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1p36 Deletion Support & Awareness Conference Blog

1p36 Deletion Support and Awareness Conference Blog. A blog dedicated to sharing information about the 1p36 Deletion Support and Awareness Annual Conference. Saturday, May 29, 2010. Online Registration for the 2010 Conference Is Now Open! Online registration for this summer's conference is now open. To reserve your. Place visit http:/ 1p36dsa.org/services.html. Then click Conference, then 2010. Conference. On the registration page is a rundown of the costs, hotel. See you this summer! Parking at the hote...

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1p36 Deletion Support and Awareness Conference Blog. A blog dedicated to sharing information about the 1p36 Deletion Support and Awareness Annual Conference. Saturday, May 29, 2010. Online Registration for the 2010 Conference Is Now Open! Online registration for this summer's conference is now open. To reserve your. Place visit http:/ 1p36dsa.org/services.html. Then click Conference, then 2010. Conference. On the registration page is a rundown of the costs, hotel. See you this summer! Parking at the hote...
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1p36 Deletion Support & Awareness Conference Blog | 1p36conference.blogspot.com Reviews

https://1p36conference.blogspot.com

1p36 Deletion Support and Awareness Conference Blog. A blog dedicated to sharing information about the 1p36 Deletion Support and Awareness Annual Conference. Saturday, May 29, 2010. Online Registration for the 2010 Conference Is Now Open! Online registration for this summer's conference is now open. To reserve your. Place visit http:/ 1p36dsa.org/services.html. Then click Conference, then 2010. Conference. On the registration page is a rundown of the costs, hotel. See you this summer! Parking at the hote...

LINKS TO THIS WEBSITE

samuelbartlett.blogspot.com samuelbartlett.blogspot.com

Samuel Bartlett: February 2013

http://samuelbartlett.blogspot.com/2013_02_01_archive.html

Thursday, February 21, 2013. Sammie has had a fantastic year . He is in 1st grade at a lovely school and still loves riding the school bus! His teacher. PT , ST, and OT are all wonderful and have been working him each day and we have seen so much progress! He'll get there.one step at a time! Subscribe to: Posts (Atom). Just the cutest and coolest kiddo on the planet! View my complete profile. Mommy and lilboobers xxoo. 1p36 Deletion Conference Info. I tell him good job anyway! Sammie and Darby feeding th...

samuelbartlett.blogspot.com samuelbartlett.blogspot.com

Samuel Bartlett: April 2009

http://samuelbartlett.blogspot.com/2009_04_01_archive.html

Saturday, April 25, 2009. Hopefully the link works! Here's a link to an article with info about 1p36. The organization is called Unique and they are based in the UK. The info is put together in a very reader friendly way.for those of us who aren't doctors! Http:/ www.rarechromo.org/information/Chromosome%20%201/1p36%20deletion%20FTNW.pdf. Monday, April 20, 2009. Just a few updates about Sammie's 6 month check-ups. The Sammie saw Dr. Hubble, Otolaringologist (sp? And Sammie's tubes look great! The audiolo...

samuelbartlett.blogspot.com samuelbartlett.blogspot.com

Samuel Bartlett: 2010

http://samuelbartlett.blogspot.com/2010/02/2010.html

Monday, February 22, 2010. Been a little bit since my last Sammie Blog! I apologize but we have been super busy like everyone else on the planet =). Sammie is doing great! Preschool is going wonderfully! He just finished a weeks vacation.that I think he enjoyed! I didn't have vacastion so we didn't get real crazy but did enjoy some down time while it lasted! He also brings his leg up when in front of stairs, he steps up on the stair, and with as much weight as he can he'll go up the stair! Sammie loves h...

lexislifewith1p36.blogspot.com lexislifewith1p36.blogspot.com

Lexi's Life with 1p36: October 2009

http://lexislifewith1p36.blogspot.com/2009_10_01_archive.html

Lexi's Life with 1p36. Oct 14, 2009. A lot has happened since my last post. Alexis has started school in a new classroom with a new teacher. So far so good. We have been meeting with Family and Children Services to see what resources are available to Alexis. We have had a prescription written for Alexis' overnight incontinence needs. We have yet to receive them. Alexis has a new brother. He was born on September 2. See our family blog. Subscribe to: Posts (Atom). In her element - catching flakes.

lexislifewith1p36.blogspot.com lexislifewith1p36.blogspot.com

Lexi's Life with 1p36: June 2010

http://lexislifewith1p36.blogspot.com/2010_06_01_archive.html

Lexi's Life with 1p36. Jun 24, 2010. Bathing has been made a lot easier. Eating isn't so messy. She just seems to still not want to use her arm. We will have to work on that. Jun 22, 2010. Alexis had her second outing with her worker (I don't remember the official title). She took Alexis out to the Humane Society. While there they worked on Alexis not talking to strangers and not touching other people. Alexis had a good time. She bugged me all morning until it was time for her to go. Jun 21, 2010. The su...

samuelbartlett.blogspot.com samuelbartlett.blogspot.com

Samuel Bartlett: January 2015

http://samuelbartlett.blogspot.com/2015_01_01_archive.html

Wednesday, January 14, 2015. Another year of growth! It has been a longtime since I've posted about Sammie.I feel neglectful. Though I'm not sure who reads anyway! How wonderful that he is able to recognize the sound, determine where it is coming from, pull himself up to locate it and be rewarded with seeing the "truck"! Sammie enjoys eating and is actually able to consume lots of food and it continues to baffle me as to where it goes? Subscribe to: Posts (Atom). View my complete profile. I swear sometim...

lexislifewith1p36.blogspot.com lexislifewith1p36.blogspot.com

Lexi's Life with 1p36: November 2009

http://lexislifewith1p36.blogspot.com/2009_11_01_archive.html

Lexi's Life with 1p36. Nov 20, 2009. Alexis loves her siblings. Here is a moment with Mikey before Halloween. Labels: Lexi and Mikey. Nov 6, 2009. Alexis loves music. Her favorite soundtrack is Disney's Cinderella. We always get the play by play on what part of the movie the music is playing. It always makes her giggle. Music brings her great joy. Most times music will bring peace into our home. I have found that when I play quiet peaceful music, Alexis becomes more calm. Subscribe to: Posts (Atom).

lexislifewith1p36.blogspot.com lexislifewith1p36.blogspot.com

Lexi's Life with 1p36: Sedated Hearing Test

http://lexislifewith1p36.blogspot.com/2011/01/sedated-hearing-test.html

Lexi's Life with 1p36. Jan 18, 2011. Subscribe to: Post Comments (Atom). In her element - catching flakes. Alexis was born on Christmas Day in 1997. She was diagnosed with the chromosome deletion 1p36 when she was six years old. It has taken a long time for her to see much success, but we are delighted in every small step she makes. I hope that you find this blog helpful. Lexis School Birthday Party. Click image to learn more. Click image to learn more. 1p36 Friend's Blog List. God Gave Us You.

lexislifewith1p36.blogspot.com lexislifewith1p36.blogspot.com

Lexi's Life with 1p36: February 2010

http://lexislifewith1p36.blogspot.com/2010_02_01_archive.html

Lexi's Life with 1p36. Feb 28, 2010. Alexis participated in the freestyle assisted with flotation and the backstroke assisted with flotation. She got third in both races. We are so proud of her. When it comes to swimming she doesn't go very fast because she doesn't want to get out of the pool. Showering after the race. She hates showers. I made her smile for me. After wards with part of her cheer team. Grandma Burton, Grandpa Burton, Daddy and Emily had left by the time we took our picture. Feb 1, 2010.

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Wat is 1p36 deletiesyndroom? U bevindt zich hier:. Het 1p36 deletiesyndroom is een chromosoomafwijking die nog maar sinds kort goed is vast te stellen met chromosomenonderzoek. Op deze website kunt u informatie vinden over het syndroom, maar ook in contact komen met lotgenoten. Je kunt je vanaf vandaag aanmelden voor de 1p36 Ontmoetingsdag van 30 mei 2015. De locatie is inmiddels ook bekend, Meneer Vos te Nijmegen. Meld je vandaag nog aan via het aanmeldformulier. 1p36 Ontmoetingsdag 30 mei 2015.

1p365.com 1p365.com

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1p36aware.com 1p36aware.com

1p36 Aware - Home

Welcome to 1p36Aware. Our Goal is to raise awareness of the congenital genetic disorder known as 1p36 deletion syndrome. Through these pages we hope to let parents know that they are not alone, and help can be found through the advise and guidance of others. We have invited parents to share their 1P36 stories with us, these can be found on the testimonial. Upcoming fund raising and awareness events can be found on the events. Up and coming event this weekend 7th November 2014. Please see the events.

1p36conference.blogspot.com 1p36conference.blogspot.com

1p36 Deletion Support & Awareness Conference Blog

1p36 Deletion Support and Awareness Conference Blog. A blog dedicated to sharing information about the 1p36 Deletion Support and Awareness Annual Conference. Saturday, May 29, 2010. Online Registration for the 2010 Conference Is Now Open! Online registration for this summer's conference is now open. To reserve your. Place visit http:/ 1p36dsa.org/services.html. Then click Conference, then 2010. Conference. On the registration page is a rundown of the costs, hotel. See you this summer! Parking at the hote...

1p36dsa.blogspot.com 1p36dsa.blogspot.com

1p36 Deletion Support & Awareness Blog

Sunday, January 22, 2012. Thank you for visiting the 1p36 Deletion Support and Awareness Blog! This blog has been moved and is now part of the 1p36 DSA webpage. Please visit us there at the link below. 1p36 Deletion Support and Awareness Blog. News and Information about 1p36 Deletion Syndrome. And about the 1p36 DSA organization. Links to this post. Monday, October 17, 2011. Share Halloween photos of your 1p36 child for the 1p36 DSA Fall Newsletter! And include your child’s name and age. We have never go...

1p36dsa.org 1p36dsa.org

1p36 Deletion Support & Awareness - 1p36 DSA Blog

About 1p36 Deletion Syndrome. What is 1p36 Deletion Syndrome? About 1p36 Deletion Syndrome. What is 1p36 Deletion Syndrome? About 1p36 Deletion Syndrome. What is 1p36 Deletion Syndrome? What is 1p36 Deletion Syndrome? Saturday, March 11, 2017 at 6:08PM. Conference Registration, Hotel Reservation and Scholarship Application all now open. Registration for the 2017 Conference is now open. All current information can be found at the conference info page. 1p36 Deletion Support and Awareness is also very happy...

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