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thejaxbrownjournal

June 29, 2015. Continue reading →. June 29, 2015. June 29, 2015. Continue reading →. June 28, 2015. June 28, 2015. Welcome To My Journal! Continue reading →. Welcome To My Journal! Blog at WordPress.com. Follow “thejaxbrownjournal”. Get every new post delivered to your Inbox. Build a website with WordPress.com.

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thejaxbrownjournal | thejaxbrownjournal.wordpress.com Reviews

https://thejaxbrownjournal.wordpress.com

June 29, 2015. Continue reading →. June 29, 2015. June 29, 2015. Continue reading →. June 28, 2015. June 28, 2015. Welcome To My Journal! Continue reading →. Welcome To My Journal! Blog at WordPress.com. Follow “thejaxbrownjournal”. Get every new post delivered to your Inbox. Build a website with WordPress.com.

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Morning Smiles – thejaxbrownjournal

https://thejaxbrownjournal.wordpress.com/2015/06/29/morning-smiles

June 29, 2015. I am always at my best in the morning. Don’t I look so tall in this photo? Mummy loves this onesie but I’ll grow out of it soon! Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). You are commenting using your WordPress.com account. ( Log Out. You are commenting using your Twitter account. ( Log Out. You are commenting using your Facebook account. ( Log Out. Notify me of new comments via email.

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June 2015 – thejaxbrownjournal

https://thejaxbrownjournal.wordpress.com/2015/06

June 29, 2015. Continue reading →. June 29, 2015. June 29, 2015. Continue reading →. June 28, 2015. June 28, 2015. Welcome To My Journal! Continue reading →. Welcome To My Journal! Create a free website or blog at WordPress.com.

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Welcome To My Journal! – thejaxbrownjournal

https://thejaxbrownjournal.wordpress.com/2015/06/28/welcome-to-my-journal

June 28, 2015. June 28, 2015. Welcome To My Journal! My first big smile on camera. Hi Family and friends,. Mum has created a website where she can posts pictures and stories about my life. If you choose to follow my journal every time Mum posts a new entry you will get an email. Enjoy! Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). You are commenting using your WordPress.com account. ( Log Out. Plunket Visits →.

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Plunket Visits – thejaxbrownjournal

https://thejaxbrownjournal.wordpress.com/2015/06/29/plunket-visits

June 29, 2015. June 29, 2015. Part of being a little bubba is having visits from plunket. They check that I am growing up big and strong. Plunket first visited me at home on 11/5/15 (Daddy’s 29th Birthday! I weighed 4.36kgs and was 4 weeks and 4 days old. I went to see plunket when I was 8 weeks old (4/6/15) I weighed 5.8kgs, my head was 39cm and I was 58cms long. Last week I visited Sue at Plunket again! Leave a Reply Cancel reply. Enter your comment here. Address never made public).

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mindingthomas.wordpress.com mindingthomas.wordpress.com

Infantile Spasms | Minding Thomas

https://mindingthomas.wordpress.com/infantile-spasms

I have read so many stories online about how other parents noticed something a little off about their child’s jerky movements but thought that maybe it was just a normal, wacky thing or in my case I thought it was because Thomas has jerky movements anyway due to his increased muscle tone. From what I’ve read, the two most common treatments include:. Steroid therapy (adrenocorticotropic hormone [ACTH by injection] or prednisone). A seizure medication called Sabril (vigabatrin). As part of Thomas’ tr...

mindingthomas.wordpress.com mindingthomas.wordpress.com

Life with Thomas | Minding Thomas

https://mindingthomas.wordpress.com/2015/03/01/life-with-thomas

March 1, 2015. March 1, 2015. I am thankful to everyone who reads my blog that has offered kind thoughts, love and support. I know that the blog is an important tool for keeping family and friends informed and to connect with people from around the world who are either years ahead in the unique experience of raising a child with complex needs or maybe only recently introduced to it. I am no expert on every child, only my own son. To the point that the Pediatrician could feel it upon physical examination ...

mindingthomas.wordpress.com mindingthomas.wordpress.com

Gentleness – it helps | Minding Thomas

https://mindingthomas.wordpress.com/2015/07/16/gentleness-it-helps

Gentleness – it helps. July 16, 2015. I have read oh so many articles and blog entries about a range of acceptable and unacceptable ways to speak with a parent of a child with special needs. In each one, one common theme that struck me was how unacceptable it is to ask another SN (special needs) parent ‘what is wrong with your child? Today, for the first time, I was asked this very question. How did it make me feel? And the list continues. You get the picture I’m sure. Does it really matter in the end?

mindingthomas.wordpress.com mindingthomas.wordpress.com

Lots of updates… | Minding Thomas

https://mindingthomas.wordpress.com/2015/08/13/lots-of-updates

Lots of updates…. August 13, 2015. It’s been pretty busy in our household lately. There are so many different focuses at the moment for Thomas. I get by most days by prioritising what needs to be done and what can wait another day. Like washing, that can definitely wait! What I try to focus on with Thomas has often been the same for many months because Thomas needs more time to work on certain things. I’ll list those below with how each is going. Working on cup feeding to encourage more taken from the cu...

mindingthomas.wordpress.com mindingthomas.wordpress.com

Thomas loves his playtime! | Minding Thomas

https://mindingthomas.wordpress.com/2015/03/15/thomas-loves-his-playtime

Thomas loves his playtime! March 15, 2015. Yesterday Thomas had loads of fun playing with rice! He was more interested in listening to the sound of the rice being poured in than playing with it although he did manage to get rice everywhere which was great fun! The sounds he makes in the video are a new expression for him. It’s adorable to listen to. One thing that is tricky is the feeding, but we are easing him back into this. Hello, just a small post! 7 thoughts on “ Thomas loves his playtime! Glad to h...

mindingthomas.wordpress.com mindingthomas.wordpress.com

Epilepsy | Minding Thomas

https://mindingthomas.wordpress.com/seizures

I have an itchy feeling that this page will be one that I may end up adding to over time but I hope not! In all honesty, I did not think that Thomas would have any issues with seizures once he was put back on Levetiracetam (Keppra) but I was a bit wrong there. I even recall saying to people that Thomas was medicated for his seizures and it’s all under control and that it’s the least of our worries. This page will be about the different forms of seizures that Thomas has developed since birth. The process ...

mindingthomas.wordpress.com mindingthomas.wordpress.com

mrsstaceydodd | Minding Thomas

https://mindingthomas.wordpress.com/author/mrsstaceydodd

September 7, 2016. This is a post dedicated to the use of the Big Mack and the different ways we scaffolded its use. The best way to show thisis through video which have been uploaded, hopefully in the right order! Thomas using the Big Mack for the first time. Thomas using a smaller switch to activate a toy. Thomas using his left hand. Thomas using his right hand. Thomas using the Big Mack to get a lolly. Thomas using two Big Macks to get a lolly. Thomas has also used the Big Mack to say a repetitive sen...

mindingthomas.wordpress.com mindingthomas.wordpress.com

Moving to a better home | Minding Thomas

https://mindingthomas.wordpress.com/2015/06/01/moving-to-a-better-home

Moving to a better home. June 1, 2015. Been a quiet time on the blogosphere for me however I am keeping up with the quick Facebook updates. Success at long last in Te Atatu Peninsula! You can see the glass paneling above. The kind of chair we use is called the Riften Blue Wave Bath Chair. http:/ www.rifton.com/products/bathing-and-toileting-systems/blue-wave-bath-chairs. Riften Blue Wave Chair. Happy does it →. 6 thoughts on “ Moving to a better home. June 2, 2015 at 6:52 am. What a nice bath for Thomas!

mindingthomas.wordpress.com mindingthomas.wordpress.com

NICU | Minding Thomas

https://mindingthomas.wordpress.com/nicu

Page still in progress. NICU (Newborn Intensive Care Unit). Thomas required only 1 hour of CPAP (Continuous Positive Airway Pressure). In Thomas’ first week in NICU, things were running along smoothly. He was in a cot maintaining his temperature and tolerating NG (Nasal Gastric) feeds well. We were slowly introducing him to the breast and he had his first bath. We were absolutely thrilled with how things were going and we seemed pretty sure he’d be home before Christmas. Leave a Reply Cancel reply. Pleas...

mindingthomas.wordpress.com mindingthomas.wordpress.com

Thomas | Minding Thomas

https://mindingthomas.wordpress.com/thomas-2

Thomas was born 6 weeks premature on 9th December 2013, a Monday at 10.18pm in Waikato Hospital via emergency cesarean. He weighed 2.010 kilo. He was born with blonde hair and lots of it oh my! A cranial ultrasound showed a bliateral grade III IVH ( intraventricular hemorrhage) and thalamic infarcts. The MRI showed venous haemorrhagic infarct affecting both thalami complicated by extensive IVH and hydrocephalus. Venous sinus thrombosis in the deep system (medullary vein) suggested (the basal ganglia).

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June 29, 2015. Continue reading →. June 29, 2015. June 29, 2015. Continue reading →. June 28, 2015. June 28, 2015. Welcome To My Journal! Continue reading →. Welcome To My Journal! Blog at WordPress.com. Follow “thejaxbrownjournal”. Get every new post delivered to your Inbox. Build a website with WordPress.com.

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