This website brings together clinical practice guidelines on rare diseases allowing you to search for guidelines on conditions that interest you. Guidelines on all aspects of care are included from diagnostic tests through to treatments and organisation of care. Documents may be identified by disease name, title or by using the search facility. Powered by the (TWEEK!
http://www.rbpguidelines.eu/
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RareGUIDELINE | rbpguidelines.eu Reviews
https://rbpguidelines.eu
This website brings together clinical practice guidelines on rare diseases allowing you to search for guidelines on conditions that interest you. Guidelines on all aspects of care are included from diagnostic tests through to treatments and organisation of care. Documents may be identified by disease name, title or by using the search facility. Powered by the (TWEEK!
rbpguidelines.eu
RareGUIDELINE
http://www.rbpguidelines.eu/browsedisease
Browse Guidelines By Disease. Step 1: Limit the documents listed to a particular disease/group of diseases by clicking on the name of the disease/group. Step 2: The name of the disease/group will appear, followed by a summary description (where available), followed by a list of available guidelines. Titles may be followed by one or more flags (e.g. These denote the original language in which the guideline was written and the available translations. A (View Summary Descriptions). The RARE-Bestpractices pr...
RareGUIDELINE
http://www.rbpguidelines.eu/glossary
The project will also aim to develop guideline terms to provide greater clarity regarding terminology and thereby enhance understanding of the guidelines and the standards being applied. The terms will be developed and expanded over time to continually address changing needs as the database expands. Powered by the (TWEEK!
RareGUIDELINE
http://www.rbpguidelines.eu/statistics
The database can provide statistical information telling users, for example, which countries are accessing these guidelines, enabling future efforts to be focussed according to the present status of the audience (e.g. disseminate, publicise guidelines to those not currently accessing them). Well provide more information on this aspect of the resource as work progresses. Top Ten Accessed Guidelines. Anaesthesia recommendations for patients suffering from myasthenia gravis. Management of congenital aniridia.
RareGUIDELINE
http://www.rbpguidelines.eu/about
Which diseases are covered in this guidelines database? Mitochondrial disease (multiple disorder). Coarctation of the aorta in the newborn. Hereditary Spastic Paraplegia (Strümpell-Lorrain disease). In order to maintain the database as rare disease specific resource, additional topics will be required to meet criteria for a rare disease: all conditions included in the RARE-BestPractices databases must possess an assigned Orpha number OR must be shown to affect fewer than 5 in 10,000 persons in Europe.
RareGUIDELINE
http://www.rbpguidelines.eu/faq
As development progresses and use of the system grows, we will continue to add answers to frequently asked questions. Please refer back as information will update over time. 2 - About the Database. Do I need a login to access the database? How does the RARE-Guideline database define a rare disease? Categorised Questions and Answers:. Q - Privacy Policy. The privacy laws that apply in the country where the database is hosted/registered (Ireland) will be respected. 2 - About the Database. The RARE-Bestprac...
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RareGAP
http://www.rbpresearch.eu/browsedisease
Step 1: Limit the documents listed to a particular disease/group of diseases by clicking on the name of the disease/group. Step 2: The name of the disease/group will appear, followed by a summary description (where available), followed by a list of available research recommendations. Step 3: Click a fast find character to jump to that part of the list. Step 4: Click on the name of a research recommendations to access more information. Powered by the (TWEEK!
RareGAP
http://www.rbpresearch.eu/faq
Below you will find the answers to some frequently asked questions. We will continue to add to these over time. If you have a question that is not addressed below please refer to the Contacts. Page for further directions. 1 - About the Database. What is the RBP Research Recommendations Database? Do I need a login to access the database? How does the RARE-Guideline database define a rare disease? 2 - About Research Recommendations. What is a Research Recommendation? Categorised Questions and Answers:.
RareGAP
http://www.rbpresearch.eu/contributors
Research recommendations added to the database during the RARE-Bestpractices Project are extracted from published systematic reviews within the Cochrane Library of Systematic Reviews. The Cochrane Collaboration has kindly provided permission for these research recommendations to be published within the RARE-Bestpractices Research Recommendations Database. Medical Subject Headings Section, US National Library of Medicine, NIH, DHHS. Istituto Superiore di Sanità. Responsible for developing and coordinating...
RareGAP
http://www.rbpresearch.eu/about
What is a research recommendation? A research recommendation (RR) is defined as a statement that describes “the need for further research, and the nature of the further research that would be most desirable” (Cochrane Handbook for Systematic Reviews of Interventions, 2011). RRs arise from translating gaps or uncertainties in the evidence base for disease prevention, diagnosis or management into specific statements which can be used to prioritise research efforts and resources. Powered by the (TWEEK!
RareGAP - View A-Z
http://www.rbpresearch.eu/masterlist
Below is a listing of the existing Research Recommendation records included in the database collection. Click on the view summary descriptions link to see a brief summary, or click on the title to review the full details. A (View Summary Descriptions). Anderson-Fabry disease: enzyme replacement therapy. B (View Summary Descriptions). Behcet's disease: oral ulcer management. C (View Summary Descriptions). Congenital toxoplasmosis: prenatal education. Cystic fibrosis: inhaled antibiotics. F (View Summary D...
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Thoughts of a flying Governor. Helping deliver excellence through great governance. A new mantra………. December 6, 2015. There are key pieces of advice that I share with Governors:. 1 No matter how hard the decision, it’s got to be about the children;. 2 impact and evidence – any decision you make as a Governing Body, what’s the impact and what’s the supporting evidence? 3 learn from it, draw a line and move on. Is stressing teens proving anything? Just asking………………. April 30, 2015. April 30, 2015. You get...
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RareGUIDELINE
This website brings together clinical practice guidelines on rare diseases allowing you to search for guidelines on conditions that interest you. Guidelines on all aspects of care are included from diagnostic tests through to treatments and organisation of care. Documents may be identified by disease name, title or by using the search facility. Powered by the (TWEEK!
Revue Belge de Philologie et d'Histoire - La revue
La société. Accès via Persée. Bibliographie de l'histoire de Belgique. Revue Belge de Philologie et d’Histoire. ISSN 0035-0818), fondée en 1922, a comme objectifs principaux:. Les chercheurs qui voudraient proposer la publication d’un numéro à thème dans la RBPH sont priés de s’adresser aux directeurs de section. 3°) de publier annuellement (depuis 1953) une Bibliographie de l’histoire de Belgique. Travail et instrument de recherche exhaustif (équivalent à la. Publiée par le CNRS, au. Le comité di...
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