mightymaxupdate.blogspot.com
the mighty max update: BAHA surgery
http://mightymaxupdate.blogspot.com/2014/10/baha-surgery.html
Wednesday, October 15, 2014. When Max was three months old, he was fitted with BTE (behind the ear) hearing aids. They worked ok but two issues:. 1) They didn't stay in very well due to his ear formation (quite common with individuals with CHARGE). 2) His hearing loss continued to worsen and needed something more powerful. 1) He won't have to wear the softband any more. 2) There is new wireless technology for this processor, which will make accessibility to ipads, televisions, phones easier. Hey, very ni...
mightymaxupdate.blogspot.com
the mighty max update: chocolate balls
http://mightymaxupdate.blogspot.com/2015/01/chocolate-balls.html
Tuesday, January 13, 2015. Max LOVES anything chocolate.but of course I don't want to give him chocolate 24/7. AND he also has limited textures that he will eat so when I found this recipe last year, I had a feeling it would be a win win! Healthy, yummy and easy! He soooooo enjoys these "chocolate balls" (aka known as "Magic 5 Snack Bites by Kris Carr. Last night, he not only requested them using his AAC (making great progress with it lately.very exciting! Here is a snippet of the dance! 02/08 - 02/15 (2).
mightymaxupdate.blogspot.com
the mighty max update: animal sounds
http://mightymaxupdate.blogspot.com/2014/10/animal-sounds.html
Wednesday, October 15, 2014. Max hasn't wanted to do animal sounds for years.and now (with some bribery), he will. LOVE! I always am so thrilled to hear his sweet little voice. Amy and mighty max. Amy and mighty max. View my complete profile. For more information, visit http:/ www.chargesyndrome.org. My friends and places. Max's blog (july 05 - dec 06). Sign language dictionary *. Arc of whatcom county. 02/08 - 02/15 (2). 01/11 - 01/18 (1). 10/12 - 10/19 (2). 10/05 - 10/12 (2). 09/28 - 10/05 (1). 05/13 -...
mightymaxupdate.blogspot.com
the mighty max update: "walking clothes"
http://mightymaxupdate.blogspot.com/2015/02/walking-clothes.html
Monday, February 9, 2015. Amy and mighty max. Hey, very nice site. I came across this on Google, and I am stoked that I did. I will definitely be coming back here more often. Wish I could add to the conversation and bring a bit more to the table, but am just taking in as much info as I can at the moment. Thanks for sharing. June 10, 2016 at 1:30 AM. Amy and mighty max. View my complete profile. For more information, visit http:/ www.chargesyndrome.org. My friends and places. Max's blog (july 05 - dec 06).
3littlebees.blogspot.com
3 Little Bees: February 2009
http://3littlebees.blogspot.com/2009_02_01_archive.html
Thursday, February 26, 2009. The urology surgery that Luke was supposed to have today has been rescheduled for April 10th. Luke has to take antibiotics right now (because the stints are in his nose) and they have given him terrible bm's and diaper rash. Neither would be good for a urology surgery. Friday, February 20, 2009. An unexpected visit to the OR. Friday, February 13, 2009. Here is Luke's upcoming surgery schedule:. February 26: Third and final orchiopexy surgery with urology. Some of our friends.
3littlebees.blogspot.com
3 Little Bees: Our Crazy Day!
http://3littlebees.blogspot.com/2010/01/our-crazy-day.html
Thursday, January 7, 2010. If anyone has any insights or advice we would love to hear it. Holy cow. what a roller coaster of a day. Glad you guys are home. keep us posted! January 7, 2010 at 6:57 PM. January 7, 2010 at 8:40 PM. Candi: We love you guys and are keeping you in our prayers. God is in control and He will guide you to the right decision. Of this, I am positive. You know that any time you need to talk or just need a shoulder you can always come to me! Know that I will be here. Mom on a Mission.
3littlebees.blogspot.com
3 Little Bees: The BIG day out
http://3littlebees.blogspot.com/2009/12/big-day-out.html
Tuesday, December 1, 2009. The BIG day out. So we're a bit nervous about this, but he can only do what he can do. And if he needs the LTR then so be it. We're (obviously) hoping that he won't but getting prepared for the possibility. The repair won't be tomorrow but we'll find out one way or the other, it's scheduled for Jan 7. And yes, I'm the one taking the trach out regardless of what anyone else says. I will say a prayer for you all! December 1, 2009 at 6:24 PM. December 1, 2009 at 6:51 PM.
mightymaxupdate.blogspot.com
the mighty max update: the schedule master
http://mightymaxupdate.blogspot.com/2015/02/the-schedule-master.html
Monday, February 9, 2015. Max is really interested in his schedule recently. It's so wonderful that he's understanding the power of knowing the activities of his day /week and expressing what he wants. Very exciting! This weekend Max decided that since Gina had stopped by, they should go and visit their friend Aspasia. So he wrote in "Sia".and sure enough that is where he took Gina on their walk. Amy and mighty max. Amy and mighty max. View my complete profile. My friends and places. Arc of whatcom county.
3littlebees.blogspot.com
3 Little Bees: August 2008
http://3littlebees.blogspot.com/2008_08_01_archive.html
Tuesday, August 19, 2008. Friday, August 15, 2008. With no NG tube. Even with the x-ray machine the doctors couldn't get a tube to go down Luke's nose. I knew his anatomy was odd, but not this odd. It makes sense now that Dr. Hill is having such a difficult time with the choanal atresia. The radiologist says that he can always get the tube down with the x-ray machine, so he was quite surprised when it wouldn't work. Tuesday, August 12, 2008. Monday, August 11, 2008. GI Update - Children's here we come.
3littlebees.blogspot.com
3 Little Bees: May 2008
http://3littlebees.blogspot.com/2008_05_01_archive.html
Saturday, May 24, 2008. Here are a few short clips of Luke using his PMV. The first half-second of the first video Luke is making a vocal noise. Otherwise they are all breathing noises. Thursday, May 22, 2008. Luke's 3rd CA dilation. Gus is Student of the Month! Monday, May 12, 2008. Tuesday, May 6, 2008. Gus lost his second tooth yesterday. It won't be long before the top two come out too and he will have a big hole in the front of his mouth. He doesn't seem to mind a bit though. Monday, May 5, 2008.