

6.2

PAGE TITLE
PSS | potockishaffersyndrome.org Reviews
<META>
DESCRIPTION
A family built, informational website all about Potocki-Shaffer Syndrome. A rare deletion on Chromosome 11p11.2.
<META>
KEYWORDS
1 about us
2 brady's story
3 pip's story
4 betty's story
5 photos
6 common symptoms
7 our discoveries
8 useful resources
9 photo gallery
10 coupons
CONTENT
Page content here
KEYWORDS ON
PAGE
about us,brady's story,pip's story,betty's story,photos,common symptoms,our discoveries,useful resources,photo gallery
CONTENT-TYPE
utf-8
GOOGLE PREVIEW

PSS | potockishaffersyndrome.org Reviews

https://potockishaffersyndrome.org

A family built, informational website all about Potocki-Shaffer Syndrome. A rare deletion on Chromosome 11p11.2.

LINKS TO THIS WEBSITE

sarahcarioca.blogspot.com sarahcarioca.blogspot.com

Part of Your History: An Especially Beautiful One

http://sarahcarioca.blogspot.com/2013/11/an-especially-beautiful-one.html

Projects For Another Day. Thursday, November 07, 2013. An Especially Beautiful One. Preface: I've debated whether or not I should post this. I wonder a lot about posting specifics regarding the challenges my children face. But I have also found so much comfort in connecting with other parents via the internet, and particularly those who are on a similar journey. So here goes. A few weeks ago, our lesson in Young Women's was about Christlike love. Mary, who was teaching, shared a lovely story. I wept as I...

sarahcarioca.blogspot.com sarahcarioca.blogspot.com

Part of Your History: November 2013

http://sarahcarioca.blogspot.com/2013_11_01_archive.html

Projects For Another Day. Thursday, November 07, 2013. An Especially Beautiful One. Preface: I've debated whether or not I should post this. I wonder a lot about posting specifics regarding the challenges my children face. But I have also found so much comfort in connecting with other parents via the internet, and particularly those who are on a similar journey. So here goes. A few weeks ago, our lesson in Young Women's was about Christlike love. Mary, who was teaching, shared a lovely story. I wept as I...

UPGRADE TO PREMIUM TO VIEW 1 MORE

TOTAL LINKS TO THIS WEBSITE

3

OTHER SITES

potockidwor.pl potockidwor.pl

★ HOTEL ★ Restauracja ★ Potocki Dwór ★ | Kolejna witryna oparta na WordPressie

Hotel RESTAURACJA Sala konferencyjna. U nas zorganizujesz doskonałe:. Nasz catering na imprezie. Masaże w Potockim Dworze. Catering w Potockim Dworze. Od momentu, gdy Potocki Dwór rozpoczął działalność. Kładliśmy ogromny nacisk na jakość i smak naszej kuchni. Stali bywalcy już doskonale znają możliwości mistrzów kuchni zatrudnionych w Restauracji. Przedstawiamy Państwu nasze najnowsze menu. I zapraszamy do degustacji. Przystawki ciepłe i zimne. Here are some interesting links for you! Enjoy your stay :).

potockiheatingandair.com potockiheatingandair.com

Potocki Heating And Air

Potocki Heating And Air. Family Owned And Operated In Chicagoland. About Potocki Heating And Air. Top Reason to Have Your HVAC Serviced by a Licensed Contractor. Contact Potocki Heating And Air. Potocki Heating And Air. Potocki Heating And Air. Be Sociable, Share! Leave a Reply Cancel reply. Your email address will not be published. Required fields are marked *. You may use these. A href= title= abbr title= acronym title= b blockquote cite= cite code del datetime= em i q cite= strike strong.

potockilupskisyndrome.org potockilupskisyndrome.org

Home Page

Potocki-Lupski Syndrome Outreach Foundation, Inc. A 501(c)(3) non-profit organization. Come see us at: www.ptlsfoundation.org. Potocki-Lupski Syndrome Outreach Foundation is an international organization that believes in reaching out to all who are involved with those who have PTLS, because we have. The Genetic Key to a beautiful life. Welcome to Potocki-Lupski Syndrome. Outreach Foundation, Inc, a non-profit 501(c)(3), a place for support, advice, guidance, and family interaction. PTLS. As parents of un...

potockipost.wordpress.com potockipost.wordpress.com

Potocki Post | life and times of the Potocki's

Life and times of the Potocki's. Posted by Lindsey P in Uncategorized. So much changed in the past two years (eek 2 years since a post). Now we have a 2 and half year old, new house, and a new baby brother! Carson was born in March and we are loving every minute our little man. We moved to north Fort Worth, and now I am only working part time in order to hang with my little buddies more often. Life is busy, but fun! I am hoping to keep up with this blog a bit more often, so stay tuned:). Which is held on...

potockipower.com potockipower.com

Energy Drink Potocki Power, in Denkendorf bei Stuttgart, Ausdauer und Fitness, Party, Spass, - Willkommen bei Potocki Power

potockishaffersyndrome.org potockishaffersyndrome.org

PSS

Helping families with Potocki-Shaffer Syndrome. Potocki-Shaffer Syndrome, A deletion on Chromosome 11p11.2. PSS is an extremely rare genetic condition with little in the way of medical study or formal documentation and it carries a broad range of symptoms. Within a small group of families we have uncovered anecdotal similarities in our stories and expanded our view of the effects of the syndrome. We hope this information will provide a helpful starting point for carers and families alike. After a bit of ...

potockitransport.us potockitransport.us

Website Template

Worldwide Experience Dedicated to You! We operate accross the US. Our base is Brighton, Michigan. We concentrate our activity in the upper mid-west generally within 750 miles of our home. We routinely go wherever our customers require service. Our Equipment is current and well maintained. You can be sure your product will have the benefit of a late model tractor and trailer in good operating condition. PEOPLE, EXPERIENCE, TECHNOLOGY. If you need a truck - call us. ASSETS, TECHNOLOGY, EXPERIENCE.

potockivodka.com potockivodka.com

POTOCKI WÓDKA POLAND

potocky.cz potocky.cz

...... Veloservis POTOCKÝ ......

Jmenuji se Miloš Potocký a tímto Vás vítám na svých webových stránkách. Svou firmu jsem založil v roce 1990 za základě svých zkušeností z několikaletého působení v cyklistice jako závodník, mechanik a trenér v oddíle TJ Jiskra Jaroměř. Mé služby jsou kompletní, tj. konzultace, poradenství, prodej včetně maximálně zajištěného servisu na věci, které prodávám. Osobní přístup zaručen. Trenérské služby nabízím i mimo oddíl a to formou poradenství.

potocky.oma.sk potocky.oma.sk

Potôčky - oma.sk

Raquo; Východné Slovensko. Raquo; Prešovský kraj. Raquo; okres Stropkov. Obec v okrese Stropkov rozlohy 4 km², PSČ 091 01, názvy: Érfalu. 0 kusy vlekov a lanoviek. Raquo; Východné Slovensko. Raquo; Prešovský kraj. Raquo; okres Stropkov. Potôčky sa nachádza v geomorfologických celkoch. 4 km² (100 %). Viac info: aktualizovať mapu. Uprav v JOSM (pokročilé). Spojte sa s nami na facebooku. Zdieľajte túto stránku na Facebooku. Alebo umiestnite odkaz na svoju stránku. Pozrite si túto stránku v mobile.

potoclass.wordpress.com potoclass.wordpress.com

Potoclass's Blog

Just another WordPress.com weblog. Comenze con el experimento el día 30 de Mayo del 2010. El día 5 de Mayo a la judía le salio su primera raíz. Vemos como la raiz es pequeñita y finita. Sigue leyendo →. Junio 17, 2010. El experimento del poto consiste en ver si el agua es esencial para la vida del poto. Sexto día : la planta sin agua de va secando y muriendo, el distal se esta secando . Los otros potos no se muren ni se secan . Es el primer poto . La tabla de el día 1. Junio 16, 2010. 15dias sale la colu...