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Victor's Smile

This blog is filled with recent photos and updates of Victor's progress as he battles the many challenges that stem from his Epilepsy.

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Victor's Smile | vicsmiles.blogspot.com Reviews
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This blog is filled with recent photos and updates of Victor&#39;s progress as he battles the many challenges that stem from his Epilepsy.
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1 victor's smile
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6 rescissions
7 george washington carver
8 posted by victor
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Victor's Smile | vicsmiles.blogspot.com Reviews

https://vicsmiles.blogspot.com

This blog is filled with recent photos and updates of Victor&#39;s progress as he battles the many challenges that stem from his Epilepsy.

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1

Victor's Smile: May 2008

http://vicsmiles.blogspot.com/2008_05_01_archive.html

This blog is filled with recent photos and updates of Victor's progress as he battles the many challenges that stem from his Epilepsy. Wednesday, May 14, 2008. As life would have it yet another 2 months have slipped by. As I look back in the month of March, the one thing that stands out is we began Vision Therapy at the end of the month. Unfortunately. Ntered (late March). With the bright white snow in co. Out and our schedule isn’t quite as hectic. We’ll see (pun intended). Tous occasion. Deborah&#8...

2

Victor's Smile: November 2009

http://vicsmiles.blogspot.com/2009_11_01_archive.html

This blog is filled with recent photos and updates of Victor's progress as he battles the many challenges that stem from his Epilepsy. Tuesday, November 10, 2009. Now that we’re past Halloween and I find myself (again) behind on updates. I feel these past few months have been all about connecting with new people and reconnecting with those that we just don’t get to see very often at all. Pack our bags, get through the airport and security but get on the plane! We all had a great time catching up. With Ga...

3

Victor's Smile: September 2008

http://vicsmiles.blogspot.com/2008_09_01_archive.html

This blog is filled with recent photos and updates of Victor's progress as he battles the many challenges that stem from his Epilepsy. Friday, September 19, 2008. Summer has come and gone and so has our 19 days of beautiful sunshine. While we’ve been trying to make up for lost time; (beginning our summer a bit late) I find myself again, late in putting together this Blog updat. E- -so much for trying to update every week (who was I kidding? Much has happened since. My last update and. That the rest of our.

4

Victor's Smile: Connections!

http://vicsmiles.blogspot.com/2009/11/connections.html

This blog is filled with recent photos and updates of Victor's progress as he battles the many challenges that stem from his Epilepsy. Tuesday, November 10, 2009. Now that we’re past Halloween and I find myself (again) behind on updates. I feel these past few months have been all about connecting with new people and reconnecting with those that we just don’t get to see very often at all. Pack our bags, get through the airport and security but get on the plane! We all had a great time catching up. With Ga...

5

Victor's Smile: July 2008

http://vicsmiles.blogspot.com/2008_07_01_archive.html

This blog is filled with recent photos and updates of Victor's progress as he battles the many challenges that stem from his Epilepsy. Wednesday, July 16, 2008. Post Hospital: Week 1. We have had a wonderful week! Vic’s overall health is really good and he’s showing. Us how much better he feels. Not only has it been great returning home but also we’ve now got Victor moving on the right track and with much laughing! We continue to be amazed by Victor’s o. On top of this laughter, Vic. So far, we feel that...

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Lily Bean's Infantile Spasms Journey: I have much to catch up on...

http://lily-bean.blogspot.com/2009/05/i-have-much-to-catch-up-on.html

Lily Bean's Infantile Spasms Journey. Tuesday, May 26, 2009. I have much to catch up on. I have so much to catch up on. Mostly, Lily is just doing amazing right now. She's really exploding with development, and I just couldn't be prouder. But my dear friend Danielle reminds me in her post. That we need to write about and share it all, because that *IS* life. Life is up and down, and it's not right to just paint a pretty picture of what life with my little epilepsy, autistic baby is like. How many hours a...

lily-bean.blogspot.com lily-bean.blogspot.com

Lily Bean's Infantile Spasms Journey: So much going on...

http://lily-bean.blogspot.com/2009/09/so-much-going-on.html

Lily Bean's Infantile Spasms Journey. Tuesday, September 1, 2009. So much going on. We visited our neurologist today. We're going to increase Lily's vigabatrin dose a little bit, and then we are having an MRI on Friday to make sure that the side effects she experienced last time on vigabatrin are not present this time. We probably won't do an EEG unless we stop seeing spasms. Sigh. That seems so unattainable to me, and it's hard not knowing if Lily still has hypsarrhythmia. Done during the MRI, and Dr&#4...

owenkeithmarshall.blogspot.com owenkeithmarshall.blogspot.com

O. K. M.: October 2009

http://owenkeithmarshall.blogspot.com/2009_10_01_archive.html

A boy and his family. Monday, October 5, 2009. Where oh where have we been? So I have another post that I've been working on the last several days that relates to Infantile Spasms Awareness Week. Which is October 11th through the 17th. But I just had to jump in and do a quick post today while the boys are sleeping. We've been busy the last six weeks, which have included:. 1 Owen going on Topamax. 2 Owen going off Topamax two weeks later. 3 Owen starting a wean off of Vigabatrin. 13 Writing a letter to a ...

lily-bean.blogspot.com lily-bean.blogspot.com

Lily Bean's Infantile Spasms Journey: April 2009

http://lily-bean.blogspot.com/2009_04_01_archive.html

Lily Bean's Infantile Spasms Journey. Wednesday, April 15, 2009. So much going on! Wow, what a few weeks it has been. Lots to share! Todd and drove to Jordan's memorial service on March 28. I'd never met Leslie or Devon in person, so it maybe seemed a little odd to spend a day travelling to support their family. But that's the weird thing with this community of IS parents.you don't need. Devon read an incredibly moving eulogy during the service, and the text can be read here. Sometimes, I don't know!

lily-bean.blogspot.com lily-bean.blogspot.com

Lily Bean's Infantile Spasms Journey: So much going on!

http://lily-bean.blogspot.com/2009/04/so-much-going-on.html

Lily Bean's Infantile Spasms Journey. Wednesday, April 15, 2009. So much going on! Wow, what a few weeks it has been. Lots to share! Todd and drove to Jordan's memorial service on March 28. I'd never met Leslie or Devon in person, so it maybe seemed a little odd to spend a day travelling to support their family. But that's the weird thing with this community of IS parents.you don't need. Devon read an incredibly moving eulogy during the service, and the text can be read here. Sometimes, I don't know!

lily-bean.blogspot.com lily-bean.blogspot.com

Lily Bean's Infantile Spasms Journey: May 2009

http://lily-bean.blogspot.com/2009_05_01_archive.html

Lily Bean's Infantile Spasms Journey. Saturday, May 30, 2009. Why can't I slow down? Firstly, FANTASTIC news for Sophie. She's made it through surgery with great success! All the best case scenarios played out, and hopefully they'll never see another seizure again! But(there's always a "but").I'm finding it hard to just let go and relax. Maybe because I'm so constantly wound up it would take a full week of this to unwind? I don't know. But I just feel antsy. Like I should be doing something. But instead ...

lily-bean.blogspot.com lily-bean.blogspot.com

Lily Bean's Infantile Spasms Journey: Raffle Results!

http://lily-bean.blogspot.com/2009/08/raffle-results.html

Lily Bean's Infantile Spasms Journey. Sunday, August 30, 2009. About a month ago, my wonderful cousin gave us a Seattle Sounders. Jersey signed by all the players on the team to auction off on eBay, and use that money for Lily's hippotherapy. I asked my brother for a little help writing the auction description, and he had an idea to actually run a raffle for the jersey. He took the idea and ran with it, and tonight we pulled the winning ticket. John raised $525, enough for FIVE hippotherapy.

lily-bean.blogspot.com lily-bean.blogspot.com

Lily Bean's Infantile Spasms Journey: September 2009

http://lily-bean.blogspot.com/2009_09_01_archive.html

Lily Bean's Infantile Spasms Journey. Tuesday, September 8, 2009. The first day of school! First things first: Lily's MRI on Friday was NORMAL. This means she is not having the same side effect of vigabatrin that she had last time she was on it. HOORAY! Vigabatrin has been a great medication for helping control seizures (though we're not seizure free), and I would have been VERY disappointed to have to take her off of it. I think it's been great for her development as well. Walking Lily up the driveway:.

lily-bean.blogspot.com lily-bean.blogspot.com

Lily Bean's Infantile Spasms Journey: A Thanksgiving Anniversary

http://lily-bean.blogspot.com/2009/11/thanksgiving-anniversary.html

Lily Bean's Infantile Spasms Journey. Thursday, November 26, 2009. Turns out yesterday (11/25) was the 4 year anniversary of Lily's diagnosis of Infantile Spasms. It is shocking to me that we've survived four years of this devastating disease. Shocking to me that we are no closer to seizure control than we were four years ago, yet Lily walks, smiles, laughs, sits at the table, uses pictures to communicate, and above all else - is HAPPY. Of course, when I read the description - I knew. HIPS-uh-rith-MIA&#4...

lily-bean.blogspot.com lily-bean.blogspot.com

Lily Bean's Infantile Spasms Journey: Woefully behind

http://lily-bean.blogspot.com/2009/08/woefully-behind.html

Lily Bean's Infantile Spasms Journey. Friday, August 14, 2009. I am woefully behind updating Lily Bean's blog. In June, Lily completed her first year of Developmental Preschool! School starts up in about three weeks, so I'm really looking forward to this. Also exciting is that they are piloting an inclusion program this year! Hank is going to get to go to school with Lily two days per week! I'm am absolutely over the moon about this! We are having a revision IEP meeting in a couple weeks. We knew tha...

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Victor's Smile

This blog is filled with recent photos and updates of Victor's progress as he battles the many challenges that stem from his Epilepsy. Friday, April 30, 2010. I begin this post with our most recent events:. Without a doubt, Vic has kept us more on our toes than usual these days. In fact, at the start of spring break Vic began vomiting. At first, we. Chalked it up to a bug sinc. E a classmate also had been sick days before. But then, his vomiting was so odd; it seemed to occur more at night th. The prevac...

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