4p-supportgroup.org
Membership
http://4p-supportgroup.org/membership
Existing Member Update Form. Registry & Research. Our 2014 National Conference Sponsors. Photos & Videos. Donations & Fundraising. Ideas to Spread Awareness. You are here: Home. Informacion en Espanol con respeto al grupo de suporte de cromosoma 4p- (Wolf-Hirschhorn Sindrome) y la reunion regional; llame a Denise Barnes. A (818)468-8671 o region6@4p-supportgroup.org. Chromosomal abnormality are eligible for membership. Membership entitles parents and guardians to:. E-newsletters and organization updates,.
4p-supportgroup.org
2015 Gatherings
http://4p-supportgroup.org/2015-gatherings
Existing Member Update Form. Registry & Research. Our 2014 National Conference Sponsors. Photos & Videos. Donations & Fundraising. Ideas to Spread Awareness. You are here: Home. For the most up-to-date information, please visit our event page on Facebook too. RI, NJ, QC, NB). The Region 1 gathering will be at Laurie Hunter’s home in Jackson, NJ. On Saturday, July 25th at noon. To RSVP or for questions:. Brianna Hauck, Region 1 Director. WV, VA, FL, GA, TN, NC, SC, AL, MS, KY, MD). If you end up needing t...
4p-supportgroup.org
Membership Request
http://4p-supportgroup.org/membership/request-membership
Existing Member Update Form. Registry & Research. Our 2014 National Conference Sponsors. Photos & Videos. Donations & Fundraising. Ideas to Spread Awareness. You are here: Home. Informacion en Espanol con respeto al grupo de suporte de cromosoma 4p- (Wolf-Hirschhorn Sindrome) y la reunion regional; llame a Denise Barnes. A (818)468-8671 o region6@4p-supportgroup.org. Your First and Last Name (required). Second Parent Name (optional). Your Primary Email (required). Country, if not in the United States.
4p-supportgroup.org
Scientific Advisory Board
http://4p-supportgroup.org/for-professionals/scientific-advisory-board
Existing Member Update Form. Registry & Research. Our 2014 National Conference Sponsors. Photos & Videos. Donations & Fundraising. Ideas to Spread Awareness. You are here: Home. Amy RU.L. Calhoun, MD. Assistant Professor of Pediatrics. University of Minnesota Medical School. John Carey, MD, MPH. University of Utah School of Medicine. Salt Lake City, Utah. Agatino Battaglia, MD, DPed, DNeurol. Adjunct Professor of Child Neuropsychiatry. Pisa, Italy;. Adjunct Professor of Pediatrics. Salt Lake City, Utah;.
4p-supportgroup.org
Ideas to Spread Awareness
http://4p-supportgroup.org/fundraising/4p-awareness-day/spread-awareness
Existing Member Update Form. Registry & Research. Our 2014 National Conference Sponsors. Photos & Videos. Donations & Fundraising. Ideas to Spread Awareness. You are here: Home. Ideas to Spread Awareness. Ideas to Spread Awareness. How can you help spread awareness and support? Para los recursos y plantillas en español, por favor visite http:/ wolfhirschhorn.com. Want to do something amazing for 4p-/WHS Awareness Day that can have a PROFOUND effect? Have a bake sale. Sample letters; work letter template.
4p-supportgroup.org
4p- Growth Charts
http://4p-supportgroup.org/general-info/4p-growth-charts
Existing Member Update Form. Registry & Research. Our 2014 National Conference Sponsors. Photos & Videos. Donations & Fundraising. Ideas to Spread Awareness. You are here: Home. 4p- height-weight ratio growth chart. Growth charts for Wolf-Hirschhorn syndrome: 0-4years of age. T Antonius. Eur J Pediatr. 2008 July; 167(7): 807 810.). Make a Tax-deductible donation to the 4p- Support Group. Get eNews and Updates. Sign-up to received the latest eNews and Updates. View Our 2016 Awareness Day Video. Medela Spe...
4p-supportgroup.org
Donations & Fundraising
http://4p-supportgroup.org/fundraising
Existing Member Update Form. Registry & Research. Our 2014 National Conference Sponsors. Photos & Videos. Donations & Fundraising. Ideas to Spread Awareness. You are here: Home. Donations & Fundraising. Donations & Fundraising. Monetary donations can be made through PayPal. Or checks can be mailed to:. C/o Amanda Lortz, Executive Director. 1495 Forest Brooke Way, #262. Delaware, OH 43015. To learn more about Kammy’s Kause please visit www.kammyskause.org. Other fundraising activities include:. Sign-up to...
ryansworldinwords.blogspot.com
Ryan's world in words...: January 2011
http://ryansworldinwords.blogspot.com/2011_01_01_archive.html
Ryan's world in words. Tuesday, January 4, 2011. As we begin a new year I thought it'd be a good time to write an update on great the progress Ryan has made since the last entry, as well as the challenges that he will face this year. He was a little timid initially, with some uneasiness about walking outdoors or outside of our home at all. Yet with practice his confidence improved quickly and he can now walk independently for fairly long distances, indoors and out! Check out the video of him walking on h...
ryansworldinwords.blogspot.com
Ryan's world in words...: January 2010
http://ryansworldinwords.blogspot.com/2010_01_01_archive.html
Ryan's world in words. Saturday, January 30, 2010. Despite encouragement from the on-call GI doctor to have it put back in, we decided that Ryan had proven his ability to eat and drink on his own, so we left it out. A moment we had hoped and waited for since the day it went in, sometimes patiently and other times not. Well, until next time.things are looking great here! We are thankful for every moment with him, Lauren and Zachary and blessed in many ways. Subscribe to: Posts (Atom). First hospitalizatio...
ryansworldinwords.blogspot.com
Ryan's world in words...: July 2009
http://ryansworldinwords.blogspot.com/2009_07_01_archive.html
Ryan's world in words. Monday, July 13, 2009. I was born in October of 2006, and while I was inside my mom there were some concerns about how slowly I was growing. Those concerns were attributed to a complication with my mom's umbilical cord (Occasionally, one umbilical artery is absent. Single umbilical arteries are associated more commonly with fetal anomalies than normal cords.). Through it all my mom and dad have found MANY things to be thankful for, besides the fact that I am a cute and sweet bundle...
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