makingpreciousstrides.org
>Making Precious Strides, Inc.
http://www.makingpreciousstrides.org/fundraising.asp
Help Us Reach Our Goal. In 2011 we raised over $14,000 in net proceeds. This year's goal is to raise over $15,000 for medical research. We can achieve this with your help please donate today. Please send checks made payable to*:. Making Precious Strides, Inc. 3121-D Fire Road #321. Egg Harbor Township, NJ 08234. Please indicate if you would like a receipt mailed to you. L Who We Are.
makingpreciousstrides.org
>Making Precious Strides, Inc.
http://www.makingpreciousstrides.org/get-involved.asp
Want to help out? We are always looking for new people to join our organization. Below are some committees that we currently have that you could join or if you would like to simply volunteer for an event, register as a volunteer using the link to the right. Whatever you’re looking to do, we have a spot for you! Public Relations serves as the liaison between the Board and the media preparing all press releases and written correspondence. The committee also creates a Public Relations Strategic Plan eac...
makingpreciousstrides.org
Making Precious Strides, Inc.
http://www.makingpreciousstrides.org/index.asp
Welcome to MakingPreciousStrides.org. Making Precious Strides, Inc. is a 501(c)(3) nonprofit organization dedicated to raising funds for medical research and generating awareness of Mucopolysaccharidosis Type II (Hunter Syndrome) in South Jersey. We are also committed to providing families affected with Hunter Syndrome with financial aid for medical expenses, therapies and treatments. We Need Your Help. Learn more about Hunter Syndrome through our Education Center. Or make a donation. L Who We Are.
makingpreciousstrides.org
>Making Precious Strides, Inc.
http://www.makingpreciousstrides.org/zachs-corner.asp
Hi, I’m Zach Dearth and welcome to Zach’s Corner! Here you’ll find some interesting things about me like what I enjoy doing as a kid, some photos of me with friends and family, and a regular update (blog) on how I’m fighting Hunter Syndrome and how it’s affecting me. We are both very excited about the new school year, especially since we will be going to the same school. Wanna know more about me? I was diagnosed with Hunter Syndrome in July 2005. I am currently in second grade. I like watching movies.
makingpreciousstrides.org
>Making Precious Strides, Inc.
http://www.makingpreciousstrides.org/education-center.asp
Hunter syndrome, or mucopolysaccharidosis II (MPS II), is a serious genetic disorder that primarily affects males. It interferes with the body's ability to break down and recycle specific mucopolysaccharides (mew-ko-pol-ee-sak-ah- rides), also known as glycosaminoglycans (gli-ko-sah-mee-no-gli-cans) or GAG. Hunter syndrome is one of several related lysosomal storage diseases. Hunter Syndrome Signs and Symptoms. FDA Press Release FDA Approves First Treatment for Hunter Syndrome - July 24, 2006. Discovery ...
makingpreciousstrides.org
>Making Precious Strides, Inc.
http://www.makingpreciousstrides.org/events.asp
Making Precious Strides hosts various community events throughout the year to raise awareness of Hunter Syndrome. Most of the events are also fundraisers for our organization but primarily focus on educating the local community about this rare, life-threatening disease. Here is a list of some of the events that we are hosting or are being held to benefit our organization. Contact Information: Jenna DeCicco. Email: jenna dearth@msn.com. View last year's coverage. On NBC Channel 40. Zach's Run WNY - 2012.
makingpreciousstrides.org
>Making Precious Strides, Inc.
http://www.makingpreciousstrides.org/who-we-are.asp
Making Precious Strides has strong community roots and is located in Atlantic County, New Jersey. MPS, Inc. continues to grow building local awareness and supporting families in the South Jersey area. To increase awareness for Hunter Syndrome (MPS Type II) in South Jersey while raising funds to aid national research initiatives and supporting local families. L Who We Are.
makingpreciousstrides.org
>Making Precious Strides, Inc.
http://www.makingpreciousstrides.org/volunteer.asp
Send us an email. Contact Us to Volunteer. Fill out this form and someone will respond to you shortly. Interested in (Check all that apply):. Serving on a Committee. Becoming an event day volunteer. Serving on the board. Helping with administrative duties. Do you have any specific skills in the following areas? Check all that apply.). L Who We Are.
makingpreciousstrides.org
>Making Precious Strides, Inc.
http://www.makingpreciousstrides.org/public-relations.asp
We are making strides towards building awareness and raisings funds for medical research and family support. Learn more through the following links to community articles:. ZachFest 2012 Press Release. ZachFest 2011 - NBC Channel 40. Zach's Run WNY - StarDailyNews.com. Zach's Run WNY - Fredonia Campus Report. NBC Channel 40 Health Update. Cape May County Herald. Zach's Run 2010 Press Release. Zach's Run 2009 Press Release. Buffet Block Party Raises Over $2,000 Press Release. Zach's Run 2008 Press Release.
