Learn more about The Cute Syndrome Foundation and the PCDH19 Epilepsy Research we fund
http://www.thecutesyndrome.com/
TODAY'S RATING
>1,000,000
Date Range
HIGHEST TRAFFIC ON
Saturday
LOAD TIME
0.4 seconds
16x16
The Cute Syndrome
1 Mead●●●●●●k Lane
T●y , NY, 12180
US
View this contact
The Cute Syndrome
1 Mead●●●●●●k Lane
T●y , NY, 12180
US
View this contact
The Cute Syndrome
1 Mead●●●●●●k Lane
T●y , NY, 12180
US
View this contact
BUY YOUR DOMAIN
11
YEARS
1
MONTHS
9
DAYS
REGISTER.COM, INC.
WHOIS : whois.register.com
REFERRED : http://www.register.com
PAGES IN
THIS WEBSITE
12
SSL
EXTERNAL LINKS
48
SITE IP
199.34.228.48
LOAD TIME
0.375 sec
SCORE
6.2
The Cute Syndrome:Funding PCDH19 & SCN8A Epilepsy Research - The Cute Syndrome Foundation and PCDH19 Epilepsy Research | thecutesyndrome.com Reviews
https://thecutesyndrome.com
Learn more about The Cute Syndrome Foundation and the PCDH19 Epilepsy Research we fund
thecutesyndrome.com
White Family WILD for a Cure Fundraiser - The Cute Syndrome Foundation: Funding PCDH19 Epilepsy &SCN8A Epilepsy Research
http://www.thecutesyndrome.com/white-family-wild-for-a-cure-fundraiser.html
The Cute Syndrome Foundation: Funding PCDH19 Epilepsy &. PCDH19 IPS Cell Research. Lan Aronson's Retirement Fundraiser. White Family WILD for a Cure Fundraiser. The White Family Wild for a Cure Fundraiser has raised $275! Donate to The Cute Syndrome today to help support PCDH19 Epilepsy Research. To learn more about PCDH19 Epilepsy and The Cute Syndrome check out our video:.
Meinweiser Family Fundraiser - The Cute Syndrome Foundation: Funding PCDH19 Epilepsy &SCN8A Epilepsy Research
http://www.thecutesyndrome.com/meinweiser-family-fundraiser.html
The Cute Syndrome Foundation: Funding PCDH19 Epilepsy &. PCDH19 IPS Cell Research. Lan Aronson's Retirement Fundraiser. White Family WILD for a Cure Fundraiser. Learn more about TCS. The Meinweiser Family Fundraiser has raised $1475 for PCDH19 Research! Brian Meinweiser, is running a 50k on December 21, 2013 in honor of his daughter Izzy and the other girls with PCDH19FLE, and is asking for donations in Isabel’s name to The Cute Syndrome. The Meinweiser Family's Story. We were hospitalized for weeks at a...
Donate - The Cute Syndrome Foundation: Funding PCDH19 Epilepsy &SCN8A Epilepsy Research
http://www.thecutesyndrome.com/donate.html
The Cute Syndrome Foundation: Funding PCDH19 Epilepsy &. PCDH19 IPS Cell Research. Lan Aronson's Retirement Fundraiser. White Family WILD for a Cure Fundraiser. Shop for TCS merch on CafePress. Donate Today to Support PCDH19 FLE Research. Make a secure donation on PayPal. Become a subscriber and catch the CUTE today! Option 1 : $5.00 USD - monthly. Option 2 : $10.00 USD - monthly. Option 3 : $15.00 USD - monthly. Option 4 : $20.00 USD - monthly. Option 5 : $25.00 USD - monthly.
Esmé, PCDH19 Epilepsy, SCN8A Epilepsy, and The Cute Syndrome - The Cute Syndrome Foundation: Funding PCDH19 Epilepsy &SCN8A Epilepsy Research
http://www.thecutesyndrome.com/esmeacute.html
The Cute Syndrome Foundation: Funding PCDH19 Epilepsy &. PCDH19 IPS Cell Research. Lan Aronson's Retirement Fundraiser. White Family WILD for a Cure Fundraiser. Our daughter Esmé is the inspiration behind. Esmé, PCDH19, and SCN8A. And we had no answers for why she was so sick. Are relatively new disorders, very little is understood about them, and the extent to which these mutation contribute to her condition is unknown. Because, despite of all of Esmé's medical and developmental struggles, she is...
News about PCDH19 Epilepsy and SCN8A Epilepsy and The Cute Syndrome Foundation - The Cute Syndrome Foundation: Funding PCDH19 Epilepsy &SCN8A Epilepsy Research
http://www.thecutesyndrome.com/news.html
The Cute Syndrome Foundation: Funding PCDH19 Epilepsy &. PCDH19 IPS Cell Research. Lan Aronson's Retirement Fundraiser. White Family WILD for a Cure Fundraiser. Photo Credit: Tracey Buyce Photography. How you can help. Announcing the Cute Syndrome SCN8A Clinician Information and Reference Guide - Print your own! 8203;The Cute Syndrome Information Brochure! Dr Miriam Meisler awarded 2016 SCN8A Epilepsy Research Grant. In January 2016, a. S a collaborative effort with our Brazilian partners,. There is fant...
TOTAL PAGES IN THIS WEBSITE
12
Insieme per la Ricerca PCDH19 ? ONLUS
http://www.pcdh19research.org/Partners.html
Insieme per la Ricerca PCDH19 – ONLUS. Mutua Basis Assistance sostiene la ONLUS INSIEME PER LA RICERCA PCDH19. Grazie all'impegno dei suoi Promotori Mutualistici. Inner Wheel sostiene ONLUS INSIEME PER LA RICERCA PCDH19. ONLUS INSIEME PER LA RICERCA PCDH19. Via A Poliziano, 8. Design downloaded from Free Templates. Your source for free web templates. Aderire alla nostre iniziative. Diffondi la nostra locandina.
The Jones Party of Five: Happy 5th Birthday, Maddi Bean
http://koriandbill.blogspot.com/2014/04/happy-5th-birthday-maddi-bean.html
The Jones Party of Five. Wednesday, April 2, 2014. Happy 5th Birthday, Maddi Bean. Maddi turned 5 today. Maddi was our first scheduled c-section so we were able to choose this day specially for her. We were so excited to meet her, our first daughter:. Maddi has always had a smiling personality and laughs easily. Happy birthday, sweet girl. I hope you always stay the happy, funny, beautiful little girl both inside and out, forever. I also turned this:. Subscribe to: Post Comments (Atom). April, 2009) is a...
The Jones Party of Five: February 2014
http://koriandbill.blogspot.com/2014_02_01_archive.html
The Jones Party of Five. Friday, February 28, 2014. Ava turned 3 and thoughts about Rare Disease Day. February 24, 2014 marked Ava's third birthday. I can hardly believe that our little girl is 3 years old. It seems like just yesterday that she looked like this:. Mason and Ava on her first day home. Maddi and Ava - sisterly love. In typical third child fashion I did not get any good pictures of her small family birthday gathering. So, this phone picture will have to do:. Ava getting ready for her cake.
momwithanasterisk.blogspot.com
Mom*: October 2015
http://momwithanasterisk.blogspot.com/2015_10_01_archive.html
PCDH19 Epilepsy - Foster Care - Adoption - Life. Saturday, October 31, 2015. Halloween with the Birth Family. Since my kids were in foster care, I have worked hard to maintain the bond that they have with their biological siblings. We always have a visit around the holidays but meeting up on Christmas or Thanksgiving is just not practical. Finally, we realized that Halloween was the answer. It is a kid friendly holiday and we didn’t have family events that would conflict with a visit. Luckily, T agreed.
momwithanasterisk.blogspot.com
Mom*: January 2016
http://momwithanasterisk.blogspot.com/2016_01_01_archive.html
PCDH19 Epilepsy - Foster Care - Adoption - Life. Friday, January 29, 2016. Great stuff to play with that they got last month. So while the rest of the world is busy working on their resolutions, I’m over here making new rules in an attempt to keep the house from imploding. Here’s a few of the newest additions:. Do not fly your new drone in my room while I am sleeping. I am not responsible for any damage caused when I wake up screaming and bat the flying demon monster away from my face. If you want your c...
momwithanasterisk.blogspot.com
Mom*: Disaster Relief in Garland
http://momwithanasterisk.blogspot.com/2016/01/disaster-relief-in-garland.html
PCDH19 Epilepsy - Foster Care - Adoption - Life. Saturday, January 2, 2016. Disaster Relief in Garland. Earlier this week, NTJC began discussing how we could help the people affected by the tornados in Garland. If you don’t know, on December 26. An EF4 tornado ripped through several Dallas suburbs damaging over 600 buildings and killing 11 people while injuring countless others. We knew we had to help so this morning about 25 Jeeps, along with their people, rolled into Garland and we got to work. Most of...
The Jones Party of Five: March 2014
http://koriandbill.blogspot.com/2014_03_01_archive.html
The Jones Party of Five. Friday, March 14, 2014. My friend, Kim, shared this piece of inspiration from 105.1 The Buzz's Facebook page. May 2, 2013:. Meet David Herron. He's a former military man, whose daughter couldn't find a prom dress that she liked because they were all too girly.so, despite having no dressmaking experience, David bought a pattern and fabric.and made it for her BY HIMSELF! In case the embedded video doesn't work: http:/ www.youtube.com/watch? Thursday, March 13, 2014. Thinking that t...
Love That Max : May 2015
http://www.lovethatmax.com/2015_05_01_archive.html
A blog about kids with special needs who kick butt. Friday, May 29, 2015. The Special Needs Blogger Weekend Link-up: Right this way. What to do if you're new here. This is a place to share a recent favorite post you've written, or read. Scroll all the way down to the bottom of this post. Where it says "Your name" put the name of the. Followed by the title of the. You want to share. Or just the name of the post, if there's no room—you get 80 characters). Like this: Seizures are the devil. I remain haunted...
momwithanasterisk.blogspot.com
Mom*: June 2015
http://momwithanasterisk.blogspot.com/2015_06_01_archive.html
PCDH19 Epilepsy - Foster Care - Adoption - Life. Wednesday, June 10, 2015. She Wants to be a Mom. I don’t know what the future holds for Alyssa. She still struggles with her past and her special needs add additional challenges to her future. I do know that she overcame the odds and learned to love in spite of the pain. Alyssa wants to be a mom and I couldn’t be more proud. Mom with an Asterisk. Subscribe to: Posts (Atom). Mom with an Asterisk. Texas, United States. View my complete profile.
TOTAL LINKS TO THIS WEBSITE
48
S. S. Rollings
The Cutest Wedding Dresses
View Cart (0 Items). Floor Length Wedding Gown. The Cutest High Quality Wedding Dresses at Sale Prices! Floor Length Wedding Gown.
The Cutesy Mom
Tuesday, June 8, 2010. Monday, December 14, 2009. Happy Birthday Sweet Anna! Today is my sweet little one's 2nd birthday. I had fun creating this "Birthday Girl" button and barrett to match her sweet birthday outfit. I also made her a Tinkerbell outfit to wear at her party. She was so cute in it! Although it didn't last long before she wanted it off.). Here is this past year in pics:. We love you so much baby girl! Monday, December 7, 2009. Last Day for Orders. Here are some great bags, on clearance!
The Cute Syndrome
A blog about life as the mom of my extraordinary and medically-complex daughter Esmé can teach us about the evolving understanding of genetics, scientific ethics, and what it means to be human. Esmé has epilepsy, multiple genetic mutations (including PCDH19 and SCN8A), and developmental delay. She is non-verbal, non-ambulatory, and tube-fed. She is also goofy, sweet, adorable, funny.and, at four-years-old, is able to read. PCDH19, SCN8A, and The Cute Syndrome Foundation. Top Ten Favorite Posts. 3) Esmé t...
The Cute Syndrome:Funding PCDH19 & SCN8A Epilepsy Research - The Cute Syndrome Foundation and PCDH19 Epilepsy Research
Funding PCDH19 and SCN8A Epilepsy Research. Lan Aronson's Retirement Fundraiser. White Family WILD for a Cure Fundraiser. The Cute Syndrome Foundation Is Funding PCDH19 Epilepsy Research Today! Expanding Our Mission to Fund SCN8A Epilepsy Research Tomorrow! It wouldn't be surprising if you have never heard of PCDH19 Epilepsy. You are part of that mission- your donations, volunteer time, and social media support are essential to our momentum. And SCN8A-Help Adeline Find Answers. We believe that the best w...
The Cutesy Teacher
Wednesday, September 2, 2015. I am so excited to link up with Ashley. For their Classroom Reveal Linky! All of these pictures were taken with my iPhone because I kept forgetting to take pictures of my classroom. Here's a picture of my entire classroom from the door to the room. I know it's a little difficult to see everything, but hopefully you get the idea of the general set up. The door to my bathroom with class jobs displayed. The front of my room. Make sure you visit Schroeder Shenanigans in 2nd.
Tamanna Photos without Watermarks
Tamanna Photos without Watermarks. Thursday, June 24, 2010. Tamann New Photoshoot In Muhurut [No Watermarks]. Hi friends, It appears to be a new photoshoot of tamanna in 2010 where she looks amazingly beautiful in rose saree with her ravishingly cute smile. Hope you like it. Tamanna In Paiya Collection - 2 [No Watermarks]. Tamanna In Paiya Collection - 1 [No Watermarks]. Disclaimer : All the photos are taken from the internet, and no photo is property of mine. In case of any disputes, you can email m...
TheCuteTanuki (Ana Lucia) - DeviantArt
Window.devicePixelRatio*screen.width 'x' window.devicePixelRatio*screen.height) :(screen.width 'x' screen.height) " class="mi". Window.devicePixelRatio*screen.width 'x' window.devicePixelRatio*screen.height) :(screen.width 'x' screen.height) ". Join DeviantArt for FREE. Forgot Password or Username? Deviant for 3 Years. This deviant's full pageview. July 25, 1994. Last Visit: 16 hours ago. This is the place where you can personalize your profile! By moving, adding and personalizing widgets. Why," you ask?
Big Sister Shirts, Big Brother Tshirts, Birthday Shirts for Everyone
Loading. Please wait. Or Create an account. Big Sister Ballerina T-shirts and Shirts. Big Sister T-shirts and Shirts Whoos Got A Secret. Big Sister Shirts and T-shirts with Sibling. Big Sister Rhinestone T-shirts and Shirts. Cute Big Sister Shirts-I'm The Big Sister T-shirts. Big Sister T-shirts and Princess T-shirts. Big Sister T-shirts-Cute Fairy and Butterflies. Big Sister In Training T-shirts and Shirts. Baby Little Middle Biggest Sister. Matching Big Little Sister Collegiate T-shirts. Baby Little Mi...
SOCIAL ENGAGEMENT