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Infantile Spasms | Minding Thomas
https://mindingthomas.wordpress.com/infantile-spasms
I have read so many stories online about how other parents noticed something a little off about their child’s jerky movements but thought that maybe it was just a normal, wacky thing or in my case I thought it was because Thomas has jerky movements anyway due to his increased muscle tone. From what I’ve read, the two most common treatments include:. Steroid therapy (adrenocorticotropic hormone [ACTH by injection] or prednisone). A seizure medication called Sabril (vigabatrin). As part of Thomas’ tr...
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Life with Thomas | Minding Thomas
https://mindingthomas.wordpress.com/2015/03/01/life-with-thomas
March 1, 2015. March 1, 2015. I am thankful to everyone who reads my blog that has offered kind thoughts, love and support. I know that the blog is an important tool for keeping family and friends informed and to connect with people from around the world who are either years ahead in the unique experience of raising a child with complex needs or maybe only recently introduced to it. I am no expert on every child, only my own son. To the point that the Pediatrician could feel it upon physical examination ...
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Gentleness – it helps | Minding Thomas
https://mindingthomas.wordpress.com/2015/07/16/gentleness-it-helps
Gentleness – it helps. July 16, 2015. I have read oh so many articles and blog entries about a range of acceptable and unacceptable ways to speak with a parent of a child with special needs. In each one, one common theme that struck me was how unacceptable it is to ask another SN (special needs) parent ‘what is wrong with your child? Today, for the first time, I was asked this very question. How did it make me feel? And the list continues. You get the picture I’m sure. Does it really matter in the end?
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Lots of updates… | Minding Thomas
https://mindingthomas.wordpress.com/2015/08/13/lots-of-updates
Lots of updates…. August 13, 2015. It’s been pretty busy in our household lately. There are so many different focuses at the moment for Thomas. I get by most days by prioritising what needs to be done and what can wait another day. Like washing, that can definitely wait! What I try to focus on with Thomas has often been the same for many months because Thomas needs more time to work on certain things. I’ll list those below with how each is going. Working on cup feeding to encourage more taken from the cu...
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Thomas loves his playtime! | Minding Thomas
https://mindingthomas.wordpress.com/2015/03/15/thomas-loves-his-playtime
Thomas loves his playtime! March 15, 2015. Yesterday Thomas had loads of fun playing with rice! He was more interested in listening to the sound of the rice being poured in than playing with it although he did manage to get rice everywhere which was great fun! The sounds he makes in the video are a new expression for him. It’s adorable to listen to. One thing that is tricky is the feeding, but we are easing him back into this. Hello, just a small post! 7 thoughts on “ Thomas loves his playtime! Glad to h...
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Epilepsy | Minding Thomas
https://mindingthomas.wordpress.com/seizures
I have an itchy feeling that this page will be one that I may end up adding to over time but I hope not! In all honesty, I did not think that Thomas would have any issues with seizures once he was put back on Levetiracetam (Keppra) but I was a bit wrong there. I even recall saying to people that Thomas was medicated for his seizures and it’s all under control and that it’s the least of our worries. This page will be about the different forms of seizures that Thomas has developed since birth. The process ...
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mrsstaceydodd | Minding Thomas
https://mindingthomas.wordpress.com/author/mrsstaceydodd
September 7, 2016. This is a post dedicated to the use of the Big Mack and the different ways we scaffolded its use. The best way to show thisis through video which have been uploaded, hopefully in the right order! Thomas using the Big Mack for the first time. Thomas using a smaller switch to activate a toy. Thomas using his left hand. Thomas using his right hand. Thomas using the Big Mack to get a lolly. Thomas using two Big Macks to get a lolly. Thomas has also used the Big Mack to say a repetitive sen...
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Moving to a better home | Minding Thomas
https://mindingthomas.wordpress.com/2015/06/01/moving-to-a-better-home
Moving to a better home. June 1, 2015. Been a quiet time on the blogosphere for me however I am keeping up with the quick Facebook updates. Success at long last in Te Atatu Peninsula! You can see the glass paneling above. The kind of chair we use is called the Riften Blue Wave Bath Chair. http:/ www.rifton.com/products/bathing-and-toileting-systems/blue-wave-bath-chairs. Riften Blue Wave Chair. Happy does it →. 6 thoughts on “ Moving to a better home. June 2, 2015 at 6:52 am. What a nice bath for Thomas!
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NICU | Minding Thomas
https://mindingthomas.wordpress.com/nicu
Page still in progress. NICU (Newborn Intensive Care Unit). Thomas required only 1 hour of CPAP (Continuous Positive Airway Pressure). In Thomas’ first week in NICU, things were running along smoothly. He was in a cot maintaining his temperature and tolerating NG (Nasal Gastric) feeds well. We were slowly introducing him to the breast and he had his first bath. We were absolutely thrilled with how things were going and we seemed pretty sure he’d be home before Christmas. Leave a Reply Cancel reply. Pleas...
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Thomas | Minding Thomas
https://mindingthomas.wordpress.com/thomas-2
Thomas was born 6 weeks premature on 9th December 2013, a Monday at 10.18pm in Waikato Hospital via emergency cesarean. He weighed 2.010 kilo. He was born with blonde hair and lots of it oh my! A cranial ultrasound showed a bliateral grade III IVH ( intraventricular hemorrhage) and thalamic infarcts. The MRI showed venous haemorrhagic infarct affecting both thalami complicated by extensive IVH and hydrocephalus. Venous sinus thrombosis in the deep system (medullary vein) suggested (the basal ganglia).