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Sadie's Journey

Thursday, July 30, 2009. Hello, I am new to blogging, but thought it was important for me to talk with other parents going through the same thing I am! My daughter is 10 months old and she has PHACES. She has a large hemangioma. Over her left eye extending onto her cheek (segmental hemangioma. She has is associated with the PHACES. So we were referred to a specialist in NYC. She has gone through 2 laser treatments with Dr. Waner. In NYC. She also has a surgery scheduled with him on August 19 th. I never ...

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Sadie's Journey | sadie-sadiebug.blogspot.com Reviews

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Thursday, July 30, 2009. Hello, I am new to blogging, but thought it was important for me to talk with other parents going through the same thing I am! My daughter is 10 months old and she has PHACES. She has a large hemangioma. Over her left eye extending onto her cheek (segmental hemangioma. She has is associated with the PHACES. So we were referred to a specialist in NYC. She has gone through 2 laser treatments with Dr. Waner. In NYC. She also has a surgery scheduled with him on August 19 th. I never ...

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Sadie's Journey | sadie-sadiebug.blogspot.com Reviews

https://sadie-sadiebug.blogspot.com

Thursday, July 30, 2009. Hello, I am new to blogging, but thought it was important for me to talk with other parents going through the same thing I am! My daughter is 10 months old and she has PHACES. She has a large hemangioma. Over her left eye extending onto her cheek (segmental hemangioma. She has is associated with the PHACES. So we were referred to a specialist in NYC. She has gone through 2 laser treatments with Dr. Waner. In NYC. She also has a surgery scheduled with him on August 19 th. I never ...

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sadie-sadiebug.blogspot.com

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Sadie's Journey: July 2009

http://www.sadie-sadiebug.blogspot.com/2009_07_01_archive.html

Thursday, July 30, 2009. Hello, I am new to blogging, but thought it was important for me to talk with other parents going through the same thing I am! My daughter is 10 months old and she has PHACES. She has a large hemangioma. Over her left eye extending onto her cheek (segmental hemangioma. She has is associated with the PHACES. So we were referred to a specialist in NYC. She has gone through 2 laser treatments with Dr. Waner. In NYC. She also has a surgery scheduled with him on August 19 th. I never ...

2

Sadie's Journey: Sadie

http://www.sadie-sadiebug.blogspot.com/2009/07/sadie.html

Thursday, July 30, 2009. Hello, I am new to blogging, but thought it was important for me to talk with other parents going through the same thing I am! My daughter is 10 months old and she has PHACES. She has a large hemangioma. Over her left eye extending onto her cheek (segmental hemangioma. She has is associated with the PHACES. So we were referred to a specialist in NYC. She has gone through 2 laser treatments with Dr. Waner. In NYC. She also has a surgery scheduled with him on August 19 th. I never ...

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jaydasphacejourney.blogspot.com

Jayda's Journey: August 2012

http://jaydasphacejourney.blogspot.com/2012_08_01_archive.html

With a very uncommon medical condition called PHACE Syndrome. Tuesday, August 7, 2012. Fun Days At The Park. Here in Perth, Western Australia it is winter and it has been very cold this year. So when we have nice sunny days we try and take the kids to a park. We love going to Kings Park as it is massive and so much to do there. We have also discovered a new park which is pirate ship themed. Second Round Of Laser. Subscribe to: Posts (Atom). Gosnells, W.A, Australia. View my complete profile.

jaydasphacejourney.blogspot.com

Jayda's Journey: March 2012

http://jaydasphacejourney.blogspot.com/2012_03_01_archive.html

With a very uncommon medical condition called PHACE Syndrome. Monday, March 19, 2012. Subscribe to: Posts (Atom). Gosnells, W.A, Australia. I have an older sister Amelia and a half brother Kade. My Mum and Dad made this blog to help understand the complexity of PHACE syndrome and share with friends and family the ups and downs I've endured through it all. View my complete profile. Mum and big sister. Big Brother and sister. Children's Hospital of Wisconsin. National Organization of Vascular Anomalies.

jaydasphacejourney.blogspot.com

Jayda's Journey: February 2013

http://jaydasphacejourney.blogspot.com/2013_02_01_archive.html

With a very uncommon medical condition called PHACE Syndrome. Thursday, February 7, 2013. Jayda's First Day at Kindergarden. Amelia's 6th Birthday Party. With her new scooter. Amelia and Jayda with Santa. Well another Christmas has come and gone. This year we had Christmas at our house with all the family for lunch. It was another hot day here so a lot of time was spent in the pool. The girls also went to the Christmas pageant to see all the floats lit up. Ready for the christmas pageant. The Way I View]...

jaydasphacejourney.blogspot.com

Jayda's Journey: October 2012

http://jaydasphacejourney.blogspot.com/2012_10_01_archive.html

With a very uncommon medical condition called PHACE Syndrome. Tuesday, October 16, 2012. This is a video of a car cruise Jayda went on. We went to Dwellingup, Western Australia with the STEEL BUMPER CAR CRUIZES WA. We as a family love our cruises in our 1966 VC Valiant. This is our 66VC Valiant. Subscribe to: Posts (Atom). Gosnells, W.A, Australia. View my complete profile. Mum and big sister. Big Brother and sister. Children's Hospital of Wisconsin. National Organization of Vascular Anomalies.

jaydasphacejourney.blogspot.com

Jayda's Journey: Jayda's 4th Birthday

http://jaydasphacejourney.blogspot.com/2013/06/jaydas-4th-birthday.html

With a very uncommon medical condition called PHACE Syndrome. Tuesday, June 18, 2013. Subscribe to: Post Comments (Atom). Gosnells, W.A, Australia. I have an older sister Amelia and a half brother Kade. My Mum and Dad made this blog to help understand the complexity of PHACE syndrome and share with friends and family the ups and downs I've endured through it all. View my complete profile. Mum and big sister. Big Brother and sister. Children's Hospital of Wisconsin. Luke 2:19.a mother's priviledge.

jaydasphacejourney.blogspot.com

Jayda's Journey: October 2013

http://jaydasphacejourney.blogspot.com/2013_10_01_archive.html

With a very uncommon medical condition called PHACE Syndrome. Monday, October 28, 2013. Jayda's 1st sports carnival. Jayda had her first sports carnival this year which is combined with the kindy and pre-primary kids. Jayda is in the blue house De Grey, this is the name of a West Australian river. The day was cut short by bad weather but the kids managed to through half of their events. Jayda had a great day and came third in her running race. Subscribe to: Posts (Atom). Gosnells, W.A, Australia.

jaydasphacejourney.blogspot.com

Jayda's Journey: Charity Cruise

http://jaydasphacejourney.blogspot.com/2013/08/charity-cruise.html

With a very uncommon medical condition called PHACE Syndrome. Thursday, August 22, 2013. On the 18th of August we participated in the "GO PINK FOR A PRINCESS" charity cruise and fundraiser. This was to raise money for the Princess Margaret Hospital Foundation for kids. The girls were dressed in pink and we decorated our 69 Vf Safari in pink. There were over 250 cars, cake stalls, sausage sizzle and raffles. It was a great day, the girls even met Stitches the bear. Subscribe to: Post Comments (Atom).

jaydasphacejourney.blogspot.com

Jayda's Journey: Jayda's First Day at Kindergarden

http://jaydasphacejourney.blogspot.com/2013/02/jaydas-first-day-at-kindergarden.html

With a very uncommon medical condition called PHACE Syndrome. Thursday, February 7, 2013. Jayda's First Day at Kindergarden. Subscribe to: Post Comments (Atom). Gosnells, W.A, Australia. I have an older sister Amelia and a half brother Kade. My Mum and Dad made this blog to help understand the complexity of PHACE syndrome and share with friends and family the ups and downs I've endured through it all. View my complete profile. Mum and big sister. Big Brother and sister. Jaydas First Day at Kindergarden.

jaydasphacejourney.blogspot.com

Jayda's Journey: May 2012

http://jaydasphacejourney.blogspot.com/2012_05_01_archive.html

With a very uncommon medical condition called PHACE Syndrome. Sunday, May 6, 2012. Thursday, May 3, 2012. Tuesday, May 1, 2012. Private Martin Michael Dillon 13th Battallion K.I.A. Private John William Dillon 2/19th Battallion P.O.W. Jayda's Second Rock Concert. Subscribe to: Posts (Atom). Gosnells, W.A, Australia. View my complete profile. Mum and big sister. Big Brother and sister. Jaydas Second Rock Concert. Children's Hospital of Wisconsin. National Organization of Vascular Anomalies.

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Sadie's Journey

Thursday, July 30, 2009. Hello, I am new to blogging, but thought it was important for me to talk with other parents going through the same thing I am! My daughter is 10 months old and she has PHACES. She has a large hemangioma. Over her left eye extending onto her cheek (segmental hemangioma. She has is associated with the PHACES. So we were referred to a specialist in NYC. She has gone through 2 laser treatments with Dr. Waner. In NYC. She also has a surgery scheduled with him on August 19 th. I never ...

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