schnazberry.blogspot.com
Bo Blog (the crucible...): Dec 15, 2014
http://schnazberry.blogspot.com/2014_12_15_archive.html
Bo Blog (the crucible.). Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story. Monday, December 15, 2014. It's the Most Wonderful Time of the Year! The Short Gut News.
schnazberry.blogspot.com
Bo Blog (the crucible...): 7 years ago today, I was mad, because I was supposed to have 2 weeks of prenatal maternity leave
http://schnazberry.blogspot.com/2014/06/7-years-ago-today-i-was-mad-because-i.html
Bo Blog (the crucible.). Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story. Monday, June 2, 2014. You are one awesome mommy! June 3, 2014 at 2:40 AM. Hi I see your...
iheartmilo.blogspot.com
I Heart Milo: Build a Fort
http://iheartmilo.blogspot.com/2012/04/build-fort.html
Tuesday, April 17, 2012. What is more fun than building a fort out of sheets in your living room? According to milo, not much. We pretended we were dinosaurs living in a cave, milo was a velociraptor, daddy.a t-rex, and momma was a pterodactyl. We played with flashlights, read a couple of milo's books, and whenever our dogs came close to the cave we would roar at them, because they were enemy dinosaurs of course. Champion did manage to sneak in for a little nap. Champion is a great pal. Bird On the Street.
tessavanloosen.blogspot.com
Tessa van Loosen: That's me!!!
http://tessavanloosen.blogspot.com/2011/03/thats-me.html
Donderdag 24 maart 2011. Abonneren op: Reacties plaatsen (Atom). Hoi allemaal, Ik ben Tessa van Loosen, geboren 16 januari 2010. Ik heb een ernstige erfelijke darmziekte: Microvillus Inclusion Disease. Op deze weblog zal ik schrijven hoe het met me gaat! Mijn volledige profiel weergeven. Andere kinderen met MVID. Microvillus Inclusion Disease (wikipedia). Artikel Trouw mei 2010. 2 keer kleur (sieraden,speelkleden,labeldoekjes enz. voor het goede doel). MIDshop (sieraden e.d. voor het goede doel).
tessavanloosen.blogspot.com
Tessa van Loosen: Snelle update!!!
http://tessavanloosen.blogspot.com/2012/05/hallo-lezers-ik-zal-even-een-update.html
Donderdag 24 mei 2012. Ik zal even een update plaatsen, want het is wel heeeeeeeeel erg lang geleden. Ik blik terug vanaf afgelopen zomer 2011. Tessa kwam hierdoor op de Intensive Care terecht in Amsterdam. Daar werd ze in slaap gehouden en lag ze aan de beademing. Gelukkig sloeg de antibiotica aan en konden we uiteindelijk na twee weken weer naar huis! Ik moet zeggen dat zijn heftige dingen die je meemaakt in je leven. Lennart en ik zijn er altijd bij. Fijn dat het kan! We zijn in ieder geval super dank...
tessavanloosen.blogspot.com
Tessa van Loosen: januari 2011
http://tessavanloosen.blogspot.com/2011_01_01_archive.html
Vrijdag 21 januari 2011. T was een top dag! Zaterdag 15 januari 2011. Morgen is het zover! Ik lig nu al lekker op bed en ben gelukkig alweer aardig opgeknapt. Ik had namelijk al twee weken verhoging en ben met mama bloed wezen prikken woensdag. Hieruit bleek dat het niet om een infectie ging, dus waarschijnlijk een virusje (maar ook waren er weer twee tanden door) Gister spoot mijn infuuslijn ineens slechter door, dus moesten we een dagje logen! Gelukkig liep m'n infuus vanmorgen weer beter!
iheartmilo.blogspot.com
I Heart Milo: June 2010
http://iheartmilo.blogspot.com/2010_06_01_archive.html
Monday, June 7, 2010. Subscribe to: Posts (Atom). I live in dallas with my husband jesse and our beautiful son milo.i never use capital letters when typing.this blog is mainly about my son milo.diagnosed with cerebral palsy at 8 months old, i am constantly amazed at how someone so tiny can be so strong and try so hard no matter what obstacles he is faced with.he is my little hero! View my complete profile. I heart these blogs. Jude; The diary of a baby and a stroke. Beautiful Photo of the Week.
iheartmilo.blogspot.com
I Heart Milo: need advice
http://iheartmilo.blogspot.com/2010/06/need-advice.html
Monday, June 7, 2010. We love our GI and have sent several other families to see him. Hes at Cook Childrens. Let me know if you want his info. June 7, 2010 at 9:57 PM. I was actually thinking of trying out cooks, i hear so many good things. June 7, 2010 at 10:01 PM. We saw hollys dr. too and loved him. we were also able to get an appointment as a new patient very quickly. definitely worth a try. And you cant surrender your blog! It was one of the first ones i read, ill be very sad :(. I heart these blogs.
iheartmilo.blogspot.com
I Heart Milo: August 2009
http://iheartmilo.blogspot.com/2009_08_01_archive.html
Tuesday, August 25, 2009. So much to say. I have been crazy busy lately.my head is constantly swimming and i am really having a tough time remembering the littlest things, let alone the big things. i need to blog more, to sort of sort out my thoughts, i think it would help but i only seem to think of doing it when i am busy and can't. i write whole blog posts in my head while driving to therapy, literally! Also, in even bigger news, milo has finally reached 20 pounds! Subscribe to: Posts (Atom). Violet's...
iheartmilo.blogspot.com
I Heart Milo: did you miss us?
http://iheartmilo.blogspot.com/2010/09/did-you-miss-us.html
Friday, September 3, 2010. Did you miss us? It would take me forever to fill you in on everything that has happened since last november.but i will give a summary for now. Our trip to maine was so great, it was nice to get a break from the texas heat, and milo loved the constant attention from his grandparents and his cousin sophie. jesse and i got to see old friends who we missed so much, and eat at our favorite restaurants which we were homesick for as well. Great pics, glad you are back! So glad to hea...
SOCIAL ENGAGEMENT