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Home - The 1p36 Family - UK & Ireland
What is 1p36 Deletion? The 1p36 Family - UK and. The 1p36 Family is made up of the families and friends of children born with 1p36 deletion syndrome. 1p36 deletion syndrome is a rare chromosomal disorder that occurs in approx. 1 in 5000 10000 births. It is unlikely that the families will come in to contact with another child with 1p36 deletion syndrome in their local community. Our online community helps us to keep in touch with each other and share experiences and knowledge. We are looking forward to.
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Wat is 1p36 deletiesyndroom? U bevindt zich hier:. Het 1p36 deletiesyndroom is een chromosoomafwijking die nog maar sinds kort goed is vast te stellen met chromosomenonderzoek. Op deze website kunt u informatie vinden over het syndroom, maar ook in contact komen met lotgenoten. Je kunt je vanaf vandaag aanmelden voor de 1p36 Ontmoetingsdag van 30 mei 2015. De locatie is inmiddels ook bekend, Meneer Vos te Nijmegen. Meld je vandaag nog aan via het aanmeldformulier. 1p36 Ontmoetingsdag 30 mei 2015.
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1p36 Aware - Home
Welcome to 1p36Aware. Our Goal is to raise awareness of the congenital genetic disorder known as 1p36 deletion syndrome. Through these pages we hope to let parents know that they are not alone, and help can be found through the advise and guidance of others. We have invited parents to share their 1P36 stories with us, these can be found on the testimonial. Upcoming fund raising and awareness events can be found on the events. Up and coming event this weekend 7th November 2014. Please see the events.
1p36 Deletion Support & Awareness Conference Blog
1p36 Deletion Support and Awareness Conference Blog. A blog dedicated to sharing information about the 1p36 Deletion Support and Awareness Annual Conference. Saturday, May 29, 2010. Online Registration for the 2010 Conference Is Now Open! Online registration for this summer's conference is now open. To reserve your. Place visit http:/ 1p36dsa.org/services.html. Then click Conference, then 2010. Conference. On the registration page is a rundown of the costs, hotel. See you this summer! Parking at the hote...
1p36 Deletion Support & Awareness Blog
Sunday, January 22, 2012. Thank you for visiting the 1p36 Deletion Support and Awareness Blog! This blog has been moved and is now part of the 1p36 DSA webpage. Please visit us there at the link below. 1p36 Deletion Support and Awareness Blog. News and Information about 1p36 Deletion Syndrome. And about the 1p36 DSA organization. Links to this post. Monday, October 17, 2011. Share Halloween photos of your 1p36 child for the 1p36 DSA Fall Newsletter! And include your child’s name and age. We have never go...
1p36 Deletion Support & Awareness - 1p36 DSA Blog
About 1p36 Deletion Syndrome. What is 1p36 Deletion Syndrome? About 1p36 Deletion Syndrome. What is 1p36 Deletion Syndrome? About 1p36 Deletion Syndrome. What is 1p36 Deletion Syndrome? What is 1p36 Deletion Syndrome? Saturday, March 11, 2017 at 6:08PM. Conference Registration, Hotel Reservation and Scholarship Application all now open. Registration for the 2017 Conference is now open. All current information can be found at the conference info page. 1p36 Deletion Support and Awareness is also very happy...
