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Pixels in Bloom

Geeks, Giggles, and Games. Friday, February 27, 2015. It happened, and I know it will only be the first of countless times. What happened to your sister? Wednesday, October 1, 2014. Wednesday, September 10, 2014. We went to Shriner's to follow-up with her Orthopedic doctor. We've known that Norah's neck isn't totally stable (she has excessive movement between C1 and C2) but we've hoped that over time, things would ossify and strengthen and she'd be fine. Turns out, it's gotten worse. We have ...So again ...

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Pixels in Bloom | shaunaandjeff.blogspot.com Reviews

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Geeks, Giggles, and Games. Friday, February 27, 2015. It happened, and I know it will only be the first of countless times. What happened to your sister? Wednesday, October 1, 2014. Wednesday, September 10, 2014. We went to Shriner's to follow-up with her Orthopedic doctor. We've known that Norah's neck isn't totally stable (she has excessive movement between C1 and C2) but we've hoped that over time, things would ossify and strengthen and she'd be fine. Turns out, it's gotten worse. We have ...So again ...

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Pixels in Bloom | shaunaandjeff.blogspot.com Reviews

https://shaunaandjeff.blogspot.com

Geeks, Giggles, and Games. Friday, February 27, 2015. It happened, and I know it will only be the first of countless times. What happened to your sister? Wednesday, October 1, 2014. Wednesday, September 10, 2014. We went to Shriner's to follow-up with her Orthopedic doctor. We've known that Norah's neck isn't totally stable (she has excessive movement between C1 and C2) but we've hoped that over time, things would ossify and strengthen and she'd be fine. Turns out, it's gotten worse. We have ...So again ...

INTERNAL PAGES

shaunaandjeff.blogspot.com

1

Pixels in Bloom: November 2013

http://shaunaandjeff.blogspot.com/2013_11_01_archive.html

Geeks, Giggles, and Games. Thursday, November 21, 2013. Happy Miracle Birthday, Norah! I interrupt this blogging hiatus to share my thoughts on the second anniversary of a very significant day. My dearest Norah,. It has been exactly two years since that awful day. Your daddy describes it as both the worst and best day. He's right. We all stood together, teetering on the edge of life. Subscribe to: Posts (Atom). View my complete profile. Happy Miracle Birthday, Norah! The Adventure Called Life. The Rush o...

2

Pixels in Bloom: September 2014

http://shaunaandjeff.blogspot.com/2014_09_01_archive.html

Geeks, Giggles, and Games. Wednesday, September 10, 2014. We went to Shriner's to follow-up with her Orthopedic doctor. We've known that Norah's neck isn't totally stable (she has excessive movement between C1 and C2) but we've hoped that over time, things would ossify and strengthen and she'd be fine. Turns out, it's gotten worse. We have a bunch of appointments next week, but I'm under the assumption that they're going to want to fuse Norah's neck within the next couple weeks. Subscribe to: Posts (Atom).

3

Pixels in Bloom: October 2014

http://shaunaandjeff.blogspot.com/2014_10_01_archive.html

Geeks, Giggles, and Games. Wednesday, October 1, 2014. Those that didn't know me would have thought I was a mom going through a crisis for the first time. They probably would have felt pity for me - a fearful mom in unexpected and new territory. It was partially true, but the deeper reality was that I was having some serious PTSD. I will however say that I received great comfort from family and friends, who helped me cope. Subscribe to: Posts (Atom). View my complete profile. The Adventure Called Life.

4

Pixels in Bloom: Trach-free

http://shaunaandjeff.blogspot.com/2014/06/trach-free.html

Geeks, Giggles, and Games. Friday, June 27, 2014. I had this long, intense post written. when I accidentally deleted it. Yep, me - the person people turn to for computer help. I deleted the post and it auto-saved. Nice, huh? I just can't bring myself to re-write it. Perhaps you should be thankful that my other post was deleted. it was pretty long-winded (as I tend to be). But I wanted to break my blogging silence, at least for this one post. So where have I been? Subscribe to: Post Comments (Atom). The b...

5

Pixels in Bloom: February 2015

http://shaunaandjeff.blogspot.com/2015_02_01_archive.html

Geeks, Giggles, and Games. Friday, February 27, 2015. It happened, and I know it will only be the first of countless times. What happened to your sister? Subscribe to: Posts (Atom). In no particular order: nerd, knitter, quilter, crafter, mama, writer, wife, honorary nurse/respiratory therapist. View my complete profile. Play Ground The Blog of Primary Children's Medical Center. 8220;Excellent Care, Kind Words, and Loving Support . . . ” Teen Fights to Keep Her Beating Heart. The Adventure Called Life.

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compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: Time to Throw in the Towel

http://compatiblewithjoy-trisomy18.blogspot.com/2015/05/time-to-throw-in-towel.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Saturday, May 2, 2015. Time to Throw in the Towel. Yep, that kinda says it all. I called his ped yesterday morning and they changed his med to a different one, a hopefully better one. But by afternoon, "stuff" was just pouring out of him. Almost literally pouring out. But that's not where he is right now. Four weeks ago, he weighed 20&#...

compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: Trisomy 18 Awareness Day

http://compatiblewithjoy-trisomy18.blogspot.com/2015/03/trisomy-18-awareness-day.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Wednesday, March 18, 2015. Trisomy 18 Awareness Day. I've tried for days to come up with something "important" or "profound" to say about today, and it just hasn't happened. Words can't convey the sorrow we feel when a child passes on, even if we haven't met them in person, the grief that rips at our soul, or the niggling of guilt that ...

compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: We Just Don't Know...

http://compatiblewithjoy-trisomy18.blogspot.com/2015/05/we-just-dont-know.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Monday, May 4, 2015. We Just Don't Know. This kid is a mystery. He's not playing by the rules, which is often a good thing, but kinda perplexing. Here's what we know:. His first test was positive, his second (and third 'cause they were so surprised at the results) were negative. But this kiddo has a real sense of humor. The nasty di...

compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: Supports for Families Facing a Trisomy Diagnosis

http://compatiblewithjoy-trisomy18.blogspot.com/p/supports-for-families-facing-trisomy.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Supports for Families Facing a Trisomy Diagnosis. Trisomy 18 Medical Study published in Oraphant Rare Disease Journal Oct 23, 2012. Http:/ www.ncbi.nlm.nih.gov/pmc/articles/PMC3520824/. Https:/ www.facebook.com/groups/T18Mommies/. Living with Trisomy 13 Group Page. Https:/ www.facebook.com/groups/Trisomy13/. Trisomy 4 (and 9p deletion.

compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: For My Angel Mommy Friends

http://compatiblewithjoy-trisomy18.blogspot.com/2015/05/for-my-angel-mommy-friends.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Sunday, May 3, 2015. For My Angel Mommy Friends. I have a lot of angel mommy friends. Some are obvious, some less so. You'd expect that I have a lot in the Trisomy/Heart/Trach/Vent world. It's almost like we're afraid it might be catching. So if we don't acknowledge that it happens, it can't happen to us. So today, may I offer you a gif...

compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: The "Go" Bag

http://compatiblewithjoy-trisomy18.blogspot.com/p/the-go-bag.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Here's what we travel with for Aaron. It seems really complicated, but it's not, because we only had to organize it once. Then when we use something, we just make sure to replace it. Except there was the one time when I forgot to replace diapers and ended up without any. Arg! The one staple of EVERY baby's "go" bag. Suction catheters (B...

compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: Medical History Template

http://compatiblewithjoy-trisomy18.blogspot.com/p/medical-history-template.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Page 1 - this is the most important page. MEDICAL ACTION (full code, dnr, no cpr, whatever). In this text box put:. Insurance Co and policy #. EGA (gestational age @ birth). Birth weight and blood type. Current weight and date last weighed. Trach size, vent settings. G-tube size, etc that would. Be needed ASAP in an. Anytown, ST 00000.

compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: What Is Trisomy 18?

http://compatiblewithjoy-trisomy18.blogspot.com/p/what-is-trisomy-18.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. What Is Trisomy 18? Trisomy 18, also known as Edwards syndrome, is a condition which is caused by a chromosomal defect. It occurs in about 1 out of every 3000 live births. The numbers increase significantly when early pregnancy losses are factored in that occur in the 2nd and 3rd trimesters of pregnancy. Subscribe to: Posts (Atom).

compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: Happy 11 Months!

http://compatiblewithjoy-trisomy18.blogspot.com/2011/05/happy-11-months.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Friday, May 13, 2011. BUT, come Thursday, his tummy had stretched and his meds had kicked in and lowered his lung pressures. Lo and behold, we're back down low on his oxygen usage and high on the smiles! He's still taking his antibiotics, but those will be done tomorrow. The weather is also gorgeous so I'm going to try to take him t...

compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: Pertinent Medical History

http://compatiblewithjoy-trisomy18.blogspot.com/p/pertinent-medical-history.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. This is by no means exhaustive. It can be used to help others who want to know what can be done for our little ones. Aaron is a 25 month old male with full Trisomy 18 diagnosed prenatally. He was born via C-section at 37 weeks, 2 days due to persistent heart decelerations with delayed recovery. He was not breathing at birth. Intubation ...

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Chris E Kirsch

Shauna and Chris.com. Chris E. Kirsch. Retired USAF after 25 years. 4 years Security Police, 21 years Logistics Management. On terminal leave till 1 April 2011, Will be able to provide VA status/DD214 approx 1 May 2011. Use the "Contact Us" tab to get a hold of me. Safety program, both management and use. Writing employee performance reports. Security of property and assigned assets. MSDS use, filing, retrieval from outside companies. Minor Maintenance (upkeep of assigned equipment).

shaunaandconor.com

We're Getting Married! | Shauna and Conor's Wedding Blog

We're Getting Married! How Do We Get There? Shauna and Conor's Wedding Blog. It’s Getting Close. April 7, 2013. Hi Family and Friends,. As we get closer to the big day we’ll be posting updates here on our website. As you may have read, in one of our previous emails, your rooms have been booked! Full Moon will be reaching out to you to confirm. Thing to note is that there are no ATMs. On Full Moon’s grounds and they DO NOT. Accept credit cards at the bars. We will be having a CASH BAR. We Booked The Venue!

shaunaanddennis.blogspot.com

Its All About Family

Its All About Family. To be reprimanded by ones own child is humiliatin. View my complete profile. Saturday, July 18, 2009. To be reprimanded by one's own child is humiliating indeed. Did I not tell you this was a challenge for me? We did attend the 24th annual Lind reunion at Alturas and lucky us 3 of our married offspring (sounds weird to call them children) and spouses spent some time there. Good thing the vows were clinched before this experience! Saturday, June 6, 2009. Subscribe to: Posts (Atom).

shaunaandjames.com

Shauna And James

Shauna Dodds and James King. November 6, 2011. Thursday, May 26th, 2011. Thank you for visiting our wedding website. We hope to continue filling these pages with helpful information about us and the wedding, and to share with you as we get all the little details together for the big day. Check back for updates! Monday, November 21st, 2011. We are nothing without the humans touch. But with love, indeed with love we are as kings. Read the rest of this entry ». Monday, July 18th, 2011. It was a good day!

shaunaandjeff.blogspot.com

Pixels in Bloom

Geeks, Giggles, and Games. Friday, February 27, 2015. It happened, and I know it will only be the first of countless times. What happened to your sister? Wednesday, October 1, 2014. Wednesday, September 10, 2014. We went to Shriner's to follow-up with her Orthopedic doctor. We've known that Norah's neck isn't totally stable (she has excessive movement between C1 and C2) but we've hoped that over time, things would ossify and strengthen and she'd be fine. Turns out, it's gotten worse. We have ...So again ...

shaunaandlandons.blogspot.com

.Landon, Shauna, and Paisley!

Tuesday, September 3, 2013. Paisley Pearl's Birth Story 4/20/2013. I didn’t even dilate all the way with our 1st baby. Shift change YAY! Can the student start your IV? Uhhh How could I say no? I should of. But I didn’t. mistake. She stuck me got her flash fewww right? Wrong she BLEW threw my vein. I even told her so. She pulled back the IV quickly and said no I didn’t. Uhhh YES she did! With the student) D wouldn’t even attempt! So one of Landon’s friends is a flight nurse he came in and took care ...

shaunaandmark.blogspot.com

Shauna and Mark

Saturday, November 15, 2014. Saturday, August 9, 2014. Finally able to get everyone together for a fun California to Mexico cruise. Wonderful to have all of our children and their families with us for a week! Monday, February 17, 2014. Here are a few more photos that I've chosen from over a thousand pictures we took. Hard to choose! January 2014 Antarctica Cruise. Here are a few photos from our cruise in January 2014. Subscribe to: Posts (Atom). Josh and JoAnna's Blog. Aaron and Heather Stucki and Family.

shaunaandmason.blogspot.com

Shauna and Mason

Monday, May 31, 2010. Wow where did the last two months go. We have been very busy. Since my last blog we have. Went to Dallas for Easter. Went to Lisa's wedding. Went to my Mother in Laws wedding. Went on our Honeymoon (Play del Carmen). Went to Averi's Birthday Party. Went to Blakes's Birthday Party. Went to the wildlife park. Today she was putting on her shoe and we did not know where the other one was. We asked her where it is and she said not clearly but said "I don't know". Friday, March 26, 2010.

shaunaandmatt.com

| | - Welcome to our wedding website! - | |

June 27th, 2009. Welcome to Shauna and Matt's wedding website! The ceremony will be held at the Emmanual Lutheran Church in Etna, PA. Here's a slideshow from our engagement pictures. Turn up the volume and enjoy the music too!

shaunaandpaul.blogspot.com

Shauna, Paul and Joaquin Mayer

Shauna, Paul and Joaquin Mayer. Wednesday, July 29, 2015. Over the July 4th weekend we had the Ludwig family reunion at the Trogers' home in Promontory near Park City. Promontory is a upscale vacation development. The Trogers are Mike's in laws who live in California. They were kind enough to allow us to use their home for four days over the fourth of July. We had a great time doing different things. View from the Trogers' west. Ruby celebrating the Fourth of July. Nick and Ruby ready for fireworks.