momentswithjacob.blogspot.com
Moments with Jacob: THE ANSWER IS IN THE SEASHELLS
http://momentswithjacob.blogspot.com/2014/08/the-answer-is-in-seashells.html
Saturday, August 2, 2014. THE ANSWER IS IN THE SEASHELLS. We went to the beach. We traded Colorado for Florida. We went on vacation both of us. When we boarded our plane bright and early on Tuesday morning, I knew this wasn’t a small accomplishment. Our nursing coverage plan fell through a few weeks before we were supposed to leave! As we were driving to Vero Beach, I got report from nurse Gemma that Jacob was doing perfectly fine! Gemma urged us to stay as planned. Jacob’s nursing team would b...And as ...
momentswithjacob.blogspot.com
Moments with Jacob: VISITORS IN TOWN
http://momentswithjacob.blogspot.com/2015/06/visitors-in-town.html
Sunday, June 28, 2015. I am so happy when family comes to see us, since I can't travel to see them. I got to show off what I can do with my talker. I even beat Cajsa in my favorite game Bumper cars. They were both so impressed! I also got to take them to the pool, my favorite place to be in the summer. Sarah got them hooked on her favorite TV show "Dance moms". We have a new favorite photo hanging out at the pool together:. I hope you're all enjoying your summer! Subscribe to: Post Comments (Atom). 160; ...
momentswithjacob.blogspot.com
Moments with Jacob: SLOWING DOWN
http://momentswithjacob.blogspot.com/2015/07/slowing-down.html
Friday, July 24, 2015. The stress fracture got confirmed today by the doctor. Luckily it's a mild fracture. When the doctor heard about my busy life and carrying my 65 pounds boy throughout the day, the boot was a fact. I negotiated some exercise to keep my sanity. I am allowed to swim and try biking if it doesn't hurt, no running! Subscribe to: Post Comments (Atom). Welcome to Jacob's blog! Photos of Jacob and family! Http:/ mbgpics.smugmug.com/Photography/jacob-and-family/17801830 4Gqpjv#! Dear Jacob, ...
momentswithjacob.blogspot.com
Moments with Jacob: THREE YEARS IS A LONG TIME
http://momentswithjacob.blogspot.com/2015/07/three-years-is-long-time.html
Tuesday, July 28, 2015. THREE YEARS IS A LONG TIME. When the morning comes around and you have had a chance to rest a little and your body has gotten some necessary caffeine, things always look up. We didn't end up in the ER overnight, we're still at home. Jacob is breathing, and getting a break from seizing. Jacob three years ago:. This is to hopes for a seizure free night. Love, Maria. Subscribe to: Post Comments (Atom). Welcome to Jacob's blog! Photos of Jacob and family! My life with the Sullivan boys.
momentswithjacob.blogspot.com
Moments with Jacob: THE WHEELS ON THE BUS GO ROUND AND ROUND
http://momentswithjacob.blogspot.com/2015/06/the-wheels-on-bus-go-round-and-round.html
Tuesday, June 23, 2015. THE WHEELS ON THE BUS GO ROUND AND ROUND. This year we’re trying something new. Jacob is taking the school bus to and from school for the first time in his life! Jacob always asks us to take him somewhere with the help of his talker. I knew Jacob would love to go on a ride every day! In addition it helps us to get Sarah to her activities and for us to not have to interrupt work to take Jacob to and from school. Win-win solution for all of us! Look how big our boy looks! Jacob̵...
momentswithjacob.blogspot.com
Moments with Jacob: THE SNOWBALL EFFECT
http://momentswithjacob.blogspot.com/2013/09/the-snowball-effect.html
Wednesday, September 25, 2013. I feel I am taking back years in time tonight, to the time when we truly never knew when Jacob would land in the hospital. If somebody would have told me this morning that Jacob would sleep in the PICU tonight, I would have said "no way". But that is where he is once again tonight. Keep Jacob in your thoughts and prayers tonight. September 26, 2013 at 5:24 AM. September 26, 2013 at 8:32 PM. Eleanor, thank you so much! September 26, 2013 at 4:18 PM. Linda, thank you so much!
momentswithjacob.blogspot.com
Moments with Jacob: FREEDOM!
http://momentswithjacob.blogspot.com/2015/07/freedom.html
Sunday, July 5, 2015. Last week, we got to see the results. I have already in the last week taken Jacob out in the backyard for his afternoon feeds and dinners and it's SO easy! I simply roll his chair out, and voila! For our boy who always want to go somewhere and loves the outside. Yesterday we had a BBQ for 4th of July, and we all could enjoy it together on our deck! Jacob was feeling better from the cold he had struggled with earlier this week, and decided to be a chatter box! Welcome to Jacob's blog!
momentswithjacob.blogspot.com
Moments with Jacob: MOTHER'S DAY WITH A TERMINALLY ILL CHILD
http://momentswithjacob.blogspot.com/2015/05/mothers-day-with-terminally-ill-child.html
Saturday, May 9, 2015. MOTHER'S DAY WITH A TERMINALLY ILL CHILD. And this is the secret - my Mother's Day is far better than any Hallmark card. It is a very special day because I got one. More Mother's Day together with both my children. When you know that your child could pass any time when hit by an illness, seizure or simply pass in his sleep, you do cherish Mother's Day in your own special way. May 13, 2015 at 5:06 PM. Love this Maria.its so true! You are a SUPERMOM! May 16, 2015 at 10:20 PM. My life...
momentswithjacob.blogspot.com
Moments with Jacob: 24 HOURS INTO OUR PICU STAY
http://momentswithjacob.blogspot.com/2014/11/24-hours-into-our-picu-stay.html
Friday, November 14, 2014. 24 HOURS INTO OUR PICU STAY. It is a good thing, but I had forgotten how busy it is when you have a sick child in the PICU! All day we have had members of the PICU team, Jacob's specialty doctors and nurses running in and out of his room. I can't believe it is dinner time already. The team tells us we need to give Jacob time to heal. So for now we have moved in to the PICU once again. My Handsome Jacob,. How does he eat? Or "What happened to him? So, Jacob be good to your nurse...
hopefulparents.org
Hopeful Parents: The Rain
http://www.hopefulparents.org/2012/08/the-rain.html
Saturday, August 4, 2012. I fink it's gohwing da wain," he comments, looking at the sky. In a split second, the outside world, the sounds of birds tweeting, the passing vehicles on our busy street, the dinner conversations at our picnic table completely halt. The world fades away into a cloudy haze. I see only my boy, his head tilted back, chin up to the sky, examining the clouds. Disbelief. Shock. Hope. Love. The rain washes over me, bathing me in hope. Aimee is an educator, wife, and the mother of 3 in...
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