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Dystonia Diary: May 2006

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This is what it's like to have cervical dystonia - the good, the bad, and the ugly. Actually, there's nothing good about it. Saturday, May 20, 2006. Since my 16 Botox shots, I expected to have great pain relief. And I expected to be able to hold my head more-or-less straight while walking, without having to use my hand. I also expected to get a good night's sleep. Well, about a month later, I have great pain relief. Posted by I go by many names. @ 2:27 PM. Links to this post. I go by many names.

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Dystonia Diary: July 2006

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This is what it's like to have cervical dystonia - the good, the bad, and the ugly. Actually, there's nothing good about it. Friday, July 14, 2006. Since I stopped drinking my favorite Starbucks drink - the one that had caffeine but they told me it didn't - the Zanaflex is working better. The Tizanidine is still pretty ineffective though, but since I don't have much more of it, it's not a problem. Posted by I go by many names. @ 9:13 PM. Links to this post. Sunday, July 09, 2006. So far, so good - mostly.

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Dystonia Diary: June 2006

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This is what it's like to have cervical dystonia - the good, the bad, and the ugly. Actually, there's nothing good about it. Wednesday, June 14, 2006. Posted by I go by many names. @ 8:28 PM. Links to this post. I go by many names. California, United States. View my complete profile. Follow me on Twitter. Dystonia Medical Research Foundation. National Spasmodic Torticollis Association. ADDER - Fighting Dystonia (click on FAQ). The European Dystonia Portal. Dystonia Information Page (NIND).

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Dystonia Diary: February 2006

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This is what it's like to have cervical dystonia - the good, the bad, and the ugly. Actually, there's nothing good about it. Saturday, February 25, 2006. New insurance adjuster (6 in 2 years), I don't know if he'll agree to authorise more Botox - or anything else - as needed. Guess I'll find out when my doctor asks for more. The good news is that now that my cold is finally gone, I can finally sleep at night. Posted by I go by many names. @ 3:25 PM. Links to this post. Wednesday, February 15, 2006. Dysto...

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Dystonia Diary: March 2006

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This is what it's like to have cervical dystonia - the good, the bad, and the ugly. Actually, there's nothing good about it. Wednesday, March 22, 2006. So far, I slept pretty well last Tuesday through Friday, badly Sat and Sun, better Mon, and badly last night. I wish I knew why my sleep hasn't been consistant. I take my meds exactly as prescribed, and I don't drink any caffeine. It's intensely frustrating. Maybe my doctor will have some idea when I see him next month. Links to this post. He also noticed...

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Dystonia Diary: January 2006

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This is what it's like to have cervical dystonia - the good, the bad, and the ugly. Actually, there's nothing good about it. Saturday, January 28, 2006. Maybe by 2 weeks I'll notice more of a difference. If not, it's going to be a long. 4 months until my next shots. Good news is that I got some extra pay (a "floating holiday" I never took), and I have 4 days off in a row! I can catch up on my sleep, and prune my roses - before it's too late. Posted by I go by many names. @ 12:23 AM. Links to this post.

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Dystonia Diary: November 2005

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This is what it's like to have cervical dystonia - the good, the bad, and the ugly. Actually, there's nothing good about it. Wednesday, November 30, 2005. At my doctor's appointment yesterday, I was hoping to get more Botox, but the doctor said he was going to just watch me for a while. The last shots are still working to a degree, but the pain is getting a little worse. That's probably partly due to the extra holiday work. Posted by I go by many names. @ 4:18 PM. Links to this post. Links to this post.

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Dystonia Diary: December 2005

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This is what it's like to have cervical dystonia - the good, the bad, and the ugly. Actually, there's nothing good about it. Sunday, December 11, 2005. I'm still waiting for another Botox treatment. Hopefully I'll get it this month, but the Dr may wait to see how I'm doing. It's been almost 4 months since my last treatment, and I'm surprised (and glad) that it's lasted this long. Posted by I go by many names. @ 3:11 PM. Links to this post. I go by many names. California, United States.

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Dystonia Diary: April 2006

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This is what it's like to have cervical dystonia - the good, the bad, and the ugly. Actually, there's nothing good about it. Tuesday, April 18, 2006. I had 16 shots of Botox today, and I can't believe how sore I was later! The shots were around 7:20am, and it's a little after 8:30pm, and I still. Ache That's unusual, but I did. Have a lot of shots, and a little more Botox than usual. I actually had to take aspirin! Posted by I go by many names. @ 8:37 PM. Links to this post. Friday, April 14, 2006. I go ...