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Our angel Thomas and his journey with craniosynostosis - home

thomas and his journey with craniosynostosis

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Our angel Thomas and his journey with craniosynostosis - home | thomasjoseph.weebly.com Reviews
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Our angel Thomas and his journey with craniosynostosis - home | thomasjoseph.weebly.com Reviews

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thomas and his journey with craniosynostosis

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Our angel Thomas and his journey with craniosynostosis - home

http://thomasjoseph.weebly.com/index.html

Our angel Thomas and his journey with craniosynostosis. Surgery updates and photos. Thomas Joseph Phelan, born May 18, 2009. We are so glad that you found our website and hope that Thomas' story and his journey with craniosynostosis. Will provide you with the information and support that you are looking for. And see what we have been up to. Thank you and lots of love,. Cybill Phelan, a very proud Cranio Mommy!

2

support & links - Our angel Thomas and his journey with craniosynostosis

http://thomasjoseph.weebly.com/support--links.html

Our angel Thomas and his journey with craniosynostosis. Surgery updates and photos. Finding support during your cranio journey. Following is a list of websites that have been very helpful to us in our journey with craniosynostosis. They offer assistance, support and may answer questions that you did not even realize you had. They are also a great path to other links, including craniosynostosis websites and blogs. Mikayla Love Harbord and her journey with craniosynostosis. Cranio Kids, South Africa.

3

craniosynostosis - Our angel Thomas and his journey with craniosynostosis

http://thomasjoseph.weebly.com/craniosynostosis.html

Our angel Thomas and his journey with craniosynostosis. Surgery updates and photos. The normal skull consists of several plates of bone, which are separated by fibrous joints called sutures. As an infant grows and develops, the sutures eventually close and form a solid piece of bone, called the skull. Craniosynostosis is a condition in which the sutures close too early, causing problems with normal skull growth. The cause of craniosynostosis is unknown. For further information about the diagnosis of cran...

4

thank you! - Our angel Thomas and his journey with craniosynostosis

http://thomasjoseph.weebly.com/thank-you.html

Our angel Thomas and his journey with craniosynostosis. Surgery updates and photos. Thank you from the bottom of my heart! Thank you to all of my friends and family for your overwhelming love and support during such a heart wrenching and difficult time in our lives. Without all of your positive thoughts and prayers and encouraging emails, we would never have been able to stay so strong. The power of love and family is absolutely incredible! THANK YOU to my girls, Brianna and Katie! And I am confident tha...

5

surgery updates & photos - Our angel Thomas and his journey with craniosynostosis

http://thomasjoseph.weebly.com/surgery-updates--photos.html

Our angel Thomas and his journey with craniosynostosis. Surgery updates and photos. Following are updates about Thomas' surgery and recovery. Because they are emotional and so "in the moment", I honestly feel that the information is crucial. For anyone who is going through the same struggle with craniosynostosis surgery. I want you there with me, in the hospital and by Thomas' side during his recovery in the PICU. As much as I researched and did my homework before surgery, I was certainly NOT. Thank you ...

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mikaylalove.wordpress.com mikaylalove.wordpress.com

Photo Album – August 2009 | Mikayla Love's Blog

https://mikaylalove.wordpress.com/mikayla-loves-journey-of-craniosynostosis/photo-album-august-2009

Mikayla Love's Blog. My Daughter's Journey. Photo Album – August 2009. Mikayla the pirate 8/8/09. Chuck E. Cheese 8/12/09. 2 Comments Add your own. September 2, 2009 at 9:40 pm. Aunt Tara Loves You princess! June 23, 2011 at 2:38 pm. Hi, please give my love to your princess, she is beautiful and what a star! Much love Anna xxx. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). Notify me of new comments via email. Mikay...

mikaylalove.wordpress.com mikaylalove.wordpress.com

Photo Album – July 2009 | Mikayla Love's Blog

https://mikaylalove.wordpress.com/mikayla-loves-journey-of-craniosynostosis/photo-album-july-2009

Mikayla Love's Blog. My Daughter's Journey. Photo Album – July 2009. With brother Mikey playing in the sandbox - 7/6/09. Mikayla deep in thought 7/6/09. Always in fashion - 7/6/09. Mikayla loves corn on the cob - 7/4/09. With big brother Joey. With big brother George. 2 Comments Add your own. July 13, 2009 at 3:24 pm. Awww, your little girl girl is beautiful. I’m thinking good thoughts for all of you but especially that little angel. November 16, 2011 at 6:06 am. GOD BLESS ALL OF YOU. Follow “Mikay...

mikaylalove.wordpress.com mikaylalove.wordpress.com

January | 2010 | Mikayla Love's Blog

https://mikaylalove.wordpress.com/2010/01

Mikayla Love's Blog. My Daughter's Journey. Archive for January 2010. Well what can I saw. It’s here and so far it started off good. Mikayla had a great report at Dr Turtell’s Office who is the Eye Dr who suggested we go to Chops. I thanked him Graciously for saving my daughters life literally. Had we not have gone to him she would have been still not treated for Craniosynostosis. That’s my Princess! January 28, 2010. The month of December. Back in November we met with our Mayor here in Toms River. M...

mikaylalove.wordpress.com mikaylalove.wordpress.com

Posts | Mikayla Love's Blog | My Daughter's Journey

https://mikaylalove.wordpress.com/mikayla-loves-journey-of-craniosynostosis/posts

Mikayla Love's Blog. My Daughter's Journey. Well what can I saw. It’s here and so far it started off good. Mikayla had a great report at Dr Turtell’s Office who is the Eye Dr who suggested we go to Chops. I thanked him Graciously for saving my daughters life literally. Had we not have gone to him she would have been still not treated for Craniosynostosis. That’s my Princess! January 28, 2010. The month of December. Back in November we met with our Mayor here in Toms River. Mayor Kellahar couldn&#8217...

coletwins.blogspot.com coletwins.blogspot.com

Sanity: 06.2008

http://coletwins.blogspot.com/2008_06_01_archive.html

All of these line across my face Tell you the story of who I am So many stories of where Ive been And how I got to where I am. B.C. Kaci King - life with 2 children who have Cranio and Chiari. September 20th, 2008. Here we go AGAIN. My scary, crazy, emotional, exciting week. Nearing the $600.00 mark. Here is a note from Debi -. Also, just an update on Carson. I was able to hunt down a local Neuro surgeon and he agreed to meet us here in the ER. Links to this post. Nearing the $600.00 mark. IF, you are in...

coletwins.blogspot.com coletwins.blogspot.com

Sanity: 03.2009

http://coletwins.blogspot.com/2009_03_01_archive.html

All of these line across my face Tell you the story of who I am So many stories of where Ive been And how I got to where I am. B.C. Kaci King - life with 2 children who have Cranio and Chiari. Tomorrow, my little friend Gabby. Will be in surgery for her craniosynostosis. Please keep her and her family in your prayers. Please say a little prayer for Dr. Jensen as well. Please keep her in your prayers on Friday. Dr. Lyons too, please. Links to this post. Just thought I would post an update. Of course we do!

coletwins.blogspot.com coletwins.blogspot.com

Sanity: 08.2008

http://coletwins.blogspot.com/2008_08_01_archive.html

All of these line across my face Tell you the story of who I am So many stories of where Ive been And how I got to where I am. B.C. Kaci King - life with 2 children who have Cranio and Chiari. And we are off! It even followed us out East! Its a DIFFERENT Green. Did you catch it? That never happened to me. The saddest thing Ive ever seen. Today is surgery day for Carson. She is in as we speak. I will not be posting her progress here. If you care to check in on her, got to. Please keep her in your prayers.

coletwins.blogspot.com coletwins.blogspot.com

Sanity: 07.2008

http://coletwins.blogspot.com/2008_07_01_archive.html

All of these line across my face Tell you the story of who I am So many stories of where Ive been And how I got to where I am. B.C. Kaci King - life with 2 children who have Cranio and Chiari. Are you FLIPPING kidding me? Gain weight, Lose weight, REPEAT. Our 4th of July. Tough enough to wear PINK? Update on HELL week. 6397 miles later - Were Home! Two years and sixteen days later. Lets throw some OIL on the FIRE. Let's throw some OIL on the FIRE. She has been diagnosied with. Treatment for pseudotumor c...

coletwins.blogspot.com coletwins.blogspot.com

Sanity: 03.2008

http://coletwins.blogspot.com/2008_03_01_archive.html

All of these line across my face Tell you the story of who I am So many stories of where Ive been And how I got to where I am. B.C. Kaci King - life with 2 children who have Cranio and Chiari. Add a little bounce to your day. A sad day in Wisconsin. A cause for a cure. Rileys Sponge bob meeting. Im such a bad friend. Chiari coming out of the wood work. Just a few things. Tom would be so proud! Happy friggin St. Pattys day! Laying on the bottom of the pool looking up. Chiari bracelet making party. Riley w...

coletwins.blogspot.com coletwins.blogspot.com

Sanity: 04.2008

http://coletwins.blogspot.com/2008_04_01_archive.html

All of these line across my face Tell you the story of who I am So many stories of where Ive been And how I got to where I am. B.C. Kaci King - life with 2 children who have Cranio and Chiari. 1 week from today. Add another one to the list. 1 foot in front of the other. Happy 34th Birthday to me. Oh what to do. Chiari l: Imagining A Patient's View. We all have them. I’m getting dizzy. Don’t be absurd. I’m staying home. Too tired to go. Go see your doctor. You must be stressed. And get some rest. I came a...

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Our angel Thomas and his journey with craniosynostosis - home

Our angel Thomas and his journey with craniosynostosis. Surgery updates and photos. Thomas Joseph Phelan, born May 18, 2009. We are so glad that you found our website and hope that Thomas' story and his journey with craniosynostosis. Will provide you with the information and support that you are looking for. And see what we have been up to. Thank you and lots of love,. Cybill Phelan, a very proud Cranio Mommy!

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