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The Heartful Mom - A Real Life Look At Warburg Micro SyndromeA Real Life Look At Warburg Micro Syndrome
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A Real Life Look At Warburg Micro Syndrome
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The Heartful Mom - A Real Life Look At Warburg Micro Syndrome | theheartfulmom.com Reviews
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A Real Life Look At Warburg Micro Syndrome
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The Warburg Micro Syndrome Series 2016 - Seizures - The Heartful Mom
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About MaryEllen and Kevin. The Warburg Micro Syndrome Series 2016. A Real Life Look At Warburg Micro Syndrome. The Warburg Micro Syndrome Series 2016 – Seizures. February 23, 2016. February 25, 2016. Children with Warburg Micro Syndrome may or may not have seizures. A seizure is a surge of electrical activity in the brain. There are many different types of seizures. You can read about the different types here. When seizures are recurrent, it is called epilepsy. Kevin and MaryEllen having video EEGs.
The Warburg Micro Syndrome Series 2016 - Muscles and Joints - The Heartful Mom
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About MaryEllen and Kevin. The Warburg Micro Syndrome Series 2016. A Real Life Look At Warburg Micro Syndrome. The Warburg Micro Syndrome Series 2016 – Muscles and Joints. February 4, 2016. February 4, 2016. Children with Warburg Micro Syndrome commonly have hypotonia, progressive joint contractures, and spastic diplegia with increasing spasticity that may eventually lead to spastic quadriplegia in later years. (Graham et al., 2004, Morris-Rosendahl et al., 2010, Handley et al. 2013). By age ten and unti...
The Warburg Micro Syndrome Series 2016 - Miscellaneous - The Heartful Mom
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About MaryEllen and Kevin. The Warburg Micro Syndrome Series 2016. A Real Life Look At Warburg Micro Syndrome. The Warburg Micro Syndrome Series 2016 – Miscellaneous. February 25, 2016. There are many things we have encountered through the years with MaryEllen and Kevin that I have not seen described in medical journals. Are they related to Warburg Micro Syndrome or are they just MaryEllen and Kevin things? I don’t know. If they are never written about though, we will never know, will we? MaryEllen and K...
The Heartful Mom - Page 2 of 5 - A Real Life Look At Warburg Micro Syndrome
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About MaryEllen and Kevin. The Warburg Micro Syndrome Series 2016. A Real Life Look At Warburg Micro Syndrome. The Warburg Micro Syndrome Series 2016 – Eyes. January 28, 2016. Warburg Micro Syndrome children have eye abnormalities that may include microphthalmia, microcornea, microphakia, cataract, pinpoint atonic pupils, ptosis, nystagmus, mild optic atrophy, blepharophimosis, and severe cortical vision impairment. [Ainsworth et […]. The Warburg Micro Syndrome Series – The Brain. January 26, 2016. It wa...
About MaryEllen and Kevin - The Heartful Mom
http://www.theheartfulmom.com/home/maryellenandkevin
About MaryEllen and Kevin. The Warburg Micro Syndrome Series 2016. A Real Life Look At Warburg Micro Syndrome. About MaryEllen and Kevin. MaryEllen is 28 years old. Kevin is 27. They were born with Warburg Micro Syndrome, an extremely rare genetic disorder. As they got older, their medical needs became more complex. MaryEllen loves listening to TV shows on the Ipad. Her favorites include Glee, The Brady Bunch, and pretty Little Liars. Her favorite music includes show tunes and anything Disney....Kevin...
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My Ducks in a Row | Heaven Sent…and…Bent
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Heaven Sent…and…Bent. Finding joy in blessings, trials, and life on earth. Listen to Heaven Sent and Bent Live! Choose Today To Choose Life and Purpose, Nancy Byrne Shares her Wisdom. 8220;Are all Your Children from the Same Father? 8221; and Other Stupid Questions! My Ducks in a Row. August 17, 2015. Heaven Sent and Bent. About Heaven Sent and Bent. I'm in this with you. I want to be a member of your tribe, someone whom you can relate to. I want to sit next to you in the cafeteria. Why? Don't have a gre...
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Get Waisted | Heaven Sent…and…Bent
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Heaven Sent…and…Bent. Finding joy in blessings, trials, and life on earth. Listen to Heaven Sent and Bent Live! Http:/ www.getwaisted.com. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). You are commenting using your WordPress.com account. ( Log Out. You are commenting using your Twitter account. ( Log Out. You are commenting using your Facebook account. ( Log Out. Notify me of new comments via email. On Here Today, ...
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Happy Newsletter | Heaven Sent…and…Bent
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Heaven Sent…and…Bent. Finding joy in blessings, trials, and life on earth. Listen to Heaven Sent and Bent Live! Would you like to receive weekly inspiration and encouragement from someone who has actually “been there, done that”? Sign up today to add your name to the list of people who also recognize that we aren’t in charge of our time here on earth, but we are in charge of recognizing our blessings and helping others to live an inspired and joyful life. Leave a Reply Cancel reply. Reflected in Her Soul.
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Change Is Good! | Heaven Sent…and…Bent
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Heaven Sent…and…Bent. Finding joy in blessings, trials, and life on earth. Listen to Heaven Sent and Bent Live! Breaking The DREADED Drama Triangle. Here Today, Gone Tomorrow…Like Praying →. August 30, 2015. Heaven Sent and Bent. As my program grows, so too must the media! I wanted to let all of you know that my posts will now be found on http:/ www.heavenandnot.com. It’s an easy transition I hope. Stay along for more fun, information, and necessary chatter! About Heaven Sent and Bent. You are commenting...
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“Are all Your Children from the Same Father?” and Other Stupid Questions! | Heaven Sent…and…Bent
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Heaven Sent…and…Bent. Finding joy in blessings, trials, and life on earth. Listen to Heaven Sent and Bent Live! My Ducks in a Row. Nostalgic Reflection on Parenting →. 8220;Are all Your Children from the Same Father? 8221; and Other Stupid Questions! August 18, 2015. Heaven Sent and Bent. Laura Young has a gaiety to her voice that you wouldn’t expect from a mother of seven children. Yes, I don’t stutter, I said SEVEN! The oldest is fourteen so you do the math! PLEASE COMMENT or REPLY to this post below i...
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Heaven Sent…and…Bent | finding joy in blessings, trials, and life on earth | Page 2
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Heaven Sent…and…Bent. Finding joy in blessings, trials, and life on earth. Listen to Heaven Sent and Bent Live! Newer posts →. No Vacation From Cerebral Palsy. August 8, 2015. Heaven Sent and Bent. Sweatshirt clad, with hands in pockets, the residents stroll the cobblestone like walkways and drink in every drop of mountain air.The ambiance is peaceful and welcoming except, for some reason, my presence disrupts the Rockwellian scene. Yes , I thought. Should. Move a little backward would you mind? This one...
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Heaven Sent and Bent | Heaven Sent…and…Bent
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Heaven Sent…and…Bent. Finding joy in blessings, trials, and life on earth. Listen to Heaven Sent and Bent Live! Author Archives: Heaven Sent and Bent. About Heaven Sent and Bent. I'm in this with you. I want to be a member of your tribe, someone whom you can relate to. I want to sit next to you in the cafeteria. Why? Because I've been a little bit there and done that. I haven't experienced all the pitfalls of life of course, just enough to let me know I'm not in charge! What do you think of me? Problems ...
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Nostalgic Reflection on Parenting | Heaven Sent…and…Bent
https://heavensentandbent.wordpress.com/2015/08/20/nostalgic-reflection-on-parenting
Heaven Sent…and…Bent. Finding joy in blessings, trials, and life on earth. Listen to Heaven Sent and Bent Live! 8220;Are all Your Children from the Same Father? 8221; and Other Stupid Questions! Breaking The DREADED Drama Triangle →. Nostalgic Reflection on Parenting. August 20, 2015. Heaven Sent and Bent. Who knows if this is true, but in his later life he wrote a book advising parents to feed their kids a whole food plant based diet. I really like this guy. If that is your mind set, just don’t do it!
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Here Today, Gone Tomorrow…Like Praying | Heaven Sent…and…Bent
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Heaven Sent…and…Bent. Finding joy in blessings, trials, and life on earth. Listen to Heaven Sent and Bent Live! Here Today, Gone Tomorrow…Like Praying. November 15, 2015. Heaven Sent and Bent. How many times do we have to hear, “today might be your last day”? How many times are we reminded to tell our loved ones how much they mean to us and to verbally acknowledge our love daily? To whom are we asking to give us this benevolent gift? It’s ok now? I thought we weren’t allowed to pray? Overnight, along wit...
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Listen to Heaven Sent and Bent Live! | Heaven Sent…and…Bent
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Heaven Sent…and…Bent. Finding joy in blessings, trials, and life on earth. Listen to Heaven Sent and Bent Live! Listen to Heaven Sent and Bent Live! Rene’ hosts her radio show on Monday mornings (PST) at 10am. You can listen live and call in with comments and questions. If you would like to call in and you live in the US, please call 888-463-6748. You can download the app, TALKZONE, http:/ www.talkzone.com. Would you like to be a guest? Call Rene’ and tell her your story! Leave a Reply Cancel reply.
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Set your heart on fire and seek those who fan your flames." Rumi. Wednesday, December 24, 2014. Happy Winter Solstice and Merry Christmas. With thanks to Mr Printables. For the colour-in xmas tree, winter wonderland animal templates and tutorial for wooden peg people! Have a fantastic holiday season, whatever you are up to. Wednesday, December 03, 2014. Mandala Magic Hamsa Mandala. More catching up with Mandala Magic. Here's my Hamsa Mandala. Thank you Julie for an excellent course. Tuesday, May 07, 2013.
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Thursday, May 20, 2010. It's been a long time! Two people who've signed up to follow this blog have reminded me of its existence! I know it's been a long time since I posted here, mainly cos I've been posting everything over on my main blog, but also because I haven't had the time to go out and about taking photos like I'd like to. Here's a random collection of some I did manage to take over the last year or so. Tuesday, May 27, 2008. From our trip to Westgate-on-Sea. Tuesday, April 15, 2008. Madeira (Mo...
The Heart Full Mama
The Heart Full Mama. I want every Mama to have a full heart! Having a child with Asperger's and fighting Lupus and Fibromyalgia (among other things! Isn't always a walk in the park. And while It may not always be pretty here, you can be sure it's always real. I'll talk about my life and some of its challenges and do some fun stuff (fun stuff = crafting, sewing, home decorating on a dime. that kind of stuff! Either way, it'll be fabulous! And I always pray that YOUR heart will be FULL when you leave!
The Heartful Mom - A Real Life Look At Warburg Micro Syndrome
About MaryEllen and Kevin. The Warburg Micro Syndrome Series 2016. A Real Life Look At Warburg Micro Syndrome. The Warburg Micro Syndrome Series 2016 – Miscellaneous. February 25, 2016. There are many things we have encountered through the years with MaryEllen and Kevin that I have not seen described in medical journals. Are they related to Warburg Micro […]. The Warburg Micro Syndrome Series 2016 – Seizures. February 23, 2016. February 25, 2016. The Warburg Micro Syndrome Series 2016 – Growth. February ...
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Content on this page requires a newer version of Adobe Flash Player. The Heartful Travellers is a team of knowledgeable professionals in the worlds of art, design and travel. Our aim is to open doors into enjoyable and authentic cultural experiences, whilst giving back to the communities we visit. We style our small group tours so you have time to immerse yourself in the culture of your new environment, relax and return home feeling informed and rejuvenated. The Heartful Travellers 2010.
The Heartful Vegan
Healthy Vegan Recipes. Plant Strong and Heart Healthy. Monday, July 13, 2015. A very simple and quick cold salad to serve with grilled summer meals, or all by itself. Travels well, so would work great for pot lucks and mason jar salad. I Can of Black Beans -rinse/drain. Add the following according to your preferences:. Bell pepper - whatever you have. I like mixing colors for a festive look. Halved cherry or chopped whole tomato. 1 or 2TBL. chopped parsley, cilantro or basil. Posted by Denise Kappa.
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HG: A PRESENTATION OF THINGS WE LOVE
What is the heART Gallery? The heART Gallery – Things We Love, LLC is a monthly presentation of the cultural arts including but not limited to Music, Fashion, Poetry and Art in eclectic environments. HG: The Loft Edition. June 3RD @theLoft.Montclair.NJ. HeART GALLERY: D.C. A PREMIUM EXPERIENCE: JUNE 3RD 12. AT THE LOFT, M. HeART GALLERY: D.C. Posted by Cue Gibson , Friday. Links to this post. A PREMIUM EXPERIENCE: JUNE 3RD '12. AT THE LOFT, MONTCLAIR NJ. Posted by Cue Gibson 5/25/2012. Links to this post.
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