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RareGAP - About RareGAPRareGAP Home Page
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RareGAP - About RareGAP | rbpresearch.eu Reviews
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RareGAP
http://www.rbpresearch.eu/contributors
Research recommendations added to the database during the RARE-Bestpractices Project are extracted from published systematic reviews within the Cochrane Library of Systematic Reviews. The Cochrane Collaboration has kindly provided permission for these research recommendations to be published within the RARE-Bestpractices Research Recommendations Database. Medical Subject Headings Section, US National Library of Medicine, NIH, DHHS. Istituto Superiore di Sanità. Responsible for developing and coordinating...
RareGAP
http://www.rbpresearch.eu/faq
Below you will find the answers to some frequently asked questions. We will continue to add to these over time. If you have a question that is not addressed below please refer to the Contacts. Page for further directions. 1 - About the Database. What is the RBP Research Recommendations Database? Do I need a login to access the database? How does the RARE-Guideline database define a rare disease? 2 - About Research Recommendations. What is a Research Recommendation? Categorised Questions and Answers:.
RareGAP :: Login
http://www.rbpresearch.eu/admin
Welcome to the RareGAP. Powered by the (TWEEK! Login - provide your Access Details. The CKEditor WYSIWYG Editing Interface is compatible with all the major browsers (Firefox, IE, Opera, Chrome and Safari) and numerous environments. Designed, Developed and Managed by (TWEEK! Please report any System Bugs in the Bugtracker.
RareGAP - View A-Z
http://www.rbpresearch.eu/masterlist
Below is a listing of the existing Research Recommendation records included in the database collection. Click on the view summary descriptions link to see a brief summary, or click on the title to review the full details. A (View Summary Descriptions). Anderson-Fabry disease: enzyme replacement therapy. B (View Summary Descriptions). Behcet's disease: oral ulcer management. C (View Summary Descriptions). Congenital toxoplasmosis: prenatal education. Cystic fibrosis: inhaled antibiotics. F (View Summary D...
RareGAP
http://www.rbpresearch.eu/about
What is a research recommendation? A research recommendation (RR) is defined as a statement that describes “the need for further research, and the nature of the further research that would be most desirable” (Cochrane Handbook for Systematic Reviews of Interventions, 2011). RRs arise from translating gaps or uncertainties in the evidence base for disease prevention, diagnosis or management into specific statements which can be used to prioritise research efforts and resources. Powered by the (TWEEK!
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RareGUIDELINE
http://www.rbpguidelines.eu/faq
As development progresses and use of the system grows, we will continue to add answers to frequently asked questions. Please refer back as information will update over time. 2 - About the Database. Do I need a login to access the database? How does the RARE-Guideline database define a rare disease? Categorised Questions and Answers:. Q - Privacy Policy. The privacy laws that apply in the country where the database is hosted/registered (Ireland) will be respected. 2 - About the Database. The RARE-Bestprac...
RareGUIDELINE
http://www.rbpguidelines.eu/masterlist
If you know the title of the guideline you seek you can browse using the first letter of the title by clicking on the relevant character in the alphabet below. Titles may be followed by one or more flags (e.g. These denote the original language in which the guideline was written and the available translations. A (View Summary Descriptions). A consensus approach to wound care in epidermolysis bullosa. A Dutch guideline for the treatment of scoliosis in neuromuscular disorders. Anaesthesia recommendations ...
RareGUIDELINE
http://www.rbpguidelines.eu/browsedisease
Browse Guidelines By Disease. Step 1: Limit the documents listed to a particular disease/group of diseases by clicking on the name of the disease/group. Step 2: The name of the disease/group will appear, followed by a summary description (where available), followed by a list of available guidelines. Titles may be followed by one or more flags (e.g. These denote the original language in which the guideline was written and the available translations. A (View Summary Descriptions). The RARE-Bestpractices pr...
RareGUIDELINE
http://www.rbpguidelines.eu/glossary
The project will also aim to develop guideline terms to provide greater clarity regarding terminology and thereby enhance understanding of the guidelines and the standards being applied. The terms will be developed and expanded over time to continually address changing needs as the database expands. Powered by the (TWEEK!
RareGUIDELINE
http://www.rbpguidelines.eu/statistics
The database can provide statistical information telling users, for example, which countries are accessing these guidelines, enabling future efforts to be focussed according to the present status of the audience (e.g. disseminate, publicise guidelines to those not currently accessing them). Well provide more information on this aspect of the resource as work progresses. Top Ten Accessed Guidelines. Anaesthesia recommendations for patients suffering from myasthenia gravis. Management of congenital aniridia.
RareGUIDELINE
http://www.rbpguidelines.eu/about
Which diseases are covered in this guidelines database? Mitochondrial disease (multiple disorder). Coarctation of the aorta in the newborn. Hereditary Spastic Paraplegia (Strümpell-Lorrain disease). In order to maintain the database as rare disease specific resource, additional topics will be required to meet criteria for a rare disease: all conditions included in the RARE-BestPractices databases must possess an assigned Orpha number OR must be shown to affect fewer than 5 in 10,000 persons in Europe.
RBP Web Community • Index page
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RareGUIDELINE
http://www.rbpguidelines.eu/consultation
Serves a dual purpose; listing information about recently updated guidelines (i.e. those that have just been added or have more recent version avaialble), and drafts that are available for comment by various groups. In doing so the Bulletin Board. Keeps the community apprised of work that is underway and or recently completed. Interface provides the capacity to consult patients and/or their representatives via an online survey. The primary purpose of the Patient Consultation. The RARE-Bestpractices proje...
RareGUIDELINE
http://www.rbpguidelines.eu/contributions
Healthcare professionals and patient representatives. Responsible for appraising guidelines on rare diseases. The following individuals have completed one or more guideline appraisal for the database:. Maria Chiara De Stefano. Tasmania del Pino Sedeño. Centre for Research Excellence in Neuromuscular Disorders. Fundación Canaria de Investigación y Salud. Responsible for identifying and appraising guidelines on rare diseases across a range of conditions. Istituto Superiore di Sanità. Responsible for identi...
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Возьму на себя смелость утверждать, что ни одно из многочисленных соревнований, которые родились в наших "кипучих, могучих, никем не победимых армейских мозгах", не обсуждалось до его начала . То, что 2-й турнир состоится, и состоится именно 2-го декабря 2006 года, у меня лично особых сомнений не было, несмотря на то, что некоторые ооооочень уважаемые армейцы . Состоялся V-й турнир РБН по префу. Подробности сами знаете где. Состоялся IV-й турнир РБН по префу. Или читающие их. Основная запись участник...
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Koeman och Louis van Gaal. Det är ganska kul med Southampton där Ronald Koeman är manager och Manchester United där Louis van Gaal är manager. Vi har båda Holländare som är ikoner i Holland, och där den ena har varit lite storebror över den andra. Louis van Gaal har ju också varit chef över José Mourhino. Det är sådana här grejer som gör att det är extra intressant att spela på fotboll för pengar. Koeman och LVG i Ajax. Jo LVG och Koeman rök ihop och det slutade med att LVG lämnade in sin avskedsansökan.
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RareGAP - About RareGAP
This resource collates validated research recommendations for diagnosis and treatment of rare diseases. These have been identified from high quality systematic reviews and are presented alongside information on ongoing clinical trials where available. Powered by the (TWEEK!
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