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The FoG | Foundation Glycosylation - Home

The FoG was established in order to support research for the development of therapies targeting CDG, to help raise awareness of the disorder and to advocate for individuals living with this enzyme deficiency.

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The FoG | Foundation Glycosylation - Home | thefog.ca Reviews

https://thefog.ca

The FoG was established in order to support research for the development of therapies targeting CDG, to help raise awareness of the disorder and to advocate for individuals living with this enzyme deficiency.

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1

The FoG | Foundation Glycosylation - Events

http://www.thefog.ca/events.html

Scientific Events and Conferences. 65279;. 3rd World Conference on CDG - July 2017. July 15&16, 2017. The 3rd World Conference on CDG will be held in Leuven, Belgium. The "World Conference on Congenital Disorders of Glycosylation for Families and Professionals is a biennial event designed in collaboration with leading experts in the field of CDG. Families and professionals will work together to exchange knowledge, experiences, needs and perspectives. We are looking forward to seeing you in Leuven!

2

The FoG | Foundation Glycosylation - About

http://www.thefog.ca/about.html

Approximately 1000 individuals worldwide have been diagnosed with CDG type I. To date, fifteen subtypes of CDG-I have been identified. Seven children have now been diagnosed with subtype CDG-1L (ALG9-CDG). Maria is one of them. Features common to most CDG subtypes are failure to thrive, developmental delay, hypotonia, and seizures. Some subtypes have more unique characteristics such as liver disease, clotting disorders, or cystic kidneys. 65279; What is the FoG? Yeast), it is our hope that CDG therap...

3

The FoG | Foundation Glycosylation - Resources

http://www.thefog.ca/resources.html

World CDG Awareness. Education. Diagnosis. Program 2015-2017. World CDG-AED Program 2015-2017 (CDG Awareness. Education. Diagnosis). Vanessa Ferreira, PhD, MBA (Portuguese Association for CDG and. Related Rare Metabolic Pathologies). Collaborators: Families and CDG professionals. Graphic designer: Diogo Sampaio. Raising Awareness for Congenital Disorders of Glycosylation. Shaping the future World CDG program 2015-2017 . The following websites contain more information about CDG:. Petra Kienesberger, PhD.

4

The FoG | Foundation Glycosylation - Connections

http://www.thefog.ca/connections.html

The following people have had a positive impact in Maria's life:. Andrea was Maria's speech pathologist during her preschool years (October 2007 - July 2011). 65279;Connection to Maria. Krista had the pleasure of working with Maria and her family as Maria’s Occupational Therapist during her preschool years. FoG summer student 2011. Becca is Maria's cousin and worked as the Research and Development Coordinator for the FoG in 2011. 65279;Becca also received top marks on her Honours Thesis, "Electrophysiolo...

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apcdg.com apcdg.com

WG CDG & Cardioendocrine - APCDG - Congenital Disorders of Glycosylation

http://www.apcdg.com/wg-cdg--cardioendocrine.html

WP4 Biology to guide CDG therapies. WG CDG and GlycoImmunology. WG CDG and Cardioendocrine. WG CDG and Liver. Project CDG and Liver. WG CDG and Neurology. WG CDG and Hematology. WG CDG and Ophtalmology. WP5 Systems Biology and Bioinformatics. WG CDG and Biomedical Bioinformatics. WG CDG and Computational biology/chemistry. WG CDG and Systems Biology. WP6 Clinical and Therapeutic CDG research. WG CDG Patient reported Outcomes (PROMs). WG CDG Pharmacological chaperones. WG CDG Health psychology. CDG and Al...

cdg-syndrom.de cdg-syndrom.de

Link-Sammlung - Willkommen bei GlykoKids

https://www.cdg-syndrom.de/link-sammlung.html

National Institute of Health. NIH Clinical Research Study. Bundesverein CDG-Syndrom e.V. 1 Vorsitzender Michael Hartmann. 49 (0) 981 - 17154. 49 (0) 981 - 9776930. 66;undesverein@cdg-syndrom.de. IBAN DE89 6115 0020 0101 9723 05. KtoNr: 101 9723 05). BIC: ESSLDE66XXX (BLZ: 611 500 20).

rareconnect.org rareconnect.org

Congenital Disorders of Glycosylation (CDG), the Community - RareConnect

https://www.rareconnect.org/en/community/cdg

Connecting rare disease patients globally. Search and join a community. Search or start a discussion. Living with a rare disease. Discuss with other patients. Congenital Disorders of Glycosylation (CDG). Welcome - Congenital Disorders of Glycosylation (CDG) Community. What is Congenital Disorders of Glycosylation (CDG)? Source: Participating patient organizations visible below. Congenital Disorders of Glycosylation (CDG) Resources. Published 23 days ago. Published 24 days ago. Partners and Patient Groups.

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The FoG | Foundation Glycosylation - Home

Saint John, New Brunswick July 2015. 65279;Quispamsis, New Brunswick August 15, 2015. 2nd World Conference on Congenital Disorders of Glycosylation (CDG). 65279;Lyon, France August 28-30, 2015. Our Mission . Foundation Glycosylation (the FoG) supports research for the development of therapies targeting Congenital Disorders of Glycosylation (CDG), helps raise awareness of the disorder, and advocates for individuals living with these rare enzyme deficiencies. Saint John Regional Hospital Foundation.

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