lowesyndrome.org
News - LSA
http://lowesyndrome.org/news
News related to the LSA. October 27, 2015 By Jeff Smith. During the 2015 Lowe syndrome conference in Washington DC, a number of parents were asked what it means to be a member of the Lowe Syndrome Association. The following video captures those interviews and touches on the spirit of the LSA fa. Read more ». A Star Spangled Spectacular Conference. November 18, 2014 By Theresa Haugen. Through Sunday the 28th, in Washington, DC at the Renaissance Hotel Dupon. Read more ». October 01, 2014 By Theresa Haugen.
lowesyndrome.org
Stories - LSA
http://lowesyndrome.org/stories
Chicago Ridge, IL 60415. Asociación Sindrome de Lowe España. LSA is a 501(c)(3) non-profit charitable organization. Copy 2000-2016 Lowe Syndrome Association. Made with ♥. No part of this site may be reproduced in any form without the express written consent of the Lowe Syndrome Association.
lowesyndrome.org
A Star Spangled Spectacular Conference - LSA
http://lowesyndrome.org/star-spangled-spectacular-conference
A Star Spangled Spectacular Conference. November 18, 2014 By Theresa Haugen. International Conference on Lowe Syndrome – A Star Spangled Spectacular happens the last weekend in June 2015, from Friday the 26. Through Sunday the 28th, in Washington, DC at the Renaissance Hotel Dupont Circle. Https:/ resweb.passkey.com/Resweb.do? To contact the Renaissance by telephone, the main reservation number is toll-free 1-877-212-5752. Chicago Ridge, IL 60415. Asociación Sindrome de Lowe España. Made with ♥.
lowesyndrome.org
15TH INTERNATIONAL CONFERENCE ON LOWE SYNDROME - LSA
http://lowesyndrome.org/confrences/14th-international-conference-lowe-syndrome
15TH INTERNATIONAL CONFERENCE ON LOWE SYNDROME. August 13, 2016 By Jeff Smith. Please join us June 30-July 2, 2017. In Chicago, Illinois. The 2017 conference will be held at the Chicago Marriott O’Hare, which is located only a few minutes from the Chicago O’Hare airport. For more information on the hotel, amenities, location, etc. please visit the following Marriott website at:. Http:/ www.marriott.com/hotels/hotel-photos/chiap-chicago-marriott-ohare. LSA Biennial Conference Rate:. 12900 USD per night.
lowesyndrome.org
International - LSA
http://lowesyndrome.org/lowesyndrome_org/international
If you live outside the United States, the following international resources may prove helpful. Bray Road, Cabinteely. Association Syndrome de Lowe. 9 impasse des Fleurs. 34680 St Georges d'Orques (France). P: 33 4 67 04 49 74. W: http:/ www.syndrome-lowe.org. Youichi Mizusawa, M.D. A 104, Highland-Green Ikejiri, 2-37-11. P: 045-912-4956 (in Japan). F: (81) 45-972-7085 (in Japan). E: yat@ka2.so-net.or.jp. Antonella De Matteis, M.D. Head, Laboratory of Secretion Physiopathology. Consorzio Mario Negri SUD.
courirpourleplaisir.fr
Benoît CESAR, soutien de l'association du syndrome de LOWE
http://www.courirpourleplaisir.fr/Page10.php
Entraînement GYM - PPG. Coaching Personnel ou Coaching à domicile. Résultats tests 5 km ou VMA CPLP. Plan d'entraînement en course à pied. Benoît, soutien de l'association du syndrome de LOWE. COURIR POUR LE PLAISIR. 212 Bis rue de Charenton. Tel : 06 15 76 26 15. E-Mail : courirpourleplaisir@hotmail.com. Benoît CESAR soutient l'association du syndrome de LOWE. En tant qu’athlète, maintenant organisateur des courses, je suis toujours à côté de mes. Pas la possibilité de pratiquer un sport. 93 250 - Ville...
rarecommons.org
Colaboradores | Rare Commons
https://www.rarecommons.org/es/colaboraciones
Pasar al contenido principal. Investigación en enfermedades raras. Qué es Rare Commons? La Unidad 703 de CIBERER, grupo de investigadores especializados en enfermedades poco frecuentes metabólicas, está integrado por médicos y científicos del Hospital Sant Joan de Déu de Barcelona. El Centro de Diagnóstico de Enfermedades Moleculares de la Facultad de Ciencias de la Universidad Autónoma de Madrid colabora colabora con el estudio molecular de pacientes con defectos congénitos de la glicosilación (CDG).
lowesyndrome.org
International - LSA
http://lowesyndrome.org/international
If you live outside the United States, the following international resources may prove helpful. Bray Road, Cabinteely. Association Syndrome de Lowe. 9 impasse des Fleurs. 34680 St Georges d'Orques (France). P: 33 4 67 04 49 74. W: http:/ www.syndrome-lowe.org. Youichi Mizusawa, M.D. A 104, Highland-Green Ikejiri, 2-37-11. P: 045-912-4956 (in Japan). F: (81) 45-972-7085 (in Japan). E: yat@ka2.so-net.or.jp. Antonella De Matteis, M.D. Head, Laboratory of Secretion Physiopathology. Consorzio Mario Negri SUD.
lowesyndrome.org
About - LSA
http://lowesyndrome.org/about
Improve the lives of persons with Lowe syndrome and their families through fostering communication, providing education and supporting research so that individuals can attain their highest potential. WE WILL ACCOMPLISH OUR MISSION BY:. Fostering communication among families who have a member with Lowe syndrome. Promoting a better understanding of the syndrome and the potentials of individuals with this condition. Providing medical and educational information. Milestones In LSA History. LSA formally organ...
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